FMDAdvocate @FMDAdvocate
I am a former research nurse & stroke survivor. Now spending my time as an advocate for #raredisease, #FMD , Fibromuscular Dysplasia Florida USA Joined February 2011-
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What a privilege to hear Dr. Jacqueline Saw speak to us at #CLVS2023 about ‘the journey uncovering scad’, starting in 1931 with a woman after a night of fish and chips, through her own work linking SCAD to fibromuscular dysplasia and a categorization guide
What a privilege to hear Dr. Jacqueline Saw speak to us at #CLVS2023 about ‘the journey uncovering scad’, starting in 1931 with a woman after a night of fish and chips, through her own work linking SCAD to fibromuscular dysplasia and a categorization guide
Join us this Friday at noon for Cardiology Grand Rounds with Dr. Jeffrey W. Olin, @DrJeffreyWOlin1 of @IcahnMountSinai. "Fibromuscular Dysplasia: The Rare Disease That Isn’t" #CME available. bit.ly/3n3rpoR.
Join us for our annual conference May 19-20th, 2023. #FMDSA will be celebrating our 20th Anniversary. fmdsa.org/fmdsa-annual-c…
Peculiar morphologic characteristics of adrenal veins and similarity to fibromuscular dysplasia of artery: implication of pathogenesis medrxiv.org/cgi/content/sh… #medRxiv
#Stroke Patient Says Awareness Of Symptoms Could Mean Faster Recovery newson6.com/story/63166e91…
16-Year-Old "Saves His Own Life," Calls 911 While Having AVM Rupture #stroke @SVM_tweets newson6.com/story/630d4970…
PLASMA STEROID PROFILE IN WOMEN WITH FIBROMUSCULAR DYSPLASIA - THE ARCADIA-GYN STUDY #FMD journals.lww.com/jhypertension/…
It’s great to have more physicians in Florida with an interest in #FMD #fibromuscularDysplasia #SCAD #FMDSA @CleveClinicFL @pdmace2
It’s great to have more physicians in Florida with an interest in #FMD #fibromuscularDysplasia #SCAD #FMDSA @CleveClinicFL @pdmace2
Closing out #ACC22 w/ poster “Migraine Headache in Patients with SCAD” @EstherSHKimMD @katherinekleon @wellsbryanj Already thinking about #ACC23! #SCAD #SCADheart #SCADalliance
We are very excited to follow the updates being shared. Thank you!
We are very excited to follow the updates being shared. Thank you!
Thank you to all the researcher’s worldwide investigating #fmd and #scad, diseases that affect predominantly #women #InternationalWomensDay2022 #InternationalWomensDay #fibromusculardysplasia #fmdawareness @FMDartery @fmdgroep
22 years since my #FMD diagnosis. First diagnosed in 1938 and still no cure #RareDiseaseDay #FMD #Hope @kovacic_jason @SanthiKGanesh @n_bouatianaji let’s figure this out in my lifetime ❤️
It's #RareDiseaseDay2022 meet Giamila from Milano. She has #migraines #FMD #FibromusucularDysplasia Giamila recalls working in a hospital when a young girl came in for a nephrectomy. The girl was from a small town and not diagnosed in time to save her kidney.
Great presentation by @DrJeffreyWOlin1 @MountSinaiNYC on the Epidemiology of #FMD & Link with #SCAD today #VanSCAD2022 @docsaw #FMDSA
We look forward to virtual #VanSCAD2022 2/19/2022 #VGH @docsaw & colleagues will present findings about spontaneous coronary artery dissection and #fmd Fibromuscular Dysplasia @DrJeffreyWOlin1 @MountSinaiNYC Register vanscad.ca #fmdSA
Meet Dustin. Dustin is wearing the color Red to support and bring awareness to #FMD #FibromuscularDysplasia #scad #strokeawareness #heartattack Today is #WearRedDay #GoRed
Save the date:March 18th A free program, led by @wellsbryanj @emoryhealthcare an overview of fibromuscular dysplasia #FMD and feature presentations from Pam Mace, RN of the #FMDSA. Registration for the zoom link will be provided at a later date.
Fantastic recognition for our ED Prof @kovacic_jason who’s been presented with @Agilent Thought Leader Award for his research into vascular diseases, fibromuscular dysplasia, and spontaneous coronary artery dissection: victorchang.edu.au/news/agilent-a… #FMD #SCAD @FMDartery @FMDAdvocate
FMDSA @FMDartery
2K Followers 2K Following The recognized leader in the support of Fibromuscular Dysplasia (FMD) awareness, education and research. non-profit (501)(c3)#RUN4FMDSA
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Robert A Lookstein MD.. @roblookstein
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frank arko @farkomd
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Esther Kim @EstherSHKimMD
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Heather L Gornik @heatherlgornik
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Chittur Sivaram @CASivaram1
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Dr. Martha Gulati ♥.. @DrMarthaGulati
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Michael Savage @DocSavageTJU
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Amy Werre @amy_werre
60 Followers 320 Following
Katherine K Leon @katherinekleon
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Men With SCAD @Men_With_SCAD
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Mo Elsayed, MD @MElsayedMD
731 Followers 943 Following Interventional Radiologist at @MSKCancerCenter. Passionate about improving cancer treatments. 🎓 @JohnsHopkins @BrownMedicine @EmoryIrad @MSKCancerCenter
Matt Hawkins @MattHawkinsMD
8K Followers 643 Following #Pediatric #iRad @childrensatl & @EmoryRadiology trying to improve the efficiency, quality, & capability of #healthcare. #radiology #PedsIRWhat a privilege to hear Dr. Jacqueline Saw speak to us at #CLVS2023 about ‘the journey uncovering scad’, starting in 1931 with a woman after a night of fish and chips, through her own work linking SCAD to fibromuscular dysplasia and a categorization guide
👏 Congratulations to Dr. Jacqueline Saw, recipient of the 2023 CIHR-ICRH Distinguished Lecturer/CSATVB Scientific Excellence Award in Blood and Blood Vessel Sciences! 📢 Details: cihr-irsc.gc.ca/e/51591.html
We have come a very long way since the Registry started. Our first paper published in 2012 had 449 patients. As of today we have in rolled 4000 patients in the North American Registry for fibromuscular dysplasia. #FMD patients
As of today 4,000 patients have participated in the North American Registry for Fibromuscular Dysplasia. Thank you to all of the #FMDPatients @heatherlgornik @DrJeffreyWOlin1 @wellsbryanj @adityasharmamd @keaglemd @Angiologist @DrBTKatzen @AndrewDicksMD @AaronAdayMD
Two fantastic sessions happening now at #aspn23 : Dr. Meyers presenting on fibromuscular dysplasia and Dr. Furth presenting on transitioning from fellow to faculty 💯 @ASPNeph @PASMeeting #pas2023
Join us this Friday at noon for Cardiology Grand Rounds with Dr. Jeffrey W. Olin, @DrJeffreyWOlin1 of @IcahnMountSinai. "Fibromuscular Dysplasia: The Rare Disease That Isn’t" #CME available. bit.ly/3n3rpoR.
Peculiar morphologic characteristics of adrenal veins and similarity to fibromuscular dysplasia of artery: implication of pathogenesis medrxiv.org/cgi/content/sh… #medRxiv
Fibromuscular dysplasia (FMD), a disease of the blood vessels that most often affects middle-aged women, can increase risk of heart attack, stroke and high blood pressure. But until recently, the disease was not well-known – even among physicians. bit.ly/FMDUHtw4
Jason Wheeler, MD has joined the Dept of Vascular Medicine at #CleveClinicFl in #Weston. His clinical interests include: pulmonary embolism; DVT; fibromuscular dysplasia; aortic aneurysms; lymphedema; peripheral arterial disease; carotid stenosis & more. cle.clinic/3jkrMX3
@American_Heart While doctors aren’t sure what caused Amy’s #SCAD, she has fibromuscular dysplasia, a rare #genetic blood vessel disorder often associated with spontaneous dissection. 1 of 3 sisters also has #FMD @SanthiKGanesh goredforwomen.org/en/about-heart…
Closing out #ACC22 w/ poster “Migraine Headache in Patients with SCAD” @EstherSHKimMD @katherinekleon @wellsbryanj Already thinking about #ACC23! #SCAD #SCADheart #SCADalliance
@iSCADregistry @SCADalliance @EstherSHKimMD @katherinekleon @wellsbryanj Would love to hear more about this! I have had migraines for 40 years and had a SCAD 2 years ago.
Thank you @FmdBe for sharing the #SCAD patient guide from @Sunnybrook #FMDSA #fibromusculardysplasia #FMD
Excited to announce the SCAD guide! A primer for patients, and their physicians. sunnybrook.ca/SCAD/guide Thanks to @TPetropoulosMD for writing with me and to our dear patients who helped along the way!🙏 @docsaw @DrMarthaGulati @SCADalliance
#scad “achieving perfection is not the goal. Achieving TIMI 3 flow should be the goal” #LancetCommission #womenCVD #ACC22 @docsaw
THIS MORNING @EstherSHKimMD at 8:10 in Room 145-B… #SCAD #ACC22 #SCADheart cc @SCADalliance
We are very excited to follow the updates being shared. Thank you!
Excited for important #SCAD talk at #ACC22 today! So much progress in management! @beatscaduk @SCADResearchAus @SCADResearch @SCADalliance @iSCADregistry @EstherSHKimMD @FMDartery @FmdSupport @FmdBe @FMDAdvocate @SinaiHeartBlood @VictorChangInst
Physical activity and exercise in patients with spontaneous coronary artery dissection and fibromuscular dysplasia academic.oup.com/eurheartj/arti…
Physical activity and exercise in patients with spontaneous coronary artery dissection and fibromuscular dysplasia academic.oup.com/eurheartj/arti…
Classic "string of beads" appearance in fibromuscular dysplasia of renal a. performed by my IR friends who do incredible & vital work 24/7/365. You're the best! @angiowoman @judywawira @ZachBercuMD @NimaKokabiMD @jdprologo @AnneGillMD @MattHawkinsMD @MElsayedMD @billmajdalany
Fibromuscular dysplasia rt renal artery. Siemans cinematic VRT
The last day of February is #RareDiseaseDay. There are over 6000 identified rare diseases, affecting about 5% of the world's population. I have #FibromuscularDysplasia. To learn more about #RareDiseaseDay2022, visit RareDiseaseDay.org and RareDiseases.org.
Today is #rarediseaseday2022. It’s been 7 years since I was DXD with #FMD Fibromuscular dysplasia There's no known cause or cure. I Raise my glass to all #warriors battling health Issues @pamela_mace @FMDartery @ClevelandClinic @GaborTothMD @heatherlgornik We March on &survive
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