Bill Posts @PostsBill
What’s the point of PSP and CBD? Twickers Joined September 2018-
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This is a really important message for people living with PSP and CBD which PSPA will be reinforcing over the coming weeks @PSPAssociation Go get a jab if you are offered one!
This is a really important message for people living with PSP and CBD which PSPA will be reinforcing over the coming weeks @PSPAssociation Go get a jab if you are offered one!
Their collaborative work looking at cascades of causes and consequences with the aim of improving the quality of life for people living with PSP & CBD #psparesearch
‘A 40% drop in the number of synapses (brain message transmitters) for people with PSP&CBD compared to a normal brain’ according to Negin Holland, researcher. That’s devastating, as people living with and affected by PSP&CBD know. #psparesearch
Professor Huw Morris added there are 26 sites running the PROSPECT study across the UK. There is also a big spread of sites involved in drug studies but it does vary from study to study #psparesearch
Fab @PSPAssociation research seminar today. Loving the crash course in genetics! So interesting to see proven genetic links between PSP/CBD & other neurological diseases eg #parkinsons #Alzheimers = increasing interest from drugs companies to develop treatments/cure #psparesearch
PSP & CBD are degenerative neurological conditions. Every case is unique from person to person, however common symptoms include 👇 Find out more: pspassociation.org.uk/information-an… #PSPAware #TuesdayTakeover
#DYK new evidence suggests 50% of people living with PSP & CBD are initially misdiagnosed with other neurodegenerative conditions such as Parkinson's. We must work together to improve diagnosis and access to care: pspassociation.org.uk/information-an… #PSPAware #TuesdayTakeover
Today, PSPA supporter Georgie Irwin, is taking over @RareRevolutionM's social media channels. As well as sharing key PSP & CBD facts, Georgie will also share her own experience of PSP. We will be sharing the content across and hope you will too. #PSPAware #CBDAware
Well done to TEP's Hayley Chriscoli - despite the lockdown she went ahead with her #Charity Head Shave & raised over £1300 for @PSPAssociation. 👏💇♂️ To read her story or donate visit> justgiving.com/fundraising/ha… #donate #fundraising #giveback #help #dogood #family #makeadifference
Do you need a help whilst you self-isolate? We have over 30 volunteers ready to help out by phoning people regularly or picking up prescriptions and shopping for you. If you'd like support, email [email protected] and we can check if a volunteer lives close by
Kenneth Kosik just gave a really interesting presentation at #Tau2020 theorising on how tau enters cells. It demonstrates just how much more research is required to better understand tau and how much harder organisations like @PSPAssociation must work to raise funds for research
Following support from the Scottish Government, we now have a dedicated Country Manager, @Gill_PSPA Here Gill shares her thoughts about the challenges in raising awareness across the wider health and social care professions about how to manage PSP & CBD pspassociation.org.uk/news/how-does-…
Singer Linda Ronstadt shares details of her day to day experience of living with PSP with @medpagetoday
Singer Linda Ronstadt shares details of her day to day experience of living with PSP with @medpagetoday
Fantastic that the PROSPECT study paper in @JAMANeuro has already received 7506 views and 1336 downloads - just four weeks after it was released #PSP #CBD #awarenessraising
Fantastic that the PROSPECT study paper in @JAMANeuro has already received 7506 views and 1336 downloads - just four weeks after it was released #PSP #CBD #awarenessraising
Before we break up for Christmas we want to thank all of our volunteers and supporters your help this year. We’ve got an exciting year ahead of us in 2020 and we hope you’ll join us as we continue the fight against PSP & CBD. In the meantime, thank you again and Merry Christmas.
This month we launched our first study to identify the gaps in research in PSP & CBD to help guide our future research strategy. Help define the research we fund in the future by highlighting what is important to you in our online survey here: surveymonkey.co.uk/r/PSPAResearch…
We're delighted to see the publication of this plan in Scotland. We will be scrutinising the contents in coming days to ensure plans reflect the changing needs of people living with PSP & CBD as well as their carers
Dr Joy Bringer @Joyinsport
473 Followers 739 Following Clinical Psychologist. HCPC Sport Psychologist, 20+ yrs elite sport support. Own views.Trends for United States
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