Cassie Stevens @cassjstev
Doctoral student, ASD researcher, ASD-ID/profound autism sister. Joined March 2013-
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Giacomo Vivanti, PhD, who is brother to two autistic adults who require lifetime, round-the-clock care, writes about Autism Early Intervention – Progress, Steps Backward, and the Reconciliation of Conflicting Narratives here: ow.ly/ujFy50TU1Pf
There’s a critical need for specialized research on profound autism. Such research is vital for creating effective treatment plans, improving healthcare, education, and social services for those with profound needs. #DidYouKnow #ProfoundAutism #ProfoundAutismAwareness
Help us build a database of resources for individuals with #ProfoundAutism and their families. Share the providers and services that have helped you. ow.ly/2vF450Tugb0 #ProfoundAutismResources
Join us in advocating at the federal and state levels. Support our mission by donating today profoundautism.donorsupport.co/page/donate?ut… #SupportProfoundAutism #DonateNow #ProfoundAutismAlliance
He's who I'm in it for. Who inspires you?
Many families with #autism struggle with aggression and impulsivity, turning to antipsychotic treatments. Recently SAB member Eric London published preliminary data on a few patients showing the promise of #propranolol for these behaviors. hubs.li/Q02Q8B3c0
Airline Offers Children with Autism Chance to Practice Boarding Process - NBC Connecticut: nbcconnecticut.com/news/local/air…
'i have concepts of a plan' --- my new R01 specifics aim page
Later this year, ASF is accepting applications for the 2025 #profoundautism research grant program. If you are interested in applying, an informational webinar will be held on 9/11 at 12PM et. The registration link is at the end of the RFA (link below). hubs.li/Q02Pf5-l0
We are grateful that the House version of Autism CARES (H.R. 7213) includes an amendment clarifying the need to include the full range of disabilities. The Senate version (S. 4762) does not. Take action to improve and pass Autism CARES: votervoice.net/ProfoundAutism….
California's situation mirrors that of states nationwide. To attract quality care providers for disabled adults, the state needs to offer competitive compensation. The current hourly rate for fast food workers outpaces that of care providers. 📰🔗ow.ly/OhrX50T3RZU
🇺🇸 Last week on the Hill was busy! 📰Stay up to date with our latest news: 🔗ow.ly/Kava50SQxre
What an experience! Leaving DC grateful, inspired, and energized! This is just the beginning.
Not everyone can wait to access inpatient neurobehavioral care. The @ProfoundAutismAlliance, in partnership with ASF, has created a program for doctors to share with eachother how to manage difficult cases. Learn more here: hubs.li/Q02Jf3Rw0
Want to know what research we are funding and how it can help people with profound autism? Read our latest newsletter. 🔗🔬ow.ly/xpVR50SGxkX
For the first time, Autism CARES includes representation of the entire spectrum. Your advocacy made that happen. Now it's time to ensure passage by asking your legislator to cosponsor the bill. Take action here: 🔗votervoice.net/ProfoundAutism…
/5 They deserve health. They deserve connection. They deserve to be seen and heard. They deserve help, not later, but now. #profoundautism #nostigma #stopshaming #startsupporting
Pinning down ‘profound autism’ for reliable research: Q&A with Matthew Siegel hubs.li/Q02BJl-d0
It's worth noting that many self-advocates support this new terminology and its clarity. They have contacted us to provide their perspectives and support. bostonglobe.com/2024/05/23/opi… #profoundautism #autismCARES
Thanks to your advocacy, the Autism CARES Act has been amended to include the "full range of cognitive, communicative, behavioral, and adaptive functioning, as well as co-occurring conditions and needs for support and services." Learn more at 🔗ow.ly/F0GQ50RQFcm

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