ChANGE-HD @ChANGEHD_study
This is a multi-site brain imaging study. Our participants are ages 6-30 and have a parent or grandparent diagnosed with Huntington Disease. changehd.org Joined February 2020-
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So excited to share our two research papers that discuss findings from our Kids-HD study!
We are happy to share a special edition of Brain Sciences on JOHD which includes latest scientific advances in the HD community. The edition is free and can be downloaded from mdpi.com/books/pdfview/…
Day 2 event space for #HSG2020 #HDinFocus is open. Speaker sessions begin in less than 1 hour starting at 10:00 am EST. Grab a bite, get some juice or coffee, and settle in for another fantastic day of presentations and updates on the latest in #HuntingtonsDisease research!
We are so excited to be a part of HSG and will be exhibiting our ChANGE-HD and JHD studies at the meeting. To find us, type "research" in the search box and stop by our booth to chat with our study coordinators. We look forward to hearing from you!
We are so excited to be a part of HSG and will be exhibiting our ChANGE-HD and JHD studies at the meeting. To find us, type "research" in the search box and stop by our booth to chat with our study coordinators. We look forward to hearing from you!
A great combination panel with Peg Nopoulos, Carlos Cepeda, and Jordan Schultz on whether HD is caused by malformation of cortical development and preparing clinical trials for Juvenile-onset #HuntingtonsDisease - #HSG2020 #HDinFocus
Missed the Virtual 35th Annual #HDSAConvention? No Problem! Watch the recorded sessions now at hdsa.org/about-hdsa/ann… #LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily #PartOfTheFamily
HDYO is available virtually, through Skype, all day, everyday. #cureHD #cureJHD #unitethefight #youngpeoplematter #rarediesease #hope #Huntingtonsdisease #charity #nonprofit #international #courage #brave #changemakers #friendship #community #support #awareness #bekind
This Week in #HuntingtonsDisease Research with HDSA's Dr. Leora Fox! Read the latest post at HDSA.org/blog THIS WEEK - Virtual 35th Annual #HDSAConvention Research Recap #LetsTalkAboutHD #PartOfTheFamily #HDSAFamily
Happy Father's Day from the #HDSAFamily! In the fight against #HuntingtonsDisease, FAMILY IS EVERYTHING! #LetsTalkAboutHD #PartOfTheFamily #HappyFathersDay2020
Functional Yoga & Mobility on Wednesdays and Chair Yoga & Mobility on Thursdays. #cureHD #cureJHD #youngpeoplematter #charity #courage #brave #changemakers #friendship #community #support #bekind #HDHero #Yoga #mindfulness #reset #selfcare #mobility #functional
Today is Day 2 at the Virtual 35th Annual #HDSAConvention! Don't miss the exciting presentations from world-class #HuntingtonsDisease experts, Virtual Exhibit Hall & tonight's NYA Talent Show! ➡️HDSA Convention app: app.socio.events/NTUzOA/Announc… ➡️Learn more HDSA.org/convention
To access sessions at the #HDSAConvention that do not require preregistration, please go to the agenda in the Convention App, find the session and click on the "Join Live Stream" button. ➡️VISIT app.socio.events/NTUzOA/Agenda/… #HuntingtonsDisease #LetsTalkAboutHD #PartOfTheFamily
The #HDSAConvention starts in less than one hour at 4:30pm ET! Register to attend at hdsa-org.zoom.us/webinar/regist… To Learn more about the Virtual 35th Annual HDSA Convention please visit HDSA.org/convention #LetsTalkAboutHD #HuntingtonsDisease #PartOfTheFamily #HDSAFamily
We are going to be a part of the virtual exhibit. Looking forward to seeing you soon!
We will be exhibiting our ChANGE HD and JHD studies and you can get to know more about them by (virtually) chatting with our coordinators. We hope to see you there!
We will be exhibiting our ChANGE HD and JHD studies and you can get to know more about them by (virtually) chatting with our coordinators. We hope to see you there!
Register today for the virtual workshops on Friday, June 5th at the #HDSAConvention by visiting HDSA.org/convention NOTE: The Virtual HDSA Convention is FREE to attend, but most workshops require preregistration due to limited space. #LetsTalkAboutHD #HuntingtonsDisease
Register today for the #HDSAConvention Research Forum on Saturday, June 6th! The HDSA Convention is FREE to attend, but requires preregistration. Research Forum Features: Annexon @WaveLifeSci @Roche / @genentech @HDBuzzFeed Clinical Trials Showcase ➡️HDSA.org/convention
The Virtual #HDSAConvention is this week! Go to HDSA.org/convention to preregister for sessions & learn more! The HDSA Convention is FREE to attend, but preregistration is required for most sessions. youtube.com/watch?v=H9WB59… #LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily
Our show today was about how It's not always HD by Help4HD blogtalkradio.com/help4hd/2020/0…

Jill 🏳️🌈�... @pumpkinspiceisa
502 Followers 3K Following ⭐️ widow, suburban mother of two wonderful kids who happen to have a terminal neurodegenerative disorder called Juvenile Huntingtons disease 💜💙 #CUREHD
Ryan @CureHDWeWontBe
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Help4HD @Help4HDI
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s @incognito101_fr
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EHDN News @EHDN_News
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Huntington's Research... @HRGVic
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BJ Viau @BJsView
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imran tüfekci @TufekciImran
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HDANI @HDAssocNI
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Londen Tabor @londen_tabor
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Dr Lauren Byrne @LaurenByrne7337
1K Followers 401 Following Huntington's disease researcher (@houseofbyrne) and family member. Tweets are my own. Passionate about dogs, wine, cheese and curing HD.
youmeandhd @youmeandhd
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Erlend Ravnå @Erl1rav
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Everyday is #HDAwaren... @AwarenessHD
2K Followers 5K Following Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #huntingtonsdisease
HD Reach @HDReach
1K Followers 80 Following HD Reach is a nonprofit organization dedicated to providing access to healthcare, education, and social assistance for those affected by Huntington’s disease.
Factor-H @FactorH_LatAm
345 Followers 213 Following A humanitarian nonprofit founded to diminish the suffering of families affected by Huntington's disease in Latin America
HDYO @HDYOFeed
2K Followers 725 Following An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntington’s Disease around the world.
Jordan Schultz @Schultz_Lab
131 Followers 161 Following Assistant Professor of Psychiatry, Neurology, and Pharmacy Practice at the University of Iowa Carver College of Medicine
HuntingtonStudyGroup @HuntingtonSG
2K Followers 486 Following Accelerating treatments that make a difference for Huntington's disease.
Kids-HD @kids_hd
66 Followers 20 Following This is a brain imaging study at the University of Iowa. Our participants are ages 6-25 and have a parent or grandparent diagnosed with Huntington Disease.
HDSA's NYA @HDSANYA
677 Followers 92 Following Supporting young people all over the United States who are impacted by Huntington's disease #HDSANYA
Huntington's Disease @HuntingtonsHelp
332 Followers 122 Following Helping to raise money & awareness for this rare disease
Jordan Schultz @Schultz_Lab
131 Followers 161 Following Assistant Professor of Psychiatry, Neurology, and Pharmacy Practice at the University of Iowa Carver College of Medicine
HDSA Northeast Region @HDSA_NERegion
447 Followers 150 Following The HDSA is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease (HD).
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973 Followers 208 Following We represent Huntington's disease families and Organisations throughout Europe. Insta: @Theeurohuntington
Huntington's Disease ... @HDAI_ie
3K Followers 5K Following HDAI RCN 20025656. Sharing news on Huntingtons Disease /connecting to the international HD community. RTs not endorsements. https://t.co/z0BAD0VUeS https://t.co/pPoXkLELx2
HuntingtonStudyGroup @HuntingtonSG
2K Followers 486 Following Accelerating treatments that make a difference for Huntington's disease.
UCL Huntington’s Di... @UCLHD
2K Followers 134 Following Committed to training the next generation of scientists and clinicians to contribute to the fight against Huntington's disease 🧬 @UCLIoN
Journal of Huntington... @journal_hd
1K Followers 249 Following Journal of Huntington’s Disease | Dedicated to expediting our understanding & improving treatments of HD | Editors: Blair R. Leavitt & Leslie M. Thompson
Dr Lauren Byrne @LaurenByrne7337
1K Followers 401 Following Huntington's disease researcher (@houseofbyrne) and family member. Tweets are my own. Passionate about dogs, wine, cheese and curing HD.
HDBuzz @HDBuzzFeed
6K Followers 2K Following Huntington’s disease research news. In plain language. Written by scientists. Editors @labscribbles @rungenado
HDYO @HDYOFeed
2K Followers 725 Following An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntington’s Disease around the world.
Help4HD @Help4HDI
1K Followers 501 Following Help4HD-International, is a non profit organization serving the #Huntingtonsdisease and #JuvenileHuntingtonsdisease community.