Young Dementia Network @YoungDemNetwork
The Network is a community of people affected by young onset #dementia and professionals collaborating to improve support. youngdementianetwork.org Joined December 2010-
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Tony Hall cared for his wife Barbara for over twenty years following her young onset #dementia diagnosis. His book, titled 'A Bucketful of Patience' is about their experiences of living with dementia. 📖 Learn more here: bristolbooks.org/shop/abucketfu…
If you're interested in #dementia and children / young people, @DiverseAlz will be leading a chat on the subject today (2nd May) at 8pm. Check out @DementiaUK's excellent leaflet: Supporting children and adolescents when a parent has young onset dementia - dementiauk.org/information-an…
If you're interested in #dementia and children / young people, @DiverseAlz will be leading a chat on the subject today (2nd May) at 8pm. Check out @DementiaUK's excellent leaflet: Supporting children and adolescents when a parent has young onset dementia - dementiauk.org/information-an…
Megs podcasts are helping raise awareness and helping other young people feel less alone and isolated. Podcasts have a real authentic touch and a great listen #youngdementiacarer
Megs podcasts are helping raise awareness and helping other young people feel less alone and isolated. Podcasts have a real authentic touch and a great listen #youngdementiacarer
The topic of working whilst living with #dementia is especially relevant for people diagnosed with young onset #dementia, as well as their partners and family members who may be juggling a job and caring responsibilities. This excellent X Space from @DementiaUK shares the…
The topic of working whilst living with #dementia is especially relevant for people diagnosed with young onset #dementia, as well as their partners and family members who may be juggling a job and caring responsibilities. This excellent X Space from @DementiaUK shares the…
'What do young dementia carers need?' is a new #animation. 📽️ It shares the findings of a research study into the visibility and needs of the children of people living with young onset #dementia. Watch the animation here: youtube.com/watch?v=ielR5Y…
When compared to older people, younger people affected by #dementia are more likely to be working, have significant financial commitments, or have younger children. Join the Network and help us create change for people affected by young onset dementia: youngdementianetwork.org/join-the-young…
Megs was 14 years old when her dad was diagnosed with young onset Alzheimer's disease at the age of 55. She has created a #podcast to break down stereotypes and raise awareness of young onset #dementia. 🎙️ Listen to Paddy's Memories Podcast here: podcasters.spotify.com/pod/show/paddy…
This @tide_carers group provides a fantastic opportunity for the family members of people living with young onset #dementia to meet on a monthly basis online and share experiences 👇
This @tide_carers group provides a fantastic opportunity for the family members of people living with young onset #dementia to meet on a monthly basis online and share experiences 👇
Around 10% of young people with dementia have Lewy body dementia. #Lewybodydementia #Youngonsetdementia #dementia
Around 10% of young people with dementia have Lewy body dementia. #Lewybodydementia #Youngonsetdementia #dementia
There are differences in the types of #dementia commonly diagnosed in younger people, compared to those of an older age. 🧠 Join the Network to help us raise awareness of young onset dementia: youngdementianetwork.org/join-the-young…
Do you want to know how to meaningfully engage people with lived experience of #dementia in #training, #education and #research? We can help! Join our Experts by Experience Lead, Clare Mason, on our short course next month. Email: [email protected]
There are many people living with young onset #dementia who are active users of social media. This talk on Wednesday 1st May 2024 by Dr Catherine Talbot about her research on the subject is sure to be very interesting 👇 @CatherineTalb
There are many people living with young onset #dementia who are active users of social media. This talk on Wednesday 1st May 2024 by Dr Catherine Talbot about her research on the subject is sure to be very interesting 👇 @CatherineTalb
This new @DementiaUK leaflet also includes a section on living alone when a person has young onset #dementia. Find out more 👇
This new @DementiaUK leaflet also includes a section on living alone when a person has young onset #dementia. Find out more 👇
The @lorenzos_house Youth Summit will provide a rare opportunity for the children of people living with young onset #dementia to connect with others and share experiences. Young people from the UK are welcome to join. Find out more 👇
The @lorenzos_house Youth Summit will provide a rare opportunity for the children of people living with young onset #dementia to connect with others and share experiences. Young people from the UK are welcome to join. Find out more 👇
@lorenzos_house Youth Summit for children 4 years upwards - parent with young onset dementia. Opportunity for children to feel less isolated and alone. We look forward to sharing experiences and knowledge to ensure more children access support @DementiaUK @YoungDemNetwork
@lorenzos_house Youth Summit for children 4 years upwards - parent with young onset dementia. Opportunity for children to feel less isolated and alone. We look forward to sharing experiences and knowledge to ensure more children access support @DementiaUK @YoungDemNetwork
Rachel Allen, a PhD student at the @UniWestScotland, is conducting a research study about young onset #dementia and career development, focusing on women's experiences. She is seeking to interview women diagnosed with dementia. For more information, email [email protected].
Do you work in a #dementia support role? The Young Dementia Network has created a range of resources for professionals who support people and family members affected by young onset dementia. Check out these and other resources on our website: youngdementianetwork.org/resources/reso…
Our Decision-making guide for GPs is intended to aid the recognition of the symptoms of #dementia in younger people. 🧠 It aims to help GPs identify 'red flags' which suggest referral to specialist diagnostic services may be required. Find out more here: youngdementianetwork.org/resources/guid…
How many people have young onset #dementia in the UK? 🤔 An estimated 70,800 of the estimated 944,000 people living with dementia in the UK have young onset dementia. Join the Young Dementia Network to connect with others affected by dementia: youngdementianetwork.org/join-the-young…
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166K Followers 11K Following We are an independent charity working to improve health and care in England. Our vision is that the best possible care is available to all.
Admiral Nurse Stuart .. @stupot46
251 Followers 230 Following Admiral Nurse working on Admiral Nurse Helpline. Helping families face dementia
📢 Opportunity to get involved in research 🚨 If you are either Living with Parkinsons Disease Dementia and hearing loss? Or Living with Lewy Body Dementia and hearing loss? Check out the details below 👇 #LewyBodyDementia #LBD #ParkinsonsDiseaseDementia #HearingLoss
Research opportunity for people living with Parkinson's dementia and Lewy body #dementia who have hearing loss. Find out more 👇
@YoungDemNetwork @PMasterson_80 Amazing! Dr. Patri is a gift!
@janis_cottee @helenfindlay @Justacarehomeg1 @N_Wilson94 @mason4233 @Hannahdementia @TommyTommytee18 @YoungDemNetwork @#Diversealz on Thursday: Dementia and children and young people: learning, caring, interacting. 8.00pmGMT/3pmET
🧵PARTICIPANTS NEEDED! Do you live with Parkinson's Dementia or Dementia with Lewy Bodies and have hearing loss? Do you care for someone with Parkinson's Dementia or Dementia with Lewy Bodies who also has hearing loss? If Yes we would LOVE to hear from you! Please RT
I want to move towards people understanding facts before spouting rubbish. I applied for PIP for my husband with early onset Alzheimer’s and even with my professional knowledge it was a nightmare. Wanted to interview him on the phone. He didn’t know how to use a phone anymore 🤬
'I want to move towards something that is more rigorous, more objective and potentially has more medical evidence when people are making those claims' @RishiSunak wouldn't be drawn on whether those suffering with anxiety will lose PIP payments | @Peston itv.com/news/2024-04-2…
Megs podcasts are helping raise awareness and helping other young people feel less alone and isolated. Podcasts have a real authentic touch and a great listen #youngdementiacarer
Megs was 14 years old when her dad was diagnosed with young onset Alzheimer's disease at the age of 55. She has created a #podcast to break down stereotypes and raise awareness of young onset #dementia. 🎙️ Listen to Paddy's Memories Podcast here: podcasters.spotify.com/pod/show/paddy…
The Scottish Government has announced up to £9.2m of funding over three years to augment the Support in the Right Direction programme, which aims to promote choice and control for people who access social care services and their families/carers Read more: journalofdementiacare.co.uk/funding-announ…
Powerful advice from our chair @KevinQuaid3 on the @RTEToday show 'Don't Give Up & Stay Active' Thank you Kevin
rugbyleaguecares.org enjoyed my first clinic day in Leeds with the partnership between @RLCares and @DementiaUK RLC Admiral Nurse clinic, offering my clinical skills in dementia specialist support to former Rugby League players and theirs families and those close to them. 🏉💚
Thank you to @viclyons @Swinno1976 and @GerakdK1063 for sharing their experience and expertise on X today and for everyone who listened live. If you missed the conversation on working whilst living with #dementia, you can listen to the recording here: x.com/i/spaces/1ynjo…
Such an awesome incredible image! Thank you @YoungDemNetwork
'What do young dementia carers need?' is a new #animation. 📽️ It shares the findings of a research study into the visibility and needs of the children of people living with young onset #dementia. Watch the animation here: youtube.com/watch?v=ielR5Y…
Check out the upcoming @CadrProgramme webinar presented by @PMasterson_80 to find out more about her work with young dementia carers For more information and to register click the link below 👇 cadr.cymru/en/event-info.…
Pavement art, making my Friday morning, thank you @GailGre59728262 💗💗💗
Good Morning 😊 It’s that Friday feeling, I was up bright and early this morning eyes wide awake at 4.50am. A little bit is pavement art to take you into the weekend. Enjoy your Weekend everyone 😊
Excellent work on helping young carers & #dementia @PMasterson_80 paper here mdpi.com/1660-4601/20/2… #adi2024
😊It is a pleasure to do my bit to help raise awareness and improve support for #youngpeople who live in families affected by #dementia @lorenzos_house @suzysopenheart @Hannahdementia #youngcarers
Excellent work on helping young carers & #dementia @PMasterson_80 paper here mdpi.com/1660-4601/20/2… #adi2024
As part of the #CarerPovertyCoalition, we supporting a new petition calling for urgent reform of Carer's Allowance to ensure it properly supports unpaid carers and puts an end to the devastating overpayments that some carers are facing. Add your name... petition.parliament.uk/petitions/6604…
🧵 (1/7) A group of MPs in Parliament held a debate in Westminster Hall this week on the important topic of Carer’s Allowance A huge number of unpaid carers live in poverty and urgently need Carer’s Allowance to be reformed
Plenary speaker Diana Cose shares her personal story of young-onset dementia and the impacts upon families — not a dry eye in the house! @lorenzos_house doing great work to empower younger families living with dementia and shift the narrative. Bravo 👏🏻 #ADI2024
Day of networking- met up with Lead Nurse @NHFTNHS Young onset dementia service to learn about service provided and gaps nationally for children- Good to share hopes for new role @DementiaUK nhft.nhs.uk/ypdt/
How did #LondonMarathon go for me? Only made it to the half way mark before I wrecked my feet but it was worth it the raise close to £1500 for the @RareDementia Centre that will help families like mine with a rare (often hereditary) that affects most in mid life!
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