Neuroendocrine Tumor Southern Africa Support. NETSAS provides support for NETs patients and empowers patients with knowledgenetsas.org.za Cape Town, South AfricaJoined October 2023
Obrixtamig, a DLL3/CD3 IgG-like T-cell engager for SCLC and epNECs. Just out in JCO. Clearly efficacy in these hard-to-treat cancers and larger studies ongoing will hopefully confirm that.
ascopubs.org/doi/10.1200/JC…
#PrimaryCarePhysicians are the first to see NET patients when symptoms present. Among the repetitive diagnoses of common conditions, it is difficult to suspect the uncommon.
📌We help PCPs to detect NENs with a 60-minutes e-learning and a free CME credit.
✔️Check it out here:…
6000 newly diagnosed NENs a year in England alone. ~ 16 a day, ~ 1 every 90 minutes. Not as rare as we keep being told they are. And these figures exclude some types. buff.ly/ffdMkp8
📌Dr. Grace Kong: “The future focus should be on performing more multicenter collaborative studies on NENs.”
☑️Learn about the latest nuclear medicine clinical trials related to NENs: incalliance.org/dr-grace-kong-…#LetsTalkAboutNETs#RadTwitter
✨A call to all patients to assist with advocacy and awareness
✅ Please share this free accredited course, endorsed by WONCA with your GP, physician, radiologist and any other medical people you come across in your NENs journey 🙏
✨A call to all patients to assist with advocacy and awareness
✅ Please share this free accredited course, endorsed by WONCA with your GP, physician, radiologist and any other medical people you come across in your NENs journey 🙏
➡️ thanks @JaydiDelRivero and your colleagues for all the work you are doing to not only treat NETs patients but also meet their unmet needs where possible! ✅
➡️ thanks @JaydiDelRivero and your colleagues for all the work you are doing to not only treat NETs patients but also meet their unmet needs where possible! ✅
ICYMI: We released our 1st guideline to aid oncologists in managing symptoms of GEP-NETs—complex diseases that can take a toll on patient function & quality of life. #ASCODailyNews has more, including comments from Expert Panel Co-Chair @JaydiDelRivero: brnw.ch/21wSCdU
Behind a NET diagnosis there is a personal story.
👉Karin from Belgium spent 6 years with symptoms of low blood pressure, hot flashes, tiredness, abdominal pain. She visited her GP every 6 months. NET awareness would have urged referral for scan.
✅Watch Karin’s story:…
5K Followers 2K Following🇮🇸Medical Oncologist/Educator, NET/GI/CUP enthusiast. Husband/dadx4 (bad dad jokes). Cyclist. Avant gardener. Professor of Oncology, Mayo Clinic. Tweets mine.
1K Followers 3K FollowingEmerald Corporate Group: a consultancy with expertise in market access strategies | healthcare pricing & reimbursement strategies in Australia & Asia Pacific
250 Followers 81 FollowingThe European Neuroendocrine Tumor Society unites 1,500+ NET experts worldwide since 2004. Follow us on Bluesky for updates: https://t.co/0Loa6liE0I
935 Followers 2K FollowingLover of 1, dad of 2, IR & Politics lead @LJMU, US Politics for Dummies author with new book on USFP https://t.co/kqlDgzNqJu, & living with cancer FrHistS.
2K Followers 667 FollowingInvesting in research and supporting #pheochromocytoma and #paraganglioma patients globally. "Stronger United" #NETCancer #RareDisease #pheo #para
879 Followers 637 Following@HealthUnion Certified Patient Leader, 3 x WEGO Health (now Health Union) Award Winner, Brit/Scot, Veteran, opinions mine. Also @ronnyallan1 and @Neuroendocrine
441 Followers 1K FollowingWith coffee and a chat we can change the world one cup at a time. Blessed with a wonderful wife and an amazing son. Gal 2 v 20
1K Followers 615 FollowingOfficial account of the UK & Ireland Neuroendocrine Tumour Society - for professionals involved in NETs https://t.co/F3RJMlWCB8
526 Followers 310 FollowingPatient advocacy, support group for Neuroendocrine cancers. Supporting NET Cancer patients and connecting specialists across the Indian subcontinent since 2014
548 Followers 294 FollowingHead, Neuroendocrine Tumor Unit, ENETS Center of Excellence, Hadassah Medical Organization and Faculty of Medicine, the Hebrew University, Jerusalem, Israel
2K Followers 426 FollowingThe Neuroendocrine Cancer Foundation (previously known as LACNETS) provides a community of support & education for those with neuroendocrine cancer.
5K Followers 6K FollowingSupporting the #Neuroendocrine Cancer community, incl diagnosis, access to best treatment & care - and stimulating research. Helpline 0800 434 6476
142 Followers 441 FollowingProject officer at International Neuroendocrine Cancer Alliance @netcancerday, https://t.co/dCeD3QELyO. Communications expert, psychology and art are my passion.
146 Followers 99 FollowingStichting NETNECkanker voor patiënten en naasten met NET- of NEC-kanker. #kanker #foundation #neuroendocriene tumoren #neuroendocrine #nederland #netherlands
752 Followers 599 FollowingDirector of Programs/Outreach, Neuroendocrine Cancer Foundation @NCFCancer (formerly @LACNETS); NP Hospitalist turned NET caregiver+pt advocate. Tweets mine
5K Followers 3K FollowingWorldwide NET Cancer Awareness Day is an awareness-raising event coordinated by INCA, the International Neuroendocrine Cancer Alliance.
1K Followers 431 FollowingI am a patient advocate living with NETS My tweets are my own opinions but my various non profits do receive funding from pharma
293 Followers 375 FollowingDirector of Patient Education at NETRF, LCSW, healthcare advocate, facilitator of the MS Mental Wellness Chat #emotionalwellness #chronicillness
6K Followers 3K Following@HealthUnion Certified Patient Leader, 3 x WEGO Health (now Health Union) Award Winner, Brit/Scot, Veteran, opinions mine. Also @ronnyallan1 and @World_WNCD
25K Followers 94 FollowingEntrepreneur, Investor, Libertarian. Free Markets. Free Speech Activist. Speaks the Truth. Loves South Africa and Despises Woke and Leftist Ideology
60 Followers 11 FollowingCollaborative of Surgical Teams for Neuroendocrine Tumors
A group dedicated to improving surgical care for #NETs through collaboration and knowledge exchange.
939 Followers 535 FollowingEndocrine Surgeon at NIH; #surgicalresearch in gastro-entero-pancreatic #NET #MEN1 #thyroid #parathyroid #adrenal disease; tweets my own
1K Followers 3K FollowingEmerald Corporate Group: a consultancy with expertise in market access strategies | healthcare pricing & reimbursement strategies in Australia & Asia Pacific
250 Followers 81 FollowingThe European Neuroendocrine Tumor Society unites 1,500+ NET experts worldwide since 2004. Follow us on Bluesky for updates: https://t.co/0Loa6liE0I
51K Followers 2K Followinghttps://t.co/GXLUxhY5Jq cofounder . host of Swan Signal Live on @Swan, https://t.co/W9LmCOfCfo, https://t.co/9ncDovZNdN . hosted https://t.co/y83zyEA0GT . tick tock, next block
765 Followers 304 FollowingAllergist immunologist. Head of division of Allergy and Clinical Immunology. Head of Allergy and immunology unit, UCT lung institute @UniversityCape
42 Followers 168 FollowingI am Spiritual, a student Counsellor and mum of 3 amazing kids. Married to my hero, Shaun.. I’m a MS warrior, living with Neuroendocrine Cancer and ADHD.
3K Followers 2K FollowingEmotional Support Specialist | Rare Disease | Palliative Care | Author of "After the Shock" | former hospice chaplain | always a mom
441 Followers 1K FollowingWith coffee and a chat we can change the world one cup at a time. Blessed with a wonderful wife and an amazing son. Gal 2 v 20
1K Followers 434 FollowingGI and NET Oncologist, Professor @OHSU Knight Cancer Institute, Chief & Med Dir CHO and Knight-Legacy Collaborative, Dad, cycling & ski enthusiast!
2K Followers 1K FollowingMedical Oncologist for GI, NETs & Theranostics. CTO Medical Director @huntsmancancer. NCI NET Task Force Co-Chair. All about collaboration & patient advocacy
200 Followers 80 FollowingSupporting nurses and dietitians working with Neuroendocrine tumours throughout Europe. This account can not answer individual medical enquires.
28K Followers 348 FollowingJoin the conversation as we work to improve the lives of those with cancer. See our community guidelines: https://t.co/KWTwKv5451
1K Followers 615 FollowingOfficial account of the UK & Ireland Neuroendocrine Tumour Society - for professionals involved in NETs https://t.co/F3RJMlWCB8
357 Followers 170 FollowingNETwerk - Belgian ENETS Center of Excellence network - Excellent #neuroendocrinecancer care, close to the patiënt - tweets by @TimonV
905 Followers 489 FollowingUniting South African cancer NGOs to ensure the implementation of change & monitoring to effect the significant reduction of SA’s cancer burden!
4K Followers 417 FollowingCancer surgeon, Tata Memorial Centre (Mumbai) alumnus, Hindustani classical vocal, Tabla, Kokani, Love surgical video editing, Community lead @modern_surgeon
556 Followers 662 FollowingCarciNor for alle som er engasjert i nevroendokrin kreft (NET-kreft). The Norwegian patient advocacy group for #NETcancer, #carcinoid.
548 Followers 294 FollowingHead, Neuroendocrine Tumor Unit, ENETS Center of Excellence, Hadassah Medical Organization and Faculty of Medicine, the Hebrew University, Jerusalem, Israel
5K Followers 2K FollowingThe Carcinoid Cancer Foundation is the premier resource & website for up-to-date, comprehensive carcinoid and neuroendocrine tumor (NET) information.
146 Followers 99 FollowingStichting NETNECkanker voor patiënten en naasten met NET- of NEC-kanker. #kanker #foundation #neuroendocriene tumoren #neuroendocrine #nederland #netherlands
142 Followers 441 FollowingProject officer at International Neuroendocrine Cancer Alliance @netcancerday, https://t.co/dCeD3QELyO. Communications expert, psychology and art are my passion.
879 Followers 637 Following@HealthUnion Certified Patient Leader, 3 x WEGO Health (now Health Union) Award Winner, Brit/Scot, Veteran, opinions mine. Also @ronnyallan1 and @Neuroendocrine
118 Followers 151 FollowingPatiëntenvereniging voor mensen met Neuro Endocriene Tumoren (NET) en Multipele Endocriene Neoplasie (MEN) | Informeert en brengt lotgenoten samen
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