HDSA @HDSA
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. HDSA.org U.S.A. Joined April 2009-
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Hey everyone! 🌟 #HDAwarenessMonth is in full swing. Check out this article featuring HDSA's President & CEO, Louise Vetter. Together, let's raise awareness and support for those affected by HD. 💙 #LetsTalkAboutHD Link to article: huntingtonsdiseasenews.com/news/this-awar…
Salve miris civitatis! This is the HD Awareness Month edition of the HDSA Research Blog! #LetsTalkAboutHD📚💡 Share your thoughts, spread the word, and let's make a difference together!👉 Click the link below to read the full blog ! hdsa.org/blog
In an effort to unite their state during HD Awareness Month, the HDSA Iowa Chapter is hosting The Team Hope Iowa Statewide Walk, on May 4th. Registration 9AM. Five locations, one day! Need to register? Use : iowa.hdsa.org/events/2024-te… #LetsTalkAboutHD #HDAwarenessMonth
Help us turn up the global volume on HD awareness by posting videos, stories & photos to social media using #LetsTalkAboutHD. We can educate the world about the impact of this disease. #HDAwarenessMonth #LetsTalkAboutHD #HDSAFamily #FamilyIsEverything #HuntingtonsDisease
Check out this news story from Neurocrine Biosciences- reuters.com/business/healt… #Letstalkabouthd #HuntingtonsDisease #HDinthenews
May is HD Awareness Month. This May turn up the volume on HD by turning your profile picture blue. Check out our Twibbon page- twibbon.com/Support/letsta… download the profile picture filter and/or the Facebook cover to support the HD community! #LetsTalkAboutHD
TELL US WHO IT SHOULD BE IN 2024! Submit your nomination today! Deadline to submit is April 30th! Use the link below to complete your nomination: fs22.formsite.com/hdsa/oo14k2gng… #HDSA #FamilyIsEverything
As National Volunteer Week winds down, we extend our deepest gratitude to all the remarkable volunteers who have dedicated their time, energy, and passion to make a difference for families affected by HD. Thank you! #HDSA #globalvolunteermonth #nationalvolunteerweek
Bonjour, amazing community! You were patiently waiting and we are delivering another scrumptious edition of the HDSA Research Blog! Share your thoughts and spread the word! 👉 Click the link below to read the full blog ! 👇 hdsa.org/blog
Join us at the stunning Davenport Grand, for a weekend of connection, inspiration, and celebration. Register before April 30th for some savings with our Regular Rate. Late Registration starts May 1st. Use link below to register: hdsa.org/about-hdsa/ann… See you soon in Spokane!
ONLY SIX DAYS LEFT! Help us celebrate the unsung heroes in your community by nominating that person for an HDSA National Award or a Chapter/Affiliate Excellence Award! DEADLINE TO NOMINATE YOUR CHAMPION IS APRIL 30TH! Nominate now: fs22.formsite.com/hdsa/oo14k2gng…!
Celebrate your special day (and other anniversaries!) by making a difference in the world and helping to make a difference in the fight against Huntington's disease. Create a Facebook/Instagram Fundraiser and join us in our mission to make a difference this month.
Have you encountered a member of your community that has gone above and beyond to support families? Help us celebrate the unsung heroes of the community by nominating someone today. DEADLINE TO NOMINATE YOUR CHAMPION IS APRIL 30TH! Nominate now: fs22.formsite.com/hdsa/oo14k2gng…!
Happy National Volunteer Week! Your work makes an immeasurable difference in the lives of families effected by Huntington's disease. On the behalf of everyone at HDSA, THANK YOU FOR ALL YOU DO! #HDSA #FamilyIsEverything #globalvolunteermonth #nationalvolunteerweek
WE CAN'T WAIT TO SEE YOU IN SPOKANE! Register today to attend the 39th Annual HDSA Convention in Spokane, WA on May 30-June 1 2024. Regular Rate Deadline: April 30th Late Rate will go into effect May 1st hdsa.org/about-hdsa/ann…
Nominate those unsung heroes from your community today and help us celebrate their contributions. Then, join us at the Annual HDSA Convention Gala on June 1st in Spokane, WA, as we honor our remarkable winners. DEADLINE TO NOMINATE IS APRIL 30TH! fs22.formsite.com/hdsa/oo14k2gng…!
🌟 Calling All Community Members! 🏆 The 2024 HDSA National Awards & Chapter/Affiliate Excellence Awards have arrived and the application is in full effect! Help us celebrate the heroes of our community. NOMINATE NOW! April30th is the deadline. fs22.formsite.com/hdsa/oo14k2gng…!
Ciao, amazing community! A fresh edition of the HDSA Research Blog is here! 📚💡 Don't just stay in the loop; be a part of the progress! Share your thoughts and spread the word! 👉 Click the link below to read the full blog ! 👇 hdsa.org/blog/
Have you checked out The HDSA Podcast yet? 🎧Meet members of the #HuntingtonsDisease community and get an inside look at the Huntington's Disease Society of America. Click the link below to start listening now: thehdsapodcast.buzzsprout.com 💙 #LetsTalkAboutHD #HDSAFamily
Join us at the stunning Davenport Grand, for a weekend of connection, inspiration, and celebration. Register before April 30th for some savings with our Regular Rate. Late Registration starts May 1st. Click 🖱️ the link below to secure your spot. hdsa.org/about-hdsa/ann…
Huntington's Disease .. @HDA_tweeting
5K Followers 2K Following Huntington's Disease Association is a registered charity that supports people affected by #HuntingtonsDisease (HD) in England and Wales. #MindfulOfHuntingtonsJeff Carroll, PhD @jcarroll42
2K Followers 860 Following Neuroscientist; Associate Professor @UW; Huntington's Disease Researcher; Founder @HDBuzzFeed; Army VeteranHDYO @HDYOFeed
2K Followers 748 Following An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntington’s Disease around the world.Seth Rotberg @Srotberg15
2K Followers 1K Following I help infuse the patient voice throughout drug development | #HuntingtonsDisease advocate | @Tedx Speaker | All views are my ownMDS @movedisorder
15K Followers 314 Following MDS is a professional society of clinicians and other healthcare professionals interested in movement disorders. #movedisorder @MDJ_Journal | @MDCP_JournalHD Reach @HDReach
1K Followers 81 Following HD Reach is a nonprofit organization dedicated to providing access to healthcare, education, and social assistance for those affected by Huntington’s disease.UCL Huntington’s Di.. @UCLHD
2K Followers 136 Following Committed to training the next generation of scientists and clinicians to contribute to the fight against Huntington's disease 🧬 @UCLIoNjackie harrison @jaq421
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52K Followers 2K Following Neuropsychologist | Huntington's disease | Movement Disorders & Neurodegenerative diseases | 🏥@HospitalSantPau • @Cdincneurologia · 📖 Autor de Cerebros RotosHD Genetics @HD_Genetics
327 Followers 260 Following Huntington's Disease Genetics (HD Genetics) offers best-in-class genetic counseling & testing directly to at-risk individuals in the USA.Gene Veritas @geneveritas
736 Followers 498 Following Huntington's disease advocate, blogger, and historian of science, technology, and medicine (aka Kenneth P. Serbin)EHDN Collaborations @EHDN_GRANTM
950 Followers 863 Following European Huntington's Disease Network https://t.co/SW4uBnzahl -Grant and collaborations manager. Views expressed are my own. Fionnuala MargreiterHDBuzz @HDBuzzFeed
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846 Followers 2K Following #HuntingtonsDisease Community Advocate. Entrepreneur. Passion to Help Others. Founder @HD_Genetics & Co-F @hdyofeed Viau’s Are My Own. Tommie Hoops Fan@huntingtonsc @HuntingtonSC
3K Followers 874 Following A national network of volunteers and professionals working together to find a meaningful treatment for Huntington disease.European Huntington A.. @EuroHuntington
963 Followers 214 Following We represent Huntington's disease families and Organisations throughout Europe. Insta: @TheeurohuntingtonJournal of Huntington.. @journal_hd
1K Followers 265 Following Journal of Huntington’s Disease | Dedicated to expediting our understanding & improving treatments of HD | Editors: Blair R. Leavitt & Leslie M. ThompsonLauren Holder @laurencurehd
473 Followers 472 Following HD advocate, #rarediseases advocate, Producer of Help4HD Live, caregiver, mom, and much more!HuntingtonStudyGroup @HuntingtonSG
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601 Followers 419 Following I'm a Huntington's Disease advocate, President for HDSA SF Bay Area Chapter, a blogger & author of Watching Their Dance.Lorraine Barry @BarryLorraine
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61 Followers 230 Following Curious and passionate @MIBTP1 PhD student at @uniofleicester | Studying the gut-brain axis in Huntington's disease using Drosophila model👩🏻🔬🦠🧠🪰Elissa Kaywork @eli20944
3 Followers 24 FollowingAndres Alvariza @AlvarizaAndres
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0 Followers 13 FollowingAnkush Sharma @Biologynerd2
191 Followers 3K Following mTor || Preclinical Studies || Oncology ModelsHD-CAB @HD_CAB
26 Followers 145 Following Huntington's Disease Community Advisory Board. 🌎 Represent the voice of the global HD communityM’alice @MaliceWandaland
0 Followers 73 FollowingUniversity of Iowa Ps.. @UIowaPsychiatry
341 Followers 165 Following Advancing mental health research, education, and clinical care for more than 100 years. @IowaMed @uihealthcare @uichildrens @uiowa. #PsychTwitter #MedTwitterHaley Deville @h4leydeville
151 Followers 116 Following Baylor University Alum | PGY-0 @UTHealth_Neuro 🧠✨🩺| @NMatch2024 LeaderRick Gill @rickgill
436 Followers 883 Following 🇨🇦 | Assistant Professor, Neurology/Neurocritical Care, Clerkship Director @LoyolaHealth @LoyolaNeurology @LoyolaHSC | Neurocritical Care alum @PennMedicineNeuroHD @hdneuro1
8 Followers 25 Following #neuroscience #HuntingtonsDisease #neurodegenerativediseaseAysha Fahmeetha @AyshaFahmeetha
62 Followers 606 Following PhD level procrastinating here | Research Scholar @ StrucBioLab NCBSSergiu Groppa @segroppa
758 Followers 1K Following Professor of Neurology, Head of Movement Disorders, Imaging & Neurostimulation, UM Mainz, Germany, moved to Bluesky @segroppa.bsky.socialWord Games @WardGomes
21 Followers 161 Following Archivist; social liberal; fiscal conservative. I’d rather have a covid19 vaccine than $1200.Huntington's Disease .. @HDA_tweeting
5K Followers 2K Following Huntington's Disease Association is a registered charity that supports people affected by #HuntingtonsDisease (HD) in England and Wales. #MindfulOfHuntingtonsJeff Carroll, PhD @jcarroll42
2K Followers 860 Following Neuroscientist; Associate Professor @UW; Huntington's Disease Researcher; Founder @HDBuzzFeed; Army VeteranHDYO @HDYOFeed
2K Followers 748 Following An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntington’s Disease around the world.Seth Rotberg @Srotberg15
2K Followers 1K Following I help infuse the patient voice throughout drug development | #HuntingtonsDisease advocate | @Tedx Speaker | All views are my ownMDS @movedisorder
15K Followers 314 Following MDS is a professional society of clinicians and other healthcare professionals interested in movement disorders. #movedisorder @MDJ_Journal | @MDCP_JournalHD Reach @HDReach
1K Followers 81 Following HD Reach is a nonprofit organization dedicated to providing access to healthcare, education, and social assistance for those affected by Huntington’s disease.UCL Huntington’s Di.. @UCLHD
2K Followers 136 Following Committed to training the next generation of scientists and clinicians to contribute to the fight against Huntington's disease 🧬 @UCLIoNScottish Huntington's.. @ScottishHD
3K Followers 434 Following The only charity in Scotland exclusively dedicated to helping people affected by the complex, hereditary neurological condition - Huntington's disease.Gene Veritas @geneveritas
736 Followers 498 Following Huntington's disease advocate, blogger, and historian of science, technology, and medicine (aka Kenneth P. Serbin)EHDN Collaborations @EHDN_GRANTM
950 Followers 863 Following European Huntington's Disease Network https://t.co/SW4uBnzahl -Grant and collaborations manager. Views expressed are my own. Fionnuala MargreiterHDBuzz @HDBuzzFeed
7K Followers 3K Following Huntington’s disease research news. In plain language. Written by scientists. Editors @profedwild @jcarroll42 @labscribbles @rungenado & @LeoraFoxTweets@huntingtonsc @HuntingtonSC
3K Followers 874 Following A national network of volunteers and professionals working together to find a meaningful treatment for Huntington disease.European Huntington A.. @EuroHuntington
963 Followers 214 Following We represent Huntington's disease families and Organisations throughout Europe. Insta: @TheeurohuntingtonJournal of Huntington.. @journal_hd
1K Followers 265 Following Journal of Huntington’s Disease | Dedicated to expediting our understanding & improving treatments of HD | Editors: Blair R. Leavitt & Leslie M. ThompsonLauren Holder @laurencurehd
473 Followers 472 Following HD advocate, #rarediseases advocate, Producer of Help4HD Live, caregiver, mom, and much more!HuntingtonStudyGroup @HuntingtonSG
2K Followers 501 Following Accelerating treatments that make a difference for Huntington's disease.Therese Crutcher-Mari.. @crutchertherese
601 Followers 419 Following I'm a Huntington's Disease advocate, President for HDSA SF Bay Area Chapter, a blogger & author of Watching Their Dance.tom ellis @tomellis17
999K Followers 270 Following husband, dad, actor and other fun things like thatHuntington's Disease .. @HDAI_ie
3K Followers 5K Following HDAI RCN 20025656. Sharing news on Huntingtons Disease /connecting to the international HD community. RTs not endorsements. https://t.co/pPoXkLELx2 / https://t.co/z0BAD0VUeSAllie LaForce @ALaForce
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2K Followers 935 Following Communications & Visual Storytelling @UCLANeurology 🧠// Former reporter & lifelong news lover // @UOregon alum // Probably hiking somewhere // Opinions my ownUC Health @uc_health
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764 Followers 630 Following Neurologist and Neuroscientist. Clinical director @Roche | Senior Research Fellow @UCLHD | Honorary Consultant Neurologist NHNNI AM ALS @iamalsorg
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12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]HDF @hdfcures
1K Followers 1K Following The official Twitter feed of the Hereditary Disease Foundation. Innovating research, discovering cures. #hdfcures #ResearchSpotlightWebinarsASGCT @ASGCTherapy
10K Followers 2K Following Advancing knowledge, awareness, and education leading to the discovery and clinical application of genetic and cellular therapies to alleviate human disease.Katie Ussin @KatieUssin
4K Followers 2K Following @WEWS anchor. @Cronkite_ASU grad, Regional Emmy winner (woot!), runner, momX2, RT's ≠ endorsements. [email protected] 216-431-3700We’re excited to share the last participant in our global Phase 3 PROOF-HD study has completed the last planned visit of the blinded treatment period. We're working to bring topline results to the #HD community as soon as possible. Learn more: bit.ly/3JQHPZx
@HDSA We're thrilled to partner with HDSA for this wonderful event!
Celebrate TEN years of the Woody Guthrie Center with us May 5-7. We're excited for an unforgettable weekend filled with music, art and community as we honor Woody's legacy. woodyguthriecenter.org/10year/ #WGC10
Throwing H-Hands up for #hdgratitudeday23 with special guest appearance @UCLHD #Hope #Humanity #Huntingtons #Hounds4Huntingtons
30 years ago today, the discovery of the #huntingtonsdisease gene paved the way for #genetherapy research. THANK YOU to the patients that made that possible, esp. in South America. We are a proud supporter of @FactorH_LatAm and its efforts to serve those patients. #hdgratitudeday
I am incredibly honored to receive this award. My entire career has been based on teamwork so it goes to each of my amazing colleagues, collaborators and students as well. Thank you from the bottom of my heart! 🙏
Congrats to our brilliant @UCDavisStemCell Director @jan_nolta on the 2023 @ISCTglobal Career Achievement Award in Cell and Gene Therapy! This award is the Society’s highest honor and recognizes exceptional contributions and achievements within the cell and gene therapy field.
Happy Gratitude Day! This March 23 celebrates the 30th anniversary of the announcement of the HTT gene discovery. Hear from our board members about HD stories and what they are grateful for on this historical day for Huntington's Disease. #HDGratitudeDay23 #hope @FactorH_LatAm
Happy Huntington’s Disease Gratitude Day! Celebrating 30 years since the discovery of the #HD gene! 🧬 🫶🏼 #HDgratitudeday23 #huntingtonsdisease #HDCteam @UCLHD @UCLIoN @FactorH_LatAm
Happy Huntington’s Gratitude Day from @UCLHD @UCLIoN 🫶🏼 Today marks the 30th anniversary of the discovery of the #huntingtin gene! Thank you to the Venezuelan families who made the gene discovery possible! #HDGratitudeDay23 #HD @FactorH_LatAm
Meet our Director Dr. Jody Corey Bloom! Dr. Corey-Bloom is the Director of the UCSD Huntington’s Disease Clinical Research Program, UCSD HDSA Center of Excellence (COE), and the Genetically Handicapped Persons Program (GHPP). #hdsa #huntingtonsdisease #ucsd #ucsdhdcrc
Happy #SocialWorkMonth to the invaluable Social Workers who support, advocate, and break barriers for the #Huntingtonsdisease community. Your compassion and dedication are inspiring, and we’re so thankful to work with you to improve the lives of people impacted by HD.
We’re looking forward to seeing you in New Orleans, @HDSA! #LetsTalkAboutHD
Thank you @WaveLifeSci for being a Bronze Sponsor at the 38th Annual #HDSAConvention! To learn more about Sponsorship, Exhibitor and Registration information, please visit HDSA.org/convention #LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily #neworleans #nola
#HDGratitudeDay23 is Thursday. Join us! We are One!
In Episode #2 of The HDSA Podcast, Louise Vetter chats with Chris Cosentino (HDSA's Director of Marketing & Communications) and Robi Blumenstein (CHDI President). Click here to listen to the Episode #2: buff.ly/3HoYbrb
We will work together to ensure that, from your very first visit to our center, you will never feel alone. #huntingtonsdisease #hdsa #ucsd #ucsdhdcrc
Thursday is Huntington’s Gratitude Day, for the partnership between families and scientists and all we’ve achieved together! Tweet a pic of you and the H-Hands sign! More milestones a-comin’, from our unique partnership! ❤️ R/T!!!
HDSA 2023 San Jose Team Hope 10K Timed Run and 5K Walk indybay.org/newsitems/2023… #therese #crutcher #TalkwalkerAlerts via @Talkwalker
Tomorrow - @hdfcures Research Spotlight Webinar on ‘Huntington’s Disease and cardiac health: is there a connection?” us06web.zoom.us/webinar/regist…
Jason Sudeikis and the cast of “Ted Lasso” visit the White House to discuss the importance of talking about mental health. “Check in with your neighbor, your coworker, your friends, your family and ask how they’re doing. And listen sincerely.” abcn.ws/3yQvKyj
Join the @HDSA for the Celebration of Hope Gala on March 31st! Dr. Adys Mendizabal @mendizabal_md will be honored for her work researching health disparities in #HuntingtonsDisease. Register here: pacificwest.hdsa.org/events/2023-ce…