CCHS Network @CCHSNetwork
A 501(c)3 organization dedicated to raising awareness, funds, and family support for congenital central hypoventilation syndrome (CCHS), a rare orphan disease. linktr.ee/cchsnetwork www.cchsnetwork.org Joined September 2011-
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Tomorrow is CCHS Day! Please help us deliver a unified message of advocacy by posting the following image on your social media accounts. #cchsnetwork #castalightoncchs #cchsday2022 instagram.com/p/Ck1siiRJdJ9/…
Just in time for CCHS Day 2022, our redesigned website is now LIVE! #cchsnetwork #castalightoncchs #cchsday2022
Happy Halloween from our little tricksters!!! #cchsnetwork #castalightoncchs instagram.com/p/CkZyVfsuQbX/…
Happy Halloween from our little tricksters!!! #cchsnetwork #castalightoncchs instagram.com/p/CkZvkqIOyAM/…
Two weeks from today…CCHS Day 2022!!! #cchsnetwork #castalightoncchs #cchsday2022 instagram.com/p/CkTa-W7OIX_/…
Three weeks from today...CCHS Day...November 12th!!! #cchsnetwork #castalightoncchs #cchsday2022
Bonfire Glow-In-The-Dark Shirts, Sweatshirts and Onesies: bonfire.com/store/cchs/ CCHS Firefly Pin: cchsnetwork.org/buy-your-firef… #cchsnetwork #cchsday2022 #castalightoncchs
We’re casting a light on our happy little camper, Abby! #cchsnetwork #castalightoncchs #cchsday2022 instagram.com/p/Cj0H1jLO9_7/…
We are casting a light on our little love bug, Lexi! #cchsnetwork #castalightoncchs #cchsday2022
The CCHS Network is excited to launch our new logo and brand. Go to cchsnetwork.org for more information and to learn about CCHS Day 2022 happening on November 12th (including the sale of shirts and pins). #cchsnetwork #castalightoncchs #cchsday2022
TWITTER Happy CCHS Day! Watch our call to action video below, and post your own wave videos, or tag a friend for the #jointhewaveforcchs challenge. Go to cchsnetwork.org to donate and learn more about this heartbreaking disease
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