World Primary Immunodeficiency Week @WorldPIWeek
For 2025 updates, follow World PI Week 2025 on Instagram and LinkedIn worldpiweek.org Global Joined January 2013-
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We are deeply saddened by the passing of Jose Drabwell, a beloved leader, advocate, and friend to the Primary Immunodeficiency community. We extend our deepest condolences to Jose’s family and friends; her legacy will live on through the lives she changed around the world.
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🌟 Let us know your thoughts on this year’s #WorldPIWeek 2024 campaign by filling out the Feedback Form! Your feedback helps us shape future campaigns and ensure community voices are heard. bit.ly/WPIWFeedbackFo…
🌟 Reminder to fill out the #WorldPIWeek 2024 Feedback Form! Your feedback is crucial in shaping future campaigns and ensuring that the community's voice is heard. We'd love to hear your thoughts on this year's initiatives! bit.ly/WPIWFeedbackFo…
💬We want to hear from you! What topics or issues related to #PrimaryImmunodeficiency do you think should be highlighted in our future campaign? Share your thoughts in comments and via the feedback survey and help us spread awareness! bit.ly/3xDBHBW
💬We want to hear from you! What topics or issues related to #PrimaryImmunodeficiency do you think should be highlighted in our future campaign? Share your thoughts in comments and via the feedback survey and help us spread awareness! bit.ly/3xDBHBW
⭐️Page 34 of the report highlights efforts from Primary Immunodeficiencey Patients Society of Bangladesh (PIDPSB) during #WorldPIWeek 2024! Their campaign included a tour of 52 hospitals, spreading awareness with over 3000 flyers and 1000 posters. 📋 bit.ly/4btM8pk
Jeffrey Modell Founda... @Info4PI
4K Followers 3K Following JMF is a global nonprofit dedicated to #PrimaryImmunodeficiency Advocacy, Research, Education, Newborn Screening & Genetic Sequencing to #CurePI worldwide 🌎
IPOPI @ipopi_info
3K Followers 1K Following IPOPI is the association of Primary Immunodeficiency national patient organisations. Improving awareness, access to early diagnosis and optimal treatments.
Casanova Lab @casanova_lab
10K Followers 503 Following We're a research lab at Rockefeller University (NY) and Necker Hospital (Paris) studying human genetic and immunological determinants of infectious diseases.
Immune Deficiency Fou... @immunedeficienC
26K Followers 1K Following The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency.
ESID @ESIDsociety
3K Followers 418 Following European Society for #Immunodeficiencies | PID | Diagnosis-Treatment-Management | Foster Research-Cooperation-Education | Join us at #interplay2025 Meeting!
Immunodeficiency UK @ImmunoUK
2K Followers 166 Following Helping and giving advice to people living with primary or secondary immunodeficiency. Arming them with the knowledge to manage their condition effectively.
British Society for I... @britsocimm
19K Followers 2K Following British Society for Immunology. Keep up to date with news, views and more in #immunology Email: [email protected]
Petter Brodin @BrodinPetter
13K Followers 8K Following Professor of Pediatric Immunology • Pediatrician • Human Systems Immunology • Experiments • Computation • @MRC_LMS • @imperialcollege • @karolinskainst
Vivien Béziat @BeziatV
808 Followers 462 Following Primary immunodeficiencies, hyper-IgE syndrome, papillomaviruses. Still a NK cell aficionados.
sangeetha_paedsdoc @lostpaedsdoc
974 Followers 670 Following Paediatric Infectious Disease and Immunologist Malaysia 🇲🇾 Mom of 2 |Fitness 🤓 Alumni of Manipal University | RCPCH | PGIMER CHANDIGARH ~ Opinions are own~
BogunovicLab @BogunovicLab
3K Followers 843 Following Studying human immunogenetics to unveil new biological paradigms explaining susceptibility to infection and/or inflammation. #children #immune defects #genetic
Professor Alex Richte... @AlexRichter3
4K Followers 667 Following Director of the Clinical Immunology Service, University of Birmingham. Consultant Clinical Immunologist University Hospitals Birmingham.
Shen-Ying Zhang @ShenYingZhang1
940 Followers 430 Following Physician-scientist @casanova_lab @RockefellerUniv @InstitutImagine. Studying human genetic and immunological determinants of severe viral disease.
kate sullivan @katesullimmuno
1K Followers 625 Following I am an immunology nerd through and through. I sort of have a thing for chromatin too. Proud to be a geek!
Daniel Leung @dan_leung_
287 Followers 502 Following MBBS PhD student interested in how genetic variations affect immunity and immune response to vaccines | @hkumed Paediatrics @hkupaed | Views are my own | He/him
Bustamante Jacinta @BustamanteJaci1
791 Followers 653 Following Physician-Scientist studying inborn errors of immunity underlying severe infectious diseases.
Silvia Sánchez-Ramó... @SilviaSchzRamon
2K Followers 996 Following Clinical immunologist, researcher and associate professor of Immunology at Hospital Clínico San Carlos, Complutense University of Madrid
Johan Prevot @JohanPrevot
682 Followers 220 Following Executive Director @ IPOPI All views strictly personal.
Martine Pergent @martinepergent
1K Followers 3K Following Patient advocate: IPOPI president, IRIS cofounder, ERN-RITA - Consultant: Strategic communication, sprint facilitator Views are mine.
Nizar Mahlaoui M.D., ... @MahlaouiNizar
983 Followers 3K Following #PrimaryImmunoDeficiencies #PID #ePIDemiology @CEREDIH @SCETIDE #NECKER & #Founder #Coordinator @LaSuiteNecker #Transition #AYA #RareDiseases #PrixGalien2019
Makenzie Brown @Makenzie_Journo
45 Followers 308 Following Freelance Journalist | 20 | Written for LSJ News & Grantham Together | Training at Hive FM | Studying BA Journalism @unilincoln | All Views My Own |
Gillette Razors @RazorsGill3118
92 Followers 474 Following VEAH Definition - To see beyond... former Vice President of Strategic Initiatives, Haymarket Public Strategies - Chicago
Kip Osinski @OsinskiKip85205
42 Followers 3K Following
Creciendo con Alergia... @creciendoconale
4K Followers 3K Following FUNDACION CRECIENDO CON ALERGIAS #alergias https://t.co/QunzarCNJa #dermatitisatopica https://t.co/LWqJ3h9YZe #tiendasolidaria https://t.co/Eg1f7DGGLp
Alicia Smith @AliciaS67358
0 Followers 38 Following
Raghdah ♚ ~ @DrRaghdh
135 Followers 1K Following Pediatric Allergist and Immunologist سيبقى عزائي بكِ عُمرًا حتى نلتقي💞
Seytha @SeythaoQf_6Q
80 Followers 1K Following
Gina Maribel Melendez @inmunoglobugina
1 Followers 39 Following
Javiera Durán 🌳 @javidu91
152 Followers 2K Following
Michelle Smith @bagbtch
0 Followers 254 Following Everything changes when you watch the sun rise and sun set.
RAPID Foundation @RAPID_Fndn
6 Followers 24 Following Research Alliance for Primary Immunodeficiency Discoveries (RAPID). Posting the latest research on PID, Gene Therapy, & Mitochondrial Health/Immune Strength.
Ilufemi @Ilufemi3
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RB @RB6950272689607
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ちゃめ @chame1133
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Prof Emma Morris 💙 @ecmorris
2K Followers 698 Following Director, UCL Division of Infection & Immunity; BMT & Immunodeficiency Physician; Professor of Clinical Cell & Gene Therapy. Views my own.
Hulagu 🇪🇸🇲�... @HulaguBioChem
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Mahmoud @BMAEMDPHD24
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Ronald Magdiel Colin'... @RonaldColins1
38 Followers 217 Following Adventista 7D, Padre de Familia, Hn-504, 🩺💊💉🔬🧪🧬🇪🇸 MD#Immunologist. Diagnosis and treatment of inborn errors of immunity
Eliisa Kekäläinen @lettipitko
3K Followers 2K Following MD PhD Adj prof @KekalainenLab @TRIMMprogram, specialist in clin microb & immunol @helsinkiunimed @hus_fi #hsct #thymus #mg #iei #diagnostics personal account
Rosana GL @Rosana13A
558 Followers 702 Following Sueño mucho con @MoviendoArena y en mis ratos libres soy R4 de Inmunología en el Arrixaca.
bilasan @Bilasan2020
9 Followers 2K Following
Paula @paula890590
248 Followers 6K Following I support @encephalitis & @ocdaction. Global #EncephalitisAwareness @cbit & #OCDAwareness & @epilepsyaction volunteer
Flora Tzifi @FTzifi37609
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Laura Cigolot @LCigolot
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Gurpreet @GurpsSoumal
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Horia-Mihail Sandu @HMSandu
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Shamim Reza @ShamimReza29100
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J.Lassin @JLassin1
1 Followers 55 Following
Carolina Salvador MD @CSalvadorMD
30 Followers 81 Following Oncologist. Integrative oncologist. Medical acupuncturist. Arts lover. Reiki Master. Wife and mother. Nature lover. Tweets are my own.
Mrunylina (Tsvetelina... @LinaMladenova
358 Followers 311 Following Velikova MD, Immunologist, Scientist, Blogger, Writer, Editor, Certified reviewer, Assist. Professor, COVID-19 expert, Health policy/ management, Mother of two
BAKWERANE TONNY @BakweraneTonny
172 Followers 351 Following Multi-media Journalist( @babatvug ) God first in everything Photographer Graphics Designer Videographer Content creator proud Parent (Jeremiah 30:17)
Amberleen @amberleen27
0 Followers 24 Following
Caroline Kahn @kahncaroline
29 Followers 465 Following
Mel @Mel603031148828
0 Followers 6 Following
Maha @Drmahaa94
733 Followers 1K Following Pediatric Allergy & Immunology Fellow @KFSHRC @SickKids #UofT 🇸🇦🇨🇦, 👧🏻👦🏻 #طبيبة_أطفال وقُل ربِّ زدني علما ❤️
✨🌷🔮 @theblackmamba83
118 Followers 336 Following
Noodle Stroodle @NoodleMStroodle
14 Followers 280 Following
Alberto Løken Nario @ALokenNario
7 Followers 145 Following Associate (Health and Life Sciences) at DGA Group Brussels
Haapaniemi Lab @HaapaniemiLab
24 Followers 71 Following Our lab works towards better therapies for rare immune diseases
Dave Oury @DO092393
0 Followers 20 Following
Denise T G 13 @bluebloodguru
333 Followers 970 Following Dynamic muse, healer and inspiration for a chosen few. @TheEDSociety certified patient/community advocate.🦓 @Cornell Medicinal Plants Certificate.🌱
Teresa Walker @walker_ter50793
0 Followers 19 Following
Salisu Musa @MusaM72529
7 Followers 218 Following
WandaOscar @6Z42pJPga6Z14
64 Followers 6K Following
Joy Rosario @JoyGRosario
4 Followers 26 Following
Yoni - יוני (and ... @Primary_Immune
46K Followers 25K Following Proud Jew. Proud Israeli. הודו לה' כי טוב כי לעולם חסדו offline every Shabbat
Jeffrey Modell Founda... @Info4PI
4K Followers 3K Following JMF is a global nonprofit dedicated to #PrimaryImmunodeficiency Advocacy, Research, Education, Newborn Screening & Genetic Sequencing to #CurePI worldwide 🌎
IPOPI @ipopi_info
3K Followers 1K Following IPOPI is the association of Primary Immunodeficiency national patient organisations. Improving awareness, access to early diagnosis and optimal treatments.
Casanova Lab @casanova_lab
10K Followers 503 Following We're a research lab at Rockefeller University (NY) and Necker Hospital (Paris) studying human genetic and immunological determinants of infectious diseases.
Stuart Tangye @stutangye
2K Followers 197 Following I work and live in Sydney, trying to unravel the complexities of the immune system. I also quite like going to the beach! Views are definitely my own!
Immune Deficiency Fou... @immunedeficienC
26K Followers 1K Following The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency.
ESID @ESIDsociety
3K Followers 418 Following European Society for #Immunodeficiencies | PID | Diagnosis-Treatment-Management | Foster Research-Cooperation-Education | Join us at #interplay2025 Meeting!
Journal of Experiment... @JExpMed
34K Followers 1K Following The Journal of Experimental Medicine publishes immunology, cancer, stem cells, microbial pathogenesis, vascular biology, neurobiology. Est. 1896 - @RockUPress
Immunodeficiency UK @ImmunoUK
2K Followers 166 Following Helping and giving advice to people living with primary or secondary immunodeficiency. Arming them with the knowledge to manage their condition effectively.
SEInmunología @SEinmunologia
10K Followers 415 Following Cuenta oficial de la Sociedad Española de #Inmunología (SEI). ¡Entérate de todas las noticias inmunológicas🛡!
British Society for I... @britsocimm
19K Followers 2K Following British Society for Immunology. Keep up to date with news, views and more in #immunology Email: [email protected]
Petter Brodin @BrodinPetter
13K Followers 8K Following Professor of Pediatric Immunology • Pediatrician • Human Systems Immunology • Experiments • Computation • @MRC_LMS • @imperialcollege • @karolinskainst
Vivien Béziat @BeziatV
808 Followers 462 Following Primary immunodeficiencies, hyper-IgE syndrome, papillomaviruses. Still a NK cell aficionados.
Nature Rev Immunol @NatRevImmunol
69K Followers 969 Following We publish immunology reviews. Find us here too: https://t.co/IrscA6xKVA
sangeetha_paedsdoc @lostpaedsdoc
974 Followers 670 Following Paediatric Infectious Disease and Immunologist Malaysia 🇲🇾 Mom of 2 |Fitness 🤓 Alumni of Manipal University | RCPCH | PGIMER CHANDIGARH ~ Opinions are own~
BogunovicLab @BogunovicLab
3K Followers 843 Following Studying human immunogenetics to unveil new biological paradigms explaining susceptibility to infection and/or inflammation. #children #immune defects #genetic
Professor Alex Richte... @AlexRichter3
4K Followers 667 Following Director of the Clinical Immunology Service, University of Birmingham. Consultant Clinical Immunologist University Hospitals Birmingham.
Shen-Ying Zhang @ShenYingZhang1
940 Followers 430 Following Physician-scientist @casanova_lab @RockefellerUniv @InstitutImagine. Studying human genetic and immunological determinants of severe viral disease.
Institut Imagine @InstitutImagine
5K Followers 883 Following 1er pôle mondial de recherche, de soins et d'enseignement sur les #maladiesgénétiques. L’Institut Imagine a pour mission de les comprendre et les guérir.
kate sullivan @katesullimmuno
1K Followers 625 Following I am an immunology nerd through and through. I sort of have a thing for chromatin too. Proud to be a geek!
The Parliament Events @parlimagevents
306 Followers 196 Following Events from @parlimag. We bring together MEPs & policymakers from the EU institutions and stakeholders to discuss the issues at the heart of EU politics.
Ursula von der Leyen @vonderleyen
1.6M Followers 266 Following President of the @EU_Commission. Mother of seven. Brussels-born. European by heart. 🇪🇺
infobubbleid @infobubbleid
16 Followers 7 Following Bubble ID is een initiatief van CPIG, het Centrum voor Primaire Immuundeficienties Gent.
WHO at the EU @WHOatEU
14K Followers 3K Following The WHO office at the European Union in Brussels. We are committed to promoting the health of citizens.
NELFT_SPS @nelft_sps
161 Followers 378 Following @NELFT Specialist Psychological Services. Please note we are not an emergency mental health service. Account monitored Mon-Fri, 9am-5pm. Instagram: @nelft_sps
NPO法人PIDつばさ... @PID_Tsubasa
72 Followers 6 Following PIDつばさの会では、病気に対する正しい知識、正しい治療の普及啓蒙を目指して専門医と連携しながら、この難病と向き合う人々の支え合いの輪を広げようと活動しています。 #PID #原発性免疫不全症候群 #PIDつばさの会 #PIDTsubasa_no_Kai #難病
Πυροσβεστι�... @pyrosvestiki
179K Followers 52 Following Αναφορές σε κρίσιμα περιστατικά πυρόσβεσης & διάσωσης ανά την Ελλάδα / Ο λογαριασμός δεν παρακολουθείται 24/7 - Σε έκτακτη ανάγκη καλέστε το 199 / @pyrosvestiki
Sue Saville @SueSaville
634 Followers 391 Following Webinar, Conference and Awards Host; online Media Training; Crisis Comms and Presentation Training; former ITV News Medical Correspondent
otilia stanga @OtiliaStanga
17 Followers 47 Following
BioCryst Pharmaceutic... @BioCrystPharma
2K Followers 51 Following We develop oral small-molecule & protein therapeutics for hereditary angioedema (HAE) & other rare diseases. Community guidelines: https://t.co/HJsf9ax79K.
AbbVie @abbvie
79K Followers 468 Following Official global handle sharing the latest news about our company, science & people. Review our guidelines: https://t.co/AY8CXTtpuM
Astellas Pharma US @AstellasUS
51K Followers 1K Following A pharma company dedicated to changing tomorrow by improving the health of people around the world. Tweets for U.S. audience. Guidelines: https://t.co/AJlgiDgWSG
Astellas Europe @AstellasEurope
2K Followers 382 Following Astellas is a pharma company committed to turning innovative science into value for patients. Code of conduct: https://t.co/a7vDkQLT7j Privacy Policy: https://t.co/L8jgd6W4k2
ViiV Healthcare @ViiVHC
20K Followers 1K Following 100% dedicated to preventing, treating & curing HIV #WeWontStop Follow @ViiVUS for US updates. Social Media Code of Conduct: https://t.co/wr2meAR90D
Johnson & Johnson @JNJNews
245K Followers 948 Following Follow us to see how we're solving the world's toughest health challenges. Community Guidelines: https://t.co/XOPIzkbgzo
AllaboutAPDS @AllaboutAPDS
256 Followers 150 Following Focused on raising awareness of Activated PI3K Delta Syndrome (APDS) – a rare primary immunodeficiency. Brought to you by Pharming Group NV.
Lurie Children's @LurieChildrens
23K Followers 3K Following Ann & Robert H. Lurie Children's Hospital of Chicago is ranked nationally in all 10 pediatric specialities by U.S. News & World Report. We Tweet for the kids.
Give Blood NHS 🩸�... @GiveBloodNHS
87K Followers 11K Following The official account for England's blood service. Monitored 8am-6pm Mon-Fri and 8am-3:30pm Sat-Sun. If your query is urgent, please call 0300 123 23 23.
St James's Hospital @stjamesdublin
14K Followers 5K Following Ireland’s largest acute teaching hospital. Cancer care @CancerInstIRE. Not monitored 24/7 RCN:20017583. https://t.co/Bs2HwrfUln
Dr Gabriela Khoury @GabrielaKhoury
1K Followers 2K Following Antiviral Immunity Theme Leader @BurnetInstitute |Exec CI MRFF PROPHECY| My lab studies- Vaccine & viral immunity in vulnerable groups; Virus impacts on health.
Global Citizen ⭕ @GlblCtzn
563K Followers 2K Following Working to #EndExtremePovertyNOW. Join the Global Citizen community today, and together we can make an impact. ⭕️
joshua milner @joshuamilner2
300 Followers 22 Following Pediatric Immunologist/Allergist physician-scientist Dad
KU Leuven @KU_Leuven
56K Followers 7K Following Nieuws van Europa's meest innovatieve universiteit | News from Europe's most innovative university | Updated by the Press Office | #kuleuven
Sheffield Children's @SheffChildrens
19K Followers 2K Following Official Twitter account of Sheffield Children’s NHS Foundation Trust and the charity that supports it, The Children’s Hospital Charity https://t.co/DEMSllNN2V.
Don Vinh @DonaldVinh
7K Followers 519 Following Infectious disease MD. Medical Microbiologist. Clinician-Scientist (Inborn Errors of Immunity). Clinical section head (ID-Heme/Onc/Transplant). FellowCIS. FIDSA
Zachary Rubin, MD @rubin_allergy
15K Followers 2K Following Pediatric Allergist/Clinical Immunologist @IMPACT4HC #BowTieFriday https://t.co/jBQFffw2yq
Patel Lab Oxford @LabPatel
175 Followers 217 Following Dr Smita Patel's Primary Immune Deficiency Lab at @UniofOxford
Allergy & Immunology ... @AIMedEdJC
1K Followers 163 Following Journal club for the allergy & immunology community || #AIMedEdJC || All are welcome || Next session TBD
💮Nicole La Gruta @NicoleLaGruta1
1K Followers 1K Following Immunologist and Professor @MonashBDI and @MonashBiochem. #Tcells. More funding for research would be nice. Interested citizen. Views my own.
ACADIP @ACADIP
1K Followers 468 Following ACADIP is a global nonprofit organization dedicated to improving the diagnosis, treatment and quality of life of persons with PI disease.
Dr Jess Borger @jessborger
2K Followers 2K Following Scientific Education Program Leader @WEHI_research | Immunology Futures Editor @ImmunolCellBiol | Advocate for Women in STEM
🐯Tiger CVID Hero�... @HeroCvid
15 Followers 19 Following Rare disease warrior. CVID will not beat me. Got a question? Ask, don’t assume. Loves: Family, sports, music, movies, poetry & writing. Forgiveness is earned.
PID Research Lab Ghen... @PidLabGhent
28 Followers 30 Following Our laboratory aims to unravel the immunological and genetic underpinnings of rare inborn errors of immunity
SOPPI @SOPPI95893248
17 Followers 9 Following
Jeremie Rosain @JRosain
348 Followers 304 Following Immunologist @casanova_lab. Interest for rare genetic disorders affecting immunity. Located in @InstitutImagine @univ_paris_cite @hopital_necker
Janet Markle @JanetMarkle
445 Followers 240 Following Scientist interested in genetic determinants of immunity, primary immune deficiencies, gene/environment interactions. Views are my own.
Stella Kyriakides @SKyriakidesEU
58K Followers 3K Following Former European Commissioner for Health and Food Safety 2019-2024. Human rights advocate. Focus on the positive.
TRANSFORM @TRANSFORM_CGT
255 Followers 541 Following 🧬 TRANSFORM is a multi-stakeholder European Alliance raising awareness on cell and gene therapies 🗣 TRANSFORM MEP Interest Group
Jennifer Leiding @JenLeidingMD
187 Followers 71 Following Pediatric Immunologist. Clinician-Scientist. Mom of 2 crazy kids.
AstraZeneca @AstraZeneca
295K Followers 2K Following We're transforming the future of healthcare by unlocking the power of what science can do. Community Guidelines: https://t.co/Kh08zUdFpT
Monash STM - Communit... @stm_cares
252 Followers 177 Following Connecting researchers from Monash University School of Translational Medicine (STM) with community members impacted by the diseases we study.
Screen4Rare @Screen4Rare
234 Followers 118 Following A multi-stakeholder platform launched by IPOPI, ISNS and ESID aiming to exchange knowledge and best practices on newborn screening for rare diseases.
Chiesi Group @ChiesiGroup
2K Followers 263 Following International pharmaceutical Group certified B Corp.
Ruben Martinez Barric... @RMBarricarte
481 Followers 643 Following Human geneticist, immunologist and molecular biologist. Assistant Professor at Vanderbilt University Medical Center. Views are my own.
Mustang Bio @Mustang_Bio
2K Followers 179 Following Mustang Bio, a Fortress Biotech company, is focused on the development of novel immunotherapies and gene therapies in areas of unmet need.
Rocket Pharmaceutical... @RocketPharma
1K Followers 207 Following Seeking #GeneTherapy cures for patients with rare and devastating diseases.Trends for United States
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