Colin Edwards @ColinEdwards767
Founder Merlin Consulting optimising #digital #healthcare. Co-founder & ex-Chief Scientific Officer @patientMpower. merlinconsulting.ie Dublin City, Ireland Joined September 2015-
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'Collaboration is the greatest asset we have in stopping #PF. Together, we're forging a path towards a future where people are diagnosed quicker, have fast access to effective treatments, and can get all the support services they need, no matter where you live.' - @BradleyJPrice
'Collaboration is the greatest asset we have in stopping #PF. Together, we're forging a path towards a future where people are diagnosed quicker, have fast access to effective treatments, and can get all the support services they need, no matter where you live.' - @BradleyJPrice https://t.co/2TBvY3uNpJ
The 3rd European Pulmonary Fibrosis Patient Summit is over! Great event bringing together patients, carers, clinicians, researchers and pharma companies. Watch recordings of the main sessions on-line soon. Watch this space. #PFSUMMIT24 #StopPF
The 3rd European Pulmonary Fibrosis Patient Summit is over! Great event bringing together patients, carers, clinicians, researchers and pharma companies. Watch recordings of the main sessions on-line soon. Watch this space. #PFSUMMIT24 #StopPF
@BradleyJPrice @EU_IPFF @patientMpower @eamonncostello @JennyLynchWils At dinner, a patient with #pulmonaryfibrosis was telling me about home monitoring & using an app. He told me the technology company really listened to him & cared about his views/thoughts. I asked what the app was called and was unsurprised when he said @patientMpower
Was speaking in the Oireachtas yesterday with the Joint Committee on Health, demanding better care for patients with Lung Fibrosis @ILFA_Ireland
Was speaking in the Oireachtas yesterday with the Joint Committee on Health, demanding better care for patients with Lung Fibrosis @ILFA_Ireland
Well done to the @ILFA_Ireland team presenting to the #oireachtas Joint Committee on Health. Key issues clearly communicated
Well done to the @ILFA_Ireland team presenting to the #oireachtas Joint Committee on Health. Key issues clearly communicated
Looking forward to a great conference. On my way now
Looking forward to a great conference. On my way now https://t.co/JpHAOByD8Q
Great work by Senior transplant physiotherapist Olive McCafferty & @ILFA_Ireland advocating for patients with lung fibrosis at the Oireachtas joint committee on health today 👏👏
I watched the committee meeting. Powerful advocacy for the people affected by #pulmonary #fibrosis. Well done guys
I watched the committee meeting. Powerful advocacy for the people affected by #pulmonary #fibrosis. Well done guys
We'll be in Harrogate this week for the @ARTP_News Conference Looking forward to posters co-authored with our partners @CUH_NHS and @RoyalPapworth Visit our stand for info on home spirometry with inbuilt QA, patient feedback, & easy visualisation of blows & longitudinal trends
Great to see publication of this study of remote monitoring in #ILD . Builds evidence that regular home #spirometry & pulse #oximetry in usual care is feasible (& acceptable to many patients). Big thanks to patients & investigators. respiratory-research.biomedcentral.com/articles/10.11…
Delighted to be working with #MRHTullamore on this new initiative, the COPD virtual ward Great collaboration by all involved to deliver patient-centred care at home for people with COPD @cmp_sugar @CoraFlynn13
Delighted to be working with #MRHTullamore on this new initiative, the COPD virtual ward Great collaboration by all involved to deliver patient-centred care at home for people with COPD @cmp_sugar @CoraFlynn13
Our experts Rebecca and Joe will be in Prague for #ISHLT2024 this week They'll be sharing the latest updates on remote monitoring & digital care in #lungtransplant including clinical case studies, our RCT of health & economic outcomes & new platform functionality See you there!
Goldcrest?
Great to have a new option for New York & Boston
Great to have a new option for New York & Boston
1/ Hot off the press 💥#REMAPILD concept and foundations now published on @ThoraxBMJ Result of the effort of so many people! Kudos everyone to push for more efficient research in ILD! Special thanks to @BerryConsultant @ActionPFcharity @EU_IPFF + thorax.bmj.com/content/early/…
Looking forward to results of REMOTE-ILD to better understand #health #economics & optimisation of #remote #monitoring in care of ILD
Looking forward to results of REMOTE-ILD to better understand #health #economics & optimisation of #remote #monitoring in care of ILD
Joe Browne will run @TheCorkMarathon Half Marathon to raise funds for @ILFA_Ireland in memory of his dad. Here is the link to Joe's online fundraising page gofund.me/568b24a0 We send Joe our warmest thanks for his support and wish him the very best of luck with his training!
Representatives from the Irish Lung Fibrosis Association (ILFA) and our Patient and Public Involvement Research Advisory Group will attend the Rare Disease Clinical Trials Network conference tomorrow @rare_trial
Have you heard of the Rare Disease Research Catalyst Consortium? We’re calling it RDCat 😺 and Prof Rachel Crowley @rachsail is here to tell us more! @ucdsnmhs @UCDMedicine @RareDiseasesIE @UCDHealthSystem @UCD_Research @RAiNAllIreland #RareTrials24
Well done Killian
Steve Jones @ActionPFsteve
2K Followers 381 Following Trustee of @ActionPFcharity, a patient organisation committed to supporting people living with pulmonary fibrosis. President of @EU_IPFF
Action for Pulmonary .. @ActionPFcharity
5K Followers 4K Following 💜UK charity supporting people affected by pulmonary fibrosis 🧬funding research towards a better future for people living with PF 🤝together we are stronger
Kerri Johannson MD MP.. @KerriBerriKerri
5K Followers 1K Following Physician. Interstitial Lung Disease. Environmental Health. Feminism. Human Rights. She/Her. May All Beings Be Happy.
Pilar Rivera-Ortega @PilarRiveraOrt1
3K Followers 5K Following Respiratory Consultant, subspecialty in Interstitial Lung Diseases #ILD🫁🧬Manchester University NHS Foundation Trust. Tweets=my own🇵🇪🇪🇸🇬🇧 #DEI #RWE #RCTs
patientMpower @patientMpower
2K Followers 2K Following Empowering patient-centred specialist respiratory healthcare & research insights through digital innovation. #ILD #CF #lungtransplant #asthma
Laura Fabbri @Istamina
909 Followers 1K Following Respiratory physician, clinical research fellow, human being, Italian heart. she/her. 🇮🇹🇬🇧🇪🇸🇫🇷 #curePF #ILD #EveryVoiceMatters #PPI
Leticia Kawano-Dourad.. @leticiakawano
16K Followers 950 Following Pulmonologist & Researcher Tweeting on: methodology, RCTs, ILD, #Brazil #Portugal, #womenInMedicine, Metabolic health, #HumanRights, #meditation
ILD IPF Doc: Nazia Ch.. @ILDIPFDoc_NI
1K Followers 385 Following Diagnose, manage and treat patients with IPF, Sarcoidosis; CTD-ILD, NSIP and other fibrotic lung diseases in NI UK.
Peter George @DrPeter_George
1K Followers 527 Following Consultant in Respiratory Medicine at Royal Brompton Hospital @RBandH / Specialist in interstitial lung disease / Senior Medical Director @Brainomix
ILFA Ireland @ILFA_Ireland
2K Followers 1K Following Irish Lung Fibrosis Association provides research, education and support for patients and families of Lung Fibrosis - a serious and life-limiting condition.
Prof Chris Scotton @Isteefer
963 Followers 656 Following Respiratory Medicine research group leader in Exeter & Director of PGR for Clinical & Biomedical Sciences. Still in despair at the trajectory of our democracy.
Prof. Anne-Marie Russ.. @anmari_russell
2K Followers 785 Following Clinical Academic: #ILD person-centred research; supported self-management & patient reported measures #ATSFellow. Support women in academia. Love a sunset.
Tameside Pulmonary Fi.. @TamesideGroup
613 Followers 1K Following The group aims to provide support and information for patients, their families and friends. Clive & Sue Green email: [email protected]
Liam Galvin @IPFthurles
911 Followers 598 Following Patient Advocate, Director, Irish Lung Fibrosis Association (@ILFA_Ireland) CEO, European Pulmonary Fibrosis Federation (@EU_IPFF), Patient Co-Chair @ErnLung
Wendy Adams @ActionPFwendy
329 Followers 179 Following Head of Research @ActionPFcharity 💜UK charity supporting people affected by pulmonary fibrosis 🧬working with people affected by PF & researchers to #curePF
Killian Hurley @killian_hurley
1K Followers 1K Following Associate Professor & Respiratory Physician. HRB Emerging Clinical Scientist. ERC Starting Grant Awardee. @RCSI_Irl @TissueEngDublin @LabHurley
Pulmonary Fibrosis NI @PFNI_NIRELAND
522 Followers 392 Following We provide: information, guidance, and support for PF sufferers in N Ireland. Every Tuesday morning at 11am using Zoom. Carers every other Thursday 7pm.
EU-PFF @EU_IPFF
3K Followers 906 Following The European Pulmonary Fibrosis Federation (EU-PFF) is a European Federation of national #IPF & #PF/#Pulmonaryfibrosis patient associations.
Bolton Pulmonary Fibr.. @BoltonFibrosis
1K Followers 798 Following We are a support group made up of men and women who live with Idiopathic Pulmonary Fibrosis, Our aim is to help and support those who have Pulmonary Firbrosis
Louise Doran @FoxyLady0811
618 Followers 2K Following Fundraising and trying to improve awareness of Pulmonary Fibrosis. Animal lover, technology lover. Enjoy baking cakes
TrudaPulitzer @4V8pWlp22sTF3V
7 Followers 321 Following
AFPF - Association Fi.. @AfpfFrance
288 Followers 336 Following Association de Patients (et leur aidants) atteints de FPI et autres formes de Fibroses Pulmonaires Progressives
Constance @wakaeakiko48116
1 Followers 327 Following
Mindaugas Galvosas, M.. @MGalvosas
4K Followers 3K Following Cough AI and Digital Health solutions @hyfeapp @CoughPro | prev. founded @aichom_hello | interested in Healthtech, DTx | my opinions
Bradley Price @BradleyJPrice
954 Followers 3K Following Director of Policy & Public Affairs @ActionPFcharity. Fleeting between hobby obsessions, currently ☕️🥃🍸⛳️♟️🎷 Views my own. (he/him)
Morgan Kolsrud @MorKolsr
47 Followers 5K Following
Ewa Gilfillan @EGilfill
53 Followers 5K Following
Romilly Carideo @CaridRomil
38 Followers 5K Following
Interstitial Lung Dis.. @ILDinfo
196 Followers 268 Following Videos, Podcast, Posts about Pulmonary Fibrosis (lung scarring) and related conditions in an easy-to-understand format. By @scstanel #InterstitialLungDisease
Tom McMillan @mcmillan_t15878
0 Followers 98 Following
Michelle Kalman @KalmanMich1347
0 Followers 7 Following
Lyla Markway @LylaMarkwa53244
79 Followers 5K Following
Avelina Macaskill @avelina31950
80 Followers 5K Following
Isla-rae Nakashima @NakashimaR61692
93 Followers 5K Following
Emmi Muthler @EMuthler95025
56 Followers 5K Following
Bill Vick @BillVick11
69 Followers 116 Following Consutant and coach tor individusls and families living with chronic rsre diseases.
Shopaholic_Baby @Shopaholic40328
20 Followers 2K Following
Cydney Bruce @CydneyLBruce
32 Followers 32 Following PhD Student at the University of Nottingham and Medical Statistician at the Nottingham Clinical Trials Unit
Shalom Medical Consul.. @Shalommedico
259 Followers 3K Following Shalom Medical Consultancy is a Private Clinic located in Matola B, Mathovele road, nr.667, Maputo-Mozambique.
Respiratory_therapy @RespiratoryGate
1K Followers 5K Following Respiratory Gate *Studies and Researches. *Events, Jobs. We are working together We don't have other account 👍
Howard Almond @Howard_Almond
246 Followers 302 Following Products, ideas, innovation. Secretary Friends of Dawlish Hospital, Trustee @ActionPFcharity, Director @DCW
raising_rareness (Lyn.. @raisingrareness
976 Followers 2K Following Mum of 3 Raising awareness of rare diseases & conditions #2q24.2 Advocating for my daughter & Rare Community 💗 #AAC MA Archaeology UCC Opinions my own
Laura Egan @our_rare_road
398 Followers 1K Following Co-Founder and Chairperson of @rareireland, proud koolen de Vries Syndrome mam and rare disease advocate, raising awareness of rare disease in Ireland
GS1 Ireland Healthcar.. @GS1Ireland_hc
776 Followers 2K Following Delivering #Patientsafety through the adoption of standards based supply chain solutions #identify #capture #share @GS1Ireland #scan4safety #traceability
National PROMs Networ.. @NetworkProms
571 Followers 360 Following A space where network members can work together to share experience and best practice in collecting Patient Reported Outcome Measures (PROMs)
Jobiah Travers @Jobiahtravers
57 Followers 86 Following I’m Jobie a patient of pulmonary fibrosis which is not curable and basically trying to raise awareness 😀
LHL Lungefibrose 🫁 @LHL_ipf
63 Followers 80 Following LHL Interessegruppe for Progressiv Lungefibrose (PPF). The Norwegian Heart and Lung Association’s patient interest group for Progressive Pulmonary Fibrosis
Colin Edwards @ColinEd89395671
0 Followers 1 Following
Scott Matson @scott_matson
469 Followers 650 Following Pulm/ccm doctor interested in ILD and pragmatic trial design
Kidney Rebel @kidneyrebel
2K Followers 4K Following Kidney patient. Need more innovation in kidney care. Bring dialysis into the 21st century. Make tomorrow’s kidney care unrecognizable from today’s.
Alexander Woywodt @PWoywodt
1K Followers 2K Following Nephrologist/Professor. Social Media Editor Clinical Kidney Journal. Editorial Board BMC Nephrology. Travel, cooking, classical music. views own
3CF @3CF_ie
259 Followers 492 Following We are the Cork Centre for Cystic Fibrosis (3CF) at the Cork University Hospital. Updating our patients, the public, and researchers on our work
Mel Wickremasinghe @mwickremas
258 Followers 269 Following Respiratory #ILD #Sarcoid #music #digital
George Goons @goons60698
0 Followers 301 Following
PFWarriors @pf_warriors
32 Followers 47 Following IPF (PPF) Patient and Warrior fighting for a cure of Fibrotic Lung disease.
ZeaMed @ZeaMedUSA
1K Followers 2K Following ZeaMed is a company working to disrupt healthcare pricing in America. Join us and join the #ZeaVolution.
ALYKA Health @alykahealth
57 Followers 105 Following The ultimate health app for empowering a stronger heart and mind.
Chloe Kim @funkjenny2009ij
117 Followers 4K Following From California, love to travel and explore nature. @women's health
The WoD @theWoDigital
653 Followers 2K Following The Women of Digital Health. The World of Digital Health. The WoD.
Maureen M @Maureen00446
11 Followers 83 Following Many diverse interests and life experiences. Healthcare, medical education particularly rare diseases, advocacy, etc. All opinions my own.
Phil Dybzinski @pdybzinski
26 Followers 359 Following
Gema Tirado - Conde, .. @BlossonSimonds
574 Followers 3K Following Esp. en Neumología. Soy una de esas personas autodidactas a las que le gusta investigar, leer y compartir. @hospital_hvn | 🐶🚴🏼♀️
Cystic Fibrosis Regis.. @CFRegistryIE
215 Followers 155 Following Official CFRI twitter. The patient registry for people with cystic fibrosis in Ireland. Retweets not an endorsement. Seek the advice of your physician.
ICRN @ICRespiNurses
750 Followers 1K Following
Liz Ashall-Payne @LizAshallPayne
8K Followers 5K Following Founding CEO @OrchaHealth passionate about transforming health & care with digital & mhealth. Trying to balance being Mum whilst being a woman in tech!
Steve Jones @ActionPFsteve
2K Followers 381 Following Trustee of @ActionPFcharity, a patient organisation committed to supporting people living with pulmonary fibrosis. President of @EU_IPFF
Action for Pulmonary .. @ActionPFcharity
5K Followers 4K Following 💜UK charity supporting people affected by pulmonary fibrosis 🧬funding research towards a better future for people living with PF 🤝together we are stronger
Gisli Jenkins @IPFdoc
5K Followers 169 Following NIHR Research Professor. Margaret Turner Warwick Chair of Thoracic Medicine. Imperial College London. President @ActionPFcharity. #Cycling #COYS #CureIPF
Naftali Kaminski @KaminskiMed
13K Followers 2K Following First Generation Physician-Scientist, & many other things. This account is Private - opinions and tweets do not represent any of the organizations I work with.
Kerri Johannson MD MP.. @KerriBerriKerri
5K Followers 1K Following Physician. Interstitial Lung Disease. Environmental Health. Feminism. Human Rights. She/Her. May All Beings Be Happy.
Pilar Rivera-Ortega @PilarRiveraOrt1
3K Followers 5K Following Respiratory Consultant, subspecialty in Interstitial Lung Diseases #ILD🫁🧬Manchester University NHS Foundation Trust. Tweets=my own🇵🇪🇪🇸🇬🇧 #DEI #RWE #RCTs
patientMpower @patientMpower
2K Followers 2K Following Empowering patient-centred specialist respiratory healthcare & research insights through digital innovation. #ILD #CF #lungtransplant #asthma
ILD-IN @ild_inn
3K Followers 326 Following A group of ILD health care professionals aiming to provide support, education and influence for the interdisciplinary team & for those in their care with ILD.
Laura Fabbri @Istamina
909 Followers 1K Following Respiratory physician, clinical research fellow, human being, Italian heart. she/her. 🇮🇹🇬🇧🇪🇸🇫🇷 #curePF #ILD #EveryVoiceMatters #PPI
Leticia Kawano-Dourad.. @leticiakawano
16K Followers 950 Following Pulmonologist & Researcher Tweeting on: methodology, RCTs, ILD, #Brazil #Portugal, #womenInMedicine, Metabolic health, #HumanRights, #meditation
ILD IPF Doc: Nazia Ch.. @ILDIPFDoc_NI
1K Followers 385 Following Diagnose, manage and treat patients with IPF, Sarcoidosis; CTD-ILD, NSIP and other fibrotic lung diseases in NI UK.
British Thoracic Soci.. @BTSrespiratory
24K Followers 454 Following The British Thoracic Society is the largest respiratory membership body in the UK. We work towards better lung health for all. Our tweets are not endorsements.
Peter George @DrPeter_George
1K Followers 527 Following Consultant in Respiratory Medicine at Royal Brompton Hospital @RBandH / Specialist in interstitial lung disease / Senior Medical Director @Brainomix
ILFA Ireland @ILFA_Ireland
2K Followers 1K Following Irish Lung Fibrosis Association provides research, education and support for patients and families of Lung Fibrosis - a serious and life-limiting condition.
Prof Chris Scotton @Isteefer
963 Followers 656 Following Respiratory Medicine research group leader in Exeter & Director of PGR for Clinical & Biomedical Sciences. Still in despair at the trajectory of our democracy.
Prof. Anne-Marie Russ.. @anmari_russell
2K Followers 785 Following Clinical Academic: #ILD person-centred research; supported self-management & patient reported measures #ATSFellow. Support women in academia. Love a sunset.
Tameside Pulmonary Fi.. @TamesideGroup
613 Followers 1K Following The group aims to provide support and information for patients, their families and friends. Clive & Sue Green email: [email protected]
Liam Galvin @IPFthurles
911 Followers 598 Following Patient Advocate, Director, Irish Lung Fibrosis Association (@ILFA_Ireland) CEO, European Pulmonary Fibrosis Federation (@EU_IPFF), Patient Co-Chair @ErnLung
Pulmonary Fibrosis Fo.. @PFFORG
7K Followers 1K Following We imagine a world without pulmonary fibrosis. https://t.co/e5cmq67fNV
Wendy Adams @ActionPFwendy
329 Followers 179 Following Head of Research @ActionPFcharity 💜UK charity supporting people affected by pulmonary fibrosis 🧬working with people affected by PF & researchers to #curePF
AFPF - Association Fi.. @AfpfFrance
288 Followers 336 Following Association de Patients (et leur aidants) atteints de FPI et autres formes de Fibroses Pulmonaires Progressives
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Emerald Healthier Liv.. @EmeraldHSC
2K Followers 3K Following We work with researchers and practitioners to publish work that supports healthy minds as well as healthy bodies and protects the vulnerable in our society.
Rebecca Borton @borton_rebecca
41 Followers 166 Following
AXIS Consulting @AXISConsultLTD
793 Followers 2K Following HTA’s , Pricing, Reimbursement and Market Access specialists for the UK and Ireland
Dublin By Pub @dublinbypub
19K Followers 2K Following Recollections of, and opinions on Dublin Pubs. DublinByPub is a blog building an archive of images & text relating to Dublin Pubs in the modern age.
Fair Seas @FairSeasIreland
3K Followers 534 Following Building a movement of Ocean Stewardship 🌊 Calling for 30% of Irish waters to be 'Fully Protected' by 2030 🌍 #FairSeas #30x30Ireland
Interstitial Lung Dis.. @ILDinfo
196 Followers 268 Following Videos, Podcast, Posts about Pulmonary Fibrosis (lung scarring) and related conditions in an easy-to-understand format. By @scstanel #InterstitialLungDisease
TII Traffic @TIITraffic
20K Followers 63 Following TII Motorway Traffic Control Centre. Contact us 24/7/365 on 0818-715100 or [email protected]. Privacy statement, visit https://t.co/iNxKBl5c4b
Bill Vick @BillVick11
69 Followers 116 Following Consutant and coach tor individusls and families living with chronic rsre diseases.
Interreg NWE @INTERREG_NWE
6K Followers 1K Following Interreg North-West Europe is a financial instrument of the European Union's Cohesion Policy. It funds transnational cooperation projects in North-West Europe.
@NCPRespiratory @NCPRespiratory1
450 Followers 79 Following
Sarepta Therapeutics @Sarepta
5K Followers 62 Following Commercial-stage biopharma company focused on the discovery & development of precision genetic medicine to treat rare neuromuscular diseases. https://t.co/HFP4txOCxe
E. Eric Tokat @EricTokat
4K Followers 179 Following
Cydney Bruce @CydneyLBruce
32 Followers 32 Following PhD Student at the University of Nottingham and Medical Statistician at the Nottingham Clinical Trials Unit
Gibraltar Gaels @GibGaels
266 Followers 72 Following Men’s Senior Team, Intermediate Team and Ladies team all competing in the Andalucía GAA League.
EIRSAT-1 @EIRSAT1
3K Followers 519 Following Follow the team @ucd_physics @ucdscience & @ucdEngArch building Ireland's first satellite @ucddublin through the @ESA__Education Fly Your Satellite! programme
BBMRI-ERIC @BBMRIERIC
3K Followers 2K Following Pan-European network to support biobanking and biomolecular research. Co-funded by 🇪🇺 within @EU_H2020 Research Infrastructures programme
Prof Derek O'Keeffe @Physicianeer
4K Followers 975 Following Physician / Engineer MBA MD PhD Consultant Clinician @HSELive - Professor #MedTech @UniOfGalway - Pilot/ Black Belt/Scuba Diver/Triathlete/DJ- Ancora Imparo
National Office for R.. @NREC_Office
827 Followers 106 Following The National Office will embed a robust, transparent and cohesive research ethics review system that strengthens the national research infrastructure.
Respiratory_therapy @RespiratoryGate
1K Followers 5K Following Respiratory Gate *Studies and Researches. *Events, Jobs. We are working together We don't have other account 👍
WorldCircuitRecords @WorldCircuit
9K Followers 423 Following A record label: Ali Farka Touré, Toumani Diabaté, Eliades Ochoa, Oumou Sangare, Orchestra Baobab, Buena Vista Social Club, Paraorchestra, Dudu Tassa + more...
INSPIREresp @INSPIREresp_UK
658 Followers 76 Following The UK's Research Network for Early Career Respiratory Clinicians
Beaumont Hospital @Beaumont_Dublin
6K Followers 398 Following Official Beaumont Hospital Twitter. We are the principal teaching hospital of RCSI. We employ over 3500 members of staff delivering excellence in patient care.
Constellation Kidney .. @kidneysoftware
15 Followers 0 Following
Berry Consultants @BerryConsultant
615 Followers 13 Following We are a statistical consulting company specializing in innovative clinical trial design, Bayesian analysis, clinical trial execution, and software solutions.
Ali Farka Touré @AliFarkaToure
947 Followers 5 Following The King of the 'Desert Blues'. News brought to you by World Circuit Records. 'Voyageur' Out Now: https://t.co/4dRfTTHRFD
healthbeaconinc @HealthBeaconInc
960 Followers 1K Following HealthBeacon develops Smart Tools for Managing Medication at home.
Bernard Gloster @BernardGloster
7K Followers 620 Following Personal Account CEO HSE (Previously CEO Ireland’s Child & Family Agency TUSLA). For official HSE content go to @HSELive
Poolbeg Pharma @PoolbegPharma
935 Followers 234 Following Committed to the development & commercialisation of innovative medicines targeting diseases with a high unmet medical need Ticker: AIM: POLB | OTCQB:POLBF
FSR @StopSarcoidosis
3K Followers 631 Following The Foundation for Sarcoidosis Research (FSR) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care.
UK Covid-19 Inquiry @covidinquiryuk
23K Followers 0 Following This is the official Twitter account of the UK Covid-19 Inquiry. As an independent and public inquiry, it will examine the UK's response to the Covid pandemic.
PPI Ignite Network Ir.. @PPI_Ignite_Net
2K Followers 130 Following A shared voice for Public and Patient Involvement in health and social care research in Ireland. Every voice matters.
Prostate PIONEER @ProstatePioneer
2K Followers 461 Following The European Network of Excellence for Big Data in Prostate Cancer
HSE Research & Develo.. @HSEResearch
4K Followers 3K Following Implementing the @HSElive Action Plan for Health Research 2019-2029 #ResearchEthics #ResearchGovernance #PPI for #EvidenceInformed Health & Social Care in 🇮🇪
RARE Ireland @rareireland
1K Followers 3K Following We are a parent led charity organisation founded since 2017 providing support for families of children with rare conditions in Ireland-RCN 20206340 #rareireland
Enterprise Train @EnterpriseTrain
6K Followers 97 Following Enterprise Service links Belfast & Dublin and is jointly operated between NI Railways & Iarnród Éireann. We’re here 7am-8pm Mon-Fri - Sat & Sun 8am-6pm
Amy Hajari Case @ahajaricase
431 Followers 311 Following PCCM physician and clinical researcher specializing in ILD at Piedmont Advanced Lung Disease. Views my own.
NHLI @ImperialNHLI
4K Followers 568 Following 🫀🫁 National Heart & Lung Institute (NHLI) @ImperialCollege part of @ImperialMed. Improving heart, lung & vascular health through education & research.
Academy of Digital He.. @DigitalHLTHEdu
93 Followers 28 Following The official handle of the Academy of Digital Health Sciences a world-class institution for creating a digitally enabled future-ready healthcare workforce.
GS1 Ireland Healthcar.. @GS1Ireland_hc
776 Followers 2K Following Delivering #Patientsafety through the adoption of standards based supply chain solutions #identify #capture #share @GS1Ireland #scan4safety #traceability
Genomics Data Science.. @GenomicsCRT
1K Followers 266 Following The SFI Centre for Research Training in Genomics Data Science is a PhD training programme based in 6 Irish Universities which will train 100 PhD students
Digital Health Uptake.. @DHUptake
147 Followers 38 Following Accelerating the large-scale use of digital health and care solutions in Europe 🩺 | Funded by the European Union 🇪🇺
National PROMs Networ.. @NetworkProms
571 Followers 360 Following A space where network members can work together to share experience and best practice in collecting Patient Reported Outcome Measures (PROMs)
LHL Lungefibrose 🫁 @LHL_ipf
63 Followers 80 Following LHL Interessegruppe for Progressiv Lungefibrose (PPF). The Norwegian Heart and Lung Association’s patient interest group for Progressive Pulmonary Fibrosis
Paul Noble @Paulwnoblemd
672 Followers 160 Following Lung doctor, physician scientist. Passionate about healing scarred lungs and improving patient’s lives. #cureIPF. President, Association of American Physicians.
Rare Disease Clinical.. @rare_trial
747 Followers 1K Following HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core
Scott Matson @scott_matson
469 Followers 650 Following Pulm/ccm doctor interested in ILD and pragmatic trial design
NHS ConfedExpo @ConfedExpo
12K Followers 2K Following NHS Confederation and NHS England are pleased to announce #NHSConfedExpo will return 12 - 13 June 2024. Book your pass 👉 https://t.co/p2jSnardTL
AliraHealth @AliraHealth
1K Followers 2K Following At Alira Health, our mission is to humanize healthcare and life sciences, in partnership with patients, through innovative technology and expert guidance.
LAM Action hails a new £9.4 million research centre involving researchers from the University of Nottingham. A UK hub will connect people affected by rare respiratory diseases with clinical experts, researchers, investors, and industry leaders. bbc.co.uk/news/uk-englan…
🔥Announcing @patientMpower agreement with ERASMUS MC European Expert Centre for ILD!🔥 Delighted to be selected by thought-leading centre @ILD_ErasmusMC as technology partner for ILD digital care & multi-centre reimbursement focused RCT Full story at: rb.gy/1sr4n5
Many thanks to all involved #pulmonaryfibrosis #CurePF
The 3rd European Pulmonary Fibrosis Patient Summit is over! Great event bringing together patients, carers, clinicians, researchers and pharma companies. Watch recordings of the main sessions on-line soon. Watch this space. #PFSUMMIT24 #StopPF
'Collaboration is the greatest asset we have in stopping #PF. Together, we're forging a path towards a future where people are diagnosed quicker, have fast access to effective treatments, and can get all the support services they need, no matter where you live.' - @BradleyJPrice
We would like to thank @ferrer, @vicore and @PliantRX for supporting us to organize the European PF Patient Summit. Together, we've united patients, caregivers, advocates, and HCPs for an engaging event discussing the present and future of Pulmonary Fibrosis. #PFSUMMIT24
We would like to thank @ferrer, @vicore and @PliantRX for supporting us to organize the European PF Patient Summit. Together, we've united patients, caregivers, advocates, and HCPs for an engaging event discussing the present and future of Pulmonary Fibrosis. #PFSUMMIT24
Day 2 @EU_IPFF starts with patient engagement policy roundtable brilliantly chaired by @ColinEdwards767. Jean-Michel Fourrier speaks passionately about helping people with #pulmonaryfibrosis. Patients are experts on living with disease and in better position to define priorities
Pleased to present two posters produced in collaboration with @patientMpower, @borton_rebecca, @CambsRespPhys, and @DrCMPatterson. Hopefully plenty more to come soon.
@BrynPWilliams presented his research abstracts supporting the use of home spirometry in a lung transplant cohort
Fantastic three days at #pfsummit24, so many incredible presentations and inspirational talks . Nice to be recognised for my work on the unmet needs of patients living with IPF with best poster prize.@EU_IPFF @ILFA_Ireland @TCD_SNM @TCPHI_TCD
Liam Galvin EU-PFF CEO chairs an exciting round table at the PF Summit on ‘clinical trials: exploring opportunities and insights’ with patient advocates, researchers and clinicians and pharma representatives. #pfSummit24 #curepf
Talk, laugh about everything OTHER than #pulmonaryfibrosis. While #pulmonaryfibrosis is a part of your life, it shouldn’t be your whole life! That’s what our Project Positivity group (games and all) focuses on each month. Join us the second Friday of each month from 1-2!
Congratulations Carita. Well deserved #PPI
Congratulations @CaritaBramhill on recognition of your work on unmet patient need in IPF. Best clinician poster @EU_IPFF #PFSUMMIT24 @ILFA_Ireland @tcddublin @ild_inn
Transcript of "Health Services for Persons with Lung Fibrosis" - Discussion with members of the Joint Committee on Health and @ILFA_Ireland oireachtas.ie/en/debates/deb…
@BradleyJPrice @EU_IPFF @patientMpower @eamonncostello @JennyLynchWils At dinner, a patient with #pulmonaryfibrosis was telling me about home monitoring & using an app. He told me the technology company really listened to him & cared about his views/thoughts. I asked what the app was called and was unsurprised when he said @patientMpower
Was speaking in the Oireachtas yesterday with the Joint Committee on Health, demanding better care for patients with Lung Fibrosis @ILFA_Ireland
Patients with lung fibrosis deserve the best care and support. Along with patient Robert Hurley, Michael Darragh Macauley, and ILFA we spoke at the Joint Committee on Health today. @ILFA_Ireland @MDMA_9 @irishthoracicS @RCSI_Irl @EU_IPFF
As National Volunteer Week comes to a close, we wanted to take a minute to thank all of the amazing volunteers that make our programming possible! Without each of you, the Wescoe Foundation would not be able to impact the #pulmonaryfibrosis community the way that we do!
On 24th April @ILFA_Ireland attended the Oireachtas Joint Committee on Health. It was a privilege to attend and to respectfully expose the reality of the unmet healthcare needs of lung fibrosis patients. Thanks to everyone who took part. Lung fibrosis patients deserve better.
Great work by Senior transplant physiotherapist Olive McCafferty & @ILFA_Ireland advocating for patients with lung fibrosis at the Oireachtas joint committee on health today 👏👏
Telling the lads about your trip away…
Director of the interstitial lung disease unit at @KeckMedicineUSC @TobyMMaher discusses the diagnosis and management of interstitial lung disease with JAMA Deputy Editor Mary McGrae McDermott. ja.ma/3Uu3LQX
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