Joseph P. Roberson Foundation @RobersonJo55085
A 501(c)(3) funding clinical care & clinical research at the @UCDavisHealth @UCD_Neurology #Huntingtonsdisease Movement Disorders Clinic since 1991. #CureHD jprobersonfoundation.org Sacramento, California Joined October 2023-
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Pridopidine shows benefit for patients with early HD not on antidopaminergic therapies Michael Hayden discusses an analysis of PROOF-HD assessing the efficacy & safety of pridopidine in patients w/ early-stage #Huntingtons without ADMs: ow.ly/WPHR50RksxS #AANAM #Neurology
The #PROOFHD Expanded Access Program (PTA-P) is now live and the first patient has successfully enrolled! Once all trial participants who want to move into the PTA-P have been enrolled, expanded access will be open to others living with Huntington’s Disease.
Great news!! The first SCA1 patient has been dosed with VO659 @radboudumc. VO659 is an antisense oligonucleotide (ASO) investigational therapy designed by @VicoThera to target the CAG repeat expansion that causes all known polyglutamine diseases including HD, SCA1 and SCA3!
We sat down to discuss genetic modifiers to learn more about how they could impact the progression of #Huntingtonsdisease. This premieres Wednesday, March 27 and will have subtitles in multiple languages. Mark your calendar! @NayanaLahiri @CNGGcardiff @EHDN_GRANTM @EHDN_News
Final patient completes their last #PROOFHD Open Label Extension study clinical assessment. 367 patients, 87% retention rate & up to 40 months of on-drug data – will provide amazing insights! Thank you to all the patients and team involved in running this #HuntingtonDisease OLE…
Today is #RareDiseaseDay This @TEDx talk from ex War Reporter and advocate for rare disease Charles Sabine is inspiring, hopeful and fascinating at the cutting edge of science youtu.be/RsUfCKfyQYY?si…
#Research update - @PrileniaTx just announced plans to submit a Marketing Authorization App (MAA) for pridopidine the treatment of #huntingtonsdisease to the Euro Med Agency’s Committee for a Medicinal Products for Human Use. Read more at HDYO.ORG.
CONGRATULATIONS @jjwaldoo!! A very well deserved best talk award! What a great way to end the day🧬😁
#Prilenia announces its plan to submit a Marketing Authorisation Application (MAA) to the #EuropeanMedicinesAgency for #pridopidine for the treatment of #HuntingtonDisease (#HD). Read the PR: tinyurl.com/zuxzyk2d
🗣️FRESH OFF THE PRESS🗣️ @jjwaldoo reviews #Epigenetic editing for autosomal dominant #neurological disorders! Congratulations on the publication! @julianhalmai #FinkLab @FrontGenEditing frontiersin.org/articles/10.33…
Congratulations to our faculty members on being named @SactownMagazine Top Doctors 2024! Neurology: Alexandra (Sasha) Duffy, Lin Zhang, Marc Lenaerts Pediatric neurology: Amy Brooks-Kayal, Celia Chang, Trishna Kantamneni, William Benko
On #RareDiseaseDay, our Boston office will be lit in pink, purple, blue and green to represent the 300 million people living with a #RareDisease. Join us in honoring this community and spreading awareness. #ShowYourStripes #ShareYourColours
Join us on #RareDiseaseDay in supporting #Huntingtonsdisease jprobersonfoundation.org
🧬 On #RareDiseaseDay, we're taking further action to improve the lives of people with rare conditions. This includes: 🧬 research to help speed up diagnosis and treatment 🧬 specialist care as close to home as possible Read our action plan: gov.uk/government/pub…
🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours
The #CDHI 19th Annual #HuntingtonDisease Therapeutics Conference started today! The #Prilenia team is proud to share the latest #pridopidine findings from the PROOF-HD study - significant new insights that may impact future clinical practice as we seek to address disease…
#RareDiseaseDay reminds us of the importance of unrelenting research into new therapies for rare diseases, such as #HuntingtonDisease and #ALS, which combined impact approximately half a million families globally. Learn more about rare disease day: youtube.com/watch?v=zEQ828…
Brilliant work from Dr. Cameron Sadegh @csadegh and team. We are so fortunate that Dr. Sadegh has joined us here at @UCDavisHealth and gave an outstanding talk this morning on the intricacies of #choroidplexus.
Brilliant work from Dr. Cameron Sadegh @csadegh and team. We are so fortunate that Dr. Sadegh has joined us here at @UCDavisHealth and gave an outstanding talk this morning on the intricacies of #choroidplexus.
Looking to deliver drugs across the blood-brain-barrier? We developed recombinant HDL to deliver antisense oligonucleotides (ASOs) to the brain intravenously to significantly lower mutant huntingtin (HTT) in Huntington Disease mouse models. sciencedirect.com/science/articl…
Courtney Hill @CourtneyHi27052
0 Followers 361 Following
Theighski @Theighskig2dS3
1 Followers 214 Following
Reslesl @Reslesl140403
0 Followers 120 Following
Fresh @PaulaAndre85869
0 Followers 756 Following
Stem Cell Directory @Stem_Cell_Dir
13K Followers 5K Following Stem Cell Directory is a fully searchable, human-edited directory for the entire Stem Cell industry
Jolene Sommers @SommersJol26321
82 Followers 3K Following
ePower @ePowerIreland
212 Followers 532 Following 5 star Google reviewed. Your EV charging specialists - Home, Business and Public. Nationwide installation, offices in Dublin and Cork
Ryan Van Dyke @VanDyke43099
20 Followers 71 Following
CASK Research UK @CASKResearch
166 Followers 353 Following We are a charitable foundation promoting research into CASK gene mutations and associated neurological conditions in hope of finding therapies and treatments
Cristina Nostro @mcnostro
1K Followers 964 Following Senior Scientist @McEwenInstitute @UHN Associate Professor @physiologyuoft #stemcellbiology #diabetes #regenerativemedicine #womeninSTEM
JJ Waldo @jjwaldoo
273 Followers 364 Following @ucdavisgenetics PhD Candidate in the @FinkLab working on #HD & #CRISPR! @CSUNbio & @sacstate alum. Be part of the solution, not the precipitate. she/her.
Stem Cell Tracker @StemCellTracker
20K Followers 12K Following The #1 resource for up-to-date stem cell research news and analysis for over a decade. RT/Share ≠ Endorsement.
Hao Yin @HaoYin20
9K Followers 10K Following Cardiovascular biologist, Pickering lab, Robarts Research Institute @WesternU; PhD @UCalgary; BSc @PKU1898 Views are my own Just call me Hao :)
Julian Halmai @julianhalmai
286 Followers 219 Following #Postdoc @Finklab @ucdavisstemcell working on epigenetic editing in rare genetic epilepsies | #CDKL5 #MECP2 #Rettsyndrome
José Uribe-Salazar @jmuribescr
359 Followers 585 Following Tico 🇨🇷 | Postdoc at the UC Davis Genome Center | family, human genomics, evolution, zebrafish, IPAs, soccer.
Fink Lab @FinkLab
548 Followers 126 Following Translating artificial transcription factors #CRISPR #TALEs #zincfingers to the 🧠 @ Institute for Regenerative Cures #PrecisionMedicine🧬 Tweets by lab members
Casiana Gonzalez @CasianaGonzalez
353 Followers 343 Following Scientist by day... & night🌞👩🏽🔬🇵🇷🌚 PhD student @MCIPUCD @FinkLab #UCDavis 🧬 She/Her/Hers
UCDavis_Gene_Therapy @UCDavisGT
2K Followers 2K Following Gene Therapy Center at UC Davis Health in Sacramento. We currently have 59 clinical trials of gene and/or cell therapy at UCD & a GMP Facility. Keeping busy! 😊
Dr. Sara Thomasy (she.. @SaraThomasy
2K Followers 3K Following A veterinary ophthalmologist @ucdavis, 👁 scientist, & mom looking to make the 🌎 clearer for people & animals. Co-chair @ggipstudents. Views are my own. 🐴🦜🥰
Megan Dennis @meganydennis
2K Followers 2K Following Assoc Prof @ UCDavis. Interests: family, human neurogenetics, duplicated genes, zebrafish. Tweets my own. #firstgen bluesky: mydennis
UC Davis Neurology @UCD_Neurology
129 Followers 66 Following Nationally ranked team transforming health through excellent patient care, groundbreaking research, innovative education and dynamic community partnerships.
Judy Roberson @jrobsacto
25 Followers 389 Following Huntington's disease volunteer advocate, President Joseph P. Roberson Foundation, Stem Cell Patient Advocate
Lb @lisafml7
44 Followers 1K Following
Dr. Denneal Jamison-M.. @yggdrasil13751
2K Followers 2K Following University educator with a love of molecular biology, genetics and genetic genealogy. Living things (esp. people) are fascinating. Opinions my own.
Everyday is #HDAwaren.. @AwarenessHD
2K Followers 5K Following Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #huntingtonsdisease
Dr. Jan Nolta @jan_nolta
12K Followers 8K Following Director, Univ. California Davis Health Stem Cell Program & Gene Therapy Center. Editor, Stem Cells. #firstgen https://t.co/UYKJpKOqGz
Regenerative Medicine.. @CSRegenMedicine
356 Followers 233 Following The Regenerative Medicine Institute (RMI) at Cedars-Sinai is at the forefront of preventing & treating diseases through cell revitalization & transplantation.
STEM CELLS Journal @StemCellsJournl
8K Followers 4K Following STEM CELLS, a peer reviewed journal published monthly, provides a forum for prompt publication of original investigative papers and concise reviews.
EHDN Collaborations @EHDN_GRANTM
948 Followers 862 Following European Huntington's Disease Network https://t.co/SW4uBnzahl -Grant and collaborations manager. Views expressed are my own. Fionnuala Margreiter
Lauren Holder @laurencurehd
475 Followers 473 Following HD advocate, #rarediseases advocate, Producer of Help4HD Live, caregiver, mom, and much more!
UCSD HDCRC @ucsd_hdcrc
221 Followers 154 Following Mission: to provide quality Huntington's Disease care; to increase awareness of HD; and to conduct research contributing to future treatments or cures.
Ronald Buijsen @BuijsenRonald
608 Followers 809 Following Scientist | RNA therapeutics | neurodegenerative disorders | repeat expansions | iPSC-based disease modeling | #DATS | #CureQ @NeuroD_Lab_LUMC 🇳🇱 | @OTSociety
Paul Generale @PaulGenerale1
10 Followers 13 Following PAUL GENERALE - EXECUTIVE HEALTHCARE ADMINISTRATOR IN DALLAS Paul Generale is the executive vice president of CHRISTUS Health
Cardiff University @cardiffuni
93K Followers 839 Following Wales’s top-ranked University • Research that matters • Russell Group • #WeAreInternational • Set in a thriving capital • Cymraeg: @prifysgolCdydd
PacBio @PacBio
46K Followers 3K Following Our mission is to enable the promise of #genomics to better human health by creating the world’s most advanced #sequencing technologies. #PacBio
Huntington's Disease @HuntingtonsHelp
334 Followers 124 Following Helping to raise money & awareness for this rare disease
Huntington's Disease .. @HDAI_ie
3K Followers 5K Following HDAI RCN 20025656. Sharing news on Huntingtons Disease /connecting to the international HD community. RTs not endorsements. https://t.co/pPoXkLELx2 / https://t.co/z0BAD0VUeS
European Huntington A.. @EuroHuntington
963 Followers 214 Following We represent Huntington's disease families and Organisations throughout Europe. Insta: @Theeurohuntington
Scottish Huntington's.. @ScottishHD
3K Followers 435 Following The only charity in Scotland exclusively dedicated to helping people affected by the complex, hereditary neurological condition - Huntington's disease.
Center for Health + T.. @UofRCHeT
72 Followers 26 Following A University of Rochester research organization that designs and conducts multi-center clinical studies and uses technology to make unprecedented advances.
Clinical Trials @CCCTrials
2K Followers 710 Following CCCT has been established with the purpose of matching patients with existing or upcoming clinical trials most suitable to their condition(s).
Cell Therapy Clinical.. @celltrialsdata
2K Followers 88 Following Weekly News of Cell and Gene Therapy (https://t.co/mFMH1rFvMb) Cell-based Therapy Clinical Trial Databases at (https://t.co/koODizmnHD)
Alliance for Clinical.. @ALLIANCE_org
7K Followers 561 Following Utilizing the best science to develop promising new cancer therapies and prevention strategies for cancer.
ClinicalTrialsData @DataTrials
1K Followers 19 Following Our services helps you or your business to have access to meaningful and structured clinical trials data. #Clinicaltrials #ClinicalStudies #Healthcare #Biotec
Clinical Trials - Inf.. @ClinTrialsIC
8K Followers 7K Following Informa Connect #clinical trials event series & community. Discover the latest on clinical #innovation, #mhealth & partnerships. Join us at CTE in Barcelona.
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
RDLA @RareAdvocates
6K Followers 3K Following A program of the EveryLife Foundation committed to growing the patient advocacy community and working collaboratively, thereby amplifying the patient voice!
Lehtinen Lab @LehtinenLab
2K Followers 178 Following basic & translational research on CSF-based signaling & choroid plexus • find us @HMS_Neuro & @BostonChildrens Pathology Dept • // account run by lab members
HDClarity @HDClarityStudy
629 Followers 96 Following A multi-site cerebrospinal fluid collection to facilitate therapeutic development for Huntington’s disease
Ricardo Mouro Pinto @RMouroPinto
8 Followers 55 Following
Ricardo Mouro Pinto @PintoMouro38626
1 Followers 0 Following
MassGeneral News @MassGeneralNews
61K Followers 4K Following News and information from Massachusetts General Hospital. See our #SM guidelines: https://t.co/Sw9uxFOjfW
The American Brain Co.. @AmericanBrainCo
1K Followers 224 Following Nonprofit organization, seeks to advance the understanding of the functions of the brain, and to reduce the burden of brain disorders through public advocacy.
Marta Biagioli @NeuroEpi_CIBio
415 Followers 342 Following Associate professor @ CIBio - interested in non-coding RNA, Chromatin, Huntington’s Disease, Autism. Twitter for the NeuroEpigenetics Laboratory
DMartin @DrDDOM
2K Followers 2K Following #NewPI Assistant Prof @WaterlooBio. Study #autophagy & #lipidation in #neurodegeneration. Tweets my own. RT≠endorsement. Expect sci, food, & some cdnpoli
ShorterLab @ShorterLab
11K Followers 6K Following Countering deleterious phase transitions in ALS/FTD, PD, AD, and related disorders @Penn @PennMedicine @bb_upenn @BMBGGUPENN @PGGUPenn @PennNGG @CAMBUpenn
Karen Ryan @KarenRyanLab
322 Followers 505 Following Physiologist. Mom of 2 kiddos and 1 fluffy dog. Proud to be a UC Davis Prof, but tweets are my own.
Ryan Cross the Scienc.. @RLCscienceboss
4K Followers 844 Following Senior Science Correspondent for @Endpts covering biotech, drug discovery, gene editing, RNA, and more. Formerly at Boston Globe and C&EN. Threads: ryancross
Cell Press @CellPressNews
152K Followers 1K Following Cell Press partners with scientists across all disciplines to publish and share work that will inspire future directions in research. #ScienceThatInspires
Nature Communications @NatureComms
238K Followers 521 Following Nature Communications is an open access journal publishing high-quality research in all areas of the biological, physical, chemical and Earth sciences.
Nature Medicine @NatureMedicine
336K Followers 245 Following Nature Medicine is a research journal devoted to publishing the latest advances in translational and clinical research for scientists and physicians.
Nature Portfolio @NaturePortfolio
2.2M Followers 2K Following Nature Portfolio’s high-quality products and services across the life, physical, chemical and applied sciences is dedicated to serving the scientific community.
Cell @CellCellPress
246K Followers 633 Following Cell aims to publish the most exciting and provocative research in biology. Posts by Scientific Editors on the Cell Editorial team.
Nature Metabolism @NatMetabolism
65K Followers 217 Following Nature Metabolism publishes studies that advance our understanding of metabolic and homeostatic processes in physiology and disease.
Molecular Cell @MolecularCell
126K Followers 582 Following Molecular Cell is a Cell Press journal that aims to publish the best papers in molecular biology.
Nature Biotechnology @NatureBiotech
302K Followers 2K Following Publishing the very best of biotech science and business. Part of @SpringerNature and @NaturePortfolio. On Facebook (natbiotechnol) & IG (nature.biotechnology)
eLife - the journal @eLife
163K Followers 743 Following The funder-researcher collaboration and open-access journal for research in the life and biomedical sciences | @eLifeCommunity
Cell Reports @CellReports
122K Followers 140 Following Cell Reports is an open-access journal at Cell Press, publishing weekly. Tweets by Cell Reports editors.
nature @Nature
2.6M Followers 4K Following Research, News, and Commentary from Nature, the international journal of science. For daily science news, get Nature Briefing: https://t.co/wGmQlQ8a4D
Stowers Institute @ScienceStowers
5K Followers 1K Following At the Stowers Institute, great minds are at work seeking to understand the function & behavior of living organisms, paving the way for future medical advances.
Liz Parrish MBA @ParrishLiz
8K Followers 178 Following Mother, humanitarian, and entrepreneur. Bringing gene therapy to the masses to treat aging-associated non-communicable diseases (AA-NCDs).
Jessa @akssej
11K Followers 891 Following 23• 🏴• | Community Manager, Content Creator & Designer | @gfuelenergy Ambassador 🥰
Factor-H @FactorH_LatAm
311 Followers 214 Following A humanitarian nonprofit founded to diminish the suffering of families affected by Huntington's disease in Latin America
Dr Lauren Byrne @LaurenByrne7337
1K Followers 434 Following Huntington's disease researcher (@houseofbyrne) and family member. Tweets are my own. Passionate about dogs, wine, cheese and curing HD.
Judy Roberson @jrobsacto
25 Followers 389 Following Huntington's disease volunteer advocate, President Joseph P. Roberson Foundation, Stem Cell Patient Advocate#LetsTalkAboutHD! There is never a time to not talk about #HuntingtonDisease – but this month is #HD Awareness month – get those stories told and let's work towards ways to better understand and manage HD! hdsa.org/this-may-letst…
Earlier this week, Prilenia issued a press release and community letter announcing their intent to submit a Marketing Authorization Application (MAA) in the EU for Pridopidine in HD. Check the details here : buff.ly/4a4k23U
Pridopidine shows benefit for patients with early HD not on antidopaminergic therapies Michael Hayden discusses an analysis of PROOF-HD assessing the efficacy & safety of pridopidine in patients w/ early-stage #Huntingtons without ADMs: ow.ly/WPHR50RksxS #AANAM #Neurology
The ACT for ALS Expanded Access to #pridopidine program has enrolled the first patient! Sponsored by @NIH, and run by @MGHNeurology Sean M. Healey & AMG Center for ALS, in collaboration with Prilenia. The EAP will support pridopidine treatment for up to 200 #ALS individuals for…
The Sean M. Healey & AMG Center for ALS and Prilenia Therapeutics Announce First Participant Enrolled in NIH-Sponsored ACT for ALS Expanded Access Protocol for Pridopidine massgeneral.org/neurology/als/…
Couldn’t be more proud of the newest Assistant Professor @julianhalmai in @UCDavisHealth Neurology and former #FinkLab postdoc!! Lots of very exciting work highlighted in this mornings seminar! #Epigenetics #AAV #XLinked
In our #stemcell and #genetherapy seminar series, we are inspired to hear from our brilliant colleague Dr. Halmai @julianhalmai, discussing his work on gene editing for #cdkl5 and other x-linked disorders. He was just appointed Assistant Professor @ucdavis Dept. Neurology!!
The #PROOFHD Expanded Access Program (PTA-P) is now live and the first patient has successfully enrolled! Once all trial participants who want to move into the PTA-P have been enrolled, expanded access will be open to others living with Huntington’s Disease.
🟢 NEW WEBINAR VIDEO in collaboration with @PrileniaTx Last Monday, we had the opportunity to better understand what #Prilenia's request for the European Medicines Agency approval of #Pridopidine means for the HD community. 👉 youtu.be/VVZlM7A6m4k
If you missed our latest article about #Prilenia's application for market authorization and what it means for the HD community, check out here the most common questions asked during our webinar with @PrileniaTx Full article: bit.ly/EHAPrileniaWeb… 👉 Swipe up to read it!
Read our new article! We've compiled key insights from our recent webinar with #Prilenia on March 18, along with answers to the most frequently asked questions. 👉 Swipe up to read the FAQ and read the complete article here ➡️bit.ly/EHAPrileniaWeb…
Another very interesting ASO advance- excited about @VicoThera and their basket trial that includes HD and two other cag repeat disorders.
Great news!! The first SCA1 patient has been dosed with VO659 @radboudumc. VO659 is an antisense oligonucleotide (ASO) investigational therapy designed by @VicoThera to target the CAG repeat expansion that causes all known polyglutamine diseases including HD, SCA1 and SCA3!
The @hdfcures hosted a recent research update webinar which was really fun - recent updates from our lab's collaboration with @pvaldmanis, @tam_maiuri and @LabScribbles. You can watch here: youtube.com/watch?v=ubnsuB…
@BuijsenRonald @radboudumc @VicoThera Congratulations @VicoThera @BuijsenRonald and @radboudumcP !!! Thank You for your dedication and for not giving up with the all the setbacks we have had in the last few years. You are bringing a lot of hope to so many of us and others who suffer with a rare disease.
Great news!! The first SCA1 patient has been dosed with VO659 @radboudumc. VO659 is an antisense oligonucleotide (ASO) investigational therapy designed by @VicoThera to target the CAG repeat expansion that causes all known polyglutamine diseases including HD, SCA1 and SCA3!
The HDYO family shares its extreme gratitude on this most important of days for the #huntingtonsdisease community. This day marks the anniversary of the finding of the gene that leads to HD. ⬇️⬇️ 💙💜 HDYO #hdgratitudeday
Today is #hdgratitudeday! Why? Because on this day in 1993, the paper first identifying the gene mutation for #HuntingtonsDisease was published in Cell. To mark this landmark, @FactorH_LatAm wants to implement youth education programs in Barranquitas, the Venezuelan town with the…
On #HDGratitudeDay, we join @FactorH_LatAm in showing our appreciation for the #huntingtonsdisease community in South America that made the discovery of the HD gene possible. Without their contribution, the work we do wouldn’t be possible. Learn more here: tinyurl.com/HDGRATDAY
Happy #HDgratitudeday! Today, we honor the families who enabled identification of the HD mutation, as well as @FactorH_LatAm and all our partners across the #Huntingtonsdisease community for their support and collaboration as we advance our clinical research in HD with WVE-003.
We sat down to discuss genetic modifiers to learn more about how they could impact the progression of #Huntingtonsdisease. This premieres Wednesday, March 27 and will have subtitles in multiple languages. Mark your calendar! @NayanaLahiri @CNGGcardiff @EHDN_GRANTM @EHDN_News
Final patient completes their last #PROOFHD Open Label Extension study clinical assessment. 367 patients, 87% retention rate & up to 40 months of on-drug data – will provide amazing insights! Thank you to all the patients and team involved in running this #HuntingtonDisease OLE…
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