. Subhash kumar dhiman @Subhash44690696
🎓 Double Master’s | CU 🎓 AU 🏥 Founder – Him Rare Care Foundation 🧬 Rare Disease Advocate 🌐 Policy | Health | Humanity समाज सेवा | पॉलिसी | हेल्थ एडवोकेसी India Joined December 2020-
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While dese treatments still remain beyond d reach of families, dis crucial step marks d beginning of gr8er affordability. 4 Indian SMA community every reduction counts—crowdfunding targets will now b a little lower n every rupee saved brings hope 2 patients racing against time.
This exemption is the outcome of a long and persistent struggle, one that we have pursued since 2021. We are heartened that our voices have finally been heard and sincerely thank the Government of India and the Ministry of Finance for their consideration and support. 🙏🏻
@curesmaindia expresses its deepest gratitude 2 d Hon’ble PM Shri @narendramodi ji, Hon’ble Finance Minister Smt @nsitharaman ji n d @GST_Council 4 granting GST exemption on life-saving medicines 4 #SpinalMuscularAtrophy (SMA)🙏. @MoHFW_INDIA @NITIAayog @Roche @Novartis
SMArt Warrior Ruvanthika's inspiring speech at SMArt Con 2025 highlights the importance of treatment, therapy & support in managing #SMA. Her positivity & prayer for others' well-being touched everyone's heart 💜✨ #SMAWarrior #SMArtCon2025 #HopeForSMA
✨ Dylan's Story ✨ 9-yr-old Dylan's treatment halted due to funding issues. SMA meds are life-changing but unaffordable. No child should lose strength due to cost. Sustainable access is key! 🌸💜 #CureSMAIndia #SMAAwareness #AccessToMedicines #HopeForSMA
Meet Diya,a 4-yr-old SMA warrior thriving thanks to breakthrough treatments & daily physiotherapy!Physiotherapy builds strength, improves movement & gains independence. Let's celebrate Diya's progress & raise awareness! 🌈💕 #SMAWarrior #PhysiotherapyMatters #CureSMA #SMAwareness
@curesmaindia @MoHFW_INDIA @Swasticharan @NITIAayog स्पाइनल मस्कुलर एट्रॉफी जानलेवा प्रगतिशील बीमारी का भारत में शोध शुरू होगा @PMOIndia @MoHFW_INDIA @ICMRDELHI , @IITKanpur कानपुर की शोध टीम को मेरी तरफ से शुभकामनाएं (आत्मनिर्भर भारत) @curesmaindia समस्त परिवार को शुभकामनाएं 🙏
V’re extremely gr8ful 2 @KolanuSailesh, @vboyanapalli, @VenkyMama, @Nawazuddin_S, @arya_offl, @ShraddhaSrinath 4 highlighting d challenges of #SMA community in d movie #Saindhav 🙏. #SMA is a rare genetic disorder wid v.expensive drugs beyond d reach of any #SMA patient/parents.
Today, we celebrate you—your courage, your spirit, and your unwavering fight. Keep shining, keep hoping, and keep pushing forward. 💙💜 #RareDiseaseDay #SMAStrong #BattleAgainstSMA @MoHFW_INDIA @CDSCO_INDIA_INF @MSJEGOI @Roche @NovartisIndia @biogen @ScholarRock
You are not alone—there is a community standing with you, advocating for better treatments, greater awareness, and a future where SMA no longer limits dreams. Together, we believe in breakthroughs, in support, and in the power of never giving up.
On this Rare Disease Day, we honor the strength, resilience, and courage of all those living with Spinal Muscular Atrophy (SMA). Your journey is one of extraordinary determination, and your perseverance inspires hope and progress in the fight against rare diseases.
This research summit is being organised in collaboration with @NCBS_Bangalore @curesmaindia and @IITKanpur. If you are someone who is working on Rare Diseases in general and #SMA in particular, do consider applying. Watch this space for more details!
Key Highlights: ✅ Engaging discussions on pressing issues, unmet needs, and effective interventions in SMA and neuromuscular diseases research, diagnostics, and therapeutics in India. ✅ Exploring adaptive interventions and emerging technologies for SMA treatment and care.
Join us in shaping the future of SMA research and innovation! 📌 Register now using the link/QR code given on the brochure. We look forward to your participation! SMART Research & Tech Team
🎉 Mark your calendars for March 21, 2025 ! We are thrilled to announce the SMA Research & Technology Summit (SMArT)! 💡 Join experts, patient orgs & researchers for a day of knowledge sharing to advance SMA diagnostics, treatment & care! 🌟 Register now: bit.ly/3EQKYd3
We are honoured to welcome Manasa Varanasi,Femina Miss India 2020,as the Brand Ambassador of #CureSMAIndia! She joins us in raising awareness for #SpinalMuscularAtrophy (SMA) and supporting thousands of families across India in our #BattleAgainstSMA Welcome to the family, Manasa!
Heartfelt thanks to @iprdkerala for pioneering SMA treatment in India! A pre-symptomatic baby received #Risdiplam medicine at just 2 weeks old, marking a historic milestone.Kudos to @KeralaHealth for their unwavering support to patients with SMA! #SMAawareness #KeralaHealthcare
Dr.Radha Rama Devi, Senior Geneticist, Dr.Giriraj Chandak, expert on Rare Diseases, CCMB @chandakgrc & our SMArt Warriors Pratyush n Anushka for joining us in this event. See you on 10 Aug 2025, 6AM in Gachibowli stadium to join the Run!!! #SMAAwareness #RunForCause #RunForSMA
Grateful n honoured 2 have Shri Avinash Mohanty, CP Cyberabad @CPCyberabad unveiling d #RunForSMA poster & T-shirts n supporting #SpinalMuscularAtroph awareness. Many tks 2 Dr.G.Bhupal, Joint CP, Mr. Naved Alam Khan, CEO @SCSC_Cyberabad, Dr. Vipin Das, Co-lead, Health Forum SCSC,
The 3rd #RunForSMA, led by an @IndiaCoastGuard veteran and @curesmaindia, will take place on August 10, 2025, at Gachibowli Stadium, #Hyderabad. Join to raise awareness, support early screening,ifinish.in/running/runfor… Or run virtually: forms.gle/SJYZjHL42myqzC…
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