Huntingtons Disease @Huntingtons2018
Joined April 2015-
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In rare cases,an individual with Huntington disease does not have a parent with the disorder.
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An affected person usually inherits the altered gene from 1 affected parent.
Mutations in the HTT gene cause Huntington disease.
The disorder appears to be less common in some other populations, including people of Japanese, Chinese, and African descent.
Huntington disease affects an estimated 3 to 7 per 100,000 people of European ancestry.
Huntington disease is a progressive brain disorder that causes uncontrolled movements, emotional problems, and loss of thinking ability
EHDN News @EHDN_News
717 Followers 975 Following European Huntington's Disease Network newsletter. Please see our profiles on BlueSky and LinkedIn for the latest updates.
HDAwareness2024 @HDAwareness2024
340 Followers 3K Following Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #CureHD #CureJHD too.
Champions For HD @ChampionsForHD
306 Followers 248 Following Non-profit Fighting to aid families and cure Huntington’s & Juvenile Huntington's Disease one family and one voice at a time. #HDCantTameMe
Juliana @julianapaccini
517 Followers 230 Following Abogada, Especialista en Derecho Tributario. Docente en distintas Universidades https://t.co/zLKJDjw5Ka
HDANI @HDAssocNI
785 Followers 3K Following HDANI is a NI registered charity which supports people affected by Huntington's disease. We provide support, information & advice to families and professionals.
Dr Catherine Deeprose @Catheri11893107
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Carlos A- LOVE EMMA @cean1851
14 Followers 716 Following
Leslie Brewer @LeslieB0821
81 Followers 1K Following I love my boys, and I hate Huntington's Disease.
imran tüfekci @TufekciImran
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Donna Barry @DonnaBa49263039
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Matthew Clarke @HdaJenny
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FOOGirl @kymmytx
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Alice Lee @alee7095
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Expanded Access Summi... @Expanded_Access
647 Followers 3K Following Ax-S Pharma, producer of the annual global conference on integrating pre-approval access into clinical drug development.
Bobcat @Drebobify
25 Followers 335 Following
Journal of Huntington... @journal_hd
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Dr Moh @Holistic__Medic
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Ingentium Huntington'... @ingentium_hd
363 Followers 187 Following Ingentium_HD is a direct feed from our Huntington's Disease Knowledgebase. Ingentium uses AI to curate recent news and science on Huntington's Disease, daily.
12Alice Lee @PepperPell
3K Followers 5K Following I am from Singapore but living in US now. hu Promoting rare diseases, JHD/HD and other good causes within my limited time on earth. My 2nd account is @alee7095
Bruce Salts❌an @Flukie1950
98 Followers 697 Following Christian,Married,my wife has Huntingtons Disease,2 sons,1 granddaughter. Retired U.M.W.A. 28 years underground coal miner,Pro Life supporter,Buckeye fan
Fund. Verónica Ruiz @fveronicaruiz
893 Followers 453 Following Difundir la enfermedad de Huntington, concientizar a la sociedad, gobierno e instituciones; e inspirar a través de la experiencia de vida de Verónica Ruiz
Karen Carraway-Allen @KaCarrawayAllen
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Juan Triana @trianajuan77
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brett sorrell @brettsorrell197
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HDA Wiltshire @HdaWiltshire
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STL Clinical Trials @SLCTResearch
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Evolution Research Gr... @ERGClinical
594 Followers 2K Following Evolution Research Group - Clinical Research Units Specializing in CNS Indications and Early Drug Development
Astri Arnesen @EHA_President
41 Followers 81 Following
Huntingtons Warrior @huntingtonsgir
344 Followers 4K Following I have been diagnosed with a terminal illness. I would love to become an advocate for the HD community! I was diagnosed in August and I'm fighting everyday.
HD Laura @HuntingonsD
79 Followers 307 Following 50/50 chance of having HD, mum diagnosed with Huntington's 4 years ago
Stef Simpson @Simpsonshepher2
29 Followers 138 Following # 1 Dog Lover & Breeder of German Shepherds, Toy Fox Terriers, & Yorkies! Mom of 1 Crazy Son, Colton!
Kyra Ashley Clarke @kyraashley93
52 Followers 363 Following Working for HDANI as their Youth Events and Fundraising Officer. Fighting the HD fight both personally and professionally. Creator of #imnotdrunk Lifestyle Blog
Rare Disease Connect @chronicallysass
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Katrina Hamel @KatrinaHamel4HD
698 Followers 2K Following I am the Vice President for https://t.co/sNTJfcmakH. supporting the Huntington's disease and Juvenile Huntington's disease community.
HD-Care @HDCareUCI
244 Followers 99 Following
Niks Run For HD @NiksRun4HD
57 Followers 188 Following Annual beachfront 5K honoring Nik Feria and his battle with Hungtington's Disease and lung cancer. All proceeds will go to the Help 4 Juvenile HD cause #run4nik
Hope @HDHopeCanada
615 Followers 704 Following Raising awareness for Huntington's Disease. YOU can make a difference. Visit: https://t.co/Xiwkdvhels
HD Masters Challenge @HD_Masters
10 Followers 14 Following
Rare Diseases @CheckOrphan
18K Followers 5K Following CheckOrphan is the leading #news and information platform dedicated to #rarediseases and #orphandrugs
The White House 45 Ar... @WhiteHouse45
23.6M Followers 12 Following This is an archive of a Trump Administration account, maintained by the National Archives and Records Administration.
White House Archived @ObamaWhiteHouse
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Huntingtons Disease @CureHD
2K Followers 2 Following Huntington’s Disease (HD) is an inherited progressive and fatal neurological disorder caused by an excessively repeated DNA code sequence
Crohn's Disease UK @CrohnsDiseaseUK
10K Followers 143 Following News, support and advice for those affected by inflammatory bowel disease and Crohn's disease from the UK
Rare Disease Blogs @rarediseaseblog
2K Followers 15 Following International opinion & debate from opinion leaders in the fields of Rare Diseases & Orphan Drugs
American Heart Associ... @American_Heart
322K Followers 5K Following Join our movement to change the future of health. Together we can be the progress that ensures longer, healthier lives for all. Follows not endorsements.
Rare Diseases @CheckOrphan
18K Followers 5K Following CheckOrphan is the leading #news and information platform dedicated to #rarediseases and #orphandrugs
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
Rare Disease Day @rarediseaseday
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NBC Bay Area @nbcbayarea
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