Myositis Support and Understanding (MSU) @MyositisSupport
MSU, patient-led, all-volunteer nonprofit empowering the #Myositis community. Patient support, education, financial assistance, research. #RareDisease understandingmyositis.org United States Joined January 2014-
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🌟MSU Young Adult Collective Power Hour! Ages 18–40 w/Myositis? Join our private, supportive Zoom session, no pressure to talk or be on camera. Connect, share, or just listen. Monday, August 11th 2025. Register now: understandingmyositis.org/event/young-ad…
#myositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/event/myositis… #myositisMovement #myositis #inflammatorymyopathy
If you are living with #myositis, no matter which type, join us on Zoom for our Monthly Wednesday Evening Zoom support session! Come as you are! New Time! Starts at 7 PM ET/ 6 PM CT/ 5 PM MT/ 4 PM PST. For details and to register: understandingmyositis.org/event/myositis… #myositissupport #MSU
MSU is dedicated to giving the Myositis community a platform to share and discuss the tough issues we face. We created To Be Honest Tuesday to address those hard and uncomfortable truths. Ready to share? Click here video.videorequest.io/request/tobeho… #ToBeHonestTuesday #YourStoryMatters #MSU
Men with Myositis Clubhouse Support Room! First Monday of the Month 7 PM ET Connect with other men living with myositis to discuss health, barriers, and shared experiences. More info: understandingmyositis.org/event/ch-mens-… Download Clubhouse, create an account, and join us! #MSU #myositis
Women with Myositis! Join us on Zoom for a supportive group session to share challenges, hopes, and experiences. First Monday of Every Month 7 PM ET Register here: understandingmyositis.org/event/myositis… Private, never recorded, and you can choose to listen or share. We can’t wait to connect!
Check out our September Calendar of Events for all the ways you can connect, learn, and support the Myositis community this month. Visit our website : understandingmyositis.org/events We look forward to seeing you at these upcoming events! #CommunityEvents #Webinars #MSU
Happy Labor Day to our myositis community! On this Labor Day, we celebrate the hard work, dedication, and resilience of every member of our community. Your MSU family💙 #LaborDay#myositis#MyositisFamily #MyositisSupport
Checkin with yourself, how are you REALLY feeling? Please take stock of your thought patterns, physical messages that your body is sending and give yourself the love & rest that you need. It's OK to be frustrated, you are not alone. If you need any support we're here for you!
📣 NAM Support Group – August 30th Session Cancelled. In light of our exciting First Annual MSU Summit, we will be cancelling the NAM Support Group meeting scheduled for today. We will resume next month and we hope to see you at the summit!
TODAY @ 5 PM ET / 4 CT / 3 MT / 2 PT - Inclusion Body Myositis Patient Zoom support session, last Friday of the month! For anyone living with #inclusionbodymyositis (IBM). Invite your caregiver, care partner, or spouse if you wish understandingmyositis.org/event/ibm-pati… #MSU #nonprofit
#myositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/event/myositis… #myositisMovement #myositis #inflammatorymyopathy
🎬 Join Couch Critics, our virtual Myositis Community movie club! We meet bi-weekly on the 2nd & 4th Wed at 7 PM EST. Next film in August 27th: "Don't Look Up". Relax, connect, and enjoy movies together! us02web.zoom.us/meeting/regist… 🍿 #MSU #Myositis #CouchCritics
MSU is dedicated to giving the Myositis community a platform to share and discuss the tough issues we face. We created To Be Honest Tuesday to address those hard and uncomfortable truths. Ready to share? Click here video.videorequest.io/request/tobeho… #ToBeHonestTuesday #YourStoryMatters #MSU
From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at understandingmyositis.org/event/myositis… #myositissupport #MSU
Congratulations to MSU’s Volunteer of the Month: Megan Smith! She was nominated by her peers for her incredible dedication and innovative spirit. She truly makes a difference in our community, and we’re proud to celebrate her this month!#MSU #Volunteerofthemonth #MyositisSupport
#myositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/event/myositis… #myositisMovement #myositis #inflammatorymyopathy
MSU is dedicated to giving the Myositis community a platform to share and discuss the tough issues we face. We created To Be Honest Tuesday to address those hard and uncomfortable truths. Ready to share? Click here video.videorequest.io/request/tobeho… #ToBeHonestTuesday #YourStoryMatters #MSU
Join us TODAY for #MyositisReads, a book club for the Myositis Community on Clubhouse! Today at 3 PM ET on Clubhouse. Myositis patients and care partners are welcome. Reading is where we can escape, relax, and learn. 👉 For details, visit: understandingmyositis.org/event/myositis… #MyositisReads
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