ASH Research Collaborative @ASHCollab
Non-profit organization established by @ASH_Hematology to improve the lives of people affected by blood diseases and accelerate progress in #hematology. ashresearchcollaborative.org Washington, DC Joined June 2019-
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Now available: the 2025 Sickle Cell Disease Data Hub Report — the first report from the ASH RC’s SCD Data Hub Program. These data, based on real world data, lay the foundation for future research, policy, and improved care for the SCD community. 🔗 ow.ly/TYIO50WbX8B
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Looking for Spanish-language resources on #SickleCell clinical trials? The Clinical Trials Resource Library offers trusted education created with the community to help you navigate research. 🔗 ow.ly/B6JH50W8Z3A #Hematology
¿Buscas recursos en español sobre ensayos clínicos en la enfermedad de células falciformes? La Biblioteca de Recursos sobre Ensayos Clínicos ofrece educación confiable creada con la comunidad para ayudarte a comprender la investigación. 🔗 ow.ly/i4Tg50W8Z2v
💡 Trusted info. Real voices. Easy-to-follow videos–-also in Spanish. The Clinical Trials Resource Library is your starting point for the #SickleCell disease, curated by ASH RC National Community Advisory Board. Learn more: ➡️ ow.ly/fo0W50VZCJQ #Hematology
La Biblioteca de Recursos sobre Ensayos Clínicos es tu punto de partida para aprender sobre la enfermedad de células falciformes, curada por el Comité Asesor Nacional Comunitario del ASH RC. 🔗 ow.ly/HNc650VZCPv
Sickle cell research must focus on those it serves. Drs. Betty Pace and Titilope Fasipe advocate for prioritizing lived experience and voices of those with SCD. 🔗Read now: healthaffairs.org/content/forefr… #Hematology #SickleCell
🧪 On this #ClinicalTrialsDay, we highlight Dr. Rivlin's CAB study at NYH&H Through hands-on, experiential learning. Learn more: ow.ly/YbcC50VVKqc #Hematology #SickleCell #CommunityLedResearch #ClinicalTrials
Sickle cell disease is the most common inherited blood disorder in the U.S.—but we still don’t have the data we need to fully understand it. Drs. Wun and Wood urge investment in real-world data systems for better care. 🔗 Read: healthaffairs.org/content/forefr… #Hematology #SickleCell
📢 Clinicians! Have you treated a patient with CAR-T therapy? The CAR-T Toxicities Consortium, of which ASH RC is a member, is conducting a survey to improve management. Take the survey now: ow.ly/Aqkb50VtaIY
Exciting leadership updates at the ASH RC! The ASH RC Board of Directors has elected Andrew (Andy) M. Evens, DO, MBA, MSc as Vice Chair and appointed Christine (Chris) McEntee, MSN, MHA as a new Director. #Hematology #MedTwitter
The new ASH RC Clinical Research Library is curated by our advisory board of individuals living with #SickleCellDisease. They ensure we include topics you want to know about, like how #ClinicalTrials researchers protect your data. Learn more: ow.ly/bRIR50USOrv 📚
Before you decide to join a clinical trial, researchers will provide detailed info on the purpose, procedures, risks, & benefits that should be easy to understand. This is informed consent. 💡 📚Learn about the power of choice in #SickleCell research: ow.ly/8IKu50USOoi
Become as savvy about clinical research for #SickleCellDisease as you are about your own health. 💪🗣️❤️ Get answers to your questions in our new library, curated by our National Community Advisory Board & vetted by #SickleCell research experts: ow.ly/vxtR50USOkA
It's now easier to get information about participating in #ClinicalTrials for #SickleCellDisease. Introducing the ASH RC Clinical Research Education Library, curated by our National Community Advisory Board & vetted by #SickleCell research experts! 📚 ow.ly/TNrc50USOfv
🚨 Apply for the ASH RC SCD Research Network Council! 📢 SCD research sites, this is your opportunity to join the fight to advance #SickleCell therapeutics and improve care. 🔗 Learn more and apply today: ow.ly/CMjz50UWZEf #SCDResearch #hematology
ASH Research Collaborative retweeted
🚨 No evidence links #sicklecell trait to sudden death or acute pain crises. It is medically inaccurate to claim SCT as a cause of death on an autopsy report. Learn more about the findings from ASH published in @BloodJournal. 🩸 ow.ly/aE6x50UQlV7 #MedTwitter #SCD
📢 Attention SCD Research Sites! ASH RC is calling for applications to join the SCD Research Network Council & help advance #SCD therapeutics & care starting Feb 10, 2025! 📅 🔗 Join the distribution list to receive more info: ow.ly/nPgQ50UMKzp #SickleCell #hematology
Join us for these two sessions today at #ASH24🩸 #SickleCell #ConquerSCD #SCDAwareness
The ASH RC Data Hub’s Multiple Myeloma Program can feasibly collect patient data from its participating sites for prospective evidence generation, according to new research presented today at #ASH24: ow.ly/vEuY50Un726 #myeloma
ASH RC Data Hub Accurately Confirms SCD Diagnosis Type: ow.ly/BCJx50Un0Cl #ASH24 #SickleCell #ConquerSCD
ASH @ASH_hematology
71K Followers 2K Following The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
Naveen Pemmaraju, MD @doctorpemm
20K Followers 3K Following Professor, Leukemia; Executive Director-Cancer Medicine for MDACC Cancer Network | Director #BPDCN Program | #MPNSM #leusm #TeamPemm | Tweets:my own opinions
Mohamad Mohty @Mohty_EBMT
23K Followers 3K Following Professor of Hematology; past-president of the EBMT; Chairman of the IACH; Editor in Chief: Bone Marrow Transplant; Clin Hematol Int.
Blood Journals Portfo... @BloodPortfolio
53K Followers 318 Following Portfolio of ASH journals including Blood, Blood Advances, Blood Global Hematology, Blood ICT, Blood Neoplasia, Blood RCI, and Blood VTH.
Blood Advances @BloodAdvances
32K Followers 141 Following The Blood Journals Portfolio is consolidating our X accounts. This account will no longer actively post after July 7, 2025. Follow us @bloodportfolio.
Shernan Holtan MD @sghmd
4K Followers 3K Following hematologist and bleeding-heart optimist 🌄 | clinical/translational #GVHD physician scientist | powerlifter 🏋️♀️ | novice bass player 🎸| personal views
Lachelle Dawn @Lachelle_Dawn
4K Followers 1K Following hematologist & CHIP clinic director | scientist | une goutte du soleil sous la terre | justice is restorative | i tweet what i want | pronouns: she/her/hers
Mikkael A. Sekeres MD... @MikkaelSekeres
10K Followers 452 Following Chief, Division of Hematology @SylvesterCancer @UMiamiHealth | Clinical scientist, essayist | Author @mitpress x 2, @utpress x 1 (2027) | My views
Krishna Komanduri, MD... @drkomanduri
13K Followers 4K Following Physician in Chief @UCSFCancer; Chief Hem/Onc @UCSFHealth; @ASTCT Past-President. Father of four, husband, shutterbug, aspiring pizzaiolo. Views here mine only.
Andres Gomez @GomezDLeonMD
5K Followers 1K Following Associate Professor of Hematology @UANL Monterrey, Mexico. Interested in acute leukemia, cell therapy, capacity building in LMICs and writing.
Mike Thompson, MD, Ph... @mtmdphd
23K Followers 4K Following #MedSky - VP Clinical Partnerships @TempusAI #PrecisionMedicine #mmsm #lymsm #CCC19 @COVID19nCCC @ASCO COI: https://t.co/A6GQmWYvau
Robert Brodsky @DocsDock200
3K Followers 336 Following ASH President 2023 @ASH_Hematology. Chief of Hematology Johns Hopkins.
VJHemOnc @VJHemOnc
21K Followers 5K Following The Video Journal of Hematology & Hematological Oncology is dedicated to providing up-to-date information & international expertise
Seethal Jacob, MD, MS @seethal_jacobmd
2K Followers 2K Following #SickleCell Provider/Advocate, #PHOdoc, #HealthServicesResearch Let’s talk #ImplementationSci and #Telehealth. Tweets are mine.
Amar Kelkar, MD, MPH,... @amarkelkar
4K Followers 5K Following BMT/Hematology👨🏾⚕️➡️@DanaFarber + @BrighamWomens + @harvardmed | #CareDelivery🔬| @HPJournalClub | @HarvardChanSPH MPH ‘23 | @Cornell ‘10 |❤️Heme & Policy🤓
Alexandra Power-Hays,... @DrPowerHays
3K Followers 2K Following Same username on Blue Sky. Find me there! Sickle Cell Doc & hematologist fighting for our pts, locally and globally 🌍
Julie Kanter @jkw4444
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Joseph Mikhael @jmikhaelmd
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Raul Cordoba, MD, PhD @DrRaulCordoba
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PedsHemeDoc @PedsHemeDoc
4K Followers 2K Following #PHO doc - MPNs, clots,🩸cells, MedEd, equity, mentoring. Volunteer camp doc🌳☀️🌈. Tweets/views are my own. #FunEarringFriday #HemeFashion #mpnsm (she/her)
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Nicole Miller @Nicole__CHI
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Sickle cell Anemia @sickleherbocare
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CiDrep SickKids Found... @cidrepsickkids
67 Followers 382 Following Established 2017. The CiDrep SickKids Foundation provides funds for sick kids when insurance and other financial resources have been exhausted.
Noya @Noya46605577560
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Rahul Mishra @RahulMishraMBBS
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Michael Durante @MichaelDurante1
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Mithun Abraham Prakas... @mithunap11
490 Followers 817 Following Assistant Professor, Clinical Haematology, CMC Vellore
Andrés Vásconez, MD... @wavasconez
427 Followers 3K Following 🇪🇨 Pediatric BMT CT Faculty, Assistant Professor @UAZmedPhx @PhxChildrens @CreightonSOM @MayoClinic @ConquerSCD rep.
SYNTHEMA @SYNTHEMA_EU
299 Followers 392 Following A cross-border hub to develop & validate #AI techniques for anonymization & synthetic data generation in rare hematological diseases 🔬🩸🇪🇺 #HorizonEU project
sakura @sakura1835010
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Diego Soto Flores @dsotoflores
371 Followers 1K Following 🩸 Hematólogo - Hematologist / Focus on Acute Leukemias and HCT / Opinions expressed are my own / Valdivia, Chile 🇨🇱
Gary Gibson @GaryAGibson
664 Followers 280 Following Retired former President/CEO of Martin Center Sickle Cell Initiative. Passionate advocate for those with Sickle Cell. Author of New Earth Rising.
Mary Ann Etling @maryannetling
94 Followers 500 Following MD, MPH | Pediatric Resident at @umnpedsres | Fulbright 2018-2019 🇺🇬 | Kenya, Uganda, Minneapolis
Ftm @FmutluFtm
39 Followers 51 Following
Healthcare Pulse on S... @SocialMedPulse
929 Followers 5K Following Amplifier of #digital education on #socialmedia. I like #science, #tech, #AI and I'm good at providing Digital Interventions to those in need.
Rahul Thakur, MD @rahul2u
685 Followers 1K Following PGY5 ,Chief Hem/Onc Fellow @Roswellpark |Internal Medicine @JacobiHosp/ Albert Einstein college of Medicine @einsteinmed, NY 🇺🇸 | Medical school @BPKIHS Nepal
Vanessa Bovolenta @VanessaBovolen1
9 Followers 316 Following
Arwa Bohra (she/her) @dr_arewah_bohra
83 Followers 667 Following 👩🔬Myeloma,@MayoClinic Rochester, 👩🎓@AIIMSBhopal, Enjoying Books, Podcasts and Good Food; Right Intention(Neeyat) before Action🙏
Daniel Sungchul Choi @DanielSChoiMD
47 Followers 473 Following MD @yonsei_u | Aspiring Heme/Onc Physician-Scientist | @MDAndersonNews Leukemia
Aloul @Aloul40
77 Followers 3K Following https://t.co/JudJs4hfl2 لا اله الا انت سبحانك اني كنت من الظالمين
Lauren Glassman @GlassmanLa21406
6 Followers 96 Following MSN, AGPCNP-BC l Heme/Onc MSL @jnjinnovmed | Prior APP @mskcancercenter | Alum @hunter_nursing @udelaware l Tweets are my own
michelly sampaio @michellykerly
23 Followers 569 Following
Binaytara @binaytara
4K Followers 3K Following Reducing cancer disparities globally. Join our CME/MOC-accredited oncology conferences. Download #OncoBlast - oncology gaming app to earn free CME/MOC points!
Rishi Chavan @RishiChavan
68 Followers 1K Following
Memorial Sloan Ketter... @MSKCancerCenter
103K Followers 2K Following One of the world’s leading comprehensive cancer centers. To make an appointment: 877-871-9362
Kevin Rakszawski, MD @KRakszawski
1K Followers 1K Following Assoc. Professor of Medicine, Heme/Onc at @PennStHershey, clinical: lymphoma #lymsm, myeloma #MMSM, @Penn alum, @PennStHershey alum. Tweets my own.
Sridevi Rajeeve, MD @sridevirajeeve
2K Followers 2K Following ⚕️Asst. Attending Myeloma & Cell Therapy @MSKCancerCenter via @MountSinaiNYC @TischCancer 🇮🇳➡️🇺🇸 Interests: #MMsm #CART #cellulartherapy
Belinda Avalos, MD @b_avalos_MD
268 Followers 155 Following @ASH_Hematology President 2025. Professor of medicine and senior advisor to the president of @AtriumHealth Levine Cancer Institute.
Iman Sarami, MD @ImanSarami
830 Followers 2K Following Assistant Professor of Hematopathology, Molecular Genetic Pathologist, Physician-Scientist #MDAnderson, #MountSinai, #UCLA,#NU, T/RT=NMA, my opinion.
Priya Sriskandarajah ... @PriyaSriRajah
794 Followers 948 Following Haem Consultant in MPN and General Haem @ GSTT | Proud mum of 2 (daughter has Autism) | Piannist 🎼 | Amateur baker 🧁| Keen runner 🏃🏽♀️
Gentry Wilkerson @gentrywmd
659 Followers 275 Following Associate Professor Dept. Emergency Medicine, Director of Clinical Research, Assistant Program Director. University of Maryland School of Medicine; Coulrophobic
ASH @ASH_hematology
71K Followers 2K Following The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
Mikkael A. Sekeres MD... @MikkaelSekeres
10K Followers 452 Following Chief, Division of Hematology @SylvesterCancer @UMiamiHealth | Clinical scientist, essayist | Author @mitpress x 2, @utpress x 1 (2027) | My views
Amar Kelkar, MD, MPH,... @amarkelkar
4K Followers 5K Following BMT/Hematology👨🏾⚕️➡️@DanaFarber + @BrighamWomens + @harvardmed | #CareDelivery🔬| @HPJournalClub | @HarvardChanSPH MPH ‘23 | @Cornell ‘10 |❤️Heme & Policy🤓
Akshay Sharma MD @AkshaySharmaMD
6K Followers 326 Following Pediatric Bone Marrow Transplant @StJudeResearch #GeneTx #GenomeEditing #SickleCell Tweets and opinions are my own ≠ medical advice. COI: https://t.co/jfz4xGdu7N
Julie Kanter @jkw4444
3K Followers 2K Following I specialize in sickle cell disease care for all ages with the heart of a pediatric hematologist. My tweets are my opinions to be shared and to support others
Martin S. Tallman, MD @MartinTallman
5K Followers 207 Following Adj Professor MSKCC. Former Chief Leukemia Service MSKCC, Past President of @ASH_Hematology. Tweets my own.
Sickle Cell Disease C... @ConquerSCD
4K Followers 348 Following The Sickle Cell Disease Coalition is an international alliance aiming to improve outcomes for individuals living with #sicklecell. Together, we can #ConquerSCD!
John Joseph Strouse @dukesickle
1K Followers 662 Following Adult and pediatric hematologist, sickle cell provider and advocate
SickleQueenT @sickle_t
445 Followers 208 Following here for #TeamSickleCell, #Warrior, #Advocate, CEO, Reproductive health, stem cell transplant rejection survivor
Nilda Navedo Felix @Nilda515
13 Followers 115 Following I have Sickle Cell Anemia! My normalcy is Pain & Weakness;make the moments count! My family is my Antidote! Aspire❣️Inspire 🇵🇷🇩🇴 #1Voice4SCD
Sick Cells @SickCells
3K Followers 633 Following National Advocacy Organization, Official Nonprofit.
Marie Hu, MD @MarieHuMD
335 Followers 327 Following Hematologist/assistant prof @UMNHOT focusing on lymphoma and cell therapy. @MayoMN_IMRes, @OhioStateMed, and @MIT grad. Also foodie and traveler. Tweets my own.
Martha Liggett @MarthaLiggett
57 Followers 7 Following Executive Director of @ASH_Hematology, the world's largest professional society concerned with the causes and treatments of blood disorders. Tweets are my own.
Jenifer Hamilton @Jenifer_one_N
193 Followers 211 Following Health/science communications professional and grammar nerd. Chief Communications Officer at @ASH_hematology. Views are my own.
Andrea Marie Matthews @Drea4change
319 Followers 1K Following Transformative Leader, Founder, and Author. Devoted to God, Country and Family. Tweets express my personal opinion and experiences.
ACRP - Assoc. of Clin... @ACRPDC
8K Followers 2K Following The Association of Clinical Research Professionals (ACRP) is moving the people and practice of clinical research forward™. Advancing People Advancing Health™
SOCRA @SOCRAnow
2K Followers 109 Following Society of Clinical Research Associates, is a non-profit, professional organization dedicated to the continuing education and development of clinical research
Laura De Castro @ldc_paz
380 Followers 1K Following Madre|Esposa|Hermana|Amiga|Hematologa|Falcemia=pasión |Jesucristo=Guia| #MinoritiesinMedicine|#conquerSCD|#ASH|#LatinasinMedicine|#womeninmedicine| Own Tweets
Jason Kim, PhD @jason_biomedo
195 Followers 299 Following Scientist and Developer for near-patient Sickle Cell Disease diagnostic tests. Views my own.
SHAWNSTESTIMONY @JadeandJohnmama
829 Followers 1K Following OUR{SICKLED}CELLS FLOW 24/7/365! LIVING W/PHYSICAL/MENTAL PAIN OF SCD GREW ME INTO A BEAST! I AM ON THIS ROAD OF IMPROVING {MYSCDLIFE} FOLLOW ME & LET'S {TW}AT.
Daniel E. Dawes @DanielEDawes
3K Followers 3K Following Advocate | Speaker| Author | Scholar|#HealthEquity #150YearsofObamaCare #ThePoliticalDeterminantsofHealth Views are my own.
Daniel Bauer @danielevanbauer
2K Followers 2K Following pediatric hematologist, molecular biologist, genome editor, red sox fan, family man
Fred Piel 💙🖤�... @FredPiel
375 Followers 267 Following Geographer/epidemiologist, Map maker, Cyclist. Environment/Health. Sickle cell disease/cystic fibrosis/inequalities. He/him.
Gary Gibson @GaryAGibson
664 Followers 280 Following Retired former President/CEO of Martin Center Sickle Cell Initiative. Passionate advocate for those with Sickle Cell. Author of New Earth Rising.
Marie Ojiambo @MarieOjiambo
487 Followers 192 Following
Lakiea Bailey, Ph.D @SCDadvocate
2K Followers 775 Following Sickle cell disease advocate, activist, research scientist...and occasionally...patient... with a doctorate in molecular hematology and regenerative medicine.
J @JenHelfer
603 Followers 2K Following Tweets/opinions are my own. Retweets/likes are not endorsements.
Mo’s Mom @jerseygirlinatx
1K Followers 3K Following Retired, traveler, cook, photographer, gardener. Cat mother of Frida Katlo, Stella Luna and Mo the Big Maine Coon (RIP) #Betocrat #HarrisWalz2024
Chronic Advocacy @ChronicAdvocacy
467 Followers 782 Following Self-Advocacy Education to Support Individuals with Chronic Conditions
EveryLife Foundation @EveryLifeOrg
7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
Shakir Cannon @BL00DB0RN
7K Followers 8K Following Blood Born Sickle Cell Disease Civic Health Leader and Co-Founder of the Minority Coalition for Precision Medicine (@MC_PrecisionMed). 🙏🏾🔬
MCPM @mc_precisionmed
493 Followers 838 Following Minority Coalition for Precision Medicine (MCPM) is committed to the eradication of health disparities among minorities & increasing our understanding of PM.
Tristan Lee @DiVoStar615
270 Followers 2K Following I'm Tristan aka DiVo! I am a Sickle Cell Warrior & advocate for Sickle Cell Disease. As a Fashion designer I created a clothing line for Sickle Cell Awareness.
Dr. Nina @nfayanders
729 Followers 881 Following Holistic Health Practitioner. Sickle Cell Expert. Producer of TOVA Tuesday Podcast. #PrimarySpecialtyCare #Research #Outreach
TaLana Hill Hughes @MrsLana
212 Followers 378 Following A Mommy X's 3, Wife, and Executive Director! Yes it is possible to do it all, and do it well! Using my passion and motivation to achieve my goals!
Beth Frates MD @BethFratesMD
155K Followers 49K Following Associate Professor @HarvardMed, Author, Speaker, Coach, Award Winning Teacher, Alum @Harvard + @StanfordMed, Founder @pavingwellness
Adriana Bello @adrianabello
2K Followers 3K Following pediatrician, pediatric hematologyst, mother [email protected]
Dr. Kevin Ahmaad Jenk... @kjanswers
765 Followers 616 Following 40 Under 40 Healthcare Leader | Diversity, Equity & Inclusion Expert | NOT an Antivaxer
Baba Inusa @PdbInusa
567 Followers 403 Following Sickle cell research, capacity building and teaching
John Strouse @jstrous1
368 Followers 374 Following Director, Adult Sickle Cell Program Duke University, Hematologist, and Clinical Researcher
Amanda Brandow @DrAmandaBrandow
682 Followers 2K Following #boymom, Pediatric Hematologist, Professor of Pediatrics, Sickle Cell Disease Physician / Advocate / Scientist, Pain Scientist. Tweets are my own.
William McDade @sickledoc
2K Followers 2K Following Chief Diversity Equity Inclusion Officer at ACGME; Former AMA Trustee; Professor; Physician-Scientist; husband, father, son, brother, friend. Tweets are my own.
Jennifer @NAPWDallas
381 Followers 2K Following
Lanre Falusi MD FAAP @LanreFalusi
3K Followers 1K Following Pediatrician. Mom. Wife. Advocate for kids & equity. Educator. Podcaster. #Tweetiatrician. #MedEd. Tweets = my own views & not medical advice.
Donney John @DrJohn411
433 Followers 890 Following A leader focused on making a difference in the community.
Michael G. Knight MD @MGKnightMD
1K Followers 516 Following Physician | Healthcare Executive | Nonprofit Leader @RenewingHealth | Health Equity Crusader | Obesity Medicine Doc | Views my own
Dr. Jovonni Spinner @JovonniSpinner
154 Followers 209 Following My passion is health! I am trying to live the healthiest life possible and share what I know to help others! #mylife #mythoughts
T Rattler @rattlerrattles
192 Followers 162 Following Health service researcher + child health and sickle cell disease advocate.
André Marcel Harris,... @andreharris89
9K Followers 9K Following ΦΒΣ @houstonsigmas | PhD student/MSW alum @UH_SocialWork | Founder of @BlackMenInSW | #SickleCellAdvocate at @SickleCellHOU & @scdaaorg | #HBCUGrad of @uncfsuTrends for United States
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