Best Medicines Coalition @BMC_Patients
The Best Medicines Coalition is a national alliance of 31 Canadian patient organizations. bestmedicinescoalition.org Canada Joined August 2013-
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Target Zero is our new initiative that aims to improve the time to access for patients in Canada for new drugs that are proven to be effective. ⏱️ Read more about our efforts to collaborate with our health system partners. 👉 cadth.ca/news/new-targe… #HTA #CdnHealth
Amylyx Pharma to remove ALS drug from US, Canada markets ethealthworld.com/s/bsqs9h1 # via @ETHealthWorld. Hard truth: most new drugs fail in clinical trials; a reason by why successfuls end up with high prices per rare patient. @MLInstitute @BMC_Patients @picardonhealth @canpku
@MLInstitute @BMC_Patients @picardonhealth @CADTH_ACMTS @pcpa_org @cdavidnaylor @tomkmiec @markhollandlib @DonDavies @MedicineMatters @HealthyDebate @CBCHealth mdpi.com/1718-7729/31/4…
Patient advocates affiliated BMC are available to offer comment regarding national pharmacare issues. Learn more: hriportal.ca/interview-avai… #pharmacare
The @GISociety, along with MedAccess BC and others, is calling for action on drug plan inequities, releasing a groundbreaking report showing BC is lagging far behind other provinces, refusing many drugs which are covered elsewhere. Read more at badgut.org/wp-content/upl…
BMC Board Chair @johnadams51677 spoke at the 2023 Face to Face Drug Plan Management Forum. Private payers and employers were urged to overcome hurdles to support plan members seeking access to transformative drugs. benefitscanada.com/events/confere… @BenCanMag
#ICYMI Today we launched the Canadian Medication Safety Network for health care providers and consumers. Join this network to be part of the community that will collaborate to advance #medicationsafety for Canadians. Register here ➡️ bit.ly/3Pp8lfm
Last week, our Board Chair @johnadams51677 spoke about the patient voice at the Canada Healthcare Innovation Summit as part of a panel on innovation in pharmaceutical and therapeutic management.
Jenna Reynolds, our Director, Programs and Services, is at #BMC2023 to discuss patient access issues. Thank you to @BMC_Patients for hosting the meeting!
CAPP is happy to be participating in the @BMC_Patients meeting discussing patient access issues!
It's great to be hosting our first in-person meeting since 2019! #BMC2023
Clinical trials provide evidence and data about the intervention they are testing. This evidence helps decide what therapies or interventions work best for people. Learn more from @clinicaltrialON: ctontario.ca/patients-publi… #ICTD2023 #TalkClinicalTrials
Tomorrow is International Clinical Trials Day! Clinical trials generate better medicines for patients, cutting-edge health technologies, and help shape the future of medicine. Learn more through @clinicaltrialON’s resources: ctontario.ca/patients-publi… #ICTD2023 #TalkClinicalTrials
@jyduclos @GovCanHealth @mcgillu @Durhane @johnadams51677 @BMC_Patients @McGillGenome Thank you for standing with the #RareDisease community. More than a decade ago my then 11yr old daughter spent nearly two years publicly begging for a lifesaving drug. She got the drug that saved her life, the emotional scars remain! Big step!
BMC Chair and #raredisease advocate @johnadams51677 applauds a new beginning as we work towards better care for all patients. @jyduclos @GovCanHealth #cdnpoli #Health
We stand for equitable, consistent and timely access to necessary medicines for all and welcome this step forward in improving access to drugs for rare diseases. We look forward to continued cooperation with @jyduclos @GovCanHealth to improve patient care and outcomes.
We stand for equitable, consistent and timely access to necessary medicines for all and welcome this step forward in improving access to drugs for rare diseases. We look forward to continued cooperation with @jyduclos @GovCanHealth to improve patient care and outcomes.
Medical Cannabis Canada and partners: April 4, 2023 webinar exploring access to #medicalcannabis and recommendations to inform future policy. eventbrite.ca/e/medical-cann… @MedCannCa
Medical Cannabis Canada and partners: April 4, 2023 webinar exploring access to #medicalcannabis and recommendations to inform future policy. eventbrite.ca/e/medical-cann… @MedCannCa
We support @BMC_Patients' position and call for funding for rare diseases drugs.
We support @BMC_Patients' position and call for funding for rare diseases drugs.
“Depending on where you live and your financial status, if you have private insurance or fail an income test, you may not qualify for public reimbursement unless you are willing to pay an annual deductible…” @CanCertainty @BMC_Patients
“Depending on where you live and your financial status, if you have private insurance or fail an income test, you may not qualify for public reimbursement unless you are willing to pay an annual deductible…” @CanCertainty @BMC_Patients
Best Medicine Coalition @BMC_Patients calls for action on the National Strategy for Drugs for Rare Diseases. BMC Board Directors @johnadams51677 and @kimasteele ask why patients are still waiting. Their thoughts here: @OttawaCitizen
Best Medicine Coalition @BMC_Patients calls for action on the National Strategy for Drugs for Rare Diseases. BMC Board Directors @johnadams51677 and @kimasteele ask why patients are still waiting. Their thoughts here: @OttawaCitizen
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New on the HRI Portal: Patient advocates affiliated with the @BMC_Patients are available to offer patient perspectives on national #pharmacare issues Learn more: hriportal.ca/interview-avai…
Canadian drugs can’t soothe America’s healthcare pains | The Hill @MLInstitute @CNAPS_ @BMC_Patients @canpku @canpku_Chute thehill.com/opinion/health…
Health care in Canada: Poll shows concerns | CTV News @MLInstitute @BMC_Patients @canpku ctvnews.ca/health/70-per-…
@jyduclos @GovCanHealth @mcgillu @Durhane @johnadams51677 @BMC_Patients @McGillGenome Thank you for standing with the #RareDisease community. More than a decade ago my then 11yr old daughter spent nearly two years publicly begging for a lifesaving drug. She got the drug that saved her life, the emotional scars remain! Big step!
Ottawa to spend $1.5 billion to improve access to drugs for rare diseases cp24.com/lifestyle/otta… via @CP24
Today marks a critical step in breaking down barriers for rare disease care. Our strategy will support better access to screening & diagnostics, affordable drugs, and a more hopeful future for those living with #RareDiseases. canada.ca/en/health-cana…
@billdempster @johnadams51677 @BMC_Patients @mcgillu @jyduclos @raredisorders This announcement has me in tears! The tireless efforts of all involved are so very appreciated!!
@bethdenniss @billdempster @johnadams51677 @BMC_Patients @mcgillu @jyduclos @raredisorders I had tears watching the announcement too! Thinking of all of the patients and families in the rare disease community and so thankful for everyone strongly advocating on their behalf.
Rare disease dad and patient leader @johnadams51677 with @BMC_Patients at announcement of Canadian rare disease drug strategy @mcgillu with @jyduclos and @raredisorders #Canada4Rare
Adams and Steele: Canada must act to fund drugs for rare diseases ottawacitizen.com/opinion/adams-…
“I am hopeful and optimistic a new cabinet will want to prioritize [a] life sciences strategy". Fed. Gov. should allow time to our new ministers to settle into their new roles, before implementing #PMPRB reforms. 🇨🇦💊thestar.com/politics/2021/… @LifeSciencesON @BMC_Patients #cdnpoli
@DavidWCochrane David, just sent you an email at my best guess for your CBC email. Here is an example of what I do as a volunteer - my first letter to this PM!
.@CanadianPM: Is this apparent culture of distrust @PMPRB_CEPMB acceptable and an appropriate reflection of the government’s general approach to consultation and inclusion of diverse voices? How will this be addressed and rectified? Our letter here: secureservercdn.net/198.71.233.39/…
@johnadams51677 @JenOConnell_ @PMPRB_CEPMB @CFCanada @raredisorders @CFgetloud @CFAdvocacynow @PMPRB_Watch @BMC_Patients I've been including them in some of my tweets :).
Solo morning emergency lockdown run.
@canpku @BMC_Patients @picardonhealth @NBS_Ontario @PattyHajdu @MichelleRempel @DonDavies @luctheriaultbq @ElizabethMay @KashPrime @cdavidnaylor @RickTheis @ctv_avisfavaro @kellygrant1 @robferguson1
MCC has joined @BMC_Patients! The Best Medicines Coalition and it's 30 member organizations aim to improve equitable and consistent access to medicines for all Canadians, and we are excited to help push forward this mandate. Read more below! patientaccess.ca/medical-cannab…
Ex-Health Minister asks PM: speed up CF drug negotiations. “... 20 other (western) countries approved these drugs… why these politicians ...are hiding behind [pCPA] organization that’s not giving approval.” @picardonhealth @BMC_Patients thestar.com/news/canada/20…
@BMC_Patients @canpku @picardonhealth @KashPrime @MichelleRempel @CanadianPM @PattyHajdu @DonDavies @erinotoole @theJagmeetSingh @cdavidnaylor
Canada falls farther behind the world in looking after its most vulnerable. It's unacceptable that @GovCanHealth & the @PMPRB_CEPMB can't deliver life-saving #cysticfibrosis medicines now available in 24 countries. Time to lead @JustinTrudeau! #CFCantWait #cdnpoli #CDNhealth
@BMC_Patients @canpku @PMPRB_Watch @PMPRB_CEPMB
Today, Vertex announced reimbursements with Slovenia, Slovakia and Romania, while Canada still waits. We will not stop pushing until every Canadian with CF has access to the medications they need #CFcantwait
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