Help Kinsley Thrive @HelpKinsley
9-year-old bright & diagnosed epilepsy, narcolepsy type 1 with cataplexy, and failure to thrive. Don’t know why but keep looking for answers. #HelpKinsleyThrive helpkinsleythrive.com #HelpKinsleyThrive Joined February 2022-
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Kinsley turned 10 today! 🧡 May she thrive more each year! #helpkinsleythrive
Kins is having a rough day! She was so excited to go to school for hat day. She planned her outfit all week. She just couldn’t get up. She felt sick and even with stimulant was unable to get out words. #HelpKinsleyThrive
HelpKinsleyThrive video update youtu.be/Z0WhjVGDy1g via @YouTube
Narcolepsy with cataplexy is also known as Narcolepsy Type 1. Narcolepsy without cataplexy can also be called Narcolepsy Type 2. Keep sharing these facts to spread more #narcolepsyawareness! #SuddenlySleepySaturday
She is getting ultrasounds now. But is asleep. I am not sure what time but she will be put to sleep and getting a new type of feeding tube that will bypass her stomach.
This morning, 2/2/2022, Kinsley was admitted to @MUSCkids for failure to thrive. We knew we needed to think about fundraising, but didn't realize fate would force the timing so soon. #HelpKinsleyThrive helpkinsleythrive.com
PWN4PWN - Empowering ... @pwn4pwn
97 Followers 109 Following 💥 Reclaiming rest for People with Narcolepsy & Hypersomnia 🎬 Watch the #BeyondTheSleep trailer 👇 🌐 https://t.co/NCW77Yjc8f #BeyondTheSleep #PWN4PWN
TalkAboutIt.org @TalkAboutItorg
8K Followers 6K Following STIGMA BUSTING for epilepsy & MANY other conditions! Co-founder: @GregGrunberg. https://t.co/VlYrkdNHa5 PODCAST: https://t.co/vL91AKrO7L…
Mickie's Miracles @mickiesmiracles
7K Followers 6K Following A nonprofit dedicated to global Pediatric Epilepsy awareness, education and advocacy to help families get an urgent diagnosis and the highest level of care.
Tom Steenhuysen @JustCallMeTom
392 Followers 900 Following Proud Papa. Business Analyst, Consultant, Web Coach & Public Speaker on SEO #LoveLife & Always #DoBetter, CTO LabRatConsulting
Mickie's Miracles @mickiesmiracles
7K Followers 6K Following A nonprofit dedicated to global Pediatric Epilepsy awareness, education and advocacy to help families get an urgent diagnosis and the highest level of care.
Young Epilepsy @youngepilepsy
18K Followers 2K Following Epilepsy can be one of the most frightening and isolating conditions a child can experience. With your help, we can change that. Together we create possible.
PWN4PWN - Empowering ... @pwn4pwn
97 Followers 109 Following 💥 Reclaiming rest for People with Narcolepsy & Hypersomnia 🎬 Watch the #BeyondTheSleep trailer 👇 🌐 https://t.co/NCW77Yjc8f #BeyondTheSleep #PWN4PWN
MyNarcolepsyTeam @NarcolepsyTeam
245 Followers 57 Following MyNarcolepsyTeam is the social network for people living with #Narcolepsy now with more than 3,000 members! Get resources & get support in a private space. 💙
Epilepsy Foundation o... @EpilepsyFdn
38K Followers 2K Following #EpilepsyAwareness & Education | FREE #SeizureFirstAid Certification | 24/7 Helpline (1-800-332-1000) | Unwavering ally for people w/ #epilepsy & #seizures.
CURE Epilepsy @CureEpilepsy
19K Followers 1K Following CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 18 countries to date.
Wake Up Narcolepsy @wakenarcolepsy
5K Followers 3K Following People with Narcolepsy have been living in the shadows. It’s time to step into the light! Dedicated to supporting Narcolepsy awareness & research to find a cure
Narcolepsy Network @NarcolepsyNtwrk
4K Followers 152 Following The official Twitter feed for Narcolepsy Network®, a non-profit organization dedicated to individuals with narcolepsy and idiopathic hypersomnia.Trends for United States
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