Help4HD @Help4HDI
Help4HD-International, is a non profit organization serving the #Huntingtonsdisease and #JuvenileHuntingtonsdisease community. linktr.ee/help4hdi California Joined June 2013-
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These special speakers with be streaming LIVE on Facebook from this annual #HD community event! Watch Symposium beginning at 5:30am PST/8:30am EST TOMORROW morning! #Help4HDSympo2025 #FtLauderdaleFL #HuntingtonsDisease
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"Is it necessary for my adult son to legally name me his power of attorney?" Hear responses to this question and other topics including balancing medications, PT/OT, & more on this week's episode of #Help4HDTV! #HD #POA #Healthcare facebook.com/help4hd/videos
These breakout room sessions are coming up this weekend. We can't wait for you to join us in Ft Lauderdale, FL at our annual Symposium! #Help4HDSympo2025 #FtLauderdaleFL #HuntingtonsDisease
Please note Monday Mixer will not be meeting on Sept 8th but will resume on Sept 15th! We look forward to seeing everyone then!💙
Prom is only a few days away! Don't forget to pack for this night of community, dancing, & fun! Feel free to dress to impress or come as you are! See you soon! #Help4HDSympo2025 #FtLauderdaleFL #HuntingtonsDisease
The #JHD community is very close to our hearts! We are glad to set aside an #education space with JHD experts & topics for this important part of our #HD community! We can't wait to see everyone this weekend! 💙💜💙 #Help4HDSympo2025 #FtLauderdaleFL
Join us for the ⛱"HD is a Beach Party"🏝 coming up this Friday night at Symposium! We cannot wait to get together with all of our HD family during this night of fun! #Help4HDSympo2025 #FtLauderdaleFL #HuntingtonsDisease
We would like to invite you to join #Help4HD's Virtual #Support Group for Spanish speaking #HD Caregivers. Contact: [email protected] #Help4HD #HDCaregivers #HuntingtonsDisease
Have you been to Monday Mixer?! Join us this week on Zoom at 4pm PST for fellowship with #HD community members at this weekly social! Reach out to [email protected] for more details. See you soon!
#JHD Families can bring their questions to this Q&A with these special guests! Join this session on Sept 6th at Help4HD Symposium! #Help4HDSympo2025 #FtLauderdaleFL #HuntingtonsDisease Full Schedule here: facebook.com/help4hd/posts/…
Can't wait to hear update from @neurocrine with Dr. Olga, Director of Medical Affairs, & Dr. Dwight, Associate Medical Director. Listen in-person in #FtLauderdaleFL or LIVE on FB next Saturday! #Help4HDSympo2025 #HD Schedule: facebook.com/help4hd/posts/…
Listen in as Lauren & Jamie discuss meaningfulness of #HDResearch Clinical Trials with Christopher Mezias HD-RSC Associate Scientific Director! Don't miss these informative sessions coming up Sept 6th! #Help4HDSympo2025 #FtLauderdaleFL #HuntingtonsDisease
⭐Tell about your HD clinic experience!⭐ Patient, caregiver, family member, or friend, your perspective is valuable! Your voice can help shape the future of #HD care for the community! HD-PACE Survey: forms.gle/QYpYjQ8pus4c1m…
"As someone at risk, should I test based on current #HDResearch?"On #Help4HDTV this week, hear this question & more addressed by HD experts from our most recent #HIPE panel! #Help4HD #HuntingtonsDisease #HDCommunity facebook.com/help4hd/videos
Help4HD retweeted
Brianna Esker, Sarina Smith and Christy Dearien of HD PACE joined me today on #Help4HDLive to share more about a new HD Clinic Rating Survey created for the HD community. Take a listen! @Help4HDI spreaker.com/episode/help4h…
Find out more about #symptoms & challenges of #JHD as Dr. Nive Thakur presents at #Help4HDSympo2025! Hear more from Co-Director of the Pediatric #MovementDisorder Center at UTHealth coming up Saturday, Sept 6! #FtLauderdaleFL #HD facebook.com/help4hd/posts/…
You dont want to miss this episode of #Help4HDLive ! Hear this special update from #HDPACE TOMORROW at 1pm PST! spreaker.com/podcast/help-4… Can't make the live podcast? Listen later on your streaming service: Spotify, iTunes, iHeartRadio, etc..
Join us at Symposium next weekend! Director of the UF HDSA Center of Excellence, Dr. Nikolaus McFarland, discusses #HDResearch in regards to Cell & Gene Therapy! Check it out! #Help4HDSympo2025 #FtLauderdaleFL #HuntingtonsDisease
What sessions will you choose?! See what topics & speakers are on the docket for next weekend! #Help4HDSympo2025 #FtLauderdaleFL #HD Can't attend in person? Join us online to listen to the Main room (Commodore Ballroom) sessions via FB LIVE stream!
"PT & #JHD". This pediatric physical therapist, Sara McMahan, will be shedding light on physical therapy for #JuvenileHuntingotnsDisease patients! Check out this session at Symposium next Saturday! #Help4HDSympo2025 #FtLauderdaleFL #HuntingtonsDisease
HDSA @HDSA
6K Followers 1K Following The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.
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HD Genetics @HD_Genetics
320 Followers 245 Following Huntington's Disease Genetics (HD Genetics) offers best-in-class genetic counseling & testing directly to at-risk individuals in the USA.
BJ Viau @BJsView
801 Followers 2K Following #HuntingtonsDisease Community Advocate. Entrepreneur. Passion to Help Others. Founder @HD_Genetics & Co-F @hdyofeed Viau’s Are My Own. Tommie Hoops Fan
Journal of Huntington... @journal_hd
1K Followers 249 Following Journal of Huntington’s Disease | Dedicated to expediting our understanding & improving treatments of HD | Editors: Blair R. Leavitt & Leslie M. Thompson
EHDN Collaborations @EHDN_GRANTM
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uniQure @uniQure_NV
3K Followers 131 Following uniQure is delivering on the promise of gene therapy - single treatments with potentially curative result for patients with severe genetic diseases.
EHDN News @EHDN_News
717 Followers 975 Following European Huntington's Disease Network newsletter. Please see our profiles on BlueSky and LinkedIn for the latest updates.
Gene Veritas @geneveritas
721 Followers 483 Following Huntington's disease advocate, blogger, and historian of science, technology, and medicine (aka Kenneth P. Serbin)
HDF @hdfcures
1K Followers 1K Following The official Twitter feed of the Hereditary Disease Foundation. Innovating research, discovering cures. #hdfcures #ResearchSpotlightWebinars
Therese Crutcher-Mari... @crutchertherese
607 Followers 400 Following I'm a Huntington's Disease advocate, President for HDSA SF Bay Area Chapter, a blogger & author of Watching Their Dance.
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12K Followers 8K Following Director, Univ. California Davis Health Stem Cell Program & Gene Therapy Center. Editor, Stem Cells. #firstgen https://t.co/UYKJpKOqGz
jackie harrison @jaq421
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HDSA San Francisco Ba... @HDSA_SF
271 Followers 537 Following Updates and news from the Huntington's Disease Society of America San Francisco Bay Area Chapter. #LetsTalkAboutHD. Recommendations? email [email protected]
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404 Followers 4K Following Passionate and proud Scotsman. We are not here to take part we are here to take over. Golf, gaming, grub, beers and the Hearts.
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810 Followers 3K Following MDPhD (M2 G1) student @SchulichMedDent @Western_MDPhD @westernubiochem • rare disease, precision medicine, genetic therapies • she/her 🧬👩🏼🔬🥼🎨⛵️
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716 Followers 5K Following
Daniel Coleman @djcjr24
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Belle Engelbrecht @Belle4beastie
721 Followers 848 Following Looking forward to fully living life. My father was recently diagnosed with Huntington's. Learning to live with it and be a caregiver.
Gregory Maxwell @gregorymaxwell
3K Followers 3K Following I am a writer, always three days behind. There is a perpetual WIP, GMax~~Poetry Slam Captain.
JSturg @Relax0324
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3 Followers 67 Following Advanced regenerative aesthetics. Elevate your beauty with science-driven treatments and natural results
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5K Followers 1K Following Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
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AhmadFotoohi @DrAhmadFotoohi
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Joe @joeybals311
403 Followers 439 Following Current #BizDev. Former molecular biologist and C-130 crew chief extraordinaire
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Testimony Genesis Fou... @genesistestimon
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Publius @publius20330476
312 Followers 600 Following Build on strong principles. Clear out the wreckage when it stands in our way.
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CLT PathFinder @CLT_PathFinder
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Ana @CecyJug
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Gatling @apyhunter
80 Followers 2K Following
Jill 🏳️🌈�... @pumpkinspiceisa
502 Followers 3K Following ⭐️ widow, suburban mother of two wonderful kids who happen to have a terminal neurodegenerative disorder called Juvenile Huntingtons disease 💜💙 #CUREHD
𝐚𝐦𝐲 𝐥𝐨... @amyyxlou
9 Followers 121 Following
Andrei @BostonDrei
2K Followers 7K Following Best time to plant a tree was 20 years ago; second best time is right now.
Arvand Asghari @ArvandAsghari
122 Followers 451 Following Medical Science Liaison, Neurology - Pacific Northwest🧠, Foodie🍱, and Traveler🧳
RichSonia @soniavi
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🦋Cydi García🦋 @cydi_garcia
575 Followers 2K Following Lo mejor de la vida son momentos, recuerdos y lecciones. Me encanta el olor de la gente feliz. Amo a mi familia.Dios es bueno y creo en ÉL. IASD.
Sarah Post @spost616
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HDSA @HDSA
6K Followers 1K Following The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.
HDYO @HDYOFeed
2K Followers 725 Following An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntington’s Disease around the world.
Lauren Holder @laurencurehd
566 Followers 494 Following HD advocate, #rarediseases advocate, Producer of Help4HD Live, caregiver, mom, and much more!
Huntington's Disease ... @HDA_tweeting
4K Followers 2K Following Huntington's Disease Association is a registered charity that supports people affected by #HuntingtonsDisease (HD) in England and Wales. #MindfulOfHuntingtons
HD Reach @HDReach
1K Followers 80 Following HD Reach is a nonprofit organization dedicated to providing access to healthcare, education, and social assistance for those affected by Huntington’s disease.
HDBuzz @HDBuzzFeed
6K Followers 2K Following Huntington’s disease research news. In plain language. Written by scientists. Editors @labscribbles @rungenado
HD Genetics @HD_Genetics
320 Followers 245 Following Huntington's Disease Genetics (HD Genetics) offers best-in-class genetic counseling & testing directly to at-risk individuals in the USA.
BJ Viau @BJsView
801 Followers 2K Following #HuntingtonsDisease Community Advocate. Entrepreneur. Passion to Help Others. Founder @HD_Genetics & Co-F @hdyofeed Viau’s Are My Own. Tommie Hoops Fan
Journal of Huntington... @journal_hd
1K Followers 249 Following Journal of Huntington’s Disease | Dedicated to expediting our understanding & improving treatments of HD | Editors: Blair R. Leavitt & Leslie M. Thompson
Scottish Huntington's... @ScottishHD
2K Followers 419 Following The only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.
EHDN Collaborations @EHDN_GRANTM
930 Followers 833 Following European Huntington's Disease Network https://t.co/SW4uBnzahl -This account is no longer active. EHDN is now on LinkedIn and BlueSky
uniQure @uniQure_NV
3K Followers 131 Following uniQure is delivering on the promise of gene therapy - single treatments with potentially curative result for patients with severe genetic diseases.
@huntingtonsc @HuntingtonSC
3K Followers 854 Following A national network of volunteers and professionals working together to find a meaningful treatment for Huntington disease.
EHDN News @EHDN_News
717 Followers 975 Following European Huntington's Disease Network newsletter. Please see our profiles on BlueSky and LinkedIn for the latest updates.
Gene Veritas @geneveritas
721 Followers 483 Following Huntington's disease advocate, blogger, and historian of science, technology, and medicine (aka Kenneth P. Serbin)
HDF @hdfcures
1K Followers 1K Following The official Twitter feed of the Hereditary Disease Foundation. Innovating research, discovering cures. #hdfcures #ResearchSpotlightWebinars
Therese Crutcher-Mari... @crutchertherese
607 Followers 400 Following I'm a Huntington's Disease advocate, President for HDSA SF Bay Area Chapter, a blogger & author of Watching Their Dance.
Huntington's Disease ... @HDAI_ie
3K Followers 5K Following HDAI RCN 20025656. Sharing news on Huntingtons Disease /connecting to the international HD community. RTs not endorsements. https://t.co/z0BAD0VUeS https://t.co/pPoXkLELx2
Prilenia @PrileniaTx
2K Followers 260 Following Clinical stage biotech company focused on developing novel treatments for neurodegenerative and neurodevelopmental disorders
Dr. Jan Nolta @jan_nolta
12K Followers 8K Following Director, Univ. California Davis Health Stem Cell Program & Gene Therapy Center. Editor, Stem Cells. #firstgen https://t.co/UYKJpKOqGz
Rare Disease Day @rarediseaseday
42K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
Rare Disease Advisor @RareDisease_Adv
5K Followers 1K Following Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
HDAwareness2024 @HDAwareness2024
336 Followers 3K Following Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #CureHD #CureJHD too.
Neurocrine Bioscience... @neurocrine
791 Followers 369 Following Official X for Neurocrine Biosciences, a neuroscience-focused, biopharmaceutical company. See our community guidelines here: https://t.co/5Saf80wq5E
Alliance for Regenera... @alliancerm
7K Followers 2K Following ARM champions the benefits of engineered cell therapies and genetic medicines for patients, healthcare systems, and society.
World Orphan Drug Con... @OrphanConf
5K Followers 870 Following Get regular updates on #WorldOrphanUSA! June 9-11, 2026 | Boston Convention & Exhibition Center
Annexon Biosciences @annexonbio
316 Followers 170 Following Unlocking the Next Generation of Complement Therapies
Andrew Barth Feldman @andrewbfeldman
42K Followers 351 Following i love your outfit today!!!! | he/him/his
EndTheLegacy @End_The_Legacy
388 Followers 61 Following Patient led organization providing education and support , and advocating for, those impacted by Genetic ALS and FTD.
Institute for Gene Th... @gene_therapies
2K Followers 438 Following Gene therapy is transforming how we treat diseases. But today’s healthcare system can’t realize its potential. We’re changing that.
Jean C9orf72 @Jeanc9orf72
1K Followers 860 Following C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy @end_the_legacy
Factor-H @FactorH_LatAm
345 Followers 213 Following A humanitarian nonprofit founded to diminish the suffering of families affected by Huntington's disease in Latin America
LundbeckUS @LundbeckUS
13K Followers 658 Following We are dedicated to advancing brain health and transforming lives. All posts are intended for US audiences only.
Marianna Palka @mariannapalka
6K Followers 2K Following BITCHthefilm/Collection with Alex Pettyfer/@goodomensprime @happysyfyEmmys= @glownetflix @eggthefilm @GirlsHBO #scottishmussel @gooddickthefilm #firstkiss #neds
Jason Ritter 🦋 @JasonRitter
214K Followers 4K Following I’m not really here anymore… you can find me here if you like ⬇️
Josh HF @JoshNHF
8 Followers 30 Following PhD student at Dr. Yijuang Chern's lab in Academia Sinica, Taiwan, with keen interest in neuroscience and neurodegenerative diseases.
ChANGE-HD @ChANGEHD_study
29 Followers 16 Following This is a multi-site brain imaging study. Our participants are ages 6-30 and have a parent or grandparent diagnosed with Huntington Disease.
Shuatastic 🌹 @Shuatasticc
134 Followers 485 Following Huntington’s Disease Advocate, Berniecrat, Gamer.
myHDstory® @myHDstory
66 Followers 55 Following myHDstory® is an online research project sponsored by the Huntington Study Group® (HSG).
Jessica Tursi @jessicaturs
427 Followers 1K Following I live in South Philly, home of the Philadelphia Phillies and the best food ever! Love my Phillies, Flyers and Eagles! #curehd #hdsa #jhd #curejhd
Rare Diseases @CheckOrphan
18K Followers 5K Following CheckOrphan is the leading #news and information platform dedicated to #rarediseases and #orphandrugs
Anonymous HD Mama @AnonymousHDMama
8 Followers 52 Following Wife, Mama, At Risk for Huntington's Disease
JoHD Brain Study-Univ... @JoHD_Iowa
48 Followers 41 Following Our research is centered around young people who have been diagnosed with Juvenile Onset Huntington Disease (JoHD).
Sasha Duffy @DrSashaDuffy
109 Followers 154 Following #ProudPD of @ucdavisneuro, Educator, Neurologist, Movement Disorder Specialist, mama, wife, and fly fisherwoman. Tweets are my own.
Neuroimaging and Neur... @WSU_NNL
419 Followers 310 Following Directed by Nora Fritz. We study how changes in #cognition impact #mobility to improve #neurorehabilitation for people with neurodegenerative diseases.
Isaac Cox @i_cox22
184 Followers 1K Following
FRAXA Biotech Games�... @BiotechGames
230 Followers 253 Following When biotech companies gather, good things happen | competition+camaraderie+networking | promoting #biotech | benefiting #FragileX #autism @FRAXAresearch
Joe Giuliano @jdgiuliano
251 Followers 287 Following Healthcare professional, treatments for rare diseases, dad, husband, amateur poet, love Italy. Retweets are not endorsements. All views expressed are my own.
Huntington NL @huntingtonNL
1K Followers 660 Following Over de geschiedenis en het leven van mensen in Nederland met de ziekte van Huntington
HDSA Northeast Region @HDSA_NERegion
447 Followers 150 Following The HDSA is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease (HD).
Cure HD Calgary @CureHDCalgary
334 Followers 566 Following We are the Southern Alberta Chapter of the Huntington Society of Canada, working towards a cure for Huntington disease. Contact us for more info!
HDSA GLR @HDSAGLR
992 Followers 100 Following #Huntington's Disease Society of America is a voluntary health organization dedicated to improving the lives of people with Huntington's and their families.
HDSA-CT @HDSACT
375 Followers 20 Following Connecticut Chapter of the national Huntington's Disease Society of America whose mission is to improve the lives of everyone affected by Huntington's disease.
Chronic Disease Coali... @ChronicRights
12K Followers 495 Following Leading non-profit #health #advocacy for funding research and defending #ChronicRights - fighting for all affected by #chronicdisease RTs not endorsements
HDSA-NE @HDSA_NE
245 Followers 4 Following #Huntington's Disease Society of America is a voluntary health organization dedicated to improving the lives of people with Huntington's and their families.
The Barker / Williams... @PDandHDLab
1K Followers 376 Following Actively doing clinical and lab-based research on both Parkinson's and Huntington's disease at the John van Geest Centre for Brain Repair. NIHR Investigator.
Huntington's WA @Huntingtons_WA
219 Followers 212 Following A not-for-profit committed to supporting the Huntington's Disease community in Western Australia.
Vaccinex @Vaccinex
5K Followers 75 Following Vaccinex is pioneering a differentiated approach to treating cancer and progressive neurodegenerative diseases through the inhibition of SEMA4D. $VCNX
HD Care @HDCare3
68 Followers 78 Following Community. Advocacy. Research. Education. A UCI-based support group dedicated to those affected by Huntington's Disease, a neurodegenerative disorder.
Jordan Schultz @Schultz_Lab
131 Followers 161 Following Assistant Professor of Psychiatry, Neurology, and Pharmacy Practice at the University of Iowa Carver College of Medicine
Andrea Horta-Barba @ahortaba
276 Followers 525 Following Neuropsychologist at Hospital de la Santa Creu i Sant Pau | Movement Disorders Researcher | European Huntington’s Disease Network (EHDN)
HDdennomore @HDdennomore
373 Followers 350 Following HDdennomore is a global coalition of Huntington's disease (HD) advocates. Join us on May 18 for Pope Francis' special audience with the HD community.Trends for United States
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