USIDNET @USIDNET

The United States Immunodeficiency Network (USIDNET) is a research consortium established to advance scientific research of primary immunodeficiency diseases. usidnet.org Towson, MD Joined March 2015

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USIDNET @USIDNET

7 years ago

Are you treating patients #livingwithPI? Make sure they are following @IDFCommunity. primaryimmune.org

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USIDNET @USIDNET

7 years ago

Are you considering submitting a query request for our registry data to use in your research? Learn how: usidnet.org/registry-data/…

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USIDNET @USIDNET

7 years ago

Still can’t find what you’re looking for? Check out our Resource Center for additional educational resources and organizations: bit.ly/2pC7UTq.

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USIDNET @USIDNET

7 years ago

We are tracking what happens to infants with low TRECs identified through SCID Newborn Screening. Find out more about the Following Infants with Low Lymphocytes (FILL) Program: usidnet.org/fill

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The Fill (Following Infants with Low Lymphocytes) Program collects information from the medical records of babies with low lymphocytes and stores it in the USIDNET Registry so that it can be used for research in PI. Learn more: bit.ly/2JEGR1e.

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USIDNET @USIDNET

7 years ago

What is PI CONNECT and how does it work with @IDFCommunity’s ePHR and USIDNET? Find out: bit.ly/2uIo1C7.

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USIDNET @USIDNET

7 years ago

There are many ways you can slice and view the data from our registry. Check out our real-time data: usidnet.org/registry-data.

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USIDNET @USIDNET

7 years ago

USIDNET is offering opportunities for research fellows, medical residents and early-career immunologists to get involved in conducting research with registry data. Become a part of a task force: bit.ly/2JFiIYA.

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USIDNET @USIDNET

7 years ago

Want to help contribute to research? Become a USIDNET enrolling site: bit.ly/2L7nofv.

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USIDNET @USIDNET

7 years ago

USIDNET registry data is used in many different publications that greatly benefit researchers, healthcare professionals and patients. Check out the publications written from our registry data: bit.ly/2LyvrxW.

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USIDNET @USIDNET

7 years ago

Are you a medical student, resident or fellow who would like to spend one to two weeks at a medical center with an active research program in PI? Check out the Visiting Immunology Scholars Program (VISP): bit.ly/2uxVW07.

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USIDNET @USIDNET

7 years ago

Want to see a full breakdown of our enrollment? Visit the Registry Data Statistics page: bit.ly/2Lds4k0.

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USIDNET @USIDNET

7 years ago

#USIDNET is NIH-funded research program of @IDFCommunity – established to advance scientific research in #primaryimmunodeficiency. usidnet.org

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USIDNET @USIDNET

7 years ago

By becoming a part of and participating in USIDNET, you help to advance research and improve lives of those #livingwithPI

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USIDNET @USIDNET

7 years ago

Enrolling centers: have you taken the tutorial on the USIDNET Registry software yet? usidnet.org/about-the-regi…

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USIDNET @USIDNET

7 years ago

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USIDNET @USIDNET

7 years ago

USIDNET has several funding and grant opportunities for researchers, publications and travel. Learn more: usidnet.org/grants/.

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USIDNET @USIDNET

7 years ago

Do you want to learn more about #primaryimmunodeficiency disease? Visit primaryimmune.org. @IDFCommunity

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USIDNET @USIDNET

7 years ago

We’re proud of the published works emerging from repository-based research. See a short-list of selected publications co-authored to date: bit.ly/2uzdSri.