Vevs Hughes š“ó §ó ¢ó ·ó ¬ó ³ó æ @vevshughes
Trying to negotiate Stage 4 BC for almost 9 years. Looking for others who understand the good, the bad and the ugly. No DMās or hatred please. Iām doing my best Wales, United Kingdom Joined April 2019-
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Iām still here, still sitting with my cancer. Itās behaving, for now. We stopped squabbling. We accept that this is now our life together. Since I shifted this gear from loneliness, fear, isolation, anger at life, and sat down quietly. I realised that I would not swap my life forā¦
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I love gardening. Itās my hobby, it calms me and seeing growth helps me to focus on my own ability to keep growing even during my darkest days. For every day in the garden I suffer from debilitating back pain for days afterwards. Will I stop gardening/walking/Pilates? No way, Iā¦
Iām setting up a Welsh web based support group in Welsh for any person who would benefit from hearing other peopleās stories, listening to my story. At the moment it is focussing on Living with Cancer. However Ffynnu.cymru will be available to all Welsh Speakers livingā¦
My amazing oncologist tried to phone me today but I was on the phone to a lovely friend. When I phoned back I spoke to his nurse. Iāve not had the full result back BUT if I am right not only is Capivasertib keeping me stable itās also chomping its way through my cancer cells.ā¦
If, and only if, this year works out for me I might be the luckiest lady in the world. No, I wonāt live any longer but, my pension pot is so close. I have checked SO many times that Trev can collect it if Iām not here BUT, if I live until October Iāve surpassed all expectation
Is there a setting on your carās Sat nav that wonāt send you on Motorways? Just spent 2.5 hours driving through random villages on a normal 1.5 hour journey. It was lovely but so slow!
First CT Scan since starting Capivasertib on Wednesday, also MRI spine and pelvis for right hip pain. I try not to be but I am absolutely terrified. Life can turn on a pinhead. I feel so well. Except for excruciating right hip pain. Which has resolved today š¤¦š¼āāļø Typical
facebook.com/share/1Bxhf8Diā¦ Iāve never really shared much of my experience with people about Living with Cancer. I have always been protective of my children and family. However, the time feels right to share this as it may just help others living with Stage 4 Cancer. #thankscancer
Today I was asked how Iāve managed to live so long. I really donāt know. I took the decision to live the same life that Iāve always lived at a slower pace. I drink wine, occasionally, eat a fair amount of chics, we do eat cleanly. Homemade, good food and we drink lots of water
Tomorrow is our 18th wedding anniversary. 17 of those years have been living with the shadow of cancer. Cancer can destroy many things but it canāt destroy our love. We are the lucky ones and I thank my little angel everyday for the opportunities that we have been given
I am on a mission to provide a service in Welsh for people living with cancer who feel more comfortable speaking and listening in Welsh. There will be reels, podcasts, a webpage with interactive story boards and links on all platforms. If anybody would have any interest in beingā¦
He lit up my life and I know that he is never far. When we both are in our garden, thatās when I feel him loving me so much and holding my hand. Dementia stripped him of so many things, but he said āgoodbye Vevsā my pet name a few weeks before he died. This is my dad Vinny and Iā¦
Capivasertib is working!!! My ca125, I have lobular MBC, most of my sites for metastases are abdominal, bowel or reproductive organs, is down from a peak of 71 on Christmas Eve, thanks mate, to 10. That is phenomenal for my body. I am beyond happy. Pics of my happy place
So itās cancer survivor day. All in all 17 years of that stupid rain cloud hanging over me. Almost 19 of those years sh*t scared that i was going to die imminently. 5 good friends lost, my mother being diagnosed stage 4. Iāve retired because I canāt stand conflict and resolution.ā¦
My little online gift shop to buy Welsh language gifts for friends with cancer including a range of Welsh Cards and clothing, gift merchandise. I am in the process of setting up a Welsh podcast. I will be hosting it but could do with a Stage 4 co presenter who is also thriving.ā¦
Iām going to step right out of my shell and start a new podcast in Welsh for Welsh speakers who would benefit from a podcast, by me, initially in Welsh but with an English version. Iām going to start selling gifts for newly diagnosed sufferers . The Welsh version is callā¦
I always seem to be maudlin here. Iām not, at all, like this in reality. Itās just if i complain of anything publicly itās like dialling 222 for the arrest team and Iām swamped with love and well meaning sympathy. Very often the thing that i would most like is somebody justā¦
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