Made WITH Patients @PFMDwithPatient
We partner WITH patients to develop new solutions and co-create methods for them to achieve their health goals. #MadeWithPatients #PatientEngagement patientfocusedmedicine.org Joined October 2015-
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🎉 #PEOF is now #LIVE Exploring Patient-Centric Innovation and the Gravitate-Health project's digital solution for personalized medication management.
Excited to provoke #cocreation at #PEOF in Baveno! I believe in a patient-centered future & look forward to working towards it together with the remarkable #patientengagement community. Curious? Explore the event now bit.ly/3UmUOsn
Excited to provoke #cocreation at #PEOF in Baveno! I believe in a patient-centered future & look forward to working towards it together with the remarkable #patientengagement community. Curious? Explore the event now bit.ly/3UmUOsn
💡Don't miss our #virtual PEOF event on April 25, 2024, at 2:30 PM, where we'll explore the G-lens by IMI Gravitate Health and learn how digital solutions are revolutionizing #medicationmanagement. 🔗 Register now: eu1.hubs.ly/H08x5sp0 #PatientEngagement #DigitalHealth
Unlocking #personalizedhealth solutions demands integrating patient engagement & experience data into HTA processes. Neil Bertelsen delves into value assessment challenges for precision medicine. #PrecisionMedicine #ValueAssessment CC @PFMDwithPatient
💡' Can social media & discussion forums be a source of patient experience data - to complement surveys, interviews, and other sources ⁉️ Respond to the poll & let us know. #sociallistening at #PEOF @eupatientsforum @eupatients @EFPIA @FT3Program #patientengagement #patients…
#PEOF is now #LIVE - Already a full house 🎉 Kickstarted one of the most anticipated #virtual sessions with over 350 registrations. We'll navigate the intricate relationship btw #PatientEngagement, #PrecisionMedicine & Health Technology Assessment. ➡️eu1.hubs.ly/H08jSFF0
🔍 Don't miss our upcoming virtual session on April 4, 2024, where we'll navigate the intricate relationship between Patient Engagement, Precision Medicine, and Health Technology Assessment. Save the date and register now: eu1.hubs.ly/H08jSFF0
🌐 Join us for a thought-provoking virtual session on "Unlocking the Human Element: Integrating Patient Insights & Experiences into Precision Medicine Value Assessment." on April 4, 2024. Register here: eu1.hubs.ly/H08fW430
Excited for PFMD to be attending Patients as Partners! Joining the effort of demonstrating HOW patient Involvement and #patientengagement gets done to better support access, decision-making, and accelerating medicine development. 🔗 eu1.hubs.ly/H08cclm0
🎉 The #virtual PEOF session "Navigating the Future of Healthcare: Ethical, Technological, and Social Dimensions of Patient Matchmaking" is starting in collaboration with @eupatients! ➡️ Join our speakers here: eu1.hubs.ly/H089WkQ0
📢 Exciting Announcement! Now public: "Delivering Digital Health Solutions that Patients Need: A Call to Action." Delve into the critical challenges of integrating #digitalhealth solutions into healthcare systems. 🔗 Read the full publication here eu1.hubs.ly/H087Pwb0
#patientEngagement Country Guidelines for #India are now available 🇮🇳 Discover the Guidelines for country codes of conduct that govern interactions between #Pharmaceuticals & #patient community. Explore now: eu1.hubs.ly/H0865kH0
🎉 The #virtual PEOF session "Lunch & Learn: Rules of Engagement: Navigating Codes of Conduct for Patient Engagement! ➡️ Join our speakers here: eu1.hubs.ly/H07-7P40
Only 10 days left to nominate for the Made with Patients Awards 2024 🎉 ✨ Submit your nominations for champions and initiatives before it is too late! 🔗 eu1.hubs.ly/H07XvgB0
"The inclusion of ethnic minorities, people with disability, and different age ranges is still limited as a short timeline and high volume of trial documentation are combined with the need for an independent form of income in Germany" Peter Davison now #LIVE from today's virtual…
"Creating a training for the layperson that makes sure they understand their role and base knowledge of clinical trials when involved in Ethics committees" ➡️ @jangeissler now #LIVE from today's virtual PEOF session
"When you are a patient you can feel like there are no possibilities. If you wanted to get involved in Ethics you just don't know how: expenses, work, and travel can be a road block" Joan Jordan now #LIVE from today's virtual PEOF session
"The diversity in the patient role in ethics committees in Switzerland brought the need to align and create a framework proposal" David Haerry now #LIVE from today's virtual PEOF session
EUPATI @eupatients
8K Followers 2K Following The European Patients' Academy on Therapeutic Innovation is an independent, non-profit organisation committed to patient engagement through patient education.
Innovative Health Ini.. @IHIEurope
14K Followers 3K Following We're an EU PPP funding health research & innovation under #HorizonEU. We also manage IMI projects. Find us @[email protected]
European Patients' Fo.. @eupatientsforum
14K Followers 1K Following We are the leading voice of patient organisations in Europe. #EuropeForPatients
Jan Geissler @jangeissler
3K Followers 524 Following Patient activist and research patient advocate. Life is precious.
Valentina Strammiello @ValeStrammi
1K Followers 697 Following Programmes Lead + #HTA @eupatientsforum. I post about #health, #patientengagement, #RWE, #EU. Views are my own.
IPPOSI @IPPOSI
4K Followers 1K Following IPPOSI puts patient voices at the centre of healthcare & policy. Irish Platform for Patient Organisations, Science & Industry. Registered Charity: RCN: 20062934
Dr. Dawn Richards, Ph.. @TO_dpr
3K Followers 2K Following Living life with #Arthritis along for the ride. Posting & passionate about #Research, arthritis, #PatientEngagement. Opinions my own.
From Testing to Targe.. @FT3Program
2K Followers 629 Following A global collective program to make targeted medicine an accessible reality in oncology and beyond. #PrecisionMedicine #PersonalizedMedicine
Jonathan Boote 🏳�.. @jonathanboote
13K Followers 13K Following Researcher. Associate member of @ICPHR. Ex #PPI lead of @ARC_EoE & @NIHR_RDSYH #Cat owner #Leukaemia survivor #Cricket lover #Rejoiner #Progressive.
David Gilbert 🇪�.. @DavidGilbert43
8K Followers 5K Following Poetry - Birds and Trees - Football #lufc - Justice - Rebuilding
Begonya Nafría @BegonyaNafria
3K Followers 5K Following @CovidWarriors Patient Engagement in Research Coordinator at @SJDbarcelona_es Coordinator of Share4Rare and KIDS Barcelona. PhD student. All views my own
Zack Pemberton-Whitel.. @ZPWHITELEY
2K Followers 1K Following #PatientEngagement, #PatientAdvocacy, evidence, questions, perspective, gifs, collaboration & @PGtips. Views my own, repost ≠ endorsement
EJP RD - European Joi.. @EJPRareDiseases
4K Followers 2K Following #EJPRD - European Joint Programme on Rare Diseases | RTs shares likes ≠ endorsement
Myeloma Patients Euro.. @MyelomaEurope
2K Followers 984 Following A network of highly efficient, effective and sustainable myeloma and AL amyloidosis patient organisations across Europe
Sally Crowe @sally_crowe
4K Followers 3K Following Retired from public involvement in health and social care research, now 1:1 Public Involvement Coaching and Mentoring.
Lynn Laidlaw (she/her.. @lynn_laidlaw
3K Followers 3K Following Vocal about co production and patient and public involvement in health research. Co Investigator COVID Shielding Voices. Visiting Fellow Uni of Bournemouth
Robert Joyce - A 30 M.. @A30MinuteLife
2K Followers 5K Following Patient Advocate, Patient Representative, #MultipleSclerosis #chronicpain #blogger #researchassistant #MS #a30minutelife #PPI
Stuart G Nicholls (Po.. @StuartGNicholl1
1K Followers 3K Following Pragmatic trials, patient engagement, research ethics. From Leyland (Lancashire) to Ottawa (Ontario) https://t.co/blXTqodVD1…
Rachel Martens ♿️.. @RaeofSunshine79
5K Followers 5K Following Research Knowledge Broker, speaker, knowledge mobilization, cancer, childhood disability, rare disease, spoonie, coffee drinker. Opinions are my own.
Tessa Richards @tessajlrichards
4K Followers 2K Following Associate editor BMJ, advocate for doctor/ patient partnership, living with ACCancer + other LTCs
Natalie Royston @NatalieRSolent
95 Followers 207 Following NHS • Twin Mum • @SolentAcademy •People Participation • 🏳️🌈 • Views 100% my own
Tim Pickles @PicklesTim
1K Followers 2K Following Research Fellow in Statistics @CTRCardiffUni; @researchwales Next Steps Awardee; Rasch measurement theory, psychometrics, PROMs and Rheumatoid Arthritis
Laura Andreoli @lauraandreoli80
3K Followers 1K Following MD, PhD | Professor #Rheumatology @unibs_official | 2018-20 Chair @SIRyoung_IT | Social Media Advisor @ARD_BMJ | Member @APS_ACTION | #genderequity @EULAR_org
Sarah Holmes @CalmHolmes
7K Followers 3K Following MBE. Former nurse, midwife & JP. 30 years overseas with FCDO. Living with secondary breast cancer. Loving life
Lucía Feito Allonca @glucomundo
434 Followers 442 Following Profesional comprometida con los derechos de las personas que viven con #diabetes y otras #ENTs #globalhealth #UHC #digitalhealth #meaningfulengagement
KOL Pulse AI @KolPulseAI
440 Followers 3K Following KOL Pulse AI is a Healthcare Intelligence Application focused on the Social Conversations and Digital Signature of Key Opinion Leaders in Medicine.
Patient Empowerment N.. @power4patients
4K Followers 2K Following Empowers patients & care partners at every step of their cancer journey. Empowered #patientchat host. Get personalized support! Text ‘EMPOWER’ to 833-213- 665
Gigglycare @gigglycare_
7 Followers 66 Following FREE health resource for parents to manage common childhood illnesses in their little ones. Evidence-based information. Created by @MeenuPandey_
Tallaght University H.. @TUH_Tallaght
843 Followers 490 Following Official Tallaght University Hospital (TUH) twitter. Large Dublin teaching hospital with 3500 staff with over 60 nationalities. #TUHteamwork. Not monitored.
LifeSaver @LifeSaver_H2020
196 Followers 532 Following Finding Solutions to Fetal and Maternal Safety. Funded by @EU_H2020. Any related tweets reflect only the views of the project owner.
Prof Jill Carlton @JillCarlton1
427 Followers 389 Following Professor of Health Outcomes Research, SCHARR Outcomes, University of Sheffield; Associate Editor of J PRO
Focus On Sickle Cell .. @UgandaSickle
253 Followers 1K Following FOSCA exists to provide a multi-faceted approach to combating SCD that includes testing, research, raising awareness, and providing psychosocial support.
CACNA1A Foundation @cacna1a
2K Followers 2K Following Nonprofit dedicated to a brighter future for those with CACNA1A variants. On a mission to fund life changing research while supporting families along the way.
Rob Wyer @robwyer
74 Followers 123 Following Rare Disease patient insight & engagement, Founder @SWIICHhealth, Manager #RareDiseaseInsights, #DigitalHealthInnovation LinkedIn group, Mountain Biker
Inês Ribeiro @ines_ribeiro_
2 Followers 309 Following Architecture & Communication Design • If you don't know, research, ask and learn. • If you know, share and teach.
Cambridge Rare Diseas.. @camraredisease
8K Followers 7K Following Improving #RareDisease lives. Creators of #RAREfest, #RAREsummit, Companies Forum & #UniqueFeetCam https://t.co/bWJ8DVF9iw
Thyroid Disease Aware.. @tdakfoundation
180 Followers 127 Following The TDAK Foundation is a registered non-profit organization dedicated to thyroid health. We are a patient advocacy organization dedicated to thyroid health
Hemofilija.lv @Hemofilija_lv
302 Followers 316 Following Par un ap cilvēkiem ar retiem iedzimtiem asins recēšanas traucējumiem Latvijā. Hemofilija, Villebranda slimība, pavisam retie faktoru deficīti.
ѕαℓмαи ѕнα�.. @DrSalmanxhah
1K Followers 2K Following "Only your SMILE can be AGONIST to my SEROTONIN receptors"
Global Conference on .. @gcpcc24
72 Followers 208 Following in collaboration with @VitalisKonf, May 13-16 2024, Gothenburg, Sweden. #GCPCC2024 is hosted by @goteborgsuni, Centre for Person-Centred Care (GPCC)
Finding that elusive .. @RareDiseaseDxRx
2K Followers 4K Following RareMDx contains 6964 signs/symptoms with descriptive characteristics. Physicians' selection of S/S expedites DDx process for 3754 different rare diseases.
ainemlynch1 @ainemlynch11
2K Followers 812 Following Director of Nursing & Integrated Care, Tallaght University Hospital @TUH_Tallaght
Ha Nguyen @HaNguye38321233
1 Followers 10 Following
Ellen Moran @DrMoranLove
1K Followers 5K Following PhD Translational Rheumatology, Experienced Research Manager with interest in Scientific and Medical Comms https://t.co/zZidupKCGE
Deea @DeeaDrea8
3 Followers 8 Following
Natalie McEvoy @Natalie_McEvoy
2K Followers 2K Following PhD//Fulbright Scholar 2023-2024//Lecturer-Royal College of Surgeons in Ireland//Associate Editor- Nursing in Critical Care Journal//Chair-IACCN
Mary Clare O'Hara @maryclareohara
1K Followers 3K Following National @HSEResearch Programme Manager #ResearchGovernance #ResearchEthics #RGMS #Infrastructure #PPI #Impact #Culture Views/ RT my own-Official @HSELive
Nicola Mountford @nmountford
528 Followers 721 Following Interested in markets, states, and institutional logics…oh, and doctoral education. Assoc. Prof/PhD Director,Maynooth University School of Business. Views mine.
Hannah Wilson @HannahJEWilson
252 Followers 429 Following 👩🏻⚕️PhD - StAR Research Lecturer Skin Wounds & Trauma (SWaT) Research Centre📍Royal College of Surgeons in Ireland 🧘🏻♂️ Yogi
Mary Reidy PhD RNID F.. @MaryReidy11
978 Followers 2K Following PhD PGDipEd BSc DipSHWW RNID FFNMRCSI Lecturer, School of Humanities SETU. Proud Waterfordian 'I loves me county boi'. All views my own.💙
Jose G Centeno @centenojg
158 Followers 314 Following Professor, MS SLP Program, Rutgers University Intersectional Biopsychosocial Aphasia Care Aphasia . Bilingualism . Ethnogeriatrics . Equity 🇻🇪🇺🇲🏳️🌈
Seleksus Consulting @seleksus
74 Followers 350 Following Helping biopharmaceutical companies achieve their goals and advancing healthcare is our mission as a Biopharma consulting firm.
Innovation Sprint @innovSprint
359 Followers 429 Following Medtech startup - owner of Healthentia app | Introducing novel clinical pathways ways for lifestyle & health outcomes improvement of chronic disease patients.
Safaa Hussain @nursesafaa
147 Followers 415 Following UOB alumni 👩🏻🎓. NHS - Band 7 Specialist Safeguarding Nurse👩🏻⚕- PCPR Trainer💊- COVID Vaccinator 🫁💉 working for @bhamcommunity. Thoughts are my own.
Tomaso Antonacci @TomasoAntonacci
2K Followers 5K Following Borain, Sarde, Abruzzese, Luxembourgeois d'adoption, footballeux, municipaliste. Fan de G. Brassens, F. De André, A. Franquin, A. Camus, E. Metchnikoff.
Grounded Research @rdashresearch1
956 Followers 457 Following Part of RDaSH NHS FT - research with a focus on patient, public and community engagement. Winner of ‘Research Team of the Year’ 2022 NIHR CRN.
Yvonne Diaz @Yvonne_Diaz_
932 Followers 828 Following Comms professional. Mum to twin sons & a dog. Living w stage 4 ALK+ #lungcancer. Co-founder @OncogeneCancer. Board Member @ALKPositiveInc #ResearchMatters #LCSM
Eda Caglar @edabaykalcaglar
37 Followers 247 Following
champs @kejr35778464
230 Followers 2K Following champs ist eine Aktion um Pädiater auf die seltene Erkrankung "Mukopolysaccharidose" (MPS) aufmerksam zu machen.
Tertea @Tertea312257
97 Followers 1K Following
Mewiknoo @mewiknoo16232
124 Followers 1K Following
Newpromeds @newpromeds
2K Followers 3K Following
Sheauez @Sheauez1933
114 Followers 1K Following
Dr Andrew Woodhead (A.. @WoodheadAndy
2K Followers 5K Following Hate all Prejudice, Kindness is a Must, Campaigner for Dementia, Mental Heath, AHP, Cancer, Palliative Care, CRPS, & Coproduction. All views are my own
Eylem Ocal @eylemnsx
19 Followers 186 Following
Innovative Health Ini.. @IHIEurope
14K Followers 3K Following We're an EU PPP funding health research & innovation under #HorizonEU. We also manage IMI projects. Find us @[email protected]
European Patients' Fo.. @eupatientsforum
14K Followers 1K Following We are the leading voice of patient organisations in Europe. #EuropeForPatients
NIHR Involvement @NIHRinvolvement
19K Followers 659 Following We share learning, events and advice from @NIHRresearch on engaging patients, service users, carers and the public in health and care research
EU One Health @EU_Health
91K Followers 3K Following The official account of @EU_Commission Directorate-General for Health & Food Safety (SANTE): #OneHealth: connecting health of humans, animals & plants 👤🐾🌱
Jan Geissler @jangeissler
3K Followers 524 Following Patient activist and research patient advocate. Life is precious.
EURORDIS-Rare Disease.. @eurordis
32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Helen Bevan @HelenBevan
141K Followers 20K Following Leads/facilitates large-scale change. Professor of Practice in Health & Care Improvement @WarwickBSchool. Advisor @HorizonsNHS. Senior Fellow @TheIHI. Views own
Valentina Strammiello @ValeStrammi
1K Followers 697 Following Programmes Lead + #HTA @eupatientsforum. I post about #health, #patientengagement, #RWE, #EU. Views are my own.
IPPOSI @IPPOSI
4K Followers 1K Following IPPOSI puts patient voices at the centre of healthcare & policy. Irish Platform for Patient Organisations, Science & Industry. Registered Charity: RCN: 20062934
Dr. Dawn Richards, Ph.. @TO_dpr
3K Followers 2K Following Living life with #Arthritis along for the ride. Posting & passionate about #Research, arthritis, #PatientEngagement. Opinions my own.
Jonathan Boote 🏳�.. @jonathanboote
13K Followers 13K Following Researcher. Associate member of @ICPHR. Ex #PPI lead of @ARC_EoE & @NIHR_RDSYH #Cat owner #Leukaemia survivor #Cricket lover #Rejoiner #Progressive.
David Gilbert 🇪�.. @DavidGilbert43
8K Followers 5K Following Poetry - Birds and Trees - Football #lufc - Justice - Rebuilding
Begonya Nafría @BegonyaNafria
3K Followers 5K Following @CovidWarriors Patient Engagement in Research Coordinator at @SJDbarcelona_es Coordinator of Share4Rare and KIDS Barcelona. PhD student. All views my own
Zack Pemberton-Whitel.. @ZPWHITELEY
2K Followers 1K Following #PatientEngagement, #PatientAdvocacy, evidence, questions, perspective, gifs, collaboration & @PGtips. Views my own, repost ≠ endorsement
EJP RD - European Joi.. @EJPRareDiseases
4K Followers 2K Following #EJPRD - European Joint Programme on Rare Diseases | RTs shares likes ≠ endorsement
The BMJ @bmj_latest
505K Followers 7K Following The BMJ is patient centred, evidence based, and independent. Help us improve the health of our world with the best science, journalism, education, and comment
Myeloma Patients Euro.. @MyelomaEurope
2K Followers 984 Following A network of highly efficient, effective and sustainable myeloma and AL amyloidosis patient organisations across Europe
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Sally Crowe @sally_crowe
4K Followers 3K Following Retired from public involvement in health and social care research, now 1:1 Public Involvement Coaching and Mentoring.
Lynn Laidlaw (she/her.. @lynn_laidlaw
3K Followers 3K Following Vocal about co production and patient and public involvement in health research. Co Investigator COVID Shielding Voices. Visiting Fellow Uni of Bournemouth
King's College London @KingsCollegeLon
152K Followers 2K Following News from King's College London | King’s is a multi-faculty research-led institution & one of the top 10 UK universities in the world | Contact: [email protected]
Journal of Comparativ.. @Journal_CER
1K Followers 1K Following The latest CER, RWE & HEOR for patients, researchers, policy makers & all stakeholders | IF: 2.1 | MEDLINE-indexed | from Becaris Publishing
The Evidence Base @TheEviBase
428 Followers 504 Following A free online hub covering the latest news, opinions and insights into real-world data, health economics and outcomes research, and much more.
The Augmented Patholo.. @AugPath
479 Followers 409 Following Research Laboratory for Digital Pathology and Human Factors in AI @ Medical University Graz #digitalpathology #exAI #causability
Steve Gutzler @SteveGutzler
144K Followers 116K Following International Keynote Speaker on Emotional Intelligence for Extraordinary Leadership, Teams, and Sales. #Inspire #Greatness #Author #Golfer
Dr. Omar A. Escontrí.. @DrEscontrias
63 Followers 559 Following Doctor of Public Health | Healthcare | Health Equity | Epidemiologist | Data Driven | Husband, 🐶 Dad, Son, Brother | Opinions expressed are my own.
EB Research Partnersh.. @EBResearch
3K Followers 371 Following EB Research Partnership funds research aimed at treating and curing Epidermolysis Bullosa (EB). 🦋 #HealEB 🔬 Find a cure
Project PINK BLUE @projectpinkblue
5K Followers 1K Following Cancer nonprofit| Awareness & Patient Navigation| Winner,Nelson Mandela-GMI Award| #WorldCancerDay Spirit Award| @uicc SPARC Award. We #ChokeCancer everyday...
Michael Hund @MichaelPHund
1K Followers 1K Following CEO @ebresearch | A futurist in relentless pursuit of the greater good | Father | Philosopher | Founder | @YaleSOM | Kansas Jayhawk
Merck @merckgroup
25K Followers 447 Following A leading science and technology company in life science, healthcare, electronics. Not intended for US&CA visitors. https://t.co/BMQ0MXnhuB…
Nicole Sheahan @NicoleMSheahan
702 Followers 512 Following President, Global Colon Cancer Association
NHS Patient Safety @ptsafetyNHS
28K Followers 1K Following NHS National Patient Safety Team. To report a patient safety incident, please visit https://t.co/F19HtWT8A3
EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
Runcie C.W. Chidebe @runciecwc
7K Followers 3K Following Cancer Control Advocate| Researcher| @commschols Awardee |MSc @MyBCU | ED @projectpinkblue |Alum @StateIVLP | @uicc YL Awardee | Curator #WikiAbuja #ChokeCancer
NewLifeDigitalsCo | D.. @NewLifeDigitals
170 Followers 1K Following New Life Digitals Co, your one-stop shop for digital planners and journals! We are on the journey to being intentional for health and fulfillment. Come with us!
Long-Covid-Patienten .. @pwlcSwitzerland
263 Followers 731 Following Patientenzentrierte Gemeinschaftsplattform für Long-Covid-Patienten in der Schweiz. #longcovid #healthequity #healthjustice #dataprivacy.Teil von @CareConnectlc
RMC Alliance @RmcAlliance
135 Followers 162 Following RMC Alliance is a non-profit bringing together clinicians, researchers, and patient advocates to better understand RMC. Tweets = RMC Alliance Staff
Patient Safety Manage.. @psmn999
2K Followers 981 Following For anyone working in the management of patient safety. A vibrant community that meet every Friday online. Together we can do better things.
Parkinson's Europe �.. @ParkinsonsEU
8K Followers 2K Following 🌷The leading voice for #Parkinson's in Europe since 1992 🌷Supporting the 1.2m Europeans with #Parkinsons and their families 🌷Founder of #WorldParkinsonsDay
Nick Guldemond @nickguldemond
3K Followers 5K Following Prof Integrated Care & Technology CEO & founder Medical Field Lab working on innovation and business development
EHC_Haemophilia @EHC_Haemophilia
3K Followers 406 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
Raquel Peck 🇧🇷 .. @RaqPeck
3K Followers 3K Following Consultant supporting change actors 🌎 | Ex CEO of @Hep_Alliance | Co-Founder @WGHLusofonia | #NOhep pioneer | #patientengagement #policy #rarediseases #health
Dr. Joy Buolamwini @jovialjoy
97K Followers 5K Following Founder Algorithmic Justice League @AJLUnited | https://t.co/j6Wi03gsdu -Bestselling Author of Unmasking AI 📚 Read Here: https://t.co/FX4a9TCFYh
Novavax @Novavax
61K Followers 158 Following Producing next-generation vaccines with global access for more people. See what’s developing at https://t.co/apuZo0qpnM.
Bahija GOUIMI @BahijaGouimi
23 Followers 37 Following
Carole Scrafton @CaroleScrafton
2 Followers 0 Following
Professor Lara Bloom @LaraBloom
8K Followers 1K Following President & CEO @TheEDSociety•Prof of Practice Patient Engagement & Global Collaboration•Rare & Chronic Disease Advocate•🏳️🌈Gay•She/Her• Views my own
Gilead Oncology @GileadOncology
4K Followers 22 Following We’re committed to creating a healthier world by delivering transformational medicines to people living with cancer. Twitter guidelines: https://t.co/m6iqKG69NZ
Gilead Sciences @GileadSciences
74K Followers 205 Following At Gilead, we set – and achieve – bold ambitions to create a healthier world for all people. Read more: https://t.co/TZWHS6jpIM
Jenny Christensson @para_jenny
276 Followers 250 Following Paraequestrian dressage rider, now riding icelandic for fun and excercise. RA since 1994, lead patient 24-7. Every statement here is mine alone!
Occuity @occuity
3K Followers 3K Following Developing #optical #medtech screening & monitoring devices for some of humanity's greatest health challenges - #diabetes #myopia #glaucoma #alzheimers #pm1
Gilde Healthcare @GildeHealthcare
445 Followers 45 Following Gilde Healthcare is a Transatlantic growth capital investor focused on private healthcare companies including therapeutics, medical technologies and services.
TARA Project @TARAeuproject
49 Followers 142 Following Funded by the EU. Views and opinions expressed do not necessarily reflect the EU or HaDEA.
Laura Jacobs @Laura_J321
329 Followers 505 Following Research Involvement Manager at Parkinson's UK. Probably the occasional cat and rugby tweet too.
Pain Alliance Europe @pain_europe
2K Followers 710 Following PAE aims to promote awareness of chronic pain, promote a European policy on chronic pain, and reduce the impact of chronic pain on the European society.
Mental Health Europe @MentalHealthEur
21K Followers 3K Following Largest independent #mentalhealth NGO in Europe 🚀🇪🇺 | We stand up for #humanrights of people with mental ill-health, fight #stigma & advocate for better care
Galapagos @GalapagosGlobal
4K Followers 457 Following 🌐 Global Twitter account | We aim to transform patient outcomes through life-changing science and innovation for more years of life and quality of life
Stefan Gijssels @StefanGijssels
1K Followers 613 Following Chair Patient Expert Center, Co-founder Digestive Cancers EU, Member of Board of Alzheimer Liga Vlaanderen, Brussels roots at least to 1700, #Nerviër #Molenbeek
Robert Joyce - A 30 M.. @A30MinuteLife
2K Followers 5K Following Patient Advocate, Patient Representative, #MultipleSclerosis #chronicpain #blogger #researchassistant #MS #a30minutelife #PPI
Michele Calabrò @micheclb
2K Followers 3K Following Director at @EUREGHA - 🇪🇺 #Regional & local #health authorities | @YoungGasteiners Task Force & @healthparl alumnus | Views are mine
Charlotte Arp Sørens.. @charp_s
15 Followers 56 Following
ISLET @ISLETeu
119 Followers 92 Following A European funded project innovating advanced cell-therapy for Diabetes
Peter McCarthy @PMCC
1K Followers 4K Following Paediatric & AYA Haematologist. PhD Student. Not a hospital in Canada. He/him
Mariangela Pellegrini @MariangelaPell4
266 Followers 394 Following Educational & Patients Program manager for the @ERNEuroBloodNet, the European Reference Network on Rare Hematological Diseases
Centre for Epidemiolo.. @CfE_UoM
1K Followers 1K Following The Centre for Epidemiology Versus Arthritis: improving the lives of people with musculoskeletal diseases through asking patients’ most important questions.
Association_Amal @AssociationAma3
259 Followers 234 Following
Accreditation Council.. @The_ACMA
1K Followers 693 Following The Mission of the ACMA is to establish, certify, and maintain the competencies of qualified medical and scientific professionals who focus on Medical Affairs.
MSD Europe @MSDEurope
2K Followers 470 Following MSD in Europe team. Follow us for news, views and events across the EU as we drive pharmaceutical innovation to improve the lives of patients #InventingForLife
Bryn Robinson, PhD @brynphd
2K Followers 872 Following Mental health and addictions research, evaluation and engagement. Exploring communication in science, art and medicine. @UNB PhD '10. she/her.Excited to provoke #cocreation at #PEOF in Baveno! I believe in a patient-centered future & look forward to working towards it together with the remarkable #patientengagement community. Curious? Explore the event now bit.ly/3UmUOsn
Excited to provoke #cocreation at #PEOF in Baveno! I believe in a patient-centered future & look forward to working towards it together with the remarkable #patientengagement community. Curious? Explore the event now bit.ly/3UmUOsn
Live now!
#PEOF is now #LIVE - Already a full house 🎉 Kickstarted one of the most anticipated #virtual sessions with over 350 registrations. We'll navigate the intricate relationship btw #PatientEngagement, #PrecisionMedicine & Health Technology Assessment. ➡️eu1.hubs.ly/H08jSFF0
Unlocking #personalizedhealth solutions demands integrating patient engagement & experience data into HTA processes. Neil Bertelsen delves into value assessment challenges for precision medicine. #PrecisionMedicine #ValueAssessment CC @PFMDwithPatient
Applications for @fastercures LeadersLink’s new cohort are available now. LeadersLink is designed for promising leaders of patient-driven nonprofit orgs changing biomed R&D. Learn more and apply here by Feb 16, bit.ly/2MUH2u5
Hayley Chapman @PFMDwithPatient discusses the recent publication reviewing the current #PatientEngagement and #PatientExperienceData landscape in #regulatory assessment and #HTA. Read the interview here >>> evidencebaseonline.com/peek-behind-th…… #PatientCentricity #PatientExperience
GlobalSkin is very proud about how many derm patients have been involved in the GRIDD project to date. 5600 and counting! If you are an adult living with a skin condition - take part in our GRIDD Impact Study open until Dec 31. globalskin.org/GRIDDStudy
Allison FitzGerald from @IADPO is 'unpacking' the Global Patient Experience Data Navigator by sharing a practical story about its implementation journey. Explore the tool right now ▶️pemsuite.org/ped-navigator/ #PEOF 2023 last #virtual session
I was a collaborator in this paper, trying to set a strategic neurological research agenda for Europe. @EANeurology @PPI_Ignite_Net @MSIRELAND @themsguide @PPI_Galway @NUIGMedicine @IPPOSI @eupatients @eupatientsforum @PFMDwithPatient onlinelibrary.wiley.com/doi/10.1111/en…
Coming together with @IMIConcePTION with the common goal of a world where all #women have access to quality #maternalcare & emergency care safely Motherhood should not be a fight; we want it to be a safe and healthy experience. youtube.com/watch?v=iJNc5v…
"One of the early engagement workshop findings is how involving community partners as disseminators of information to include pregnant women diminishes the fear of the medical system." Candice King from @GenomicsEngland #LIVE #PEOF
"Poor mental maternal health is derived by multiple external things: poverty, violence, gender discrimination, and multiple more, and a mother’s mental health affects the children since youth and can reflect" says Johanna Schima from @MMM4Mothers
"Doing research for this session I discovered a shocking statistic 70% of labels don’t specify the different effects a medicine has on women & 80% don’t talk about the effects during lactation." highlights Marjolein Willemen from @Novartis
Without only focusing on only the large number of gaps, “talking about these gaps and the opportunities is a great beginning point for change” @PaiRishma
Women are the backbone of the healthcare system from the household, but “women’s health hasn’t been a focus in R&D in years if not ever.” Serving women and their healthcare needs is serving their families and those around them. Says @PaiRishma #live #PEOF
The first vaccine trial for Covid 19 did not include pregnant women, “we shift responsibility to the caretaker and the pregnant patient” says @gulmezoglum
The virtual #PEOF session has started ✨ Join us now for the panel discussion ✅ bit.ly/3G3PNNE
📆 Mark your calendars for an upcoming online session #PEOF tomorrow 🎯 We're delving into the crucial topic of reutilizing #clinicaltrial data with the IMI FACILITATE project 🔎 ✅Register now ▶️ bit.ly/3shGXIB @PFMDwithPatient @Imi_Facilitate
#GravitateHealth is leading the way in the digital revolution of #healthcare & #medication information management:💡 do you want to learn more about our progress? SIGN-UP✍️for our next #GravitateHealth “Under the lens” #newsletter ➡️cutt.ly/KmvmvAJ @UniOslo_MED
📢 Exciting News! 🚀 Our September 2023 "Under The Lens" Newsletter is out! 📰 Get the latest scoop on Gravitate Health's journey, IMI-funded project updates, and exclusive insights. Dive into the world of digital health transformation with us! gravitatehealth.newsletter.innoview.gr/index.php?acti… @IMI_JU
Fantastic inspirational #peof discussions yesterday on #ppie
Join today's #PEOF session "Unlocking Global Patient Engagement Excellence"🏆starting today at 4.30PM, join here bit.ly/3sFMbho
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