LTC_Study @LTC_Study
Living with a long-term condition can be tough. We are here to better understand it. Help us by joining our research opportunity. linktr.ee/ltc_study King's College London Joined June 2023-
Tweets29
-
Followers99
-
Following253
-
Likes88
1️⃣ NEW *open access* measure🧵 just published the Illness-Related Distress (IRD) Scale in Psychological Medicine doi.org/10.1017/S00332… It's a 14-item, trans-diagnostic PRO for distress related to living with any long-term physical condition (LTC). But WHY does this matter 🤔 ⬇️
What drives self-reported disease activity and healthcare usage in IBD? 💩🔥 ❗️Spoiler alert❗️It's a more complicated picture than gut inflammation alone. Depression predicted: 🏥self-reported symptoms, primary & secondary care, A&E and productivity 🔥but not inflammation
Thought of the day: APS lineup > Glastonbury line up. Such an honour to present my findings of my first PhD study at #aps2024uk alongside some science heroes of mine ⭐ Some thought provoking questions and discussions, lots to mull over for next year 👀👀
Thought of the day: APS lineup > Glastonbury line up. Such an honour to present my findings of my first PhD study at #aps2024uk alongside some science heroes of mine ⭐ Some thought provoking questions and discussions, lots to mull over for next year 👀👀
New research has found that a therapist-guided digital programme called COMPASS can reduce #anxiety and #depression for people living with long-term physical health conditions. 🔗Find out more➡️kcl.ac.uk/news/new-digit… #ChronicIllness #MentalHealth
Treatments for mood improve levels of inflammation in #IBD - here's a video explainer of our new paper in @eBioMedicine @RonaMossMorris @MondelliValeria @JoHudson13 @SamJNorton @sophierharding @annieskjones
Thank you @DUK_research for re-sharing our study! Complete two short online questionnaires for a chance to win 1 of 5 £100 vouchers. Information and sign up link: linktr.ee/ltc_study
Thank you @DUK_research for re-sharing our study! Complete two short online questionnaires for a chance to win 1 of 5 £100 vouchers. Information and sign up link: linktr.ee/ltc_study
Thank you @JDRFUK for sharing our study! We are still looking for people with diabetes to take part. Sign up link here: linktr.ee/ltc_study
Thank you @JDRFUK for sharing our study! We are still looking for people with diabetes to take part. Sign up link here: linktr.ee/ltc_study
Thank you so much to @mndresearch for re-sharing our study! If you are UK based and have a diagnosis of any long-term condition, you can take part! Sign up link: linktr.ee/ltc_study
Thank you so much to @mndresearch for re-sharing our study! If you are UK based and have a diagnosis of any long-term condition, you can take part! Sign up link: linktr.ee/ltc_study
Thank you to @PsoriasisUK for re-sharing our study. If you: 🩺 live with a physical health condition 🇬🇧 UK-based adult You can do 2 short questionnaires 📋 a week apart to be entered into a 💸 prize draw💸 for 1 of 5 £100 vouchers. More details here: linktr.ee/ltc_study
Thank you to @PsoriasisUK for re-sharing our study. If you: 🩺 live with a physical health condition 🇬🇧 UK-based adult You can do 2 short questionnaires 📋 a week apart to be entered into a 💸 prize draw💸 for 1 of 5 £100 vouchers. More details here: linktr.ee/ltc_study
Big thank you to @MSTrust @WeAreARMA @NRAS_UK @RespPsych and all the other organisations who have re-tweeted our ad - we couldn't do it without you! 🙏🙏🙏 Study recruitment still going, sign up link: linktr.ee/ltc_study
Thank you @Britishpolio for sharing our study 💜🙏💜 The LTC Study is still recruiting adults in the UK with a long-term physical health condition - sign up link here: linktr.ee/ltc_study
Thank you @Britishpolio for sharing our study 💜🙏💜 The LTC Study is still recruiting adults in the UK with a long-term physical health condition - sign up link here: linktr.ee/ltc_study
Thank you to @BPA_Porphyria for sharing our study. If you: 🩺 live with a physical health condition 🇬🇧 UK-based adult You can do 2 short questionnaires 📋 a week apart to be entered into a 💸 prize draw💸 for 1 of 5 £100 vouchers. More details here: linktr.ee/ltc_study
Thank you to @BPA_Porphyria for sharing our study. If you: 🩺 live with a physical health condition 🇬🇧 UK-based adult You can do 2 short questionnaires 📋 a week apart to be entered into a 💸 prize draw💸 for 1 of 5 £100 vouchers. More details here: linktr.ee/ltc_study
“The stories of people like Marques serve as a reminder that everyone has a part to play to ensure those living with HIV are treated with empathy and equality.” Thank you to @_Ross_Hunter for marking #WorldAIDSDay2023 with this poignant article ❤️ thenational.scot/news/23959274.…
🎗️ On #WorldAIDSDay, we want to honour the lives of those affected and amplify voices of those living with #HIV and #AIDS 🤝💙 If you are over 18 and in 🇬🇧 #uk, please consider taking part (two short surveys, a week apart) - linktr.ee/ltc_study
Thank you @PsoriasisInfo for re-sharing our study! We are 🔍 for: 🩺 people living with a physical health condition (EG psoriasis) 🇬🇧 >18 and in the UK 📋 2 short questionnaires 💸 opt into prize draw for 1 of 5 £100 vouchers. linktr.ee/ltc_study
Thank you @PsoriasisInfo for re-sharing our study! We are 🔍 for: 🩺 people living with a physical health condition (EG psoriasis) 🇬🇧 >18 and in the UK 📋 2 short questionnaires 💸 opt into prize draw for 1 of 5 £100 vouchers. linktr.ee/ltc_study
Thank you @Liver4Lifeuk for re-sharing our study! If you are an adult in the UK with a diagnosis of Liver Disease, or any other type of physical long-term condition 🏥, you can take part in our study! 📋 2 short questionnaires, a week apart 💸 chance to win 1 of 5 £100 vouchers
Thank you @Liver4Lifeuk for re-sharing our study! If you are an adult in the UK with a diagnosis of Liver Disease, or any other type of physical long-term condition 🏥, you can take part in our study! 📋 2 short questionnaires, a week apart 💸 chance to win 1 of 5 £100 vouchers
Thank you @BowelResearch for sharing our study - there's still time to sign up! linktr.ee/ltc_study Thank you so much to all our participants who've helped us get this far already 💜🙏
Thank you @BowelResearch for sharing our study - there's still time to sign up! linktr.ee/ltc_study Thank you so much to all our participants who've helped us get this far already 💜🙏
Thank you so much @BowelResearch for sharing our study! ✨ We’re still recruiting and anyone with a long-term health condition can take part! Sign up and learn more here: linktr.ee/ltc_study
Thank you so much @BowelResearch for sharing our study! ✨ We’re still recruiting and anyone with a long-term health condition can take part! Sign up and learn more here: linktr.ee/ltc_study
Oral Romaguera @ORomaguera24702
29 Followers 2K Following
Anthony @T0pgeeks
748 Followers 8K Following Freelance Programmer 👨🏽💻 | Tech Bro 💻 | Computer Geek 🖥️ | Lover of Code 🔥 | Problem Solver 🧠 | Digital Creator 📲 | Innovator 🚀
Martha @marthawhite46
174 Followers 3K Following
Sydeat @Sydeat6h8jx
17 Followers 343 Following
Thelma @bealsthelma56
262 Followers 3K Following
Renna @mason_renna94
309 Followers 3K Following
The Patient Voice of ... @PatientBps
2K Followers 2K Following We are the The Patient Voice Committee of The British Pain Society & endeavour to ensure our collective voice is heard throughout the work of the society.
CRPS Awareness @CRPS_Awarness
353 Followers 1K Following CRPS RSD Warrior and I love designing notebooks and T-shirts. If you need one I can get it for you from Amazon
Virginia @weaver63virgini
355 Followers 3K Following
Burning Nights CRPS @BNightsCRPS
11K Followers 10K Following Burning Nights CRPS Support is a UK charity raising awareness & supporting all those affected by Complex Regional Pain Syndrome (CRPS). RT=Not Endorsement
Danielle @pittsleydaniell
204 Followers 3K Following
Mary @mary_cullen38
346 Followers 3K Following
Michele @b_michele84
281 Followers 3K Following
Jeanine @baker_jeanine82
257 Followers 3K Following
Colleen @laforestcolleen
270 Followers 3K Following
Linda @lindasmtih94
266 Followers 3K Following
Miranda Ashitey @mizzieashitey
1K Followers 2K Following Social 🦋. Breast cancer blogger. @bbc6music listener. 5-time #GreatNorthRun Finisher. Adopted Mackem. Gets her face out for @breastcancernow. Bisexual. She/Her
Multiple Sclerosis Ne... @AgneStraukiene
2K Followers 1K Following 🧠🎗️MS Neurologist 🌍 Changing lives of pwMS worldwide🎙️ Founder/host of #Beewellwithms podcast 🌱Promoting Healthy & Mindful Living 👩Holistic health care
Vulval Cancer UK Awar... @VulvalCancerUK
3K Followers 3K Following Clare Baumhauer 💜 l’m just a Stage 3 #vulvalcancer 💜2nd time survivor! 💜 raising awareness 💜 #knowyourvulva #lichensclerosus https://t.co/0O9mTmetw8
Help Us @shiobiwan
210 Followers 3K Following Could/Would/Should HAVE. Who's/Whose - These 2 things are not the same
Eileen @hill_eileen56
242 Followers 3K Following
Renee @renee36foutch
322 Followers 3K Following
Janice @oehler76janice
280 Followers 3K Following
Dawn @h_dawn83
233 Followers 3K Following
Reba @norwoodreba67
485 Followers 3K Following
Melinda @melinda_lunt_
316 Followers 3K Following
Kay @pecorarokay86
358 Followers 3K Following
Cynthia @pattencynthia55
260 Followers 3K Following
Jeanette @jeanette_gregor
275 Followers 3K Following
whatnowanna (she/they... @whatnowanna
270 Followers 1K Following psychologist and freelance writer | words on healthcare, gender, and climate in @gaysifamily @DisDebrief @womensmediacntr @TheSwaddle ++
Joy @joy_williams14
266 Followers 3K Following
Lynn @lynn_tucker40
324 Followers 3K Following
Sheri @trevino_sheri14
310 Followers 3K Following
Loretta @owenloretta65
326 Followers 3K Following
Natalie @natalieperry55
242 Followers 3K Following
Amber @glasgowamber98
273 Followers 3K Following
Donna @allen_donna71
264 Followers 3K Following
Juana @lizottejuana40
304 Followers 3K Following
Fabiola @Fabiola99453083
243 Followers 3K Following
Psoriasis Association @PsoriasisUK
15K Followers 2K Following UK charity offering information and support for people affected by psoriasis and psoriatic arthritis.
Giovanna @vancegiovanna33
237 Followers 3K Following
Marilyn @morris_marilyn7
238 Followers 3K Following
Maria @crocker_maria99
487 Followers 3K Following
Wonda @Wonda939261
244 Followers 3K Following
Loretta @loretta_west12
301 Followers 3K Following
Kathy @kathymcbride88
282 Followers 3K Following
North West Cancer Res... @NorthWestCancer
4K Followers 4K Following North West Cancer Research is the leading cancer charity for the North West and North Wales, dedicated to putting our region's cancer needs first.
Stephen James @Stephen63623460
133 Followers 168 Following Leeds born and bread, fan since I was a toddler. First game with my grandad ‘73 v Stoke 1-1 when I was 4. Loves, my wife and my cats and Leeds United.
The SBSM @connectSBSM
2K Followers 481 Following The Society for Biopsychosocial Science and Medicine (formerly American Psychosomatic Society) Not a member? Join today!
National Institute fo... @NIHRresearch
97K Followers 4K Following Sharing news and information from the National Institute for Health and Care Research (NIHR). We fund, enable and deliver world-class health and care research.
Wellcome @wellcometrust
210K Followers 2K Following Supporting research to transform life, health and wellbeing. We’re taking on three urgent health challenges: mental health, climate change & infectious disease.
Institute of Psychiat... @KingsIoPPN
57K Followers 1K Following Globally renowned institute for research excellence and education in #MentalHealth and #Neuroscience at @KingsCollegeLon
MND Association - Man... @MNDManchester
3K Followers 482 Following Greater Manchester Branch of the Motor Neurone Disease Association. We help people across Greater Manchester affected by #MND, their carers, families & friends.
AIMS @aimscharity
473 Followers 582 Following The UK's first charity for Auto Immune and Multiple Sclerosis with a focus on HSCT. Registered Charity Number: 1177907
NRAS @NRAS_UK
9K Followers 1K Following Patient-led charity in the UK specialising in providing info & support to those living with rheumatoid arthritis #RA & juvenile idiopathic arthritis #JIA.
Action Kidney Cancer @ACTION4KC
1K Followers 2K Following Patients first & foremost: the only UK patient led, patient managed kidney cancer charity; supporting patients, carers and their families since 2006
KidneyCancerScotland @KCScotland
535 Followers 704 Following Scotland’s leading kidney cancer charity.
NASS @NASSexercise
8K Followers 3K Following We are the National Axial Spondyloarthritis Society (NASS). We transform the diagnosis and care of axial SpA. Twitter monitored 1000-1600, Monday to Friday.
Lipoedema UK @LipoedemaUK
3K Followers 484 Following The UK Lipoedema charity, raising awareness, proving support & education for patients and healthcare professionals.
Sickle Cell Society @SickleCellUK
11K Followers 1K Following The Sickle Cell Society supports and represents people affected by sickle cell disorder to improve their overall quality of life.
HS Foundation @hsforg
752 Followers 142 Following We are the Hidradenitis Suppurativa Foundation - a 501(c)(3) nonprofit dedicated to improving the quality of life for individuals living with HS. #HS
MRKH Connect @MRKHConnect
494 Followers 246 Following MRKH connect is a charitable organisation that acts as an online platform allowing those with MRKH to connect worldwide.
Breathe Arts Health R... @BreatheAHR
4K Followers 3K Following We design and deliver creative programmes, talks and training underpinned by scientific research, to improve health and wellbeing.✨ #BreatheAHR
Huntington's Disease ... @HDA_tweeting
4K Followers 2K Following Huntington's Disease Association is a registered charity that supports people affected by #HuntingtonsDisease (HD) in England and Wales. #MindfulOfHuntingtons
Dementia UK @DementiaUK
114K Followers 2K Following We’re the UK’s only specialist dementia nursing charity, providing life-changing support for everyone who needs it.
NKF Nephrology Profes... @NKF_NephPros
10K Followers 492 Following Empowering nephrology professionals with the latest NKF updates and resources. 🧡 Together, we’re making strides for better kidney health. #NKFClinicals
National Kidney Found... @nkf
44K Followers 899 Following We’re fighting to eliminate preventable kidney disease, accelerate innovation, and dismantle structural inequities in kidney care. Join our fight.
Project Endo @projectendo
6K Followers 958 Following 1st came Endo What?...then premiered Below The Belt, now we continue to mobilize for change as PROJECT ENDO.
The UK Kidney Associa... @UKKidney
12K Followers 647 Following The leading professional body for the UK kidney community. Dedicated to improving lives by supporting professionals in the delivery of kidney care & research.
Endometriosis Foundat... @Endofound
15K Followers 3K Following The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, and fund landmark #endometriosis research.
National Voices @NVTweeting
15K Followers 1K Following A coalition of over 200 charities making what matters to people matter in health and care Find us on Bluesky: https://t.co/fVxdzBKsEl
RARE Revolution Magaz... @RareRevolutionM
12K Followers 7K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Psoriasis Association @PsoriasisUK
15K Followers 2K Following UK charity offering information and support for people affected by psoriasis and psoriatic arthritis.
MSD @MSDintheUK
7K Followers 344 Following MSD’s official UK Twitter. Intended for UK residents only. We use the power of leading-edge science to save and improve lives around the world.
PAPAA @PsoriasisInfo
2K Followers 62 Following The Psoriasis and Psoriatic Arthritis Alliance is a UK registered charity dedicated to providing a positive approach for people affected by psoriatic disease.
Pain Association @PainAssocScot
880 Followers 1K Following A Scottish charity enabling people living with chronic pain to make positive changes to improve their quality of life
Endometriosis Cure @Endometriosis11
13K Followers 12K Following Detailed information about endometriosis and practical methods to overcome it.
Endometriosis.org @Endometriosis
23K Followers 139 Following https://t.co/Tr8m2HWCP6 provides facts and updates about endometriosis. Knowledge empowers those with endometriosis to make informed decisions about treatment options
Endometriosis UK @EndometriosisUK
23K Followers 555 Following For support services and reliable information for those affected by endometriosis, please visit our website. Find us on Instagram, Facebook, Linked and TikTok.
The ED Society @EDSocietyUK
219 Followers 381 Following Our vision is that every individual affected by Ectoderma Dysplasia is equipped with the knowledge needed to manage ED effectively and live life to the full.
For Grace: Women In P... @forgrace
10K Followers 2K Following For Grace promotes better care and wellness for women in chronic pain. Catch the live stream of our groundbreaking 2023 Women In Pain Conference @ https://t.co/cuokTN2Hy4
Pain Research Forum @PainResForum
15K Followers 2K Following @IASPPAIN’s news resource #PainResearchForum is dedicated to accelerating the discovery of treatments & research for various types of #pain.
CRPS UK @CRPSUK
4K Followers 4K Following CRPS UK is a registered charity run for and by people with Complex Regional Pain Syndrome. Charity number:1165597 admin@crps-uk RT does not = endorsement
The Patient Voice of ... @PatientBps
2K Followers 2K Following We are the The Patient Voice Committee of The British Pain Society & endeavour to ensure our collective voice is heard throughout the work of the society.
Fight The Flame - CRP... @FightTheFlame5k
2K Followers 2K Following Nonprofit Raising awareness, education & research of CRPS #COMPLEXREGIONALPAINSYNDROME #CRPS #ChronicPain #FTF #ChronicIllness #RSD #SupportGroup #FTF5k
Burning Nights CRPS @BNightsCRPS
11K Followers 10K Following Burning Nights CRPS Support is a UK charity raising awareness & supporting all those affected by Complex Regional Pain Syndrome (CRPS). RT=Not Endorsement
British Polio @Britishpolio
2K Followers 790 Following Our vision is a society where people living with effects of Polio & Post Polio Syndrome (PPS) have the resources they need to lead full & integrated lives.
BackCare Charity @TherealBackCare
3K Followers 856 Following We aim to prevent #back #pain through providing information, education and research for #practitioners, and #backpain sufferers.
Breast Cancer Action @BCAction
25K Followers 1K Following National education & activist organization dedicated to addressing & ending the breast cancer epidemic. Health justice for all!
Alzheimer's Society @alzheimerssoc
196K Followers 1K Following Individuals can’t end the devastation of dementia alone. It will take a society to beat dementia.
The Breast Cancer Res... @BCRFcure
25K Followers 2K Following We’re BCRF, the highest-rated breast cancer nonprofit in the U.S. 💕 IG/TikTok: @BCRFCure | FB/LinkedIn: The Breast Cancer Research Foundation
European Cancer Organ... @EuropeanCancer
21K Followers 2K Following The largest multi-professional cancer organisation in Europe; reducing burden and improving quality of care. Organiser of the #EuropeanCancerSummit
Manchester Breast Cen... @MCRBreastCentre
2K Followers 2K Following The goal of the Manchester Breast Centre is to be a world-class centre for basic and translational breast research. Est.2005. Director: @RobClarkeLab
Dewis Wales @DewisWales
4K Followers 4K Following Dewis Cymru is THE place for well-being information in Wales. It helps YOU by providing information from a network of organisations. Yn Gymraeg @DewisCymru
Standing Up to POTS @POTSActivist
6K Followers 36 Following SUTP works to improve quality of life for people living with postural orthostatic tachycardia syndrome (POTS) through research, advocacy, and support.
hypermobility.org @HMSACharity
12K Followers 7K Following Supporting people with connective tissue disorders or hypermobility related health problems, including but not limited to Ehlers-Danlos, Marfan & Stickler etc.
The Ehlers-Danlos Soc... @TheEDSociety
24K Followers 5K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
Ehlers-Danlos Support... @ehlersdanlosuk
18K Followers 10K Following EDS UK is committed to changing the futures of people with Ehlers-Danlos syndrome (EDS) and HSD. With awareness and early diagnosis we can change lives.Trends for United States
You might like
