Time is precious, especially for NETs patients, how are you going to intentionally spend your time today? #NETSAS #LetsTalkAboutNETs

@ncukcharity There is so much more to meeting patient needs when planning clinical trials. Patient voices need to be heard! #NETSAS #LetsTalkAboutNETs

Congratulations Dr Siwawa - we salute you and your team! Great to see strong leadership coming from Africa! #NETSAS #LetsTalkNETs

Oncidium foundation @OncidiumFoundat

4 months ago

Congratulations Dr Siwawa - we salute you and your team! Great to see strong leadership coming from Africa! #NETSAS #LetsTalkNETs

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✨Self advocacy for treatment options starts with understanding the landscape of your disease! #LetsTalkAboutNETs #NETSAS

NET Cancer Day @netcancerday

12 months ago

✨Self advocacy for treatment options starts with understanding the landscape of your disease! #LetsTalkAboutNETs #NETSAS

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Thanks WECAN for a really informative Patient Training Academy. Lots of great connections and learning in the advocacy, European policy, research and data space! #NETCancerDay #netsas

⭐️A few simple truths that can make a big difference! #LivingWithNETs #NETSAS

🙌INCA unites 37 member orgs from 29 countries across the globe. ➡️The AGM highlighted several significant achievements over the past year with more exciting initiatives planned under the key strategic pillars for 2024. 👏Congrats to all involved #LetsTalkAboutNets #NETSAS

Not many people understand the full picture when they see “healthy” looking NETs patients. #LetsTalkAboutNETs #NETSAS

World Neuroendocrine Cancer Day @World_WNCD

a year ago

Not many people understand the full picture when they see “healthy” looking NETs patients. #LetsTalkAboutNETs #NETSAS

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Including patients in the development of their treatment plans pathway leads to better outcomes. Patients that are empowered and feel heard typically respond better! #LetsTalkAboutNETs #netsas

Looking fwd to the output of this symposium between these two dynamic partners! #letstalkaboutnets #netsas

NET Cancer Day @netcancerday

2 years ago

Looking fwd to the output of this symposium between these two dynamic partners! #letstalkaboutnets #netsas

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What do you see? Look closely, look closely what do you see? Blood values and scans? Or do you see ME? I’m more than my cancer, more than my cells There is more to my life than my DOTA scan tells. Help me to live, help me to heal See not only my body… Learn how I feel.#NETSAS

🌍 NETs: No Discrimination, No Exceptions 🌍 Neuroendocrine Tumors (NETs) don't discriminate. They affect men, women, and children alike. Share to spread awareness and break the stigma! 💙 #NETSAwareness #NoDiscrimination #NETSAS #NETS

🌍 NETs: No Discrimination, No Exceptions 🌍 Neuroendocrine Tumors (NETs) don't discriminate. They affect men, women, and children alike. Share to spread awareness and break the stigma! 💙 #NETSAwareness #NoDiscrimination #NETSAS #NETS

⏳Time Matters: The NET Diagnosis Journey ⏳Did you know? A NET diagnosis can often take 5-7 years. For many, the cancer has already spread by the time they are diagnosed. Time is crucial. Share to spread awareness and support early diagnosis! 💙 #NETSAwareness # #NETSAS #NETS

Seeking answers for a Neuroendocrine Tumor (NET) diagnosis can be challenging. On average, it takes 3 specialists for the correct diagnosis. Share to raise awareness! 💙 #NETsAwareness #EarlyDetectionMatters #NETSAS

The #NETs disease #pheo #para is often called "The Great Mimic" because it often gets misdiagnosed as a more common condition. Know the symptoms -- get diagnosed! #NETsAwareness #EarlyDetectionMatters #NETsAS

NETSAS @NETSAS_

2 years ago

The #NETs disease #pheo #para is often called "The Great Mimic" because it often gets misdiagnosed as a more common condition. Know the symptoms -- get diagnosed! #NETsAwareness #EarlyDetectionMatters #NETsAS https://t.co/l2CwC6ljnh

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🎗️ Did you know? Around a third of Neuroendocrine Tumor (NET) patients discover their diagnosis by pure chance while checking for another condition. Early awareness can make a difference. Share to raise awareness! 💙 #NETSAwareness #EarlyDetectionMatters #NETSAS #NETS

🔍 Did you know? Nearly half of Neuroendocrine Tumor (NET) patients face initial misdiagnosis, allowing the tumor to spread. Early awareness is crucial. Share to spread the word! 💙🎗️ #NETSAwareness #EarlyDetectionMatters #NETSAS #NETS

🔍 Neuroendocrine tumors (NETs) are on the rise, more common than brain, ovarian, or cervical cancer. Early symptom awareness is crucial for better outcomes. Help change the statistics – share to spread awareness! 💙 #NETsAwareness #EarlyDetectionMatters #NETSAS

NETs are no longer considered rare but it takes time to change perceptions of lesser known cancers #LetsTalkAboutNets #NETSAS

World Neuroendocrine Cancer Day @World_WNCD

2 years ago

NETs are no longer considered rare but it takes time to change perceptions of lesser known cancers #LetsTalkAboutNets #NETSAS

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