ASIF @ASIntFed
Axial Spondyloarthritis International Federation. Talking all things relating to axSpA. Retweets are not endorsements. linktr.ee/asintfed Worldwide Joined November 2014-
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👏Wow! Anyone following the #WorldASDay2024 will have seen the incredible number of posts raising awareness about #axSpA from around the world. Thank you to everyone who shared posts and told their story - your efforts will help others living with #AxialSpondyloarthritis. 🙏
👏Wow! Anyone following the #WorldASDay2024 will have seen the incredible number of posts raising awareness about #axSpA from around the world. Thank you to everyone who shared posts and told their story - your efforts will help others living with #AxialSpondyloarthritis. 🙏
This video shares Christina's reality of her 10 year long fight to get a diagnosis of #axSpA. Christina is not alone. The average global delay to diagnosis is 7.4 years. This is not okay. On #WorldASDay2024 people around the world raised awareness about…
This video shares Christina's reality of her 10 year long fight to get a diagnosis of #axSpA. Christina is not alone. The average global delay to diagnosis is 7.4 years. This is not okay. On #WorldASDay2024 people around the world raised awareness about…
We love seeing all the #WorldASDay2024 selfies from around the world. Thanks Maranda and Jack from @ax_spa in South Africa for sharing this one and for all you are doing to raise awareness of #axSpA.
Amazing to see so many people around the world out and about raising awareness on #WorldASDay2024! Thank you!!
Amazing to see so many people around the world out and about raising awareness on #WorldASDay2024! Thank you!!
Join us at Day 2 of the Global Spondyloarthritis Summit hosted by @spondylitis. What a great way to spend #WorldASDay2024! #axSpA
Join us at Day 2 of the Global Spondyloarthritis Summit hosted by @spondylitis. What a great way to spend #WorldASDay2024! #axSpA
Thank you to @globalafpa for raising awareness about #axSpA today! It is so exciting to see awareness being raised around the world! #WorldASDay2024
Thank you to @globalafpa for raising awareness about #axSpA today! It is so exciting to see awareness being raised around the world! #WorldASDay2024
Sadly, @Karoinna is not alone. The average global delay to diagnosis is 7.5 years. We hope that the awareness that is raised today (#WorldASDay2024) will help others get a diagnosis sooner. #axSpA Thank you for sharing your story Karoinna.
Sadly, @Karoinna is not alone. The average global delay to diagnosis is 7.5 years. We hope that the awareness that is raised today (#WorldASDay2024) will help others get a diagnosis sooner. #axSpA Thank you for sharing your story Karoinna.
Day 4 of the @nass_exercise #axialSpALife social media challenge and it’s #WorldASDay2024! For me, World AS Day is all about raising awareness. Although #axialSpA affects 1 in 200 adults in the UK, 90% of the public have never even heard of it 🤯 Here’s some info from @ASIntFed
Today is World Axial Spondyloarthritis (axSpA) Day @ASIntFed, this year focussing on signs and symptoms, find out more for yourself, a friend or family member visit our website: arthritisaction.org.uk/living-with-ar… #WorldASDay2024 #AxialSpondyloarthritis #axSpA #HealthAwareness
Today is #WorldASDay2024 @ASIntFed #axSpA is a rheumatic inflammatory disease primarily affecting the spine & sacroiliac joints, which can lead to chronic pain, structural damage and disability. Raise awareness and share information asif.info/worldasday
Day 4 of the #AxialSpALife social media challenge. Today is #WorldASDay2024! Hardly anyone has ever heard of #AnkylosingSpondylitis despite #AxialSpA being diagnosed amongst 220k adults in the UK🇬🇧 Help me spread the word. AS works silently, we don’t!💪🏼 nass-walk-your-as-off.raiselysite.com/sammy-eames
Axial SpA is a chronic disease which if untreated can cause fusion in your spine, ribs & more. It can leave you disabled and in constant chronic pain. There is no cure for AS, but there is treatment to help stop the disease and put you in remission. #AxialSpALife #WorldASDay2024
We 💙 seeing your #WorldASDay2024 selfies! Print out your sign from our website and post a selfie to raise awareness! Watch the video: asif.info/worldasday/#ge… Thanks @AxSpAMan for raising awareness!
We 💙 seeing your #WorldASDay2024 selfies! Print out your sign from our website and post a selfie to raise awareness! Watch the video: asif.info/worldasday/#ge… Thanks @AxSpAMan for raising awareness!
It's #WorldASDay2024 ! Thank you for raising awareness in South Africa @ax_spa ! Wherever you are in the world, you can raise awareness by sharing our posts or by sharing your own story about living with #axSpA.
It's #WorldASDay2024 ! Thank you for raising awareness in South Africa @ax_spa ! Wherever you are in the world, you can raise awareness by sharing our posts or by sharing your own story about living with #axSpA.
It's #WorldASDay2024 ! You can raise awareness about #axialspondyloarthritis, or #axSpA, by sharing our posts and the posts of our members around the world!
It's #WorldASDay2024 ! You can raise awareness about #axialspondyloarthritis, or #axSpA, by sharing our posts and the posts of our members around the world!
Happy World AS Day! How are you marking and spreading awareness about axSpA this year? Share your celebrations in the comments below; we'd love to hear from you. A big thank you to everyone raising awareness today! #WorldASDay2024
Please join us at @spondylitis' Global SpA Summit - it's on NOW! spondyloarthritissummit2024.vfairs.com Come and say 'hi' at our ASIF Booth! #axSpA
Please join us at @spondylitis' Global SpA Summit - it's on NOW! spondyloarthritissummit2024.vfairs.com Come and say 'hi' at our ASIF Booth! #axSpA
Don't forget to tune in today for the #WorldASDay2024 special edition of Joel Nelson's Chronic Pain Club! See you at 19:00 BST - click to watch: lnkd.in/ea5dhr5W
Don't forget to tune in today for the #WorldASDay2024 special edition of Joel Nelson's Chronic Pain Club! See you at 19:00 BST - click to watch: lnkd.in/ea5dhr5W
IBD or colitis patients with prolonged back pain, stiffness and discomfort in lower back over 3 months might have #AxialSpondyloarthritis. Prompt consultation with a family doctor can prevent delays in diagnosis and irreversible damage. asif.info/worldasday #WorldASDay2024
Tune in at 19:00 BST tomorrow (Thursday 2 May) for @joelvsarthritis' World AS Day Special edition of The Chronic Pain Club. 😁 Jo is so excited to talk all things ASIF - including of course World AS Day, which takes place on Saturday! She will also share her personal journey…
NASS @NASSexercise
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637 Followers 581 Following The Journal of Scleroderma and Related Disorders (JSRD), the official independent journal of the World Scleroderma Foundation & EUSTAR published by Wichtig😳También puede presentarse en personas que tienen Psoriasis, una enfermedad inflamatoria crónica de la piel, que produce lesiones escamosas engrosadas e inflamadas y que puede presentarse como Artritis Psoriática. #WorldASDay2024
Recuerda, el síntoma más claro de la Espondilitis es el dolor de espalda. No cualquiera será una Espondilitis, pero los que duran más de 3 meses deberían ser chequeados por un reumatólogo. Para más información, visita asif.info, la web de @ASIntFed #WorldASDay2024
Sharing one more video for #WorldASDay. A true story shared by Christina so candidly. #WorldASDay2024 youtu.be/_RsX49W9nWM?si…
¿Sabías que los síntomas de la Espondilitis son el dolor en espalda y glúteos, que ese dolor empeora con el reposo, y mejora con el ejercicio, que el dolor dura más de 3 meses y además se presenta fatiga? Aprende mucho más de esto en @EspondilitisCL y @ASIntFed #WorldASDay2024
El periodista Eduardo Castillo @edu_castillo (ex CNN y CHV), el español Ángel Cristo Jr, hijo del domador Ángel Cristo y la exvedette Bárbara Rey; y Dan Reynolds, el vocalista de Imagine Dragons son algunos famosos aquejados con Espondilitis. #WorldASDay2024
¿Sabías que los síntomas de la Espondilitis son el dolor en espalda y glúteos, que ese dolor empeora con el reposo, y mejora con el ejercicio, que el dolor dura más de 3 meses y además se presenta fatiga? Aprende mucho más de esto en @EspondilitisCL y @ASIntFed #WorldASDay2024
Como mensaje final en este #WorldASDay2024 queremos recalcar que la Espondilitis está marcada principalmente por el dolor de espalda bajo, de glúteos y caderas por más de 3 meses. Si tienes este tipo de dolor o conoces a alguien, dile que podría ser Espondilitis!
World AS Day is dedicated to people living with axial spondyloarthritis. AxSpA affects millions of people around the world. World AS Day aims to raise the profile of this disease and increase awareness of the impact it has on people’s lives. #WorldASDay2024
Embajadores que suman 🩵 Gracias por darnos visibilidad. Nuestra fórmula es la suma #WorldASDay2024 #masqueundolordeespalda
Hoy 4️⃣ de Mayo es el #DíaMundialdelaEspondiloartritis #WorldASDay Un día para apoyar y visibilizar a nuestros pacientes con espondiloartritis, y para difundir entre la sociedad información para su diagnóstico precoz. Sigue a @CEADE_ y a @SEReumatologia #TodosSomosReuma
Gracias por darnos visibilidad 🩵 #WorldASDay2024 #masqueundolordeespalda
La enfermedad reumatológica que puede esconderse detrás del #dolor de espalda persistente @CEADE_ @SEReumatologia vía @infobae infobae.com/salud/2024/05/…
@ASIntFed 🇬🇧 Together we add, United we multiply!! 🇪🇸 Juntos sumamos, Unidos multiplicamos‼️ #WorldASDay2024 #masqueundolordeespalda
This #WorldASDay2024, take some time to raise awareness and learn how valuable achieving remission can be for patients with inflammatory rheumatic diseases like #AxialSpondyloarthritis: bit.ly/3WpdEAB
6. And then #axSpA came back with a vengeance and rendered me instantly disabled with peripheral joint swelling in my arms and legs. My first spinal MRI was graphic and full of inflammation. I couldn't walk or stand without being in utter agony. #WorldASDay2024 #WorldASDay
8. There is nothing like the exquisite agony of inflammatory arthritis #axSpA when in its most active state. Since then I've blown through seven biologics trying to find something that works. My inflammatory arthritis is still not under control. #WorldASDay2024 #WorldASDay
9. The #DelayToDiagnosis with #axSpA has left me with irreversible damage in my joints. Had my disease been caught early, my quality of life would be better. I am still living a fulfilling life with axSpA but it stole everything I used to love doing. #WorldASDay2024 #WorldASDay
10. Just recently I got my first power wheelchair and my life, for once, has gotten a little easier. I am still moving and staying at my baseline activity each day, but my wheelchair provides me with independence and freedom from #axSpA #WorldASDay2024 #WorldASDay
11. That is why the #axSpA community is working together to raise awareness and understanding today on #WorldASDay. I dream of a day when we have a cure for Spondyloarthritis so no one experiences what I've experienced with this disease. #WorldASDay2024
12. I hope this thread for #WorldASDay2024 helped you understand my story. You can find more of my work at MySeveralWorlds.com
13. Purchase your copy of Straight Talk on Spondylitis at: spondylitis.org/product/new-st… @spondylitis #SpondySummit #WorldASDay2024 #WorldASDay
14. 13. Purchase your SAA #WalkYourASOff t-shirts and other cool merch at: spondylitis.org/store/ @spondylitis #SpondySummit #WorldASDay2024 #WorldASDay
15. Donate to @spondylitis. Help them with their mission of serving the global SpA community at: spondylitis.org/get-involved/d… I sent my donation in today in honor of #WorldASDay2024. I hope you will too! #WorldASDay #SpondySummit Chronically yours, Carrie, My Several Worlds