Join Dementia Research @beatdementia
Register your interest in taking part in vital research today. Anyone 18 or over in the UK can sign up and make a difference, whether you have dementia or not. joindementiaresearch.nihr.ac.uk UK Joined February 2014-
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Meet John, who was diagnosed with #FrontotemporalDementia aged just 59. After signing up to Join Dementia Research, he took part in online studies, such as a survey on how best to speak to people with #dementia about medications. Read his story at: news.joindementiaresearch.nihr.ac.uk/taking-part-de…
Childhood #dementia can be caused by rare genetic disorders. Not much is known about it or how to treat it. Here's an interesting article in @ConversationUK about #research into this under-represented aspect of dementia theconversation.com/what-is-childh…
April is #StressAwarenessMonth. We are supporting #research into this topic, including a @LivUni led study into developing a questionnaire to measure how carers manage their stress. Read more: news.joindementiaresearch.nihr.ac.uk/new-studies-re…
Great opportunities for #LewyBodyDementia #researchers, but you need to be quick!
Great opportunities for #LewyBodyDementia #researchers, but you need to be quick!
Thanks to @AlzResearchUK for raising awareness of #LewyBodyDementia and thank you Des and Valli for sharing your experience
Thanks to @AlzResearchUK for raising awareness of #LewyBodyDementia and thank you Des and Valli for sharing your experience
We are looking forward to seeing this!
It's a worrying fact that 40,000 people with #dementia go missing in the UK each year. Important new #research is assessing views on using face-matching technology and an online form to find them faster. The study is being led by @VasilikiOrgeta of @ucl news.joindementiaresearch.nihr.ac.uk/study-explores…
A new study is using a virtual reality game to assess how well people navigate their surroundings. The study, led by @NeilBurgess10 and @AndrCastegnaro of @ucl, aims to help spot early signs of #Alzheimers disease. news.joindementiaresearch.nihr.ac.uk/virtual-realit…
We have produced a new Easy Read leaflet so we can help more people understand how to take part in #dementia #research. You can download it, together with our other resources here: news.joindementiaresearch.nihr.ac.uk/join-dementia-…
Do you know an early career researcher who is making an outstanding impact in the #dementia #research field? These awards are open to ALL and you have until 20 May to get your nominations in!
A good reminder here on the connection between #lewybodydementia and #parkinsonsdisease. We often help recruit participants to studies into both conditions. Here are a couple which are currently open: news.joindementiaresearch.nihr.ac.uk/research-under… #ParkinsonsAwarenessWeek
A good reminder here on the connection between #lewybodydementia and #parkinsonsdisease. We often help recruit participants to studies into both conditions. Here are a couple which are currently open: news.joindementiaresearch.nihr.ac.uk/research-under… #ParkinsonsAwarenessWeek
I am so super excited about this study (which was one of those "dream" studies that we all have logged away!), and I'm so grateful for @beatdementia for providing such a useful resource of linking scientists and participants who so generously contribute their time to research!
I am so super excited about this study (which was one of those "dream" studies that we all have logged away!), and I'm so grateful for @beatdementia for providing such a useful resource of linking scientists and participants who so generously contribute their time to research!
An interesting new #research study is using images of birds to test how we build associations and knowledge in memory. The Bird Memory Study is recruiting participants through Join Dementia Research and led by @vmloaiza1 of @sheffielduni. news.joindementiaresearch.nihr.ac.uk/new-study-uses…
Have you seen this insightful article in @ConversationUK about how identifying vision problems can predict #dementia 12 years before diagnosis? This #research involved more than 8,000 healthy participants in Norfolk. Read more: theconversation.com/how-your-visio…
Today is #WorldParkinsonsDay2024 We are pleased to be supporting #research into the condition, including this important drug trial for people with #parkinsonsdisease and #lewybodydementia Read more: news.joindementiaresearch.nihr.ac.uk/drug-trial-see…
Thank you Tony for sharing your experience of #Parkinsonsdisease on #WorldParkinsonsDay2024.
Thank you Tony for sharing your experience of #Parkinsonsdisease on #WorldParkinsonsDay2024.
Calling all researchers: are you struggling to recruit to your #dementia study? Jessica Baggaley of @UniOfHull used Join Dementia Research to recruit more than 50% of her participants to her study into self-compassion in people with dementia. news.joindementiaresearch.nihr.ac.uk/jessica-baggal…
Want to receive the latest news about studies on Join Dementia Research and hear about some of the people involved in our service? Sign up to our quarterly newsletter! nihr.us9.list-manage.com/subscribe?u=a9…
Great to hear that thousands of UK people are being offered the chance to take part in this important trial of a blood test for #dementia. The Blood Biomarker Challenge is being funded by @alzheimerssoc, @AlzResearchUK and @NIHRresearch bbc.co.uk/news/health-68…
Alzheimer's Society @alzheimerssoc
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55 Followers 205 Following Senior Researcher in Cornwall. MPsych Grad, Lover of labs and all things dogs 🦮As #dementia progresses, many people will stop recognising those around them, even close family and friends. 🧠 Here are some of the reasons why this might happen. Have you experienced this? Share your thoughts and experiences in the comments. 👇
If you're interested in #dementia and children / young people, @DiverseAlz will be leading a chat on the subject today (2nd May) at 8pm. Check out @DementiaUK's excellent leaflet: Supporting children and adolescents when a parent has young onset dementia - dementiauk.org/information-an…
@janis_cottee @helenfindlay @Justacarehomeg1 @N_Wilson94 @mason4233 @Hannahdementia @TommyTommytee18 @YoungDemNetwork @#Diversealz on Thursday: Dementia and children and young people: learning, caring, interacting. 8.00pmGMT/3pmET
15 doctoral #studentships available focusing on #dementia related research in collaboration from @NIHRSPCR, @NIHRSSCR and @NIHRSPHR (“three Schools”) and @NIHRresearch Application deadline dates for each opportunity differs. More info here⬇️ sscr.nihr.ac.uk/15-doctoral-st…
Last chance to secure your spot for the Alzheimer's Society Annual Conference, sponsored by Rothesay! Join us in London or online on Tue 14 May for a packed agenda of session and speakers. Registration closes Friday 3 May - don't miss out! #ASAC24 alzheimers.org.uk/dementia-profe…
Are GPs missing an opportunity to talk about brain health? "The public needs to understand that our brains are organs that we can help protect in the same way as our hearts" says our supporter, David. Read more @bmj_latest👇 tinyurl.com/e7fppv8y 🧠🩺
"When I’ve spoken to people affected by dementia, the word 'inevitable' often crops up. Yet to describe dementia as an inevitable part of ageing would be inaccurate." Why conversations about risk and prevention are important with dementia bmj.com/content/385/bm… @AlzResearchUK
@beatdementia has added to its library of resources by publishing an easy read version of their information on taking part in dementia research. Read more here: journalofdementiacare.co.uk/new-easy-read-…
John Hyde's story #YoungOnsetDementia i.e. diagnosed before age 65 @beatdementia #Dementia #Research #LivingWithDementia #LivedExperience #FTD #FrontotemporalDementia #JDR #JoinDementiaResearch #Volunteering #TakingPart
Meet John, who was diagnosed with #FrontotemporalDementia aged just 59. After signing up to Join Dementia Research, he took part in online studies, such as a survey on how best to speak to people with #dementia about medications. Read his story at: news.joindementiaresearch.nihr.ac.uk/taking-part-de…
Fascinating stuff at #ADI2024 from Dr Megan Rose Readman from @LivUni on the experience of hearing loss in people living with Lewy body dementia. @ReadmanRose @AlzDisInt #Lewybodydementia #Dementia #ShiningALightOnLewyBodyDementiaSince2006
Feeling guilty? You're not alone. 💙 Caring for someone with #dementia can be extremely hard. You may feel guilty, even if you're trying your best. Have you experienced feelings of guilt as a carer for someone with dementia? Share your experiences in the comments. 👇
David Stow’s wife of 55 years, Marion, was diagnosed with Alzheimer’s disease in June 2023. After a ‘torrid time’ he cares for her at home, with the support of carers. We want to say thank you to David for sharing his poem. (Full poem in Alt Text)
‘People are often surprised when they find out I’m a dementia carer, especially given my glitzy day job.’ Pick up this month’s @GHmagazine where media personality @amyelizabethtv talks movingly about caring for her nan Helen. Photo: Liz McCaulay
‘When I retired and was able to spend more time with him, I noticed that he just didn’t seem to be himself.’ Liz is wearing her Forget me not badge in May for her husband Eric, who was diagnosed with mixed dementia in 2016. Read their story at: spkl.io/60104F4D4.
There are many kinds of dementia but the most common is Alzheimer’s disease. Every person with dementia is different. How their illness affects them depends on which areas of their brain are most damaged. You can call our 24 hour Dementia Helpline on 0808 808 3000 at any time.☎️
Read the latest Join Dementia Research @beatdementia article on our UCL Stay Safe study led by Associate Prof @VasilikiOrgeta and how they are exploring views on new technology to locate missing people with dementia #dementia #research
It's a worrying fact that 40,000 people with #dementia go missing in the UK each year. Important new #research is assessing views on using face-matching technology and an online form to find them faster. The study is being led by @VasilikiOrgeta of @ucl news.joindementiaresearch.nihr.ac.uk/study-explores…
Would you be able to spot the signs of Alzheimer's disease? If you’ve noticed any of these in yourself or your loved one, your GP can help to find out what’s causing them. Find out more 👇 alzheimersresearchuk.org/dementia-infor…
‘His dogs were his soul mates. They didn't judge his odd behaviour they just looked after him how they knew best, with cuddles and kisses’. 💙🥹 Chloe shares the story of her dad Keith's dementia journey and his truly special relationship with his dogs.💙
Our 2024 grant round closes to applications tomorrow, 12pm lewybody.org/research/apply… #DementiaResearch #Dementia #LewyBodyDementia #ResearchGrant #ShiningALightOnLewyBodyDementiaSince2006
Congratulations to @AlzResearchUK and @HilaryAlzUK for this realistic insight into dementia with Lewy bodies - but most of all thanks to Des and Valli for sharing their very moving story with us. Des puts it superbly "DLB won't cure itself". Please support research now.
Dementia with Lewy bodies is the third most common form of dementia, affecting around 100,000 people in the UK. I’m proud to share this new film from @AlzResearchUK featuring Des, who is living with the condition 🧡 youtu.be/GDvn2qVtMcM
Thank you so much to Jo Coleridge for sharing her beautiful #poem, written for her dad who has #AlzheimersDisease. 💙 Jo was inspired by the poem titled ‘Crabbit Old Woman’. Does Jo's poem resonate with you? Share your thoughts and experiences in the comments. 👇