Miracle For Max @MiracleForMax

Hi! This is Max, and he has TBCD. We're fighting like hell to save his life. Want to help? Read his story at https://t.co/o2fnaS3NMh. MiracleForMax.com Orlando, FL Joined September 2022

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Miracle For Max @MiracleForMax

3 years ago

It's my first @fldrupalcamp! Thanks @midwestcamp and @getpantheon for my awesome swag. I love it! #Drupal #FLDrupal #FLDrupalCamp #DrupalCampFL #FLDC2023

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Miracle For Max @MiracleForMax

3 years ago

Thank you for raising awareness and featuring our fight!

Spectrum News 13 @MyNews13

3 years ago

Thank you for raising awareness and featuring our fight!

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Miracle For Max @MiracleForMax

3 years ago

Forming a support group for adults who bought a ton of Halloween candy to "get ahead of things before the Halloween rush" and then gradually ate most of it #halloween #parenting #spookyseason #adultlife

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Miracle For Max @MiracleForMax

3 years ago

Max is ready for the @panerabread fall catalogue. He's wearing the chocolate croissant.

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Miracle For Max @MiracleForMax

3 years ago

A big THANK YOU to PinSeeker Game for adding The TBCD Foundation to your charity rotation! If you play on a golf simulator running E6 Connect and you want a fun way to contribute to a variety of wonderful causes, you can download the app and join in. pinseekergame.com/download/

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Miracle For Max @MiracleForMax

3 years ago

A huge thank you to @thisisinsider for covering Max's story, to @PollyAnnaWrites for writing it, and to @RebekkaReynolds for connecting us to make it all happen. insider.com/my-son-has-a-r…

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Miracle For Max @MiracleForMax

3 years ago

This #fridaymorning, my family is trying to save my two year old's life. We need $2 million to get to clinicals for TBCD at @nationwidekids. We desperately need help spreading his story. If you could take one second to hit share, you'd be our hero.

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Miracle For Max @MiracleForMax

3 years ago

Max is 2 and has a condition called TBCD. Most kids lose all purposeful movement by age 4 and die by 5. In 2022 we've started a 501c3 foundation, raised $100k, and started working with a research team. One catch - we need $2m. PLEASE tag any outlet or show who might cover this!

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Miracle For Max @MiracleForMax

3 years ago

With apologies to @danjlevy, whose glorious eyebrows deserved better. Caption: When they tell us to give up on raising $2 million to save my life #SchittsCreek #DavidRose #cureTBCD #MakeAWish #Help @nationwidekids

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Miracle For Max @MiracleForMax

3 years ago

Beep beep! Max has been waiting for months for his @PermobilUSA Explorer Mini with no progress, so we finally gave up and got him a Bumper Buddy on @amazon instead. He's so happy to finally be able to reach the mailbox on his @LittleTikes playhouse!

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Miracle For Max @MiracleForMax

3 years ago

I was on the news! wogx.com/news/central-f…

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Miracle For Max @MiracleForMax

3 years ago

Hi! I'm Max. I have TBCD, which paralyzes most kids completely by 4 years old. The avg lifespan is under 5. We're funding research at @nationwidekids to find a treatment. We need an estimated $2 million to get to clinicals. Please help? miracleformax.com

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Helena @misshelenasue

4 years ago

Without a cure, my son Max is unlikely to see his 5th birthday. Please help. Donate, RT this, like this status, literally ANYTHING helps. Please. #orphandisease #RareDisease #help #a11y #drupal #genetics #TBCD #SOS #medicalresearch tinyurl.com/miracleformax