We Are Us @WeAreUs_dotnet

I share resources and encourage open dialogue regarding Frontotemporal Degeneration (FTD) and all aspects of this dementia - symptoms, caregiving, grief & more. WeAreUs.net Portland Oregon Joined January 2022

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We Are Us @WeAreUs_dotnet

11 months ago

Day 7 of World FTD Awareness Week: For now, THIS is where FTD leaves us: with loss but also beautiful memories. It does not have to be this way. Please go to theAFTD.org. We are in this together. To quote Maureen just 6 weeks before she passed, “We are us.”

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We Are Us @WeAreUs_dotnet

11 months ago

Day #6 of World FTD Awareness Week: While I miss Maureen deeply, it has also brought me into a community of friends and advocates for a better world. We presented Oregon's proclamation acknowledging World FTD Awareness week. Please go to theaftd.org to learn more.

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We Are Us @WeAreUs_dotnet

12 months ago

So THIS is happening in 2 weeks. I love talking about my wife Maureen. Please register here: alzauthors.com/alzheimers/car…

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We Are Us @WeAreUs_dotnet

a year ago

Flying home - great 2024 AFTD Education Conference. One highlight for me - catching up in person with Rachael and Maria of Remember Me Podcast and their art/writing workshop designed to release creativity AND to share our FTD feelings of both grief and joy in a safe space.

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We Are Us @WeAreUs_dotnet

a year ago

I am thrilled and humbled to be co-facilitating AFTD’s National Men’s Caregiver Support Group every month with this fine gentleman, Jerry Horn. #endFTD

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We Are Us @WeAreUs_dotnet

a year ago

A great morning for the 2024 AFTD Education & Awareness Conference in Houston. I am happy to be here sharing a piece of Maureen’s story. #endftd

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We Are Us @WeAreUs_dotnet

a year ago

AFTD’s 2024 Education and Awareness Conference is just starting. You can still connect virtually. #endftd

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We Are Us @WeAreUs_dotnet

2 years ago

This morning, my interview with Pete Hill was on The 'D' Word (UK Health Radio). I was thrilled to speak about my wife Maureen and our book, We Danced: Our Story of Love and Dementia. The link is here (at the link, tap the headphones above his picture): ukhealthradio.com/.../pete-talks…

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We Are Us @WeAreUs_dotnet

2 years ago

Always honored and humbled when The Association for Frontotemporal Degeneration reaches out to me. They released the article this morning about my writing process and the healing that followed just in time for their With Love Campaign. Here is the link: theaftd.org/posts/help-and…

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We Are Us @WeAreUs_dotnet

2 years ago

Well, I just finished today being recorded for Pete Hill's UK podcast, "The D Word" (D for dementia). He had heard of our book, and wanted to chat some about the book, but mostly about our journey. I was flattered. He said it will broadcast sometime mid-January.

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We Are Us @WeAreUs_dotnet

2 years ago

Flying home today from DC after a great book reading event of We Danced: Our Story of Love and Dementia. Thank you to Insight Memory Care for setting it up, the Kensington for hosting, and AARP for getting the word out and being in attendance.

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We Are Us @WeAreUs_dotnet

2 years ago

Thank you so very much Keri for spreading the word about our book and those of others that have meant so much to you - especially on this FTD Awareness Week.

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We Are Us @WeAreUs_dotnet

2 years ago

“We Danced: Our Story of Love and Dementia” featured as part of recommended summer reading list ahead of my in-person reading the evening of October 12th at Kensington Falls Church, 700 W Broad Street, Falls Church, VA. Check out the link: insightmcc.org/blog/summer-re…

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We Are Us @WeAreUs_dotnet

2 years ago

Happy to volunteer tonight at Coho Theater for encore performance of Bob Powers’ one-man performance, “Chasing Rainbows” - his husband Donald passed away from the same disease as my Maureen. Pre-show tonight with Bob & us 3 volunteers. Proceeds go to TheAFTD.org

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We Are Us @WeAreUs_dotnet

2 years ago

Excited to be a part of another AFTD eduction conference today. This year’s is in St. Louis but you can still join virtually at theAFTD.org

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We Are Us @WeAreUs_dotnet

2 years ago

Please buy yours now: amazon.com/s?k=we+danced+…

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We Are Us @WeAreUs_dotnet

2 years ago

I don’t know if I have ever done one of these PDX carpet photos that so many do, but ok, now I have - complete with my ‘80’s Vans 😂. Headed out to the #AFTD conference in St. Louis to again share our book and speak on our experience. I love you baby.🥰

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The AFTD @AFTDHope

2 years ago

Only 3 days until AFTD’s 2023 Education Conference in St. Louis, MO! Join us in person or online starting May 5 at 10:00 am CT. Visit our sponsors and exhibitors in the Exhibitor Hall for additional resources. @lorenzos_house, @MemoryCare, Remember Me, @WeAreUs_dotnet