DFPCUK @DF_PC
Desmoid Fibromatosis Patients & Carers is here to empower & support patients to live beyond their diagnosis. England, United Kingdom Joined November 2019-
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The perfect accessory this festival season! 🎉 💃🏻
The perfect accessory this festival season! 🎉 💃🏻
@StMarksHospital new #stoma #book will be a vital read for both #patients and #healthcare professionals, providing stoma patients with detailed information on stoma care and empowering them to independently care for their stoma on a daily basis. bit.ly/3yX8RqA
Check out these #RFAChallengers who hit the 2nd #RFAVirtualChallenge Fundraising Milestone! With only 3.5 weeks to go, WE STILL NEED YOU to become an #RFAChallenger! Whether you raise $100 or $1K, TOGETHER we can advance #desmoid tumor research in 2022! DTRF.org/rfa
💙September is Desmoid Tumour Awareness Month 💙#DesmoidAwarenessMonth #DesmoidTumourAwarenessMonth #DesmoidTumorAwarenessMonth #DesmoidFibromatosis #Desmoid #AggressiveFibromatosis
September is 💙DESMOID TUMOUR AWARENESS MONTH #DesmoidTumourAwarenessMonth #DesmoidTumorAwarenessMonth #DesmoidTumour #DesmoidFibromatosis #Desmoid #DesmoidTypeFibromatosis #DesmoidTumor
This is an event not to be missed for #DesmoidFibromatosis patients, carers & professionals! We can’t wait to take part again virtually this year! #DesmoidCommunity Look out soon for our annual RFA fundraiser for the DTRF too! #FundACure #DesmoidWarriors #DesmoidUnitedUK
This is an event not to be missed for #DesmoidFibromatosis patients, carers & professionals! We can’t wait to take part again virtually this year! #DesmoidCommunity Look out soon for our annual RFA fundraiser for the DTRF too! #FundACure #DesmoidWarriors #DesmoidUnitedUK
** INTERNATIONAL STUDY: DESMOID TUMOUR AND FERTILITY ** @DesmoidI are looking for women to take part in an international study into #DesmoidTumour’s & fertility. Scientific research starts with us! Find out more including links to take part below. #DesmoidFibromatosis
** INTERNATIONAL STUDY: DESMOID TUMOUR AND FERTILITY ** @DesmoidI are looking for women to take part in an international study into #DesmoidTumour’s & fertility. Scientific research starts with us! Find out more including links to take part below. #DesmoidFibromatosis
** INTERNATIONAL STUDY: DESMOID TUMOR AND FERTILITY ** Are you a woman who was diagnosed with desmoid tumor DURING your #Fertile age? If the answer is YES, go to desmoidfoundation.org/.../desmoid-tu… and fill out the questionnaire! Scientific research starts with us! #df #desmoid #desmoide
Register today for the #DTRFWeekend2021 (Sept. 24-26) and the summer-long #RFAVirtualChallenge at DTRF.org/weekend! Together we will… 🧩 CONNECT (9/24) 🧩 ADVANCE RESEARCH (9/24) 🧩 EMPOWER OURSELVES (9/25) 🧩 FUND A CURE (June-Sept & 9/26) #DesmoidTumourAwareness
Register today for the #DTRFWeekend2021 (Sept. 24-26) and the summer-long #RFAVirtualChallenge at DTRF.org/weekend! Together we will… 🧩 CONNECT (9/24) 🧩 ADVANCE RESEARCH (9/24) 🧩 EMPOWER OURSELVES (9/25) 🧩 FUND A CURE (June-Sept & 9/26) #DesmoidTumourAwareness
It’s that time of year again & @MalcolmWhales are embarking on their annual #DorsetWalk21! Please follow, like, share and donate! This is an amazing cause very close to our hearts after they helped fund our #DFPC21 patient conference last year. #Support #Donate #Share
It’s that time of year again & @MalcolmWhales are embarking on their annual #DorsetWalk21! Please follow, like, share and donate! This is an amazing cause very close to our hearts after they helped fund our #DFPC21 patient conference last year. #Support #Donate #Share
A really important campaign from @TeenageCancer - improving the provision of specialist psychological support is long overdue.
A really important campaign from @TeenageCancer - improving the provision of specialist psychological support is long overdue.
Share your support by wearing red! #Red4Research
Share your support by wearing red! #Red4Research
This is a common issue for many with chronic/lifelong conditions. It’s great to see something being done to combat those risks.
This is a common issue for many with chronic/lifelong conditions. It’s great to see something being done to combat those risks.
What perfect timing! We just concluded #DrugRepo21 and now we're marching into #Red4Research! Show your support by wearing something red♥️ and tag us in your photos! Three cheers for #Research, #Innovation and #DrugRepurposing 🙌👏
What perfect timing! We just concluded #DrugRepo21 and now we're marching into #Red4Research! Show your support by wearing something red♥️ and tag us in your photos! Three cheers for #Research, #Innovation and #DrugRepurposing 🙌👏
#ASCO21 presentation " Patient Reported Outcomes in Desmoid type Fibromatosis" Thank you to all who worked on this and congratulations on winning the Conquer Cancer Merit Award 🌟 #DesmoidTypeFibromatosis #DesmoidTumour #DesmoidFibromatosis #DesmoidTumor #BenignIsNotFine
#ASCO21 presentation " Patient Reported Outcomes in Desmoid type Fibromatosis" Thank you to all who worked on this and congratulations on winning the Conquer Cancer Merit Award 🌟 #DesmoidTypeFibromatosis #DesmoidTumour #DesmoidFibromatosis #DesmoidTumor #BenignIsNotFine
Are you a patient diagnosed with a #DesmoidTumour BEFORE or DURING #pregnancy? If your answer is YES, please consider taking part in this important study. Find out more and register via the @DesmoidI website at desmoidfoundation.org/en #DesmoidFibromatosis #SupportResearch
Are you a patient diagnosed with a #DesmoidTumour BEFORE or DURING #pregnancy? If your answer is YES, please consider taking part in this important study. Find out more and register via the @DesmoidI website at desmoidfoundation.org/en #DesmoidFibromatosis #SupportResearch
The @DesmoidI Desmoid Foundation Italy, in collaboration with the Fondazione IRCCS Istituto Nazionale dei Tumori, has launched a survey to study the correlation between desmoid tumors and pregnancy. Learn more: bit.ly/3gzE5ge #desmoid #aggressivefibromatosis #pregnancy
The @DesmoidI Desmoid Foundation Italy, in collaboration with the Fondazione IRCCS Istituto Nazionale dei Tumori, has launched a survey to study the correlation between desmoid tumors and pregnancy. Learn more: bit.ly/3gzE5ge #desmoid #aggressivefibromatosis #pregnancy
Congratulations to all who worked on this study! 🥳 #ASCO21 #DesmoidTumourAwareness #DesmoidFibromatosis #AggressiveFibromatosis #SupportResearch #RareDisease #DesmoidTumor
Congratulations to all who worked on this study! 🥳 #ASCO21 #DesmoidTumourAwareness #DesmoidFibromatosis #AggressiveFibromatosis #SupportResearch #RareDisease #DesmoidTumor
#desmoid tumors were once again a topic of discussion & award-winning research at #ASCO21. We extend our gratitude to the physicians & scientists around the globe working to find answers. View the ASCO abstracts & presentations on #desmoid tumors at meetings.asco.org/abstracts-pres…
Registration for the DTRF “Together We Will” Virtual Weekend (Sept 24-26) OPENS June 7th, marking the start of our summer-long #RFAVirtualChallenge fundraiser! DTRF.org/weekend Together we will… ADVANCE RESEARCH CONNECT EMPOWER OURSELVES FUND A CURE #DTRFWeekend2021

Jon Trent, MD, PhD @JTrentMDPhD
6K Followers 4K Following Associate Director @SylvesterCancer. Director #Sarcoma and #GIST. Telemedicine and in-person clinics are open. Tweets are my own.
Alessandro Gronchi @alegronchi
3K Followers 219 Following Chair Sarcoma Service - Department of Surgery - National Cancer Institute - Milan - Italy.
WinetteVanDerGraaf @Winette_vdGraaf
3K Followers 2K Following Medical Oncologist @NKI_nl Amsterdam. Sarcoma; AYA cancer. Prof. @ErasmusMC President of @EORTC, chair @AYAzorgnetwerk @COMPRAYA_study @strong_AYA
Herbert Loong, MBBS, ... @herbloong
4K Followers 3K Following Academic medical oncologist @ Hong Kong w/ interests in sarcoma medical oncology, thoracic oncology & phase 1 trials | Disclosures: https://t.co/sb5XXrv5zx
Richard Davidson @RichardDavidson
1K Followers 1K Following Chief Executive of Sarcoma UK. Chair of SameYou. Devon, via North London and County Durham. All views my own.
Sarcoma UK @Sarcoma_UK
11K Followers 2K Following We're no longer updating this account. Follow us on Facebook, Instagram, LinkedIn, YouTube and Threads to stay informed.
Desmoid Tumor Researc... @DTRFoundation
1K Followers 317 Following DTRF is the only 501(c)3 in the U.S. solely dedicated to finding a cure for desmoid tumors, a rare, intermediate (locally aggressive), soft tissue sarcoma.
SPAGN @sarcomapatients
2K Followers 558 Following Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of Sarcoma, GIST and Desmoid Patient Advocacy Groups
Pawel Sobczuk @pawel_sobczuk
2K Followers 633 Following MD PhD, Medical Oncologist, post-doc -at @VHIO, YOC Member & Communication Committee at @myESMO 🇵🇱🏳️🌈
Eduardo Ortiz Cruz @DrOrtizCruz
2K Followers 1K Following Jefe Oncología Ortopédica: Hospital La Paz, Ruber Internacional, MDAndersonSpain. Director Bone and Soft Tissue Tumor Course Madrid. https://t.co/Pp63xAj9MN
Patrick Schöffski @schoffski
2K Followers 470 Following Passionate medical oncologist with experimental + public health agenda heading the Dpt. of General Medical Oncology + Lab. of Exp. Oncology at UZ/KU Leuven (BE)
Tom Wei-Wu Chen @saxotomy
974 Followers 555 Following Dedicated sarcoma and breast medical oncologist from Taiwan. (National Taiwan University Hospital and Cancer Center)
SpringWorks @SpringWorksTx
694 Followers 148 Following At SpringWorks, Inc. a healthcare company of Merck KGaA, Darmstadt, Germany, we bring tenacity to work every day because patients need answers now.
Dorian Y. García-Ort... @DorianGarciaMD
2K Followers 2K Following Surgical Oncologist. Department Skin, Soft Tissue and Bone Tumors. National Cancer Institute (México). Sarcoma, Melanoma and rare tumors surgeon.
Suzie Siegel @SuzieSiegel
2K Followers 1K Following Newspaper reporter & editor b4 metastatic leiomyosarcoma. Master's in women's studies. Board member emerita of Sarcoma Alliance. urostomy colostomy
Andy Livingston, MD M... @jalivingston_md
2K Followers 851 Following Med Peds Sarcoma Med Onc and AYA Onc at The University of Texas MD Anderson Cancer Center. My focus: #AYAcsm #sarcoma #osteosarcoma
Jeffrey Farma @JeffreyFarma
4K Followers 5K Following Father of 3, Husband, Surgical Oncologist, Chair of Surgery, Professor @Foxchasecancer-Skier and Traveller
Sarcoma European Lati... @SelnetH2020
1K Followers 829 Following SELNET aims to improve the diagnosis and clinical care of sarcomas through a European and Latin American network. SELNET has received funds from the EU H2020
CR Chandrasekar @12crc
967 Followers 767 Following Consultant Orthopaedics/Sarcoma Surgeon LUHFT,Liverpool,UK. Tweets are personal views-mainly related to the profession
Patiëntenplatform Sa... @PPSarcomen
792 Followers 1K Following Patiëntenplatform Sarcomen biedt informatie over botsarcomen, wekedelensarcomen, GIST en borderlinetumoren (desmoid, reusceltumor en phyllodes).
East Midlands Sarcoma... @SarcomaEast
37 Followers 22 Following One of 15 Accredited Soft Tissue Sarcoma Treatment Centres: Based at Nottingham and Leicester
Amarjeet Singh @AmarjeetSi89838
0 Followers 7 Following
shawneeknightcarter @shawneereck1
4K Followers 7K Following im a devout christian i love nkotb and bsb and westlife and fishing and painting and drawing and coloring and am very nice girl and funny girl too
Invisible Warrior @InvisibleWarr11
27 Followers 129 Following I'm Ria, I owe my life to the NHS and my organ donor 💙💚- Multivisceral transplant- Desmoid tumours- Familial adenomatous polyposis - Colon cancer survivor
Catherine Fulvio @Cfulvio
19K Followers 1K Following Daytime Emmy Nominated TV Chef Ballyknocken House & Cookery School @ballyknockenhcs Author/food writer Keynote speaker TV @rteone @netflix @recipe.tv @bbcone
Phil Smith @photoga29
4 Followers 146 Following
Fox Chase Surgical On... @FoxChaseSurgOnc
935 Followers 2K Following Official Twitter account of the Department of Surgical Oncology at Fox Chase Cancer Center
Maurício Ribeiro, MD @mauriciofribei1
1K Followers 1K Following Sarcoma Medical Oncologist. Assistant Member at @moffittnews @usfhealthmed. 🎗️#sarcoma #desmoid - my tweets = my views
EORTC Quality of Life... @EORTC_QLG
1K Followers 890 Following The mission of the @EORTC QLG is to develop measures of PRO in #cancer, incl. #HRQoL, and promote and coordinate studies concerning the #QoL of cancer patients.
Rareminds @RaremindsUK
945 Followers 2K Following Specialised mental health and wellbeing services for the rare disease community. https://t.co/eVmeTw0aah…
Fiona Waite @WaiteFiona
15 Followers 112 Following
Janelle Calhoun @ExDirRIS
234 Followers 2K Following Ex. Dr. Of RIS Lachelle Semanko will set up her account days ahead. This @ will be archived. It has been good to serve our community 🌻
Anthony P Conley @APConley77
2K Followers 1K Following Sarcoma Specialist at MDACC, Research of rare cancers: pleomorphic sarcomas, ASPS, #chordomas, & #chondrosarcomas. Views are mine. #sarcoma
Sosipatros Alexander ... @SABOIKOS_MD
358 Followers 723 Following Academic Medical Oncologist, senior clinical program leader, Immuno-oncology, Boehringer-Ingelheim, adjunct assistant professor, Georgetown University
Pap Corps @Pap_Corps
419 Followers 758 Following Nonprofit since 1952 raising crucial funds for cancer research to benefit Sylvester Comprehensive Cancer Center, UM Miller School of Medicine
Cheeky Startups @CheekyStartups
8K Followers 3K Following Community, Education, Funding, Marketing, Mentorship, Networking & Workspace for social impact arts entrepreneurs @rupertcheek [email protected].
Rein in Sarcoma @reininsarcoma
2K Followers 5K Following Rein in Sarcoma is a Minnesota based non-profit organization dedicated to sarcoma patient support, research, and education
Angie Drach @_angiedrach
590 Followers 2K Following Graphic designer based in NW Indiana/Chicago. Currently freelancing, doing what I do well, keeping chaos organized for corporate teams.
Carolyn Black @Carolyn35777545
0 Followers 56 Following
British Society of Ge... @Bsg2022
657 Followers 442 Following Annual conference for all things Gerontology in the UK
Jitendra Kumar garg @Jitendr96086524
6 Followers 235 Following
London Global Cancer ... @LGCW2025
1K Followers 829 Following Highlighting the UK’s significant global contribution to strengthening capacity in cancer prevention and treatment in less well-resourced regions
Vera Barros @VBarros76
4 Followers 44 Following
vicenç artigas @ArtigasVicenc
76 Followers 304 Following
SPHMedical @SPHMedical
375 Followers 2K Following SPH Medical is a leading provider of solutions focused on reducing risk of injury to patient handling staff, and reducing hospital acquired infections.
Umesharorafdb @umeshar
217 Followers 1K Following Working since last one decade for blood donation, thalassemia awareness & Care of thalassemia. Eradicate thalassemia ensure availability of safe & fresh Blood
Urvashi Pant @urvashi_pant
9 Followers 120 Following
Pulse Infoframe @pulseinfoframe
581 Followers 1K Following Accelerating science and research with real world evidence, from real patients, in real time. #realworldevidence #raredisease #cancer
Vikas Garg @OncoVik_G
684 Followers 1K Following Medical Oncology Fellow, Princess Margaret Cancer Center, Toronto, Canada 🇨🇦 🍁. Alumini Medical Oncology, BRAIRCH AIIMS, New Delhi, India 🇮🇳
Debbie Artis @DebbieArtisPT
148 Followers 336 Following Specialist Sarcoma Physiotherapist @leedshospitals @Sarcoma_UK @BCRT Tricia Moate Award 2021/ BSG board member
Athina's Ride @AthinasRide
42 Followers 20 Following Athina's Ride is a virtual cycling event raising funds for the Desmoid Tumour Foundation of Canada.
PEP Talks @PrimePEPtalks
243 Followers 1K Following PEP=Patient Engagement Practices! We amplify the patient voice to deliver a triple win for patients, Pharma, and society. - Prime Patient of @PrimeGlobalBuzz
Sarcomas Hospital La ... @SarcomasHULP
755 Followers 304 Following Unidad multidisciplinar experta en el diagnóstico y tratamiento de los tumores óseos y de partes blandas en adultos y niños. CSUR Sarcomas infantiles
Tracy Fawcett @TracyGFallon
120 Followers 316 Following Animal lover & cruelty hater!! Trapped in an office somewhere in North Yorkshire.
Healthcare Operating ... @healthcareOS
282 Followers 1K Following Operating System for Healthcare Institutions
Vanessa Carter AMR �... @VCarterAMR
8K Followers 8K Following #AntimicrobialResistance Patient Advocate • Chair @WHO Taskforce of AMR Survivors • @AfricaCDC Civil Society Champion • Founder of @theAMRnarrative
Kris Vleminckx @KrisVleminckx
319 Followers 172 Following Cell and Developmental Biologist @Ghent University | Xenopus aficionado | Human genetic disease modeling | Cancer and Rare Diseases
Giulia Buizza @giulia_buizza
93 Followers 831 Following Medical imaging | Data scientist. Views are my own.
Peter Thurley @pfthurley
3K Followers 5K Following #Desmoid survivor | #ChronicPain | #Disabled #MAiD Supporter | ex-Christian | #Philosophy | #ADHD | https://t.co/vnEkeaVOrW | @pfthurley on all platforms
Marianna Coppola @MariannaCoppo15
31 Followers 219 Following BI Product Manager Biologist - Interested in #rarediseases #nutrition Desmoid Foundation ONLUS #patientadvocate Love books, animals, nature!
uzair Hussain @Uzairhussain00
246 Followers 1K Following
Marcelo Sunagua Aruqu... @SunaguaMarcelo
959 Followers 5K Following Revalidado🇧🇴 🇧🇷//📍Zona Leste SP UMSA➡️UFMT-➡️HFSE➡️AC➡️OC // Español, Portugues, Ingles, Frances
Jon Trent, MD, PhD @JTrentMDPhD
6K Followers 4K Following Associate Director @SylvesterCancer. Director #Sarcoma and #GIST. Telemedicine and in-person clinics are open. Tweets are my own.
Alessandro Gronchi @alegronchi
3K Followers 219 Following Chair Sarcoma Service - Department of Surgery - National Cancer Institute - Milan - Italy.
WinetteVanDerGraaf @Winette_vdGraaf
3K Followers 2K Following Medical Oncologist @NKI_nl Amsterdam. Sarcoma; AYA cancer. Prof. @ErasmusMC President of @EORTC, chair @AYAzorgnetwerk @COMPRAYA_study @strong_AYA
Herbert Loong, MBBS, ... @herbloong
4K Followers 3K Following Academic medical oncologist @ Hong Kong w/ interests in sarcoma medical oncology, thoracic oncology & phase 1 trials | Disclosures: https://t.co/sb5XXrv5zx
Richard Davidson @RichardDavidson
1K Followers 1K Following Chief Executive of Sarcoma UK. Chair of SameYou. Devon, via North London and County Durham. All views my own.
Sarcoma UK @Sarcoma_UK
11K Followers 2K Following We're no longer updating this account. Follow us on Facebook, Instagram, LinkedIn, YouTube and Threads to stay informed.
Desmoid Tumor Researc... @DTRFoundation
1K Followers 317 Following DTRF is the only 501(c)3 in the U.S. solely dedicated to finding a cure for desmoid tumors, a rare, intermediate (locally aggressive), soft tissue sarcoma.
Dario Callegaro @DCalleMD
1K Followers 405 Following Sarcoma surgeon @IstTumori, Milan, Italy | Former Surg Onc fellow @UofT
Liz Connolly @DrLizConnolly
1K Followers 667 Following Medical Oncologist @PeterMacCC | Proteomics @ ProCan @CMRI_AUS | @anzsarcoma Sarcoma Research Fellow | @myESMO YOC | @ausyoungoncs YOGA 🇦🇺🇮🇪
SPAGN @sarcomapatients
2K Followers 558 Following Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of Sarcoma, GIST and Desmoid Patient Advocacy Groups
Pawel Sobczuk @pawel_sobczuk
2K Followers 633 Following MD PhD, Medical Oncologist, post-doc -at @VHIO, YOC Member & Communication Committee at @myESMO 🇵🇱🏳️🌈
Brian Van Tine @bvantine1
3K Followers 2K Following Prof of Medicine and Pediatrics, Medical Oncologist, Washington University in St. Louis Sarcoma Doctor, Phase 1 Director, and tumor metabolism researcher.
Eduardo Ortiz Cruz @DrOrtizCruz
2K Followers 1K Following Jefe Oncología Ortopédica: Hospital La Paz, Ruber Internacional, MDAndersonSpain. Director Bone and Soft Tissue Tumor Course Madrid. https://t.co/Pp63xAj9MN
Patrick Schöffski @schoffski
2K Followers 470 Following Passionate medical oncologist with experimental + public health agenda heading the Dpt. of General Medical Oncology + Lab. of Exp. Oncology at UZ/KU Leuven (BE)
Marco Fiore, MD, FACS... @FioreDoc
2K Followers 254 Following Expert in soft tissue sarcoma, GIST, desmoid tumors. Surgical Oncologist at Fondazione IRCCS Istituto Nazionale dei Tumori - Milan Italy. Tweets are my own.
Tom Wei-Wu Chen @saxotomy
974 Followers 555 Following Dedicated sarcoma and breast medical oncologist from Taiwan. (National Taiwan University Hospital and Cancer Center)
SpringWorks @SpringWorksTx
694 Followers 148 Following At SpringWorks, Inc. a healthcare company of Merck KGaA, Darmstadt, Germany, we bring tenacity to work every day because patients need answers now.
R. Lor Randall @RLRandallMD
2K Followers 2K Following I am so fortunate to serve as Chair of the storied Department of Orthopaedic Surgery at the University of California, Davis. Tweets are my own.
Anette Duensing @A_Duensing
950 Followers 683 Following Division Head, Precision Oncology of Urological Tumors, University Hospital Heidelberg
Dorian Y. García-Ort... @DorianGarciaMD
2K Followers 2K Following Surgical Oncologist. Department Skin, Soft Tissue and Bone Tumors. National Cancer Institute (México). Sarcoma, Melanoma and rare tumors surgeon.
AirAssist @AirAssistApp
1K Followers 69 Following 📱🚁 AirAssist App official account | The worlds best app for tracking air ambulances, police helicopters and coastguard aircraft | App by @ernstmul
Vandana Mahajan @oceanblue11oct
2K Followers 2K Following Palliative care counselor! Cancer conquerer! Patient advocate.A daughter, sister,wife,a mother! Born to a fauji married to one. Proud Indian
UK Research and Innov... @UKRI_News
97K Followers 631 Following We support world-leading research to push the frontiers of knowledge and generate economic, social, environmental & cultural benefits for all. Learn more 👇
Vikas Garg @OncoVik_G
684 Followers 1K Following Medical Oncology Fellow, Princess Margaret Cancer Center, Toronto, Canada 🇨🇦 🍁. Alumini Medical Oncology, BRAIRCH AIIMS, New Delhi, India 🇮🇳
Piotr Rutkowski @rutkowskip1972
1K Followers 283 Following surgical oncologist, researcher, President of Polish Oncological Society. Maria Sklodowska-Curie National Research Institute of Oncology Warsaw Poland.
Sarcomas Hospital La ... @SarcomasHULP
755 Followers 304 Following Unidad multidisciplinar experta en el diagnóstico y tratamiento de los tumores óseos y de partes blandas en adultos y niños. CSUR Sarcomas infantiles
Tracy Fawcett @TracyGFallon
120 Followers 316 Following Animal lover & cruelty hater!! Trapped in an office somewhere in North Yorkshire.
Breelyn Wilky, MD �... @breelynwilkyMD
3K Followers 555 Following Director, Sarcoma Oncology, @CUCancerCenter. Immunotherapy translational researcher. Tweets reflect my own opinions.
Sarcoma-Oma @SarcomaOma
378 Followers 419 Following Our mission is to educate and assist #Sarcoma patients in their search for treatment options and help fund their travel-related expenses when appropriate.
Ivan Mariño @ivanmarinol
66 Followers 362 Following
Vanessa Carter AMR �... @VCarterAMR
8K Followers 8K Following #AntimicrobialResistance Patient Advocate • Chair @WHO Taskforce of AMR Survivors • @AfricaCDC Civil Society Champion • Founder of @theAMRnarrative
Kris Vleminckx @KrisVleminckx
319 Followers 172 Following Cell and Developmental Biologist @Ghent University | Xenopus aficionado | Human genetic disease modeling | Cancer and Rare Diseases
Precision Medicine Fo... @precisionforum
3K Followers 3K Following The organiser of Nordic 2024 #Digitalhealth #Data #AI #Precisionmedicine https://t.co/wU8gQ7kf0L
Giulia Buizza @giulia_buizza
93 Followers 831 Following Medical imaging | Data scientist. Views are my own.
Marianna Coppola @MariannaCoppo15
31 Followers 219 Following BI Product Manager Biologist - Interested in #rarediseases #nutrition Desmoid Foundation ONLUS #patientadvocate Love books, animals, nature!
Pulse Infoframe @pulseinfoframe
581 Followers 1K Following Accelerating science and research with real world evidence, from real patients, in real time. #realworldevidence #raredisease #cancer
Anna Kruczynska @anna_kruczynska
11 Followers 40 Following BMBS Medicine University of Nottingham, BSc Human Genetics University of Nottingham Interested in Surgical Medical Education Scuba Diving and Hiking
alvarodeBHemBarretos @alvaropdutra
143 Followers 966 Following “A vida não é sobre fazer, mas sobre ser”
PNEandME @pneandme
122 Followers 356 Following Pudendal Nerve Entrapment (PNE) from prolapse surgery (NO mesh!) and NHS Biomedical Scientist (Virology). Own opinions.
Marcelo Sunagua Aruqu... @SunaguaMarcelo
959 Followers 5K Following Revalidado🇧🇴 🇧🇷//📍Zona Leste SP UMSA➡️UFMT-➡️HFSE➡️AC➡️OC // Español, Portugues, Ingles, Frances
Elephants and Tea @ElephantsTea
3K Followers 5K Following Elephants & Tea is a magazine for #AYA, written by #AYAcancer patients/survivors/caregivers telling their #stories in their own words. #JoinTheHerd #Cancer
Carolyn Black @Carolyn69709741
7 Followers 83 Following
Dr Markella Boudioni @DrMBoudioni
371 Followers 431 Following Expert Patient and Public Involvement, Engagement & Empowerment, Research, Transformational Change
PSaRC @PittSaRC
491 Followers 331 Following The official account of Pittsburgh Sarcoma Research Collaborative (PSaRC) #sarcoma #UPMC #Pitt
Jeffrey Cloutier, MD,... @JCloutierMD
2K Followers 1K Following Dermatopathologist, Bone / Soft Tissue Pathologist. Assistant Professor of Pathology at Dartmouth Geisel School of Medicine.
Ola Fagbohun - Loud, ... @Zestofyou
41 Followers 96 Following Intercultural #Menopause Transition Coach@zestofyou #BehaviourChangeInsight; connecting, empowering & advocating for DIVERSE MidLIFE women #AntiHealthBias
Mark Lewis, MD, FASCO @marklewismd
93K Followers 35K Following Director, GI Oncology, @Intermountain. Interests: neuroendocrine tumors, cancer syndromes, empathy (even had a Whipple myself). Tweets my own.
Greg Charville @Greg_Charville
3K Followers 2K Following Surgical pathologist @stanfordpath | Sarcoma and GI-Liver pathology
Radiography Journal @RadiographyJour
5K Followers 705 Following Published by Elsevier for the Society & College of Radiographers, it is the official journal of the European Federation of Radiographer Societies.
RAD Magazine @RADMagazine
3K Followers 1K Following For 50 years RAD Magazine has been a leading publication for medical imaging, radiotherapy and oncology professionals.
Seth M. Pollack @immunosarc
2K Followers 644 Following Steven T. Rosen Prof Cancer Bio Cncr ImmunoTx Co-lead @NUFeinbergMed @NorthwesternMed Dir. Sarcoma Prgm @LurieCancer #immunotherapy for #sarcoma #cures
The Student Voice Pri... @RDStudentVoice
253 Followers 332 Following Closed for entries! Annual, international essay competition for medical & nursing students focused on rare diseases📝💊🩺 Run by @RareBeacon & @M4RareDiseases
CitaL Macmillan Welfa... @MacmillanLLR
39 Followers 125 Following Supporting individuals & families impacted by #cancer across LLR. We provide specialist benefits advice & support up to tribunal representation. 0300 456 8400.
Care for those who ca... @Afterumbrage
898 Followers 1K Following After Umbrage exists to care for carers,we offer free short breaks for carers at our holiday cottages. Contact via website 💚 Registered Charity 1153922
dazzle4rare @dazzle4rare
1K Followers 1K Following Est. 2016 | Signal boost RARE with #dazzle4rare every Aug | #Signalise is our #podcast | Our 🔗 https://t.co/bS5LyCTiZ5
Getting On Board @GettingonBoard
4K Followers 2K Following Ceased operations. Thank you to everyone (staff, associates, volunteers, funders) who helped make our mission a reality.
Australia and New Zea... @anzsarcoma
749 Followers 228 Following The Australia and New Zealand Sarcoma Association is the peak body for the sarcoma community. ANZSA is formerly known as ASG and ASSG.
RareDiseaseFdn @rarediseasefdn
8K Followers 495 Following Changing the lives of patients affected by rare & undiagnosed diseases through social support, advocacy & treatment-focused research. https://t.co/qWTTVoKeyL
Met Office - SW Engla... @metofficeSWEng
17K Followers 212 Following Met Office weather warnings for SW England, with additional information from Met Office advisors and meteorologists. For questions, tweet @metoffice
Prog in the Park 2.0 @prog_2
139 Followers 401 Following You will find regular updates here for all things Prog in the Park 2.0 related.
Denis Costello @rarecare
3K Followers 3K Following Director at @cmlnet Empowering leukemia patient leaders (CML). Patient advocate, formerly @eurordis & @RareConnect Own views
Sarcoma Service at Me... @MSKSarcoma
700 Followers 292 Following For more than 135 years, we have been united by a singular purpose: to find cures for sarcomas. 1-844-923-0361 (new pts) | [email protected] (doctors)
Therapeutic Advances ... @TARareDisease
630 Followers 1K Following A SAGE gold open access journal | Publishing high-quality articles in the field of rare disease | Launched in 2020 | #TARareDisease