PicnicHealth @PicnicHealth
We help you own your health by compiling all your medical records for you. And we empower you to contribute to research, anonymously and securely. PicnicHealth.com San Francisco Joined January 2014-
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It's Rare Disease Day! Say hello to Luke and Owen, possibly the rarest duo we've ever seen! 👶🏼👶🏼 While their journey is just beginning, they're already thriving and showing how strong and resilient they are! Thank you to all of you who took the time to #ShareYourRare with us 💜
From double vision to a diagnosis of #myastheniagravis, John's journey has been filled with challenges. His story shows us that although the road ahead may be uncertain, we just need to face it with determination and gratitude 💜 #raredisease #rarediseaseday
The average time that a patient spends with their primary care doctor is 17 minutes. When living with a #raredisease, that's not nearly enough time. Head over to picnichealth.link/oxw for some tips for preparing for your next doctor's appointment #medicalrecords #rarediseaseday
Meet Maddox, a true rare disease warrior! From battling Salt Wasting Congenital Adrenal Hyperplasia since birth, he's full of life and energy and has truly shown resilience. Inspired to share your story with us too? Head to picnichealth.link/5ve
Did you submit your entry yet? Don't forget, we're giving away a FREE PicnicHealth account and $100 to one lucky winner this month, in celebration of #RareDiseaseAwarenessmonth! Learn more and to submit your entry at picnichealth.link/5ve! #giveaway #raremonth #rarediseaseday
It's Black History Month, and we need to emphasize the importance of equal care. Health disparities persist in the Black community, reminding us of the need for quality care for all. Head to picnichealth.link/pr0 to read about some great resources that the community can lean on
We sat down with @rarepatientvoic’s Laura Mullen to dive into the organization's mission, achievements, and the profound impact it has had on the lives of those affected by #rarediseases. To explore the full interview, head to picnichealth.link/9rw #rarediseaseawarenessmonth
It's Rare Disease Awareness Month and we’re kicking things off with a giveaway! Show us what makes your rare disease journey unique for the chance to win a PicnicHealth account, with FREE record collecting for 6 months and a $100 gift card. Learn more: picnichealth.link/zli
Caregiving can be extremely overwhelming, especially if you've never had to care for a loved one before. With this new responsibility, there may be documents that you didn't realize you needed, that are vital to have as a caregiver. Head to picnichealth.link/m0g to learn more.
Life is unpredictable, and it's easy to get scrambled when a health emergency happens. With PicnicHealth, you have access to all your records, all at your fingertips. Share them with your loved ones and doctors with just a click of a button. Learn more at picnichealth.com
Caring for a loved one can be extremely overwhelming, especially when they're living with a #chronic condition. Services like in-home care, can help you better #support loved ones while still allowing you to balance day-to-day life. Learn more at picnichealth.link/tjn
This is your last chance to #giveback! Don’t forget, we’re making donations to support @KidneyFund and @thechandlerproj. Show your support for the IgAN and achondroplasia communities by signing up today! Head to picnichealth.link/y0d and picnichealth.link/csf to learn more 🔗
Your records should belong to you, and no one else. That's why PicnicHealth wants to help you be in control of your #medicalrecords while still keeping your information safe and secure. Learn more about data ownership at picnichealth.com #healthcare #data #security
PicnicHealth helps you manage all your records in one place. With our easy-to-view timeline, you're able to quickly access imaging, tests, doctor notes, and more! And sharing your records with your physicians and loved ones has never been easier ✨
We're so excited to be partnering with The Chandler Project for our #giveback campaign this year! As a reminder, from now until January 11th PicnicHealth will be making a donation to them in support of #achondroplasia #research. To learn more, head over to picnichealth.link/ky3
The #holidays are far from easy, especially when you're caring for a loved one. To help make this time a little easier, we put together some great #resources that you can lean on for #support! Head to picnichealth.link/j88 to check them out #caregiver #caregiving #carepartner
Two weeks ago we presented our poster on real-world data research on early breast cancer at SABCS in Texas alongside AstraZeneca! Meeting the patient advocates who were featured on our poster brought out so many emotions and was a great reminder of why we do the work that we do💜
This year, we're #givingback to @KidneyFund. AKF is the leading organization for #kidneydisease, supporting 37 million Americans who are living with kidney disease. To learn about how you can help support AKF and contribute to #IgANresearch, head to picnichealth.link/csf
There's no question that managing your #IgAN diagnosis is difficult. But luckily, many patients now have access to tools that can help them monitor their health and manage symptoms. To learn more, head over to picnichealth.link/muh!
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@PicnicHealth Thanks for featuring my brave and amazing wife! She inspires me every day to live life to the fullest.
For #HDAwarenessMonth, we did a Q&A with Brianna, our HD Change Champion. In August 2021, Brianna got tested and learned that she has the genetic mutation for Huntington's Disease. As of today, she is symptom-free and living her best life! Head to our Instagram for the full Q&A.
more #alliances #Visolis, @Ginkgo partner to improve #MicrobialStrain for #sustainable #aviation fuel production @ZyloxTonbridge, #Hicicare enter strategic coop for #vascular #guidewires solutions @PicnicHealth continues #RWD strategic partnership with @Roche, @genentech
Question: How do you get things “published”? I have been gathering my grief affirmations for a while and I was thinking about trying to publish them as cards in a set. How do you go about doing this? 💜
@CureDuchenne and @PicnicHealth have announced they are collaborating to accelerate real-world data collection in Duchenne and Becker muscular dystrophy. Read more here >> evidencebaseonline.com/cureduchenne-a… #RealWorldEvidence #RWE #realworlddata #RWD #duchennemusculardystrophy #DMD
Real world data in cell- & gene-therapies - insightful discussions at the @economistimpact Cell & Gene Therapy Summit.
What does health for all mean to you? @PicnicHealth #healthforall #worldhealthday #healthcare #health #picnichealth #judysjourneyhawaii instagram.com/p/CqvXJE2MJsW/…
Thank you @PicnicHealth for being a Bronze Sponsor at the 38th Annual #HDSAConvention! To learn more about Sponsorship, Exhibitor and Registration information, please visit HDSA.org/convention #LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily #neworleans #nola
@chappaquack @peteskomoroch Yes! @PicnicHealth doesn't put structured data back into PDFs, but we have extracted data from many, many medical record PDFs — from >80k different healthcare facilities to date
Introducing The HDSA Podcast! Click here to listen: hdsa.org/podcast/ #LetsTalkAboutHD #HDSAFamily
Introducing The HDSA Podcast! The HDSA Podcast, hosted by Louise Vetter, gives listeners an opportunity to meet members of the #HuntingtonsDisease community & get a behind-the-scenes look at HDSA every month. Listen Today: HDSA.org/podcast #LetsTalkAboutHD #HDSAFamily
✨MARKETPLACE SPOTLIGHT✨ Thrilled to introduce @PicnicHealth to the Givers Marketplace to help Givers cardholders collect, digitize, and organize their loved one’s complete medical records. Visit app.joingivers.com/marketplace to get started. 📑
If you have #myastheniagravis & want to earn some easy extra money, there is an online study you can participate in where you earn money for completing surveys about our condition. #raredisease. You can sign up through @PicnicHealth at this link: picnichealth.com/r/Us7XTh/MG1
My Mom taught me to celebrate everything, so I am here to announce I officially got my Certified Dementia Practitioner certificate. Bring on the opportunities and new doors to open 💜 #dementia #dementiacare #caregiver #certification #certifieddementiapractioner
@marissa_pittard @chrissyfarr @PicnicHealth I love this!! Would prefer something along the lines of a cold wallet that I could carry but honestly this sounds like such a time saver :) thank you!
@macbohannon @chrissyfarr @PicnicHealth is a great option for this I’ve heard - you can pay them or contribute your data in exchange for free access
@meruhealth @quitgenius @LuciraHealth @weare54gene @notablelabs @ClipboardHealth @athelas 8/ @PicnicHealth - Organize, access, collect, digitize, and encrypt all medical records - Arrange all medical records in one intuitive timeline - Spot trends in medical records - Share medical history with doctors and loved ones - HIPAA compliant with end-to-end data encryption
@meruhealth @quitgenius @LuciraHealth @weare54gene @notablelabs @ClipboardHealth @athelas @PicnicHealth @join_papa TL;DR 1/ Meru Health 2/ Quit Genius 3/ Lucira Health 4/ 54gene 5/ Notable 6/ Clipboard Health 7/ Athelas 8/ PicnicHealth 9/ Papa
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