An update on access to triple therapy drugs to treat cystic fibrosis and our engagement with @VertexPharma in Wales. I am also writing to @cftrust with an update.
An update on access to triple therapy drugs to treat cystic fibrosis and our engagement with @VertexPharma in Wales. I am also writing to @cftrust with an update.
@vaughangething @VertexPharma @cftrust We need something with more positive intent from Mr Gething for Wales. I can only assume that you have no idea of the way you're playing with people's lives and insulting their very existences with your talk of "value". Please do better....and quickly.
@vaughangething @VertexPharma @cftrust A disappointing 'update' for Wales....
@vaughangething @VertexPharma @cftrust Come on Mr Gething let’s get this deal over the line this new treatment will significantly improve the lives of people with Cystic Fibrosis !! #kaftrio #cysticfibrosis #lifesavingdrugs
@vaughangething @VertexPharma @cftrust How long are you going to make us wait this time Vaughn? 2 months after England have it? Again? How many “updates” before we actually get the news we deserve here in Wales.
@vaughangething @VertexPharma @cftrust The only thing that classes as an update and worth tweeting about is to announce that Wales has accepted the deal that Vertex have offered. So accept it and stop dragging it out like you did before ! Time is ticking !
@vaughangething @VertexPharma @cftrust Sorry @vaughangething but at what point will #kaftrio be unsuitable for CF sufferers in Wales. If you want to judge the value of the triple therapy, go out and meet somebody with CF
@vaughangething @VertexPharma @cftrust This is a shoddy announcement and barely an update. We already knew this!!! Please don’t drag us along waiting like you did with symkevi! This is people’s lives you are dealing with!!!! Vertex have offered Wales the same deal as England just take it!!!!!
@vaughangething @VertexPharma @cftrust Yes come on Vaughan Gething stop playing power games with peoples lives.
@vaughangething @VertexPharma @cftrust The “value” of the triple therapy is that it SAVES LIVES. What more do you want?! Get Wales a deal now!
@vaughangething @VertexPharma @cftrust This should be a day of celebration for ALL cystic fibrosis sufferers in ALL nations of the U.K. that could benefit from these drugs but instead your letter is disheartening. Don’t put us through a painful wait AGAIN