Courageous Clair @CourageousClair
#ChronicIllness is scary; living life despite that fear is courageous! My aim is to remind people that they are stronger than they realise! @FNDHopeUK #FND themighty.com/u/courageous-c… Glasgow, Scotland Joined October 2022-
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The symptoms of FND range from chronic pain, fatigue & speech difficulties to visual impairment, functional seizures & paralysis. Symptoms differs from one person to another & can change from one day to the next which makes FND even harder to live with. #FND #FNDAwareness
Here is your chance to help @FNDHopeUK continue to provide support to people living with FND! Please nominate FND Hope UK to receive a £1000 from the Benefact Group’s ‘Movement for Good’ charity donation (click link below). #FND #FNDAwareness movementforgood.com/index.php?cn=1…
A Drop Attack causes you to drop to the floor for no obvious reason & are still completely awareness of what is happening. It’s like a string puppet suddenly having all their supporting strings cut & collapsing in a heap on the floor. It’s terrifying! #FNDAwareness #DropAttack
An extract from my article ‘When I Got My FND Diagnosis After Years of Seeking Answers’ (published by @TheMightySite) about my journey & challenges of trying to find a diagnosis for my debilitating & life changing symptoms. themighty.com/topic/function… #FND #FNDAwareness #LetsTalkFND
Thank you @TourCNTower for shining a light on #FND this FND Awareness Month! 💙🧡 #FNDaware
Thank you @TourCNTower for shining a light on #FND this FND Awareness Month! 💙🧡 #FNDaware
Everyone’s journey & symptoms of #FND are as unique as the individual experiencing them. Each person has a different range & different severity, however many people experience similar symptoms. Some symptoms are more common than others. #FNDAwareness #LetsTalkFND
What are the symptoms of FND? 👀 “FND Symptoms are poorly understood and can be debilitating” - Dr. Jon Stone Read more about the symptoms here 👉 bit.ly/3yzQoD0 #FNDAwarenessMonth #FunctionalNeurologicalDisorder #FND #FNDHopeUK #FNDAwareness
For those living with #FND there’s a wide variety of symptoms people experience. For me, some of these symptoms are: numbness & paralysis (left leg) & #FunctionalTremors. These result in my left leg, sometimes both legs, taking spontaneous, uncomfortable, bursts of an Irish Jig!
Any more ‘Light Up for FND’ on building or monuments in the London area? #FND #FNDAwareness #FNDAwarenessMonth #LightUpForFND #FNDHopeUK #FNDCommunity #FNDWarriors
Functional Neurological Disorder (FND) is a debilitating condition that most people have never heard of. However, up to 100,000 adults in the UK are living with FND. If you live with FND: YOU ARE NOT ALONE!! @FNDHopeUK @FNDAction @FNDFrieNDsUK #FND #FNDAwareness #LetsTalkFND
Definitely NOT what lowered kerbs are for! How the driver of an INDUSTRIAL BIN LORRY even thinks that using lowered kerbs to drive on to PUBLIC PATHWAYS is ok?! #BadDriver #Inconsiderate #WheelchairLife #DisabiltyAwareness @GHMansfield
TICK, TOCK, TICK, TOCK, DON’T FORGET TO CHANGE YOUR CLOCK! 🕣 British Summer Time is supposed to start, although I wonder if the weather knows that and will give us a summer this year… 🤔😂 #ClocksChange #ClocksGoForward #BritishSummerTime
𝙼𝚊𝚢𝚎 𝙼.. @nowmayemusk1
17 Followers 591 Following Bestselling International Author #AWomanMakesAPlan 📖Doctor of Dietetics 👩🎓 Supermodel 😉💃 #ItsGreatToBe75 Agents⬇️Nicky (She/Her) ♿�.. @NickySimpson98
5K Followers 4K Following I am a Trans Woman, an Adult Female Human Being. Living with Autism, Severe Asthma and Fibromyalgia; Full-Time Wheelchair User. Alt Account @NickySimp98.Jess Plant @IAmJessPlant
6K Followers 7K Following (They/She). 5w4, Autistic & Neurodivergent, Carer, ✝️, ♿, Fat, INFP, 🏳️🌈, Left-liberal progressive socialist, Mentally ill.Paige @PeachyPaige24
0 Followers 23 Following 👩❤️💋👨 Jamie - 3/10/2023 🐶 Milo ⛩️ Love Anime 💚 Mental health awareness 💚 💜 PNES 🩵 🧡FND 🧡 💜 Fibromyalgia 🦋AmandaDoyle @c97by1e5D91gdj8
1 Followers 93 Following🍒💄👭💝🌈�.. @beachparadise7
102 Followers 470 Following Happily engaged, and i can't wait to spend the rest of my life with her,#Epilepsy #FND 🧡💙 #Seizures#InLoveWithANeurodivergentGal#Gonks#winning@life 🦅�.. @1_SpoonAtATime
2K Followers 3K Following #Engaged💍#Bi #Neurodivergent #ADHD #Weirdo #FIBRO #POTS #Kidney #ME #CPTSD #OA #QueenOfSass #70sChick🛼🪩#Apollo11 #BoHoLover #ChaosGremlin #SPIETrecommunicate @re__communicate
393 Followers 783 Following Geeky SLT into conversations, language, plants and upholstery.Miriam Rowlands @MiriamRowl0
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299 Followers 173 Following FNDcourage expands traditional models of care by providing access to education and in person retreats to those diagnosed with FND.Kerrie Laa @KerrieLaa
9 Followers 174 Following Placenta Encapsulation Specialist 🤰 #AuDHD & #FND #systemicsclerosis Navigating life through a #nuerodivergent lense & Neurological Disorder #womensrightsSarah Bullock @SarahBu80048878
19 Followers 243 Following Northen Lass, living a Southern Life, in Devon. Interests :Wildlife/animals/ plants,computer/techgeek games ,reading,https://t.co/eK66jyTLmq a new life with FND..Sky volunteering orga.. @skyvolunteer20
65 Followers 1K Following We are a non profit organization helping the orphans and other vulnerable people at SKY VOLUNTEERING ORGANIZATION in Uganda. film editor at Nyati Motion PicturM Muzammil @mm5011008
93 Followers 553 Following Subscription Available World wide 🌎 🆓Free Trail 👉21K+Channels 🎬80K+Movies 4K HD 📀9K+Series ⚽All Sports Channels 🔗Whatsapp Me⤵️ https://t.co/mfjzabN79zRegulated Safesupply @K2spiceN8745
215 Followers 2K Following We are in favor of a safe regulated supply of FDA approved prescription medications. Check link and get a safe supply nowLuna @LilyMyst193441
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0 Followers 21 Following Dedicated to supporting and training young minds to love, respect and prosper in the name of the God.David Sargent @DavidSa26032933
142 Followers 525 FollowingFreya ✨ @PsychwithFreya
324 Followers 394 Following Assistant Psychologist in Neurodevelopmental Services 🧠 | MSc @SGDPCentreKCL 🎓|Interests: CYP MH, Autism, EDs & Attachment | Lived Experience | FND Advocate✨Adelle Smith @AdelleS21830779
10 Followers 167 FollowingLiz Butler @Liz72Liz
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282 Followers 1K Following Public sector strategic planning in Dorset. Love where I live, love Dorset coast and countryside. Love my family.charlotte ward @charliew82
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594 Followers 2K Following ♿🌈 activist, love mountains,views my own, retweet aint endorsement. dyslexic. indy 4 🏴, neuro/spine injury and stroke guy with CFS/FND .Jonbonjovi @Jonbonjovi93590
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3K Followers 5K Following European. Writer, reader, teacher. Rookie philosopher, rubbish birdwatcher. Despiser of this government.CliffordKeany @CliffordKe62095
88 Followers 2K FollowingSiddhi Soul @SoulSiddhi
61 Followers 281 Following Siddhi Soul is a marketplace of several unique websites owned and operated by a work-from-home, Fibro-Warrior, Mother-Gigi. https://t.co/wpAWKiPglbKeanu Charles reeves @JohnUtah454799
169 Followers 4K Following well I’m Keanu Charles reeves, am an actor and also a movie director 🎥🎬🇨🇦Amanda Macleod @Aman7_aMacleo7
20 Followers 108 Following life is getting so hard living with FND. I'm on here to spread the word, connect and try and find peace and happiness ❤️ FND WARRIOR 💪Joseph W @VeganVoyagerJW
24 Followers 134 Following Interest in mind-body links in health and disability. Healthy aging. Nature. Vegan. Trying and failing to become more mindful.🌈🌱Delyth Eluned @DelythOwen0810
134 Followers 300 Following FND/ Mental Health advocate from North Wales, UK. Tweeting about recovering from FND and PNES. Student in (BA) adult nursing.kaf barriball @kafbarriball1
7 Followers 38 Followingjason @McgookinJason
42 Followers 36 Following love my family and my rock/metal music tho my taste is vast. I have FND and i stammer. Naturist at heart. Join my Naturist/nudist account @weejay111lesley carrington @drwoofie
109 Followers 584 FollowingThe Mental Health Dia.. @Dominicvega83
662 Followers 5K Following Certified Life/Career/Mindset Coach ! I Help People Transform Their Lives.Susi Brown @SusiJBcanada
9 Followers 47 FollowingKaryn Valentine @KarynValentine
1K Followers 2K Following I’m a chameleon..I’m a dichotomy..I’m just me 💜#Dontpunishpain #PAINKILLS #CPP #ProtectPainPatients #IPP $KarynCValentine @Karyn-Valentine-1 PhotographerLiving Successfully W.. @illandwell
194 Followers 366 Following Sharing how I went from bedridden to thriving with chronic pain/illness using my 20 year experience as a Registered Nurse @ https://t.co/5RDhvdcc7e🍒💄👭💝🌈�.. @beachparadise7
102 Followers 470 Following Happily engaged, and i can't wait to spend the rest of my life with her,#Epilepsy #FND 🧡💙 #Seizures#InLoveWithANeurodivergentGal#Gonks#winning@life 🦅�.. @1_SpoonAtATime
2K Followers 3K Following #Engaged💍#Bi #Neurodivergent #ADHD #Weirdo #FIBRO #POTS #Kidney #ME #CPTSD #OA #QueenOfSass #70sChick🛼🪩#Apollo11 #BoHoLover #ChaosGremlin #SPIETFND Health @FNDHealthCoach
88 Followers 104 Following FND Health - Assisting individuals dealing with FND, Fibromyalgia, ME/CFS, and Long COVID in reclaiming their well-being.Borja Cabal-Paz 🧠 @BorjaCabal
903 Followers 579 Following Neurologist | MD @UniversidadeUSC | @Vithas @SynaptiaMadrid | @NeurologiaHUPH | #Neurogenetics 🧬 & #Neuromuscular 💪Víctor G Mayordomo @vicmayordomo
1K Followers 967 Following Neurologist, Deputy director @SynaptiaMadrid Neuroscience Institute @Vithas #FND #TNF #Parkinsons #Dystonia #DBSLondon Neurodegenerat.. @LNDBrainBank
476 Followers 669 Following London Neurodegenerative Diseases Brain Bank at @KingsCollegeLon & @KingsIoPPN - Worldwide provider of tissue samples to the #Neuroscience research community.Gladiators TV @GladiatorsTV
9K Followers 491 Following 30+ years of Gladiators (UK & Worldwide). Bringing you the latest news & nostalgia from https://t.co/nRjV2Uvyeh ☝️ The No. 1 #Gladiators Fan CommunityJodie Ounsley @_jodieounsley
5K Followers 517 Following Fury from BBC Gladiators👊🏼 | @ExeterChiefs🖤| All enquires [email protected]Kim Wilson Surrey Hil.. @HillsRehab
456 Followers 1K Following Specialist NeuroRehabilitation team based in Cranleigh, SurreyAfnan @Dietitian_Afnan
245 Followers 1K Following ماجستير تغذية علاجية من @uniofnottingham مهتمه بالصحة النفسية و البحث العلمي والأنشطة المجتمعية #FNDStephen @stejs9
2K Followers 490 Following Hubbie @jkbmedic #Nurse Chair of @FNDHopeUK & Board Member of @FNDHope Medallist of the Order of the British Empire (he/him)Mind @MindCharity
522K Followers 3K Following Fighting for mental health – for support, for respect, for you. Find your local Mind near you: https://t.co/z03j6su6QXSupport Fibromyalgia .. @teamfibro
4K Followers 3K Following We educate, advocate, research & empower. No one fights fibromyalgia alone! Taking action!💜 501(c)(3) for impact organization #Fibromyalgia #SupportFibroMatt Eagles ⚒️#CO.. @MattEagles
7K Followers 8K Following Head of Patient Voice @HAVASLYNXEU ⚒lifelong Hammers fan lived with parkinsons for 50 years - judge at the #BurberryBDA's 2023/24Susan Hurd 🇺🇸 @Susangv
1K Followers 4K Following Proud wife of Retired #CALFIRE Captain❤ Retired Paralegal⚖️ ✝️⛪️ BLM💙 #RebuildCalifornia.com. 2A👁️🗨️ 🚫DM'S 🇺🇸🇺🇸Emma 🦋 @Emma40025133
2K Followers 986 Following Chronically ill with MCAS, POTS & ME/CFS. All brought on by covid infection in January 2021.Melissa - Going My Ow.. @thefibromama
3K Followers 746 Following Author, blogger. On a mission to be as well as possible with #fibromyalgia syndrome, #chronicfatiguesyndromeFibro Bloggers @FibroBloggers
18K Followers 9K Following Connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at Fibro Blogger Directory #FibromyalgiaAwareness #FunnyFibro #FibroFridayA Journey Through the.. @JourneyFog
4K Followers 3K Following Jo Moss. #MECFS, #Fibromyalgia and #MentalHealth campaigner. Loves #music & playing #guitar. https://t.co/EYGdMlzvSM. Blog; A Journey Through the Fog.Chronically complex H.. @Chronic_life31
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3K Followers 3K Following Documenting life with #FND or #FunctionalNeurologicalDisorder. Articulating what it is to love with a #chronicillness and #chronicpain. TV fanatic! #spoonieitisallinmy_hEDS @VIoletTailor
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175 Followers 554 Following Tutor Clinically Applied Psychology Programme Accredited CBT Therapist MSc BABCP FND Specialist Physiotherapist MScMental Health Awarene.. @MHGoalsMatter
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952 Followers 1K Following Brain Rewiring Expert | Neurologist @NHS | Associate Professor @UCLan | Chair, Scientific subcommittee @BIASPstroke | Clinical Lead #FND service | Views my ownMichael Kentris, DO @DrKentris
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4K Followers 3K Following Epileptologist/Asst Prof @PittNeurology. Data Science, Functional Seizures, Clinical Trial Stats, #MedEd. he/himFibroTamz @FibroTamz
2K Followers 3K Following live with Fibro, M.E, Arthritis & depression 😖🤪, SEN mum👪, autism advocate, carer to my mum👩🏽⚕️ wrestling & horror fan😱 I’m just me!! 🏳️🌈💖💜💙 🏳️🌈Debeh @d_h_30
87 Followers 397 Following Trainee Neurologist Physician. Feminist Writer, poetess In love with books and Tv Intp - 8w7@CourageousClair @TomPlender My neurologist and the pain consultant are brilliant every time - but they warned me I might be treated unfairly by GPs and on one occasion they were right - I was told "just think yourself well" - I said "that sounds marvellous - how do you do that?" She literally had no answer.
@CourageousClair Thank you. I'm now on some MG medication and seeing improvements to speech, sleep, can stand for longer. Am still have Functional seizures. I think in the end I will have a diagnosis of both
@CourageousClair Hi Clair. This is fab. I've been in hospital a d have a new diagnosis. They think I've got Myesthenia Gravis. They are awaiting some more blood tests. It's been a roller coaster
@CourageousClair I wasn't given any info on it, my neurologist hasn't been much help to be honest, my fiancé and daughter have been my support
@CourageousClair Thankyou for the follow 👍 in the past 3 years I've been diagnosed with epilepsy and FND so it's all new to me, I have good days and bad days, I'm hoping to find some help on how to cope with it
@CourageousClair @beachparadise7 Hi Clair , could you give my fiancee a follow,she is newly diagnosed with #FND & could really benefit from support from the community so that she can learn to navigate through the diagnosis & understanding from those who are in the same situation 🫶
How stigma unfolds for patients with FND- ScienceDirect. Our excellent research fellows Caoimhe (kweevah) Mcloughlin’s study on stigma on FND is now available- another part of what is shaping to an excellent phd drops sciencedirect.com/science/articl…
@CourageousClair Aww wow that’s so much nicer, hubby is very clever! Love it and tell him from me! X
@CourageousClair Sorry you are going through this too, hope you are ok today and not too sore? I use crutches and a wheeled walker, have a chair too for recovery afterwards. Sending you a hug! Thank goodness we can all chat on here and thank you for your kindness xx
@CourageousClair When it happens to me my legs just go from under me, been told I have hyporeflexia, waiting to see if related to FND or not, thinking of you x
@CourageousClair @SandyCornwall1 @23Dean25 Makes it a little easier! A little being the key part there 😆
@SandyCornwall1 @23Dean25 @CourageousClair Oh believe me, it took some practice! Though personalized dance moves were encouraged for this reason too 😊 My parents are the couple at the end and they had it playing on the TV at the same time.
@SassyFNDLife @23Dean25 @CourageousClair Gosh great to watch this but gave me anxiety about how difficult it would be for me to learn this.
Raising awareness through dance for FND awareness month this year! #fnd #fndAware #LetsTalkFND #functionalneurologicaldisorder #fndhope #fndaction #dance #danceroutine #babewithmobilityaid #mararena #fndawareness #fndsymptoms #raisingawareness #warriors #amazingpeople #together
Epic day at the @LondonMarathon - so happy the team made it in one piece and the bus survived! Shaved 23mins of the @GWR go team!!! #LondonMarathon ten person bus!!! @Willow_Fdn
Here’s the bus that I made for the london marathon, astonishingly the runners shaved 23mins off the @GWR time! What an amazing achievement- go team!! @Jackie8 @Willow_Fdn
Have you seen that bus? 🚌 Jackie Scully and her group finished the fastest marathon in a ten-person costume ‼️ Amazing😱 #LondonMarathon