PWN4PWN - Empowering People with Narcolepsy & IH @pwn4pwn
💥 Reclaiming rest for People with Narcolepsy & Hypersomnia 🎬 Watch the #BeyondTheSleep trailer 👇 🌐 https://t.co/NCW77Yjc8f #BeyondTheSleep #PWN4PWN pwn4pwn.org Joined October 2020-
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Following109
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Pregnancy is hard. Pregnancy with narcolepsy? That's a different kind of fight. 💜 Watch Jane's raw 30-second update, filmed 26 weeks in. #SleepDisorder #Narcolepsy #RealTalk #PWN4PWN #Fight4Rest
Falling asleep at the wheel is terrifying. For those with #Narcolepsy or #IH, nighttime driving anxiety is real — it’s not carelessness, it’s neurological. 💙 Awareness & support matter so no one has to choose between safety & independence. bit.ly/4oVv43Q #PWN4PWN
🎬 Lights! Camera! Visibility! The real faces of Beyond the Sleep. They’ve lived the fatigue, the misdiagnoses, the silence. Now they’re front & center with something to say. 💥 Premiering Sept 22 👉 Watch the trailer: youtu.be/q4tRqdI1K4o #Fight4Rest #BeyondTheSleep #PWN4PWN
🌙 Next #NapChat: Tonight @ 8:30PM EDT! Join us as Dan Liss shares his personal story about navigating the ups & downs of #Narcolepsy. A safe space to connect, listen & support 💙 Check out Dan's last NapChat feature here: bit.ly/47JO3be Don’t miss it → #PWN4PWN
Behind every anthem... there's a movement. 💜 You've seen the trailer. Now see how we made it happen. Spoiler alert: We had a lot of fun filming this 🎸💥 #BeyondTheSleep #Fight4Rest #PWN4PWN #Narcolepsy #Hypersomnia #BehindTheScenes #SneakPeek
You’ve met lawyers, artists, parents, teachers, scientists... Now meet people with narcolepsy. This disorder doesn’t care what you do for a living or how strong you are. #WorldNarcolepsyDay is September 22 and is about visibility. Share your story. 💜
💜 The fight for rest has a soundtrack. Meet the faces, voices & power behind Beyond the Sleep, the anthem for narcolepsy warriors everywhere. 🎧 Premieres Sept 22 | 🎬 Watch the trailer now: 👉 youtu.be/q4tRqdI1K4o #Fight4Rest #WorldNarcolepsyDay #Hypersomnia #BeyondTheSleep
Too many live w/ #Narcolepsy or #IH symptoms for years before a diagnosis. ⏳ This gap impacts school, work & mental health. We need earlier recognition, more provider awareness & access to specialists. Diagnosis shouldn’t take years. #SleepHealth #Advocacy
Narcolepsy/IH warriors - Were your symptoms ever dismissed as “stress,” “laziness,” or “mental health only”? 1. Yes, often 2. Sometimes 3. Rarely 4. Never
Alejandro had sleep paralysis at 5. He wasn’t diagnosed until 38. ⏳ He’s had seasons of thriving & seasons of struggle. Even with a diagnosis, there are still good & bad days — but now he has answers & support. bit.ly/4mykSN1💙 #NarcolepsyAwareness #IHawareness #PWN4PWN
Clinicians: PWN4PWN’s Doctors Resource Page is now live. Share peer‑supported tools like NapChat, Med Info Cards, & more with your narcolepsy & IH patients. Collaborate, learn, and help reduce diagnostic delays. #PWN4PWN #NarcolepsyCare #IHawareness bit.ly/41gOnu7
Not everyone with narcolepsy gets a diagnosis. For Teresa Durham, coping means trusting her body, recognizing her symptoms, & adapting her life around them. 💙 Her story reminds us: lived experience matters, diagnosis or not. bit.ly/3JrXvGh #NarcolepsyAwareness
🌙 Next #NapChat: Sept 3 @ 8:30PM EDT! Join us as Dan Liss shares his personal story about navigating the ups & downs of #Narcolepsy. Check out Dan's last NapChat feature here: bit.ly/47JO3be A safe space to connect, listen & support 💙 Don’t miss it → #PWN4PWN
Navigating job changes or unemployment with narcolepsy or IH? The JOBS Project has your back Access AI-powered workshops, résumé help, group coaching, and a supportive community—all tailored for you. Apply now and take control of your career journey. bit.ly/418FNxA
Kids with narcolepsy or IH aren’t “lazy.” Their symptoms are real. 💙 Believe them. Advocate fiercely until they get the care they need. Early recognition changes lives. #PWN4PWN #NarcolepsyAwareness #IHAwareness bit.ly/41PgsZB
Narcolepsy ≠ laziness. It’s a neurological condition w/ cataplexy, sleep paralysis & more. Let’s stop the misconceptions. #WorldNarcolepsyDay is Sept 22. #PWN4PWN #ProjectSleep #NeurodivergentVoices
When cataplexy hits, words may fail—but your Med Card won’t. The free #CataplexyMedCard from @pwn4pwn explains what’s happening, that you’re not in danger, and how bystanders can help. Carry it on your phone or ID—it’s your voice when you need it most. bit.ly/4moW5Lh
Living with narcolepsy or IH often means waiting in medical limbo—talked down to when you say you're tired, or written off as “just being a teen.” You’re not alone, and you don’t have to wait or suffer in silence. bit.ly/3HysVdn
Sunset stroll on Clearwater Beach’s iconic Beach Walk, powered by Sleep Tampa Bay. Imagine sugar-white sand, landscaped paths & that glow as the sun drops into the Gulf. Join us—for connection, calm & color. You in? #ClearwaterSunset @SleepTampaBay 8/23 bit.ly/478yHNo
Living with narcolepsy or IH? 💙 Join NapChat, a safe, supportive space sponsored by @pwn4pwn where you can connect, share, and find understanding. #Narcolepsy #IdiopathicHypersomnia bit.ly/3HgZ74J
Ryan @BearCat_1980
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Hypersomnia Fdn @HypersomniaNews
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Wake Up Narcolepsy @wakenarcolepsy
5K Followers 3K Following People with Narcolepsy have been living in the shadows. It’s time to step into the light! Dedicated to supporting Narcolepsy awareness & research to find a cure
antropoléptica @antropoleptica
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Help Kinsley Thrive @HelpKinsley
4 Followers 8 Following 9-year-old bright & diagnosed epilepsy, narcolepsy type 1 with cataplexy, and failure to thrive. Don’t know why but keep looking for answers. #HelpKinsleyThrive
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