Annabelle Coleman @AnnabelleNeuro
Joined March 2022-
Tweets81
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Followers47
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Following66
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Likes176
Super fun first 5K #RUN4HDYO! ššØšāāļøā Over Ā£2500 raised for the Olivia (Liv) Martinez Scholarship Fund for @HDYOFeed - honouring an amazing ambassador I met at #HDYO Congress in Glasgow in 2023. Liv's kindness and passion touched so many. Donate now and please support youngā¦
New paper from the @houseofbyrne lab just published in Journal of Neurology: 'Evaluating finger-prick blood collection for remote quantification of neurofilament light (#NfL) in neurological diseases.' A step toward more accessible biomarker testing 𩸠link.springer.com/article/10.100ā¦
ICYMI: Roche has updated the HD community: the GENERATION HD2 trial of tominersen will continue, but only the higher dose will move forward, showing more promise for slowing disease progression. #HuntingtonsDisease #Tominersen #Roche #GENERATIONHD2 en.hdbuzz.net/427
šØ Subtle changes in the brain š§ happen approximately š twenty years before a clinical motor diagnosis in people with Huntingtonās disease, finds a new study led by Prof Sarah Tabrizi (UK DRI at UCL), in collaboration with experts at the Universities of Glasgow, Gothenburg,ā¦
New research sheds important light on the mechanisms underpinning HD neuropathology: doi.org/10.1016/j.cellā¦ā¦ and doi.org/10.1038/s41591ā¦ā¦. Together, these insights suggest a need for disease-altering therapeutics aiming to slow or stop somatic expansion #huntingtonsdisease
Great to see the paper finally published! Enjoyed participating as a control participant in #HD-YAS and am really looking forward to seeing the team again at my next visit! nature.com/articles/s4159ā¦
Why do people who inherit the brain disease Huntingtonās often only show symptoms well into adulthood, between 30 and 50 years of age? go.nature.com/4jnky2a
Somatic CAG repeat expansion in blood associates with biomarkers of neurodegeneration in Huntingtonās disease decades before clinical motor diagnosis nature.com/articles/s4159ā¦
Exited to share my joint first-author paper published in @NatureMedicine today! @uclhD @UCLIoN @UCLBrainScience @LWENCCRF @uclh
A comprehensive longitudinal analysis of individuals with preclinical #HuntingtonsDisease identifies #biomarkers of #neurodegeneration and somatic expansion in blood DNA, detectable years before symptom onset. @DrMFarag @UCLHD @UCLIo nature.com/articles/s4159ā¦
Prof Tabrizi: āI want to thank the participants in our young adult study as their dedication and commitment over the last 5 years mean we hope that clinical trials aimed at preventing #HD will become a reality in the next few years." @ucl @uclIoN @DrMFarag nature.com/articles/s4159ā¦
Prof Tabrizi: āI want to thank the participants in our young adult study as their dedication and commitment over the last 5 years mean we hope that clinical trials aimed at preventing #HD will become a reality in the next few years." @ucl @uclIoN @DrMFarag nature.com/articles/s4159ā¦
A comprehensive longitudinal analysis of individuals with preclinical #HuntingtonsDisease identifies #biomarkers of #neurodegeneration and somatic expansion in blood DNA, detectable years before symptom onset. @DrMFarag @UCLHD @UCLIo nature.com/articles/s4159ā¦
Our recent paper on outcomes of #PEG in #HD now featured in the Clinical Pearls gallery @MDCP_Journal @UCLHD @UCLIoN ā¦mentdisorders.onlinelibrary.wiley.com/hub/journal/23ā¦
exciting keynote by Sarah Tabriz @UCLIoN #EHDN2024 #HuntingtonsDisease #ClinicalResearch
Historic day for our community!!!! uniQure Announces Positive Interim Data Update Demonstrating Slowing of Disease Progression in Phase I/II Trials of AMT-130 for HD. Hear uniQure this weekend @ #Help4HDHIPE2024 virtual! Breaking News! help4hd.org/post/interim-dā¦
What are the impacts of the FS7 Freesurfer software update on caudate and putamen volume measurements? Researchers @UCLHD @UCLHD_YAS explore differences in FS bias when detecting early atrophy: content.iospress.com/articles/journā¦

Lothoot @LothoottY91k
46 Followers 1K Following
Sophie Field @SophField_Neuro
4 Followers 47 Following PhD student in the Barker Lab @PDandHDlab at the University of Cambridge - Looking into all things Huntington's disease, inflammation and transposable elements
HDAwareness2024 @HDAwareness2024
342 Followers 3K Following Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #CureHD #CureJHD too.
Matt Ward @mattwardfromage
91 Followers 707 Following Living with (but not defined by) Huntington's Disease. My strength comes from my family & friends. https://t.co/lwTcZoxJUK
Tom Burke @tommjburke
2K Followers 3K Following Principal Specialist Clinical Neuropsychologist | Associate Professor | Interested in social cog, mental health, neurodegeneration & stroke @GalwayNeuro š§
Mehri @Mehri_Salari
29 Followers 73 Following
Liz Broom @_LizBroom
20 Followers 44 Following PhD Student @uclbbk_mrcdtp in Experimental & Translational Medicine | former Research Scientist @astrazeneca & biochem grad @cambridge_uni
Marta Pengo @PengoMarta
22 Followers 76 Following
Ed Smith @Squeders
364 Followers 1K Following Neuroscientist modelling Huntington's disease with stem cells. Misguided faith in sport, music, TV and politics. Left handed DNA hurts me.
Rahema @Rahema_UCL
738 Followers 1K Following The Neurogenetics Lab @IonSynapse @UCLIoN. Interested in Neurogenetics, Public Engagement, Science Communication & Innovation
Inês BrÔs @Ines00990788
64 Followers 205 Following Postdoctoral scholar in Huntington Disease, UCF š§ š¤Æ
Clinton Maverick @ClintonMav56206
37 Followers 2K Following I like real things; I like honesty, truthfulness, caring, and obedient person. I dislike cheating, lies, disrespect, racism & Betraya š³ļøāā§ļøš¦šØš¦š²š¦š®š¦š·š¦š·
Ronald Buijsen @BuijsenRonald
634 Followers 747 Following Scientist | RNA therapeutics | neurodegenerative disorders | repeat expansions | iPSC-based disease modeling | #DATS | #CureQ @NeuroD_Lab_LUMC š³š± | @OTSociety
Michela Leocadi @LeocadiMichela
43 Followers 110 Following Enthusiast Postdoctoral Research Associate in Psychology and Cognitive Neuroscience @ Huntingtonās Disease Centre (UCL, London)
Jean C9orf72 @Jeanc9orf72
1K Followers 860 Following C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy @end_the_legacy
Celeste Suart @suartce
681 Followers 1K Following Patient Engagement Manager @NAF_Ataxia š§ | PhD from @McMasterU on SCA1 & higher education š¬ š§¬š | #DisabledInSTEM | She/her š³ļøāš | Opinions are my own
Naomi @NaomiHannaway
42 Followers 117 Following PhD Student & Research Assistant @drcionucl. Using neuroimaging to examine Dementia with Lewy Bodies & Parkinson's Dementia. She/her.
ClĆona Farrell @ClionaFarrell_
868 Followers 809 Following Postdoctoral researcher @UCLIoN @UKDRI interested in Alzheimer's disease, Down Syndrome, and neuro-immune biologyš§ š¬š§š
Sophie Goldsmith @SGoldsmith0
332 Followers 682 Following PhD student working with cerebral organoids @WrayLabUCL / @UCLIoN š©š»āš¬š§ & coordinate the @GENFI1 Participant Engagement Board š
House of Byrne lab @houseofbyrne
74 Followers 175 Following Research group in the Department of Neurodegenerative Disease @UCLIoN @UCLHD working on adult and Juvenile-onset Huntington's Disease biomarkers.
Mullar James @MullarJame80643
140 Followers 2K Following
youmeandhd @youmeandhd
51 Followers 88 Following Raising Awareness of Huntingtonās Disease š A personal but shared journey.
Helena Ros @HelenaRos111
39 Followers 118 Following PhD Researcher on the CDT in Transformative Pharmaceutical Technologies | Biosciences MRes @UCL
UCSD HDCRC @ucsd_hdcrc
224 Followers 151 Following Mission: to provide quality Huntington's Disease care; to increase awareness of HD; and to conduct research contributing to future treatments or cures.
SamSam and LouLou @SamPlusLou
747 Followers 587 Following We is SamSam (Cidermill) and LouLou (ArdenForest) the Border Terrifurs. #btposse #Hounds4Huntingtons #SybilOnTour @jaq421
UCL Huntingtonās Di... @UCLHD
2K Followers 134 Following Committed to training the next generation of scientists and clinicians to contribute to the fight against Huntington's disease 𧬠@UCLIoN
BJ Viau @BJsView
801 Followers 2K Following #HuntingtonsDisease Community Advocate. Entrepreneur. Passion to Help Others. Founder @HD_Genetics & Co-F @hdyofeed Viauās Are My Own. Tommie Hoops Fan
stephen rogers @steelygreyste
3K Followers 4K Following Blackley boy. Married to MisHelenEous @misheleneous (click on name for link to etsy shop) Border Terrier owned. RIP Whiskey BT, welcome Heidi CBE , BT. 2015
Sean Murphy @murphyslaw1987
2K Followers 2K Following Philosopher of science/bioethics. I completed Purdeyās research by discovering the true causes (oil pollution, mercury, & mycotoxins) of āHuntingtonās Diseaseā.
EHDN Collaborations @EHDN_GRANTM
929 Followers 833 Following European Huntington's Disease Network https://t.co/SW4uBnzahl -This account is no longer active. EHDN is now on LinkedIn and BlueSky
Molly Gracey š©š¼... @MollyFGracey
117 Followers 196 Following @MIBTP1 PhD student | @unibirmingham | @BBSRC funded | Interested in research into neurodegenerative diseases | https://t.co/jzxrbE4iJH
Everyday is #HDAwaren... @AwarenessHD
2K Followers 5K Following Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #huntingtonsdisease
Shaimaa El-Jaafary @ShaimaaJafary
567 Followers 626 Following Egyptian neurologist working hard searching for the best care of my patients with neurodegenerative diseases.
jackie harrison @jaq421
3K Followers 5K Following #sybilontour is a project to raise awareness of Huntington's by sending #hounds4huntingtons on adventures follow them here https://t.co/lsNlK4tCHc
Grant Walker @SHAYouth_Grant
165 Followers 247 Following Youth Service Lead for Scottish Huntington's Assoc. (@ScottishHD) (@shayouth). Views my own or RT'd, may not represent SHA/YS.
Carlos Estevez Fraga @carlosestevezf
672 Followers 3K Following Neurologist & Neuroscientist | MD, PhD | Clinical Development
Mena Farag @DrMFarag
2K Followers 2K Following Neurology south London trainee š§ (OOP-R; ST6) ā PhD candidate @UCLIoN ā #HD-YAS š @UCLHD
Colm Peelo @ColmGPeelo
588 Followers 1K Following PhD candidate Neuropsych #HD #MND @tcd & @Beaumont_Dublin. Finding my niche. Brainš§ cognitionš§ neurodegenerationš§ environmentš techš» mountainsā° Wannabe nerdš¤
Dr Lauren Byrne @LaurenByrne7337
1K Followers 401 Following Huntington's disease researcher (@houseofbyrne) and family member. Tweets are my own. Passionate about dogs, wine, cheese and curing HD.
Daniel Barry @DanielLLBarry
48 Followers 137 Following Resident Doctor / Anaesthetic Trainee / https://t.co/bwxTXR33Tz - Bespoke Clinician Rostering Solution
Movement Disorders Cl... @MDCP_Journal
7K Followers 137 Following Movement Disorders Clinical Practice is the exclusively online Journal of the International Parkinson and Movement Disorder Society (MDS) @movedisorder.
Help4HD @Help4HDI
1K Followers 501 Following Help4HD-International, is a non profit organization serving the #Huntingtonsdisease and #JuvenileHuntingtonsdisease community.
HD Reach @HDReach
1K Followers 80 Following HD Reach is a nonprofit organization dedicated to providing access to healthcare, education, and social assistance for those affected by Huntingtonās disease.
medRxiv @medrxivpreprint
17K Followers 0 Following The non-profit preprint server for the health sciences
Tom Burke @tommjburke
2K Followers 3K Following Principal Specialist Clinical Neuropsychologist | Associate Professor | Interested in social cog, mental health, neurodegeneration & stroke @GalwayNeuro š§
Mehri @Mehri_Salari
29 Followers 73 Following
HD Genetics @HD_Genetics
320 Followers 245 Following Huntington's Disease Genetics (HD Genetics) offers best-in-class genetic counseling & testing directly to at-risk individuals in the USA.
Dr Cristina Marcoci @CristinaMarcoci
58 Followers 295 Following Neurologist | MD | Neuroscientist | PhD | University College London, Queen Square Institute of Neurology @UCLIoN
Ed Smith @Squeders
364 Followers 1K Following Neuroscientist modelling Huntington's disease with stem cells. Misguided faith in sport, music, TV and politics. Left handed DNA hurts me.
Rahema @Rahema_UCL
738 Followers 1K Following The Neurogenetics Lab @IonSynapse @UCLIoN. Interested in Neurogenetics, Public Engagement, Science Communication & Innovation
Champions For HD @ChampionsForHD
306 Followers 248 Following Non-profit Fighting to aid families and cure Huntingtonās & Juvenile Huntington's Disease one family and one voice at a time. #HDCantTameMe
UCL Brain Sciences @UCLBrainScience
24K Followers 1K Following @UCL Faculty of Brain Sciences is a global leader in research and education into the mind and brain. Follow us also on https://t.co/hegiQyx48pā¦
House of Byrne lab @houseofbyrne
74 Followers 175 Following Research group in the Department of Neurodegenerative Disease @UCLIoN @UCLHD working on adult and Juvenile-onset Huntington's Disease biomarkers.
Michela Leocadi @LeocadiMichela
43 Followers 110 Following Enthusiast Postdoctoral Research Associate in Psychology and Cognitive Neuroscience @ Huntingtonās Disease Centre (UCL, London)
Helena Ros @HelenaRos111
39 Followers 118 Following PhD Researcher on the CDT in Transformative Pharmaceutical Technologies | Biosciences MRes @UCL
UCSD HDCRC @ucsd_hdcrc
224 Followers 151 Following Mission: to provide quality Huntington's Disease care; to increase awareness of HD; and to conduct research contributing to future treatments or cures.
SamSam and LouLou @SamPlusLou
747 Followers 587 Following We is SamSam (Cidermill) and LouLou (ArdenForest) the Border Terrifurs. #btposse #Hounds4Huntingtons #SybilOnTour @jaq421
stephen rogers @steelygreyste
3K Followers 4K Following Blackley boy. Married to MisHelenEous @misheleneous (click on name for link to etsy shop) Border Terrier owned. RIP Whiskey BT, welcome Heidi CBE , BT. 2015
BJ Viau @BJsView
801 Followers 2K Following #HuntingtonsDisease Community Advocate. Entrepreneur. Passion to Help Others. Founder @HD_Genetics & Co-F @hdyofeed Viauās Are My Own. Tommie Hoops Fan
Science Magazine @ScienceMagazine
4.5M Followers 460 Following Cutting-edge research, news, commentary, and visuals from the Science family of journals. Follow @NewsfromScience for stories from our News team.
youmeandhd @youmeandhd
51 Followers 88 Following Raising Awareness of Huntingtonās Disease š A personal but shared journey.
Everyday is #HDAwaren... @AwarenessHD
2K Followers 5K Following Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #huntingtonsdisease
Molly Gracey š©š¼... @MollyFGracey
117 Followers 196 Following @MIBTP1 PhD student | @unibirmingham | @BBSRC funded | Interested in research into neurodegenerative diseases | https://t.co/jzxrbE4iJH
jackie harrison @jaq421
3K Followers 5K Following #sybilontour is a project to raise awareness of Huntington's by sending #hounds4huntingtons on adventures follow them here https://t.co/lsNlK4tCHc
Jean C9orf72 @Jeanc9orf72
1K Followers 860 Following C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy @end_the_legacy
Shaimaa El-Jaafary @ShaimaaJafary
567 Followers 626 Following Egyptian neurologist working hard searching for the best care of my patients with neurodegenerative diseases.
srivathsa MS @Srivathsa_MS
35 Followers 124 Following
EHDN Collaborations @EHDN_GRANTM
929 Followers 833 Following European Huntington's Disease Network https://t.co/SW4uBnzahl -This account is no longer active. EHDN is now on LinkedIn and BlueSky
Huntington Disease Af... @hdafricaorg
291 Followers 126 Following Huntington Disease Africa is the continent's flagship Huntington's disease advocacy body.
Grant Walker @SHAYouth_Grant
165 Followers 247 Following Youth Service Lead for Scottish Huntington's Assoc. (@ScottishHD) (@shayouth). Views my own or RT'd, may not represent SHA/YS.
Carlos Estevez Fraga @carlosestevezf
672 Followers 3K Following Neurologist & Neuroscientist | MD, PhD | Clinical Development
Scottish Huntington's... @shayouth
177 Followers 99 Following
European Huntington A... @EuroHuntington
973 Followers 208 Following We represent Huntington's disease families and Organisations throughout Europe. Insta: @Theeurohuntington
Mena Farag @DrMFarag
2K Followers 2K Following Neurology south London trainee š§ (OOP-R; ST6) ā PhD candidate @UCLIoN ā #HD-YAS š @UCLHD
Bristol Neuroscience @BristolNeurosci
4K Followers 573 Following Bringing together world-class neuroscience š§ to advance research š§āš¬ & clinical care š„ from synapse to society š Curated by Kate Daw
HDClarity @HDClarityStudy
585 Followers 95 Following We have now moved to BlueSky, follow us on https://t.co/GOagyeUxpS
Dr Lauren Byrne @LaurenByrne7337
1K Followers 401 Following Huntington's disease researcher (@houseofbyrne) and family member. Tweets are my own. Passionate about dogs, wine, cheese and curing HD.
EHDN News @EHDN_News
717 Followers 975 Following European Huntington's Disease Network newsletter. Please see our profiles on BlueSky and LinkedIn for the latest updates.
Huntington's Disease ... @HDAI_ie
3K Followers 5K Following HDAI RCN 20025656. Sharing news on Huntingtons Disease /connecting to the international HD community. RTs not endorsements. https://t.co/z0BAD0VUeS https://t.co/pPoXkLELx2
HDYO @HDYOFeed
2K Followers 725 Following An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntingtonās Disease around the world.
HDF @hdfcures
1K Followers 1K Following The official Twitter feed of the Hereditary Disease Foundation. Innovating research, discovering cures. #hdfcures #ResearchSpotlightWebinars
Journal of Neurology,... @JNNP_BMJ
16K Followers 3K Following The latest research in neurological science from JNNP and its gold open access companion BMJ Neurology Open. Access also to @PracticalNeurol & @JNIS_BMJ
UCL Huntingtonās Di... @UCLHD
2K Followers 134 Following Committed to training the next generation of scientists and clinicians to contribute to the fight against Huntington's disease 𧬠@UCLIoN
HDBuzz @HDBuzzFeed
6K Followers 2K Following Huntingtonās disease research news. In plain language. Written by scientists. Editors @labscribbles @rungenado
HuntingtonStudyGroup @HuntingtonSG
2K Followers 486 Following Accelerating treatments that make a difference for Huntington's disease.