MYOS @MYOS_SCN
The neuroMuscular YOung Scientists (MYOS) program of @SpierziektenCN for young researchers in neuromuscular diseases in The Netherlands spierziektencentrum.nl/myos/ The Netherlands Joined February 2021-
Tweets263
-
Followers81
-
Following67
-
Likes167
Eager to present my poster on the important topic of how persons with #CIDP suffer from residual work-related participation restrictions, despite response to induction treatment! 💼 Hope to see you on June 24th 14.15-15.15 at poster stand 244! 💬 #PNS2024
Start of my first @PNSociety1 meeting as new member! Follow this thread for my personal selection of highlights! #PNS2024
Ben je early career revalidatieonderzoeker (AIOS/revalidatiearts) en geïnteresseerd in het uitwisselen van ideeën/practices, het uitbreiden van je netwerk of gewoon peer support? Sluit je dan aan bij onze early career groep via [email protected]!
In our second video, we asked our speakers "What are your recommendations for a young physical therapist wishing to become an academic physical therapist?" buff.ly/3If3wSV
Great article of our patient research partner Ingrid de Groot on her personal experience collaborating with @OMERACT and others: truly inspiring for others to do/welcome the same! journals.lww.com/ijru/fulltext/… #myositis #DutchMyositisNetwork #myositisNetwerkNederland
Great start of the annual Neuromuscular Diseases symposium of The Netherlands, with on day 1 the best of Dutch research in this field 🤩 @SpierziektenCN @MYOS_SCN #spierziekte
Are you too (interested in getting) involved in #myositis research? Join & block your agenda for the scientific meeting of the #DutchMyositisNetwork on May 30th 2024 13.30-18.00 in Rotterdam, The Netherlands! More info will follow!
Are you too (interested in getting) involved in #myositis research? Join & block your agenda for the scientific meeting of the #DutchMyositisNetwork on May 30th 2024 13.30-18.00 in Rotterdam, The Netherlands! More info will follow!
Are you joining us during the annual research (11th) & clinical (12th) symposium on Neuromuscular Diseases in The Netherlands? 🧑🏾🎓👩🏻🎓 More info & registration via: spierziektencentrum.nl/nl-nmd-researc… Hope to see you there and don't forget to share 📢 @SpierziektenCN #MYOS
@MarjolijnKetela Patiëntenparticipatie in revalidatieonderzoek: hoe? Hierbij een handige stappenplan om zelf mee aan de slag te gaan!
Patiëntenparticipatie in revalidatieonderzoek: waarom en wanneer? Leuke, leerzame en nuttige workshop waar iedereen die (aan) onderzoek (mee)doet/financiert mee aan de slag kan!
@Dr_Gorter @srhilberink @netflix Keynote 3 Stephanie Jansen-Kosterink: How to create impact by means of personalised health technology? 1. Involve end-users in all phases of research 2. Go beyond conventional evaluations/trials
⚠️ Laatste kans ⚠️ Steun jij ook onze sponsorloop morgen voor onderzoek naar spierziekten met een donatie? 😊 2023.hetoranjepad.nl/teams/spierzie… We hebben ons doelbedrag bijna gehaald dus we zouden het super vinden als jij ons helpt met het laatste zetje!! ❤️ #spierziekte #Oranjepad
⚠️ Laatste kans ⚠️ Steun jij ook onze sponsorloop morgen voor onderzoek naar spierziekten met een donatie? 😊 2023.hetoranjepad.nl/teams/spierzie… We hebben ons doelbedrag bijna gehaald dus we zouden het super vinden als jij ons helpt met het laatste zetje!! ❤️ #spierziekte #Oranjepad
Steun ook jij onze sponsorloop voor onderzoek naar #spierziekte? 💪 Want de lange weg naar spierziekten de wereld uit begint met de eerste stap! 🚶🏻♀️🚶🏾♂️ Elke donatie is welkom en sharing = caring ❤️ 2023.hetoranjepad.nl/teams/spierzie… Spierziektencentrum @amsterdamumc #Oranjepad
Bent u een #revalidatie professional en benieuwd hoe u patiënten kunt betrekken in uw onderzoek? Ons lid Ingrid de Groot vertelt hoe u dit doet op een gelijkwaardige manier en vanuit patiëntenperspectief, met voorbeelden uit het @OMERACT initiatief voor patiënten met #myositis🙏
From our network: the study protocol for a new RCT on add-on IVIG (vs glucocorticoids alone) in newly-diagnosed #myositis is out now @BMJ_Open! bmjopen.bmj.com/content/13/7/e… What do you think this study will show is best? @amsterdamumc #DutchMyositisNetwork #myositisNetwerkNederland
❗️Nieuws alert: onze website is live🎉 myositis.nl Vind hier info en nieuws over #myositis voor patiënten/hun naasten, behandelaren en studenten/onderzoekers! Met dank aan alle deelnemende expertisecentra in NL! En vergeet niet te delen! 📢 #myositisNetwerkNederland
Save the date: NWO Insight Out 2023, a career and networking event for women in STEM. On 2, 9 and 16 November, guided by various topical themes, a platform will be provided for women to connect with, inspire and learn from each other. nwo.nl/en/meetings/in…
Calling all WMS members. We sent a link to our Equity, Diversity and Inclusion (EDI) survey last week. There's still plenty of time to complete it, you have until 28 July, but you don't have to wait until then. The email will have come from [email protected]
Lots of NMD events coming up over the next few months. Check out our comprehensive events list on the TREAT-NMD website as to not miss out: treat-nmd.org/news-events/ev… #events #neuromuscular
Our second job from the Department of Neurology & Neurological Sciences at @Standford School of Medicine, is for a postdoctoral fellow experienced in performance & analysis of MRI methods applicable to brain & muscle investigations. Details on our website: buff.ly/3JJPZDT
MCTC myositis @MctcMyositis
70 Followers 168 Following Take a quick survey to share your expertise and learn how you can get involved: https://t.co/qmYJFwbI7A
Dan147 @MdDanishRifqi
21 Followers 200 Following
Helen @X9xsJjcyT2M8E
25 Followers 1K Following
Helen @jd7EOOg3E1DJi
49 Followers 2K Following
Helen @HyWG6953GAWae4K
36 Followers 1K Following
Helen @k8UHy5w36Hgsfy
38 Followers 2K Following
DrOlivierBoyer @DrOlivierBoyer
185 Followers 244 Following MD PhD in autoimmunity and cancer @FCEPAnTHER with interest in myositis, aAbs, Tregs, CAR-T cells and ATMP development.
FOCIS-Center-of-Excel... @FCEPAnTHER
74 Followers 70 Following Research, education & medical care in #autoimmunity and #cell therapy at @DrOlivierBoyer_lab @Inserm @univrouen @CHURouen : #myositis, #pemphigus, #CAR T cells
Vito Minervini @VitoMinervini
4 Followers 351 Following
Emy Hashem @eman_elrefaie
46 Followers 600 Following
JuanFe @SanJuanReuma
417 Followers 4K Following Rheumatologist UNAL - Colombia. 🙏🏼👨👩👧👦❤️🔥🏨📒🖊🎼🎸🎹🎧📻
Goknur Selen Kocak @GoknurSelen
121 Followers 178 Following Neuromuscular Medicine @hopkinsmedicine, via @cerrahpasatipf @istanbultipf
Kirby Lab @KirbyLab_AmsUMC
306 Followers 181 Following We are a research group in @amsterdamumc Department of Physiology focusing on studying skeletal muscle mechanobiology and aging.
Khalid Alrasheed, MD ... @neurokhalid
70 Followers 56 Following Neurologist @mcgill , neuromuscular specialist @uci
Atze Bergsma @atzeb1
17 Followers 33 Following Molecular Biologist (and dad ;-)). Assistant professor working in the field of therapy development based on RNA-therapeutics for rare genetic disorders.
FabioIannotti_Lab @myoresearchlab
281 Followers 881 Following Our lab is interested in understanding dysfunctional molecular mechanics underlying rare skeletal muscle disorders
Scotty @scooteroos
18 Followers 2K Following
Valeria Di Leo @ValDiLeoMito
336 Followers 700 Following
Myositis Support and ... @MyositisSupport
2K Followers 2K Following MSU, patient-led, all-volunteer nonprofit empowering the #Myositis community. Patient support, education, financial assistance, research. #RareDisease
Elodie Gouba @ElodieGouba2016
1 Followers 71 Following
Jeroen Heetkamp @HeetkampJeroen
413 Followers 3K Following
Kayhan B @Kayhanmonobrow
378 Followers 2K Following all things brain and neuroscience as well as other interesting science... but I do like the funny stuff also! Views are my own. Who else would want them? 🤣
Elder Vicente Quispe ... @QuispeElder
28 Followers 191 Following CEO y fundador de Instituto del Nervio y Músculo (INEMU)
vishnu v y @vishnuvy
3K Followers 1K Following Short & Outspoken! Additional Professor Neurology, AIIMS New Delhi,India. Alumnus of PGI Chandigarh, JIPMER Puducherry and GMC TVPM
Myma Albayda, MD, RhM... @MymaAlbaydaMD
1K Followers 635 Following Rheumatologist @HopkinsMedicine @HopkinsMyositis @jhrheumatology | Director, Rheumatology Fellowship Program | Director, Musculoskeletal US and Injection Clinic
AnnemiekeAartsma-Rus @oligogirl
3K Followers 456 Following Translating science from bench to bedside and from jargon to lay language
Swiss Foundation for ... @swiss_muscle
169 Followers 75 Following We fund research in Switzerland to develop treatments for muscle diseases.
Raffaella Willmann @Raffa869
73 Followers 69 Following Research Manager at Swiss Foundation for Research on Muscle Diseases
Ewout @drgroen
510 Followers 451 Following Moved over to bluesky https:/ /bsky.app/profile/ https://t.co/TalkvX9aIQ 👋🏻
FSHD-China @FSHD_China
608 Followers 1K Following FSHD China Patient Advocacy and Support Organization #FSHD #Facioscapulohumeral #CureFSHD
Centre of Research in... @researchmyology
1K Followers 822 Following Multidisciplinary research center👩🏻🔬on the #muscle 💪and its pathologies #MyoTwitter #MedTwitter @MedecineSU @inserm @sorbonne_univ @Inst_Myologie @APHP
siggy staal @siggystaal
15 Followers 437 Following
Institut de Myologie @Inst_Myologie
1K Followers 737 Following Centre d'expertise sur le #muscle et ses pathologies créé par @telethon_france @Inserm @Sorbonne_Univ_ @APHP #myology #research #care #clinicaltrials #MNM
fb @f__b__9
34 Followers 2K Following
Belen @esparisb
236 Followers 1K Following Sleep doc, mother, wife, caretaker. Advocate for Myotonic Dystrophy, rare diseases, and special ed. Opinions are my own 💙🐶🏖🧬😴
FSHD Society British ... @FSHD_BC
163 Followers 227 Following Join the local FSHD Society chapter in BC. Support, resources, information, research, #FSHDhacks,#cureFSHD. We are stronger together. Tweets by @Asifa604
Remco Timmermans @rgmtimmermans
78 Followers 137 Following Physiatrist / Rijndam Rehabilitation / Erasmus MC / Motor Neuron Diseases / Spasticity / MSK ultrasound.
Heal City @HealCityWorld
14K Followers 15K Following https://t.co/P0Nu6AuBRI 🌿 Your go-to for wellness, fitness & mindful living! 💪🌞 Discover expert tips, natural remedies & lifestyle hacks! 💚 #HealCity
Susan Antonsen @AntonsenSusan
1 Followers 113 Following
spierziektenmumc+ @szcmumc
106 Followers 41 Following Hét centrum in Zuid Nederland, als onderdeel van MUMC+, gespecialiseerd in spierziekten.
keniaNahomi Morales @ImohanKenia
37 Followers 497 Following
FSHD Leiden @FSHD_Leiden
130 Followers 99 Following Official Twitter account of the FSHD research group at the LUMC
Marije Geilenkirchen @Marije_Aniek
0 Followers 66 Following 33 jaar, wetenschap, communicatie, werkzaam bij @Spierfonds
Didem Saygin, MD @DidemSayginMD
2K Followers 1K Following Rheumatologist, Assistant Professor of Medicine @RushMyositis • Researcher #Myositis #ILD • Opinions are mine
Latika @LatikaGupta_
6K Followers 5K Following Rheumatologist & Immunologist | Co-chair @EMEUNET SoMe, @APLAR_org Young board| Myositis, digital health, equity researcher |
Samuele Metti @MettiSamuele
391 Followers 1K Following @MSCActions PF fellow 🇪🇺 at @EPFL_en 🇨🇭| Passionate about #SkeletalMuscle & #ECMatrix | #CollagenVI Aficionado | Tiptoeing into #ProteinLipidation
Swiss Foundation for ... @swiss_muscle
169 Followers 75 Following We fund research in Switzerland to develop treatments for muscle diseases.
Sander Oorschot @SanderOorschot
2 Followers 15 Following
Ewout @drgroen
510 Followers 451 Following Moved over to bluesky https:/ /bsky.app/profile/ https://t.co/TalkvX9aIQ 👋🏻
Remco Timmermans @rgmtimmermans
78 Followers 137 Following Physiatrist / Rijndam Rehabilitation / Erasmus MC / Motor Neuron Diseases / Spasticity / MSK ultrasound.
MyoNet @MyoNet_myositis
66 Followers 2 Following MyoNet is a global multicentre, interdisciplinary research project on inflammatory myopathies, myositis.
MYONET @MYONET_Registry
122 Followers 47 Following To obtain uniform, longitudinal data over adult and juvenile myositis cases in order to achieve increased knowledge on disease course and prognosis of myositis.
LUMC Leiden @LUMC_Leiden
28K Followers 665 Following Officiële X-account van het Leids Universitair Medisch Centrum. Vacatures: https://t.co/n9phyJvAc1 Pers en media: https://t.co/SK8cny4gXr
UMC Utrecht Internati... @UMCU_Intl
2K Followers 340 Following University Medical Center Utrecht | Together we create the care of tomorrow 💙. Follow us for news about our healthcare, research and education.
Spierziekten.ouders @VSNouders
274 Followers 48 Following Spierziekten Nederland. Voor en door ouders van kinderen met een spierziekte: SMA, Duchenne, HMSN, Friedreich, HMSN en andere spierziekten.
Spierziekten Vl @SpierziektenVl
107 Followers 55 Following Vlaamse vereniging voor mensen met een spieraandoening.
spierziektenmumc+ @szcmumc
106 Followers 41 Following Hét centrum in Zuid Nederland, als onderdeel van MUMC+, gespecialiseerd in spierziekten.
Centre of Research in... @researchmyology
1K Followers 822 Following Multidisciplinary research center👩🏻🔬on the #muscle 💪and its pathologies #MyoTwitter #MedTwitter @MedecineSU @inserm @sorbonne_univ @Inst_Myologie @APHP
Institut de Myologie @Inst_Myologie
1K Followers 737 Following Centre d'expertise sur le #muscle et ses pathologies créé par @telethon_france @Inserm @Sorbonne_Univ_ @APHP #myology #research #care #clinicaltrials #MNM
ERN ReCONNET 🇪🇺 @ern_reconnet
3K Followers 883 Following 🔬🩺 European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases #ERNReCONNET
FSHD Leiden @FSHD_Leiden
130 Followers 99 Following Official Twitter account of the FSHD research group at the LUMC
ERDERA @ERDERA_org
4K Followers 2K Following The European Rare Diseases Research Alliance. Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.
CureDuchenne @CureDuchenne
6K Followers 582 Following We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.
NWO Nieuws @NWONieuws
18K Followers 1K Following Dit account is niet langer actief. Bestaande berichten blijven beschikbaar, maar er wordt niet meer gepost of gereageerd. Voor NWO-nieuws, ga naar https://t.co/kYzTJpXrvD.
Douglas Faria @DouglasOSFaria
26 Followers 64 Following Biomedical Scientist, PhD in Biomedical Sciences - Human Genetics by Erasmus Medical Center in Rotterdam, Master in Molecular Biology (UNIFESP)
World Muscle Society @WorldMuscleSoc
2K Followers 627 Following The WMS is a global, multidisciplinary community committed to advancing the science of neuromuscular disorders. Join us in Vienna for #WMS2025.
Muscle & Nerve @MuscleAndNerve
2K Followers 12 Following Official journal of the American Association of Neuromuscular & Electrodiagnostic Medicine @aanemorg and published by Wiley @wileyneuro
ERICA @ERICA_RD_EU
524 Followers 152 Following The European Rare Disease Research Coordination and Support Action
Mariya Gabriel @GabrielMariya
130K Followers 3K Following 🇧🇬 Deputy Prime Minister and MFA 2023-2024 🇪🇺 EU Commissioner 2017-2023 Member of the European Parliament 2009-2017
European Innovation C... @EUeic
58K Followers 2K Following 🇪🇺 🚀 Investing in market-creating research & innovation | Official account for #EUeic @EU_EISMEA @EU_commission. Data protection https://t.co/cON5wifKzD
ジャン＝エリッ... @EUAmbJapan
17K Followers 1K Following 駐日欧州連合（EU）大使の公式アカウント Official account of the 🇪🇺 EU Ambassador to Japan 🇯🇵 EU Delegation to Japan/駐日欧州連合 (EU）代表部: @EUinJapan
Horizon Europe 🇪�... @HorizonEU
179K Followers 2K Following Funding opportunities, projects & events from the EU's Research & Innovation Programme. Follow also @EUScienceInnov, @EZaharievaEU & @lemaitre_eu
European Research Cou... @ERC_Research
157K Followers 534 Following European Research Council, set up by the EU, funds top researchers of any nationality, helping them pursue ideas at the frontiers of knowledge. 🦋https://t.co/Y9s8R2t8Qr.
EU Science & Innovati... @EUScienceInnov
132K Followers 1K Following Policy updates from the @EU_Commission's Directorate-General for Research & Innovation. Follow also @HorizonEU, @EZaharievaEU & @lemaitre_eu
European Research Exe... @REA_research
31K Followers 976 Following @EU_Commission 🇪🇺 Research Executive Agency funding #HorizonEU, #MSCA, #RFCS & #EUAgriPromo. Our Director is @tachelet 🔗 Privacy: https://t.co/J0tocgzxac
Brian Cahill @b_p_cahill
4K Followers 4K Following Learning & Skills Analytics @TIBHannover @ReMO_COST | Former Chair of @mariecurie_alum | @SciLinkF Board Member 🇩🇪 🇮🇪 🇪🇺
Marie Skłodowska-Cur... @MSCActions
74K Followers 1K Following Official @EU_Commission account on the EU research & inno flagship scheme Follow: @EZaharievaEU @PiaAhrenkilde Social media disclaimer: https://t.co/j1CqRRFMan
Stichting Duchenne @duchennepp
1K Followers 877 Following Duchenne Parent Project vecht voor genezing of behandeling van spierziekte Duchenne, betere zorg&hulpmiddelen! Doe mee via https://t.co/rFyUxquTaC NL15INGB0000818818
Duchenne Centre NL @duchennecentrum
279 Followers 156 Following Centre of expertise considering care, treatment and research for #Duchenne and #Becker muscular dystrophy.
Jonne Doorduin @DrJonneDoorduin
154 Followers 152 Following Assistant Professor @Radboudumc Intensive Care | Technical Physician | Respiratory Muscle & Neurophysiology | Mechanical Ventilation | Dad and Cyclist
Spieren voor Spieren @SpierenvSpieren
5K Followers 1K Following Laat kinderen winnen van hun spierziekte 🧡 Steun 3FM Serious Request en geef 20.000 kinderen de kans om weer mee te doen.
Marianne de Visser @MariannedeViss1
143 Followers 483 Following
Hermien Kan @kan_hermien
270 Followers 269 Following Associate Professor of Radiology, with focus on quantitative MRI and skeletal muscle. Mastodon: @[email protected]
Yvonne Meijer-Krom @KromMeijer
36 Followers 73 Following
Minke Booij @minkebooij
4K Followers 902 Following Directeur Topsport Team EIFFEL - Olympisch en wereldkampioen hockey - Ambassadeur Spieren voor Spieren - Moeder van 2 zoons
Dutch Myositis Networ... @DutchMyositis
342 Followers 99 Following myositis awareness | nation-wide collaboration in myositis care, education, and research | partner of patient organisation for myositis/neuromuscular diseases
AnnemiekeAartsma-Rus @oligogirl
3K Followers 456 Following Translating science from bench to bedside and from jargon to lay language
@ERN_RND 🧠 @ERN_RND
3K Followers 716 Following European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: https://t.co/nowjhyNigm
Journal of Neuromuscu... @journal_nd
2K Followers 549 Following JND | Dedicated to expediting our understanding & improving treatments of neuromuscular diseases | Editors: Carsten G. Bönnemann & Hanns Lochmüller
IXA_Amsterdam @IXA_Amsterdam
462 Followers 240 Following Valorisation center of Amsterdam UMC, UvA-HvA and VU. Expert interface between Amsterdam-based academic institutes and parties interested in their research.
Radboud UMC Postdoc @RPI_UMC
162 Followers 109 Following Radboudumc Postdoc Initiative: information for postdocs, platform for discussion, promotion of local collaboration and networking opportunities.
AMC Graduate School @AMC_PhD
544 Followers 284 Following The AMC Graduate School for Medical Sciences organizes the doctorate level academic training for over 1.700 PhD candidates in Amsterdam UMC, location AMC.
AMC Research Office @AMC_RO
181 Followers 56 Following Academic Medical Center Amsterdam | Research | Grants | Health | Europe | NewsTrends for United States
You might like
