Annabelles Challenge Vascular EDS Charity @AJsChallenge
We support patients & families touched by #VascularEDS working with NHS EDS Service. Proud recipients of The Queen’s Award. https://t.co/ZFzwUbyepZ 🧬 facebook.com/annabelleschal… Bury, Manchester UK Joined February 2013-
Tweets14K
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Followers3K
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Following1K
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Likes7K
Big shout out and thank you to TM Adam on the @AvantiWestCoast 1713 EUS to MAN today. Great customer service! 👏
Our incredible @easyuk community has raised £33.62 for Annabelle's Challenge this #DonationDay! Help continue our success by supporting us on @easyuk. Sign up & turn your online shopping at over 8,000 retailers into free donations: join.easyfundraising.org.uk/annabelleschal…
Proudly supporting @Collabor8Bury today, celebrating multiculturalism, faith and diversity and volunteer organisations. Also at the event were emergency vehicles 🚔 police, fire 🚒 , army and ambulance service 🚑
Join us this Wednesday at @derbyhighbury for the @Collabor8Bury free event, bringing communities together. Starts at 12pm.
"It is so rare that even not many doctors or nurses know enough about it" chroniclelive.co.uk/news/north-eas…
Thank you @thedingleschool for supporting Annabelle's Challenge on @reds4veds Day, it is much appreciated and well done on raising £165.76 for us.
Thank you @thedingleschool for supporting Annabelle's Challenge on @reds4veds Day, it is much appreciated and well done on raising £165.76 for us.
Final update on our #SmallCharityWeek Big Give campaign, £10,140 raised in 7 days which will fund 20 families for the next VEDS Retreat Weekend. Overall £18,500 raised in June. Thank you for your support this month and especially during @smallcharityweek! @NCVO @makenoise
We hit target! Thank you to everyone who has donated so far this #SmallCharityWeek, over £10k raised to help us support more families affected by #vascularEDS.
Today we were delighted to attend the Bury VCFA Grants Celebration Event during #SmallCharityWeek. It was lovely to listen to some of the great work being done by small volunteer groups and organisations in Bury. Thank you @BuryVCFA @burymayor @BuryCouncil
It's incredible to see @AJsChallenge's campaign front and centre! Our RARE Revolution team are delighted to have played a part in making this happen for a great charity.
It's incredible to see @AJsChallenge's campaign front and centre! Our RARE Revolution team are delighted to have played a part in making this happen for a great charity.
Great to see our awareness campaign alongside @AudiUK A6 e-tron ad today in Euston Station. ‘We Deserve More Tomorrows’. #vascularEDS #RareDisease
Our awareness campaign ‘We Deserve More Tomorrows’ live again across the UK. Proud moment for AC to see the campaign alongside some of the biggest global brands in one of the UK’s busiest transport hubs at London Euston. #smallcharityweek #biggive @NCVO @RareRevolutionM
Our #SmallCharityWeek match funding campaign is now LIVE.🎉 If you donate to a small charity, your gift will be doubled. That means twice the impact for over 180 small charities providing vital, local, and life-changing support. Make your donation now: bit.ly/BigGive-SCW
Lookin’ good Team!
Happy birthday Danika! 🎉 On your special day, we want you to know how much your hard work and kindness mean to us at Annabelle's Challenge. You truly make a difference for our vEDS community, and we're lucky to have you on our team. 💜
Christina has been volunteering with us for 12 years since Annabelle's Challenge was established in January 2013. Thank you Christina, we appreciate everything you do for us. #VolunteersWeek @NCVO
Today we celebrate 7 years since proudly receiving The Queens Award for Voluntary Service on behalf of all our amazing volunteers. We support patients & families affected by #vascularEDS, a rare genetic disorder. #VolunteersWeek @NCVO @AndyBurnhamGM @GMLO_UK
1 day to go! We are celebrating our amazing volunteers June 2 - 8 during #volunteersweek 💜
My friend Broughton Astley is fundraising for Annabelles Challenge. Check out their @JustGiving page and please donate if you can. Thank you! #JustGiving justgiving.com/page/balcwolfr… @AJsChallenge

Ehlers-Danlos Support... @ehlersdanlosuk
18K Followers 10K Following EDS UK is committed to changing the futures of people with Ehlers-Danlos syndrome (EDS) and HSD. With awareness and early diagnosis we can change lives.
The Ehlers-Danlos Soc... @TheEDSociety
24K Followers 5K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
Hypermobility MD: Dr ... @BluesteinLinda
9K Followers 697 Following 🦓 Mayo Clinic trained EDS, HSD, MCAS & Pain expert🎙Host Bendy Bodies Podcast 🩺Information, not medical advice.
EDS Awareness @EDSawareness1
10K Followers 3K Following An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians.
Jeannie Di Bon @jdibon
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OhTWIST.bsky.social n... @H2OhTwist
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Emma Reinhold @DrEReinhold
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Ryan Rodarmer, MS �... @3rsCardioGC
809 Followers 845 Following Director @VEDSMovement, @MarfanFdn | Veteran Cardio GC | Type A #AorticDissection survivor due to unknown syndrome | Opinions are my own. #AortaEd
Unique @Unique_charity
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Dr Carl Austin-Behan ... @CarlAustinBehan
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636 Followers 550 Following Through research, education, and support, The VEDS Movement, a division of The @MarfanFdn, charges forward to improve the outcomes for those living with VEDS.
Isobel Knight @IsobelKnight2
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Tulin @Lyhrarh9Tulin
137 Followers 2K Following I am Duaa from Gaza. I am living through the genocide. I ask everyone who can. I have two children. Participate in my campaign.
Paul Park 🇺🇦�... @baldosa11
165 Followers 270 Following Cultural Apologist, Political Theologian, Culer: 즐겨라, 웃어라, 나눠라~ (Enjoy, Laugh, Share~) Assistant Professor of Systematic Theology (Torch Trinity Graduate U)
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smoke420 @bi_guy200
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Endovascular Therapy @JEndovascularT
106 Followers 1K Following Official Account for the Journal of Endovascular Therapy
Vascular Medical Grou... @VasularGroup
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Edinburgh Aortic Summ... @EdiAorticSummit
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0 Followers 63 Following working to highlight rare genetic and rare health conditions
Ataxia and Me CIO 118... @Ataxia_and_Me
4K Followers 3K Following #Ataxia is a #raredisease affecting #Balance #Speech and #Coordination #Patients Helping Patients #MovementDisorder #Health #Medical #pharma
CherylT @joyfulron
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Darren @ridden_darren
129 Followers 40 Following Very proud Dad, Grandad and Husband. NUFC, Horse racing, enjoy a pint and a punt.
Mary Weir @marywm7
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Jessica Sharkey @jessmsharkey
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The ED Society @EDSocietyUK
219 Followers 381 Following Our vision is that every individual affected by Ectoderma Dysplasia is equipped with the knowledge needed to manage ED effectively and live life to the full.
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Krystyna1 @krys_phillips1
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Mehmet Alagoz, MD @alagozmhmt
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parent of pugs @senmum05
876 Followers 2K Following ADHDer EDSer DV survivor living my best life mummy to children all ASD ADHD
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1 Followers 150 Following
Becky Watkins @watbexmadbox
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Bury FC Juniors U18 G... @U16Fc16477
347 Followers 4K Following
Loeys-Dietz Canada @LDSFCanada
117 Followers 141 Following Encouraging education and research, and supporting the LDS community. Favoriser l’éducation et la recherche, et fournir un soutien à la communauté LDS.
𝕗𝕒𝕚𝕥𝕙�... @faithfulviewer
613 Followers 4K Following ♀ #DT 10/14 David Tennant 💙💙#DW #RTD Doctor Who #F1 Formula One #TT Thatter #GBArmy 16/10/14 #JB Jenson Button #Ancestry Amateur Genealogist
Ehlers-Danlos Support... @ehlersdanlosuk
18K Followers 10K Following EDS UK is committed to changing the futures of people with Ehlers-Danlos syndrome (EDS) and HSD. With awareness and early diagnosis we can change lives.
The Ehlers-Danlos Soc... @TheEDSociety
24K Followers 5K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
Jeannie Di Bon @jdibon
11K Followers 1K Following Hypermobility Soecialist | Movement Educator | Author of "Hypermobility Without Tears" | https://t.co/apnb28QRmw | Founder & CEO of The Zebra Club
OhTWIST.bsky.social n... @H2OhTwist
8K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely diagnosed.
Professor Lara Bloom @LaraBloom
7K Followers 1K Following President & CEO @TheEDSociety•Prof of Practice Patient Engagement & Global Collaboration•Rare & Chronic Disease Advocate•🏳️🌈Gay•She/Her• Views my own
Genomics Education @genomicsedu
22K Followers 2K Following NHS England's Genomics Education Programme. Providing knowledge, skills and experience in #genomics #NHSgms #genomes100K #NHS #GenomicsConversation
Emma Reinhold @DrEReinhold
7K Followers 4K Following Former GP/Research/Advisor on #EDS #MCAS #MUS #fatigue #EDI Disabled🌈ally #NHS #gardening #miniatures Often irreverent Never disrespectful Views are mine, obvs
David Catterall DL @_DavidCatterall
2K Followers 2K Following Out and about in Bury. Deputy Lieutenant, Co-Chair of the Bury LGBTQI+ Forum and Annabelle’s Challenge. Recipients of the Kings Award for Voluntary Service
hypermobility.org @HMSACharity
12K Followers 7K Following Supporting people with connective tissue disorders or hypermobility related health problems, including but not limited to Ehlers-Danlos, Marfan & Stickler etc.
Stickman Communicatio... @stickmancrips
7K Followers 6K Following Stickman Communications Ltd: Creating understanding of disability related needs and issues. Run by Hannah Ensor. Now also on spoutible.
NHS Genomic Medicine ... @NHSgms
7K Followers 784 Following Information for and from the NHS Genomic Medicine Service 🧬 #Genomics. https://t.co/MizyyMpX02…
Ryan Rodarmer, MS �... @3rsCardioGC
809 Followers 845 Following Director @VEDSMovement, @MarfanFdn | Veteran Cardio GC | Type A #AorticDissection survivor due to unknown syndrome | Opinions are my own. #AortaEd
Unique @Unique_charity
8K Followers 2K Following Unique supports and informs anyone born w/a rare chromosome or gene disorder, their families and carers. Eurordis Patient Organisation Award winner.
Marga Peralta @mapeav75
988 Followers 617 Following Ingeniera informática un poco friki dando la lata para que se conozca el #ehlersdanlos. Colaborando con @ANSEDH.
Dr Carl Austin-Behan ... @CarlAustinBehan
13K Followers 12K Following Gtr Mcr LGBTQ+ Community Ambassador, Deputy Lieutenant of Greater Manchester - @GMLO_UK Public Speaker, RAF Veteran. Trustee @4EVERManchester 🏳️🌈
The VEDS Movement @VEDSMovement
636 Followers 550 Following Through research, education, and support, The VEDS Movement, a division of The @MarfanFdn, charges forward to improve the outcomes for those living with VEDS.
Isobel Knight @IsobelKnight2
8K Followers 12K Following Internationally published author on hypermobile Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Narrative Medicine & Bowen Technique.
Gareth Owens @Icarus1054
1K Followers 1K Following Welsh Physicist, Chartered IT Professional / Executive; singer, aviator, genealogist, classic BMW enthusiast, Aortic Dissection survivor & Patient Advocate
Steel Zebras 🦓 ♿... @Zebrafishspoony
4K Followers 5K Following We are real life Zebras! We have Ehlers-Danlos Syndrome hypermobile type, with crossover, plus other delightful stuff. All opinions are our own.
Aortic Dissection Cha... @AorticDissectCT
7K Followers 2K Following Saving lives by improving the diagnosis of #aorticdissection, bringing treatment consistency across the whole patient pathway #AortaEd, policy change & research
Vascular Medical Grou... @VasularGroup
34 Followers 219 Following Vascular Medical Group, led by Orwa Falah, delivers expert, innovative care in complex aortic and vascular surgery
Global's Make Some No... @makenoise
10K Followers 3K Following We fund and support brilliant small charities across the UK, making sure nobody is left facing their toughest challenges alone 💙 #MakeSomeNoise
NCVO @NCVO
84K Followers 14K Following The National Council for Voluntary Organisations - championing the remarkable role of charities and volunteers
HenwoodCourt @Henwood_Court
257 Followers 106 Following A multi award winning lifestyle based chartered financial planning wealth boutique for successful established business owners #creatingyourtomorrow
LENI Research Group -... @LENIResearch
47 Followers 44 Following LENI’s work brings together academics, clinicians and members of the public, based at the department of Nursing and Midwifery of Sheffield Hallam University.
Edinburgh Aortic Summ... @EdiAorticSummit
321 Followers 1K Following Join us at the Edinburgh Aortic Summit 2026 . #EASummit2026
Merissa Elizabeth Hic... @MerissaEHickman
164 Followers 446 Following Wellcome Trust DTP PhD Student | Part of @SocSciHealth | MPhil in Genomic Medicine | https://t.co/pS5d0AH7Tb
Dr Saghira Malik Shar... @SaghiraMSharif
279 Followers 671 Following PhD, Principal Genetic Counsellor | Prenatal Genetics | Passionate for enhancing equality, diversity and inclusion in Genomics🧬
Rachel Horton @rach_horton
545 Followers 892 Following @wellcometrust PhD student/genetics registrar @NDMOxford and JRF @cpmoxford @stannescollege interested in #ethics and #genetics
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78 Followers 90 Following Vice Chair @theAGNC Passionate about genetic counselling, patient advocacy and all things DNA. Opinions my own.
Ataxia and Me CIO 118... @Ataxia_and_Me
4K Followers 3K Following #Ataxia is a #raredisease affecting #Balance #Speech and #Coordination #Patients Helping Patients #MovementDisorder #Health #Medical #pharma
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54K Followers 2K Following Actor & Activist RTS Award winning Presenter - Better Off Dead? https://t.co/l2hpobTmna Olivier Award 2022 Silent Witness, Witcher, Good Omens & Loki
Mary Weir @marywm7
686 Followers 156 Following Co-Founder Event Industry Assoc of Ireland(EIAI). Ice for Ireland Supporter. Work at Dublin City Council. All views expressed here are my own personal views.
BHF Clinical Research... @bhfcrc
78 Followers 58 Following The British Heart Foundation Clinical Research Collaborative
Circulation Foundatio... @CircFoundation
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PREM Management @PREMManagement
2K Followers 1K Following Public Relations, Event, Media, Talent and Visual Management, it's what we do.
HBA Support @hba_support
184 Followers 443 Following Increasing awareness of hereditary brain aneurysms, campaigning for improved patient support and building research into the condition
UHNM Charity 🏥 @UHNMCharity
4K Followers 1K Following UHNM Charity is working to make a real difference at the Royal Stoke University Hospital and County Hospital, Stafford. Part of @UHNM_NHS.
The ED Society @EDSocietyUK
219 Followers 381 Following Our vision is that every individual affected by Ectoderma Dysplasia is equipped with the knowledge needed to manage ED effectively and live life to the full.
Octavian Therapeutics @OctavianRX
2K Followers 2K Following A biotech company combining cannabinoid medicine with world-class scientific research.
Loeys-Dietz Canada @LDSFCanada
117 Followers 141 Following Encouraging education and research, and supporting the LDS community. Favoriser l’éducation et la recherche, et fournir un soutien à la communauté LDS.
Terumo Aortic @TerumoAortic
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253 Followers 468 Following Medical geneticist & consultant genetic Counsellor in Preimplantation Genetic Testing. A 👩🏻🎨🎨 who ❤️🧬, 🎵, 🍷& Lac Léman!
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215 Followers 365 Following 🧬 Consultant Genetic Counsellor at Birmingham Clincal Genetics Unit ☆ Rare Disease Team Leader ☆Fetal Genomics Group☆MSc Genomic Medicine ☆Ex PICU nurse.
Tahni-Ann Wilson @tin_wilson
197 Followers 344 Following Regd. Genetic Counsellor in Paed & Adult Cardiac&Respiratory Genetics, RBHH, NHS. Photographer. Mum to Peanut, JRT. My views are my own (she/her).
Centre for NMAHP Rese... @uhnmcenree
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27 Followers 42 Following
Life of Flow | Vascul... @vascularpodcast
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NIHR Cambridge Biomed... @CambridgeBRC
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Liz Twist MP @LizTwistMP
6K Followers 779 Following Member of Parliament for the new constituency of Blaydon and Consett.
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Room to Reward @RoomToReward
1K Followers 1K Following A charity created for charities and community groups to say 'thank you' to their inspirational volunteers with a hotel break from unsold rooms. https://t.co/YK685iolJT
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Zevra Therapeutics @zevratx
684 Followers 80 Following We are a nimble rare disease therapeutics company with a proven record of bringing new therapies to patients. $ZVRA
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8K Followers 2K Following Junior teams U7-U18 Tandridge & Kent Youth League. Girls KGLFL. Ladies SECWFL. 1st Team SCEFL Premier (Step 5)
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North East & Yorkshir... @NEYGenomics
1K Followers 491 Following Embedding genomics into routine clinical care, delivering faster and more accurate diagnoses, personalised treatment, and prevention.
The Sandcastle Trust @SandcastleTrust
437 Followers 1K Following We no longer post on this platform. Please visit us on Facebook, Instagram or LinkedIn
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27K Followers 2K Following The Royal Society of Medicine is a leading provider of continuing learning to healthcare professionals. Our vision: better healthcare for better lives.
LHCH @LHCHFT
8K Followers 1K Following Liverpool Heart and Chest Hospital is a twice-rated outstanding trust and one of the largest specialist heart and chest hospitals in the country.
Mayor of Bury @burymayor
1K Followers 847 Following Councillor Noel Bayley, Mayor of Bury Ms Gill Campbell, Mayoress 2025-26 His Mayoral Charities this year will be Early Break and Bury Blind Society.
Cambridge Bioscience @CambridgeBiosci
2K Followers 2K Following We're a leading distributor of cutting edge life science research products. Follow for the latest #bioscience news and #research