The Sumaira Foundation @TheSumairaFDN
Raising global awareness of #NMOSD & #MOGAD, building community, supporting research, advocating for rare disease patients/caregivers. sumairafoundation.org Boston, MA Joined November 2014-
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In the OLE of the phase 3 CHAMPION-NMOSD trial, ravulizumab-treated patients showed no relapses over 138.4 (range, 11.0-183.1) weeks. We discussed the significance of the data with @MayoClinicNeuro's Sean Pittock at #AANAM: 📒neurologylive.com/view/ravulizum…
🎥An enlightening discussion between Sumaira & Dr. @EoinFlanagan14 about seronegative #NMOSD This webinar was recorded live from the @mscare 2023 Annual Meeting in Aurora, CO. We're looking forward to attending CMSC again in Nashville this month! youtu.be/pdYMQImBHp0?si…
Happy to share @Lauz_Caccia et al study of #MOGAD lesion changes during attacks: ➡️ 10% of attacks have an initial normal MRI (radiologic lag) ➡️ MRI more dynamic than in #MS or #NMOSD with T2-Lesions often appearing & sometimes resolving within attacks👇neurology.org/doi/10.1212/WN…
🎤 Was honored to be the MC at World #Neuroscience Day in Atlanta 🧠 If you know me, an outfit change was necessary 💅🏾 #dayinthelife #brainhealth #neurotwitter #BTS
Such honor to share with all you!!...UNICORNS project, a collaborative effort..!@TheSumairaFDN...
Such honor to share with all you!!...UNICORNS project, a collaborative effort..!@TheSumairaFDN...
The beauty of "pink" spring ... #flowerphotography #spring #pink @TheSumairaFDN
The beauty of "pink" spring ... #flowerphotography #spring #pink @TheSumairaFDN
Wore my mom’s saree from 20 years ago for my 1st emcee gig at Atlanta Neuroscience Institute’s World Neuroscience Day conference 🧠🥻🌏 I had so much fun! #NeuroTwitter
And last but not least: experience with NMOSD: acquiring data in Latam and diagnostic and treatment challenges. @josefloresunc
TSF is delighted to be part of the Atlanta Neuroscience Institute (ANI)’s 2024 World #Neuroscience Day conference where Sumaira is the emcee for the day. Shout out to @genentech for this giant, interactive and educational brain experience 🧠
Check out this great case by Drs Syc-Mazurek & Zhao-Fleming @mayoneurores reporting #MOGAD with melanoma exacerbated by immune checkpoint inhibition ➡️ IL-6 blockade with tocilizumab worked perfectly for #MOGAD without reducing anti-tumor immune response👇neurology.org/doi/10.1212/NX…
9 years ago today, I was crowned the 1st Miss #Bangladesh USA while getting treated w/ cyclophosphamide & prednisone for #NMOSD. With a swollen face, balding head, vision loss, etc, I felt the opposite of beautiful but this pageant gave me a power/pride I still carry with me 🇧🇩👑
🇬🇷 Η ιστοσελίδα μας είναι πλέον διαθέσιμη στα ελληνικά! Για να μάθετε για το #NMOSD και το #MOGAD στα ελληνικά, επισκεφθείτε τη διεύθυνση sumairafoundation.org
So proud of our research fellow @NanthayaTisa for successfully defending her Master's thesis on MOGAD! She has all the potential in the world and we are ecstatic she will be staying at @MayoClinicNeuro for residency. @EoinFlanagan14 @DrDeenaTaj @MRStarrMD @ANASTASIA_ZEK
🇨🇦 On April 26th, the High Level Bridge in @CityofEdmonton was illuminated pink to commemorate TSF's #MOGAD Awareness Month 2024 🌺🦄🩷 Special thanks to Alanna, TSF Ambassador of Alberta & #AE patient for making this happen! #TSFMOG2024 #10YearsOfTSF
Despite #MOGAD Awareness Month closing, we are still raising awareness! We spoke with @EoinFlanagan14, of @MayoClinic, specifically about spinal fluid testing for MOGAD diagnosis. Learn more in our latest iteration of NeuroVoices! 🗣️🎙️ 🧠 📘 neurologylive.com/view/neurovoic…
#NeuroTwitter: How do you manage MOGAD? Share your voice in this Practice Current survey: bit.ly/3U790oi After completing the survey you'll be redirected to landing page to receive access to a featured collection of Neurology Journals MOGAD articles and content.
"Ravulizumab was associated with a more than 90% reduction in experiencing first relapse relative to satralizumab & inebilizumab. Time to first relapse was comparable between ravulizumab & eculizumab." #NMOSD #ICYMI #AANAM @StaceyLClardy
"Ravulizumab was associated with a more than 90% reduction in experiencing first relapse relative to satralizumab & inebilizumab. Time to first relapse was comparable between ravulizumab & eculizumab." #NMOSD #ICYMI #AANAM @StaceyLClardy
🇫🇷 C'est le dernier jour du mois #MOGAD Découvrez MOGAD et l'importance de la participation des patients aux essais cliniques présenté par le Prof. Romain Marignier (@marignierro) youtu.be/5Z4EiJPKKKo?si…
Neurology Journal @GreenJournal
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1K Followers 250 Following 🌺 Founder of @thesumairafdn 👸🏽 Miss Bangladesh-USA 2015 🇧🇩 views are my own
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Nya @Fumi32056605
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Matiello Research Tea.. @MatielloTeam
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408 Followers 295 Following working mom, neurologist, clinician scientist, MS specialist & Saarländerin
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Ghaida Zaid @ZaidGhaida
229 Followers 338 Following Loull’s Mom 👶🏻, University of Tennessee Knoxville- Neuroimmunologist and Multiple sclerosis specialist
Seraj Makkawi سرا�.. @Dr_Makkawi
2K Followers 292 Following أستاذ مشارك / استشاري البورد الكندي والأمريكي في الأعصاب والزمالة الكندية في التصلب المتعدد وتخطيط المخ والعضلات / ماجستير التعليم الطبي @KSAUHS_JD @NGHAnews
Canadian Rare Disease.. @CanadianRDN
228 Followers 599 Following Pan-Canadian network uniting clinical, scientific and patient experts to improve the health and well-being of individuals affected by rare diseases.
IONESS(イオ) @IONESS1
370 Followers 874 Following MOGAD歴３５年・母8年の闘病後他界・難聴の父78歳・マルチーズの桃太郎10歳🐶(2020年に僧帽弁不全症で🌈)桜9歳🐶・保護猫ちこ5歳🐈・小桜インコ6歳🦜・ちこの両親(さくら猫)ちゃろ今年🌈たび(母猫🐈⬛)めだかなどの大所帯 桜猫の推進協力中 自然動物愛護・病気・この世の事色々呟きます
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218 Followers 463 Following Neurologist, person-centered, avid book reader, women’s rights defender, mother.
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Neurology Journal @GreenJournal
92K Followers 1K Following Neurology is the most widely read and highly cited peer-reviewed neurology journal. It is the medical journal for the American Academy of Neurology.
Sumaira Flower 🍉 @SumairaFlower
1K Followers 250 Following 🌺 Founder of @thesumairafdn 👸🏽 Miss Bangladesh-USA 2015 🇧🇩 views are my own
The MOG Project @TheMOGProject
2K Followers 2K Following We collaborate with national & international Doctors & Researchers around the world to help educate & provide research about #MOGAD. 501(c)3 🌺 #ViewsAreOurOwn
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398 Followers 233 Following
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4K Followers 195 Following We are committed to provide our readers with leading information on all aspects of MS, NMO and related autoimmune diseases of the central nervous system.
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1K Followers 729 Following Assistant Professor of Neurology, University of Udine @uniud. Former Research Fellow @LyonPNS_AE and @Stanford_Neuro. Autoimmune Neurology and Epilepsy.
Xavier Montalban @XMontalban
6K Followers 1K Following Professor of Neurology, Chair Department of Neurology, Campus Hospitalari Vall d'Hebron @vallhebron (Barcelona), Director @Cemcat_em . Opinions are my own
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Stanford Neurology & .. @Stanford_Neuro
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Dr.Fernandezcar @DFernandezcar
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MSキャビン @mscabin
4K Followers 44 Following 多発性硬化症（MS）、視神経脊髄炎（NMOSD）、MOG抗体関連疾患（MOGAD）の方々のためのNPO。業務中に思ったことやみなさんとシェアしたいこと、お知らせなどを、理事長中田が発信しています。 運用方針はこちら（https://t.co/OQhTlURGcX）をご覧ください😀
Spencer Hutto, MD @HuttoSpencer
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University of Utah De.. @UofUNeurology
1K Followers 378 Following The Department of Neurology at the University of Utah is committed to the conquest of neurological disease through patient care, research, and education.
Kerstin Hellwig @KerstinHellwig
408 Followers 295 Following working mom, neurologist, clinician scientist, MS specialist & Saarländerin
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NeuroinmunologiaUC @NeuroinmunUC
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Encephalitis Internat.. @encephalitis
8K Followers 4K Following A global resource for people affected directly or indirectly by encephalitis, an inflammation of the brain. e: [email protected] t: +44(0)1653 692583
Mayo Clinic Neurology.. @mayoneurores
8K Followers 172 Following Official account for the Mayo Clinic Neurology Residency Program in Rochester, MN. Training world-class neurologists since 1919.
Alex Muccilli @AlexMuccilli
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Daniel Ontaneda @DanOntaneda
1K Followers 475 Following
Marina Buciuc @MarinaBuciuc
374 Followers 386 Following Resident Physician @MUSCNeurology | Tweets are my own and do not represent the views of my employer
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2K Followers 711 Following An international collaboration of women physicians and researchers who study multiple sclerosis https://t.co/L0HBvEGOeq
Gabrielle Macaron �.. @GMacaronMD
1K Followers 499 Following Neuroimmunologist @ChumNeuro | Assistant Professor of Neurology @UMontreal | Adjunct staff @hdf_lb @ClevelandClinic | Lebanese | 🇱🇧🇵🇸STOP THE GENOCIDE!
We Are ILL @weareillmatic
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25 Followers 46 Following Immunopathology of multiple sclerosis, Dept Neuroscience, University of Verona, Italy
Kristen Krysko @KristenKryskoMD
519 Followers 555 Following MS/Neuroimmunology Neurologist, Clinician-Investigator @stmikeshospital @UnityHealthTO @SMHNeurology @UofTNeurology | Alumni MS Clinical Research Fellow @UCSF
Ahmed Abbas @MSDocAbbas
136 Followers 250 Following Clinical Neuroimmunologist at @siusom. Former @mssociety Clinical Care Fellow @pittneurology. Loving husband, son, and brother!
Katie Holroyd, MD @holroyd_katie
819 Followers 269 Following #neuroID & #globalhealth fellow @yale/INHCC | former #Neuroimmunology fellow @BWH/MGH and chief resident @harvardneuromds | global neurology | NeuroHIV
Mohamed Hegazy @MHegazyMD
138 Followers 244 Following Professor of Neurology, Cairo University - MSologist - Consultant at Kasr Al Ainy Multiple Sclerosis Unit KAMSU
Eversource Energy @EversourceCorp
10K Followers 210 Following Eversource is New England's largest energy delivery company. For state-specific updates, please follow: @EversourceCT, @EversourceMA, and @EversourceNH.
حمد الدريعي.. @HamadAlDraye
6K Followers 2K Following Not your average Neurology Resident @KFSHRC Proud @AlFaisalUniv Alumnus (وَأَن لَّيْسَ لِلإِنسَانِ إِلاَّ مَا سَعَى)
Dr. Mona Marwan Alkha.. @monamarwan
13K Followers 2K Following Consultant Neuroimmunologist رحم الله أبي الحبيب و أطال الله في عمر أمي الحبيبة.
Amgen 🧪🔬🧬 @Amgen
122K Followers 953 Following Patients. They're why we develop and manufacture innovative human therapeutics to treat serious diseases. Community Guidelines: https://t.co/YlIOJSHFPG
Jaime Imitola MD., FA.. @DrJim4MS
2K Followers 676 Following Chief of MS/Neuroimmunology, Professor, Vice-chair of Research @UConnhealth. https://t.co/ybCzKrWFl5 #stemness #MS #progression #repair #SDOH. fmr @BWHNeurology
Nicte I. Mejia Gonzal.. @DrNicteMejia
3K Followers 5K Following @ObamaFoundation #LeadersUSA embracing the power of collaboration to improve our 🌎. Working for #equity & #justice @massgeneralnews @harvardmed.
Faisal Salem Alqahtan.. @NeuroFaisal
301 Followers 790 Following MBBS | Interested in Vascular Interventional Neurology | College of Medicine | King Saud bin Abdulaziz University | @KSAU_HS @GreenJournal @AANmember @NeurANKI
Jacqueline Shaia, MS @JacquelineShaia
1K Followers 3K Following Anatomist; Clinical & Translational PhD student @ CWRU Passion: IIH & vision research 🧠; blogger (she, her) (opinions are my own) follow IG @ jacquelens_phd
Neda Sattarnezhad @SattarnezhadN
229 Followers 503 Following Neuroimmunologist | T32 Fellow in Immunology and Rheumatology @StanfordRheum
Tracey Milligan, MD, .. @Tracey1milligan
9K Followers 4K Following #neurologist, #epileptologist, #Professor, #Chair @nymedcollege, @neurologynymc, #Director @WestchesterMed, @ELAMprogram graduate #MedEd #Neurology
Yale Neurology @NeurologyYale
4K Followers 439 Following Official Twitter account of @yalemed Dept. of Neurology | Residents: @YaleNeurons
Sarah Crisp @SarahJaneCrisp
335 Followers 542 Following Neurology | neuroscience | autoimmune encephalitis | mum
Eric Topol @EricTopol
695K Followers 590 Following physician-scientist, author, editor. Ground Truths: https://t.co/YhatcBT0hA
Faire la couverture! Notre nouveau manuscript sur la place du RIS dans le spectre des maladies demyelinisantes @CRCSEPNice @UTSWMedCenter @chunice @UR2CA URRIS! Les nouveaux critères internationaux arrivent!
In the OLE of the phase 3 CHAMPION-NMOSD trial, ravulizumab-treated patients showed no relapses over 138.4 (range, 11.0-183.1) weeks. We discussed the significance of the data with @MayoClinicNeuro's Sean Pittock at #AANAM: 📒neurologylive.com/view/ravulizum…
Happy to share @Lauz_Caccia et al study of #MOGAD lesion changes during attacks: ➡️ 10% of attacks have an initial normal MRI (radiologic lag) ➡️ MRI more dynamic than in #MS or #NMOSD with T2-Lesions often appearing & sometimes resolving within attacks👇neurology.org/doi/10.1212/WN…
🎤 Was honored to be the MC at World #Neuroscience Day in Atlanta 🧠 If you know me, an outfit change was necessary 💅🏾 #dayinthelife #brainhealth #neurotwitter #BTS
Such honor to share with all you!!...UNICORNS project, a collaborative effort..!@TheSumairaFDN...
And last but not least: experience with NMOSD: acquiring data in Latam and diagnostic and treatment challenges. @josefloresunc
The beauty of "pink" spring ... #flowerphotography #spring #pink @TheSumairaFDN
Painting the story … #FlowersOfTwitter #SundayFunday @CanonUSA
And last but not least: experience with NMOSD: acquiring data in Latam and diagnostic and treatment challenges. @josefloresunc
Neuro-summit last day: talks about safety monitoring of high efficacy DMTs, similarities and differences among anti-CD20s, and generation of data in Latam using databases and registries. @Enric_Monreal @GeoArrambide @acv_adri @bereniceanabel @josefloresunc @cemcat_em
Wore my mom’s saree from 20 years ago for my 1st emcee gig at Atlanta Neuroscience Institute’s World Neuroscience Day conference 🧠🥻🌏 I had so much fun! #NeuroTwitter
Great to meet you and do the morning session with you at World Neuroscience Day, Coach @MarkRicht 🏈 🧠 Wishing you continued good health, happiness and success ✨
@GreenJournal Podcast this week: Incredibly relevant and practical info on what to ask seizure patients at 1st presentation - for ALL clinicians. An easy listen, and high-yield, too👇🧠🎙️
Neurology Podcast: Drs. Halley Alexander, Jacqueline French & Nora Jandhyala discuss investigating emergency department recognition of motor vs. non-motor seizures. Listen now: bit.ly/3y2Maqi Article: bit.ly/44mUZrb #NeuroTwitter @HBAlexanderMD
Check out this great case by Drs Syc-Mazurek & Zhao-Fleming @mayoneurores reporting #MOGAD with melanoma exacerbated by immune checkpoint inhibition ➡️ IL-6 blockade with tocilizumab worked perfectly for #MOGAD without reducing anti-tumor immune response👇neurology.org/doi/10.1212/NX…
Honored to be a CERND! 🙏 @wearesrna for this designation and we strive to provide the best multi-disciplinary care for children with rare neuroimmune disorders. @PedNroEmoryCHOA @NeurologyATL @EmoryPediatrics @EmoryNeurology @NeuropsychATL
We are proud to share that @EmoryMedicine and @childrensatl are now SRNA Centers of Excellence in Rare Neuroimmune Disorders (CERNDs)! We are excited to include this pediatric-specific center, led by @GraceGombolayMD, in our network of CERNDs. srna.ngo/CERND
And I have the best mentors in the world 🙌🙌😉absolutely enjoyed my time here and very excited to be staying for my next chapter!
So proud of our research fellow @NanthayaTisa for successfully defending her Master's thesis on MOGAD! She has all the potential in the world and we are ecstatic she will be staying at @MayoClinicNeuro for residency. @EoinFlanagan14 @DrDeenaTaj @MRStarrMD @ANASTASIA_ZEK
9 years ago today, I was crowned the 1st Miss #Bangladesh USA while getting treated w/ cyclophosphamide & prednisone for #NMOSD. With a swollen face, balding head, vision loss, etc, I felt the opposite of beautiful but this pageant gave me a power/pride I still carry with me 🇧🇩👑
So proud of our research fellow @NanthayaTisa for successfully defending her Master's thesis on MOGAD! She has all the potential in the world and we are ecstatic she will be staying at @MayoClinicNeuro for residency. @EoinFlanagan14 @DrDeenaTaj @MRStarrMD @ANASTASIA_ZEK
Despite #MOGAD Awareness Month closing, we are still raising awareness! We spoke with @EoinFlanagan14, of @MayoClinic, specifically about spinal fluid testing for MOGAD diagnosis. Learn more in our latest iteration of NeuroVoices! 🗣️🎙️ 🧠 📘 neurologylive.com/view/neurovoic…
#NeuroTwitter: How do you manage MOGAD? Share your voice in this Practice Current survey: bit.ly/3U790oi After completing the survey you'll be redirected to landing page to receive access to a featured collection of Neurology Journals MOGAD articles and content.
Congratulations to all of our poster winners from BWH Neuroscience Day 2024!
"Ravulizumab was associated with a more than 90% reduction in experiencing first relapse relative to satralizumab & inebilizumab. Time to first relapse was comparable between ravulizumab & eculizumab." #NMOSD #ICYMI #AANAM @StaceyLClardy
In a literature review of NMOSD therapies, findings revealed that ravulizumab, the most recently approved medication, was more efficacious at preventing relapse than satralizumab and inebilizumab. Could ravulizumab be the strongest of the bunch? neurologylive.com/view/literatur…
Trends for United States
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