emmabirgit @emmabirgit
Chronic lifer, psychotherapist, writes. Joined April 2014-
Tweets155
-
Followers77
-
Following595
-
Likes2K
It’s the greatest medical scandal of the 21st Century. Intransigent doctors and gullible journalists have made the lives of ME/CFS patients a living hell. A massive and shocking story in this week’s column. theguardian.com/commentisfree/…
Excellent but heartbreaking radio segment on ME/CFS. Woman's Hour - BBC Radio 4 Emma Barnett talks to Sean O'Neill (The Times) who lost his eldest daughter Maeve to ME. Also features Dr Charles Shepherd of the ME Association. youtu.be/6ce3jSoOA0c
1. There’s an aspect of this story that I didn’t have space for in the column. This is about how the scientific and media establishment closed ranks around bad science, defending it from legitimate questioning and criticism.
In a meeting I watched today, microglia priming was mentioned in #LongCovid and #ME/CFS. It’s important to clarify what “microglia priming” means. Microglial priming does not mean that after a trigger has “cleared” microglia remain perpetually activated
For two years in my life I couldn't speak or read due to neurological problems from ME. I asked to be surrounded by open Bach scores. I would like to share how I see that now, looking back. 1/8 #pwme
A "post-viral tsunami" is gathering, with devastating consequences for large numbers of people. Some of its effects closely resemble ME/CFS, a condition whose 250,000 sufferers in the UK have been horribly neglected. It's time for action. My column. theguardian.com/commentisfree/…
Those who have suffered for years from ME/CFS, and have been ignored, neglected and even stigmatised know how long term conditions (often triggered by viruses) are overlooked by governments. Following C-19, hundreds of thousands could suffer. We must take this seriously.
"Ghost Apples" are an unusual phenomenon where freezing rain coats rotting apples before they fall, then when the apple turns mushy it eventually slips out and leaves the icy shell still hanging on the tree.
We were all inspired by @jennashworth's insightful Writer-to-Writer advice on how to stay motivated and connected during her talk, this morning. Thank you for joining our #DHAOpenDay for under-represented Writers, Jenn!
Coronavirus: who will be winners and losers in new world order? theguardian.com/world/2020/apr…
Wrote about the great Jenny Offill + making art at the end of the world nytimes.com/2020/02/05/mag…
That honeymoon period of the first draft when you wonder if you might be a little bit of a genius. Then return two weeks later and are turned inside out by shame. That. #writerslife #amwriting #WritingCommunity #writinglife
Like many people waking up this morning, I feel sadness, frustration & deep anger. These are dark times - but the night is always darkest before the dawn #GE2019

Genese Grill @genese_grill
8K Followers 7K Following Essayist, Translator, Writing first English-language Biography of Robert Musil for Yale UP. Portals: https://t.co/nDxvVUxN8C
Thomas Henry Anderson @macanders
2K Followers 2K Following Mild-mannered author of several novels. Chronically hopeful. #pwme
ChronicLivingTherapy @ChronicLiving1
165 Followers 420 Following Directory of counsellors and therapists who understand the biomedical nature of ME/CFS, Long Covid, Fibromyalgia and other similar chronic illnesses.
ℜ𝔞𝔠𝔥𝔢�... @RachelBurch2
5K Followers 2K Following Living with severe chronic illness, wheelchair user, Dartmoor photographer, old book lover and hedgehog whisperer. 🦔🦼📖 have been a photographer for 35 years.
SSNELDHYTS @usansates
235 Followers 803 Following not every day is a good day and that's ok✨️out of every ditch a path if we can but see it
Anthony Fowler @afowler06
121K Followers 55K Following 🇧🇷 2016 Rio Olympian | 🥊 Professional Boxer | 💚 Entrepreneur & Business Founder @Supreme_cbd also featured in @forbes use code Fowler40 at checkout CBD ⬇️
Heather Hayes @hhayes91
1K Followers 6K Following 💙 BC Survivor, Music, Lake & Dog Lover #meshinjured Diagnosed w/#MECFS, MCAS, Fibro, CRPS, PA, Sjogren’s,Hashimoto’s, Lupus & CIRS from J&J Prolene mesh.
The Creative Writing ... @cwp_uk
389 Followers 517 Following The leading centre for creative writing in the UK–in-person and online courses from some of the best writing tutors around. ⬇️ Enrolment open for October 2025
Strukturriss (now def... @strukturriss
2K Followers 1K Following Former Ireland-based anticapitalist, feral, experimental quarterly. Never had any reading fees. EICs @mullamy_, @Narvvhals_, @ThinkContinuum
Katy W @SylphSea
1K Followers 917 Following Writer, visual poet housebound #mecfs An Orchid in My Belly Button (Elsewhen 2025) Let Them Float (2023) 51 Trillion Bits (2023) + Snapshots of Apocalypse
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
I AM MADELINE @IamMADELINEpod
1K Followers 3K Following Pod: Madeline AKA #MarciaDoherty's #LongViral #EBV #MyalgicE struggle with Drs #diseasebias. 1st 5 eps @AshDKelly @byGawley #disability
Cal @tweetercal
2K Followers 5K Following Post Epstein-Barr ME 41 years of rotting RA HD 3 Heart Attacks 5 Stent Post Lymes & Fibro Professional Flaneur of 30yrs.Medically Retired #TwitchAffiliate #Indy
Jackson @1BStQFX27KOB9Ai
5 Followers 96 Following Single, like gym, drink tea, read books, draw pictures, like to make money and spend money more.
@TheChronicCollaborat... @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Nicola Jeffery @NicolaCJeffery
5K Followers 4K Following 'Behind that loud-mouthed journalist @MrTopple is an even louder-mouthed woman!' Writer @TheCanaryUK https://t.co/xMDS7UtHEl #FreePalestine 🏳️🌈🏳️⚧️✊️
Clare James @Clarejames131
6K Followers 4K Following ✍Writing first novel. Enjoy 📚 Photography Piano/Sax Art Gardening QiGong Laughter + Tea 🍵 #amwriting #pwME
DT #MECFS #freepalest... @davro_t
1K Followers 1K Following #MECFS since 2018. Socialist, antifascist, nerd, gamer, horror/sci-fi/fantasy. Used to read & run a lot. Now a 'useless eater' #millionsmissing #autistic #audhd
Edna, M.E.Advocate �... @EdnaMacNamara
774 Followers 1K Following 💙 M.E.Carer/Advocate of son aged 33, ME,13yrs 💙. RaisingAwarenessFor #PwME #Carers #LC #findAcureME #greatestMEdicalscandal https://t.co/XiPgGQc0tn
In memory of Angela K... @AngelaK11635746
2K Followers 2K Following In memory of Angela Kennedy, a carer and retired sociologist, who was murdered while homeless for being disabled.
Colin-Roy Hunter @criquaer
2K Followers 3K Following Happy queer pantheistic Quaker, despite being disabled by & sufferer from inter alia #MyalgicEncephalomyelitis. Non-partisan. Always follow back #pwME. %)
Grim Art @GrimArtGroup
72K Followers 24K Following #GrimArt - the beauty & value of the everyday, the ordinary & the overlooked; industrial landscapes, whippets & wastelands, red bricks & rust. #art #photography
Ball of Suck (=🌞) ... @BayouMystere
2K Followers 2K Following Undead undead undead 🦇she/her 🐈⬛Ex-burlesquer 🐈 deep down inside I got a rock 'n' roll heart 🖤🩶🤍💜 gradual onset ME/CFS
All of them snollygos... @OnlyEnnui
3K Followers 2K Following Ex philosopher, Ex Singer Song Writer Ex Friend & lover. #MEcfs activist #hEDS benzo withdrawal = hell. Expect swearing & sarcasm
Jeremy Gilbert @jemgilbert
16K Followers 4K Following Cultural theory, political analysis, dance party politics. Latest book: Hegemony Now (Verso 2022) https://t.co/VodcZmZlq0
Phil Stewart 💙 @PhilStewart23
2K Followers 2K Following Person Centred Counsellor. ME Sufferer. Social Justice & Equality. LFC. #MyalgicEncephalomyelitis #autismawareness #YNWA #MentalHealthMatters
Dr Hng + Friends @DoctorwithME
2K Followers 1K Following Author of "Doctor with M.E." Founder of Doctors with M.E. (DwME), international professional association. Views our own (me + friends) not DwME.
Katie Bee🇪🇺 @KatelinBee
449 Followers 1K Following Artist, Mother, Nature Lover. Living with and raising awareness of Post-viral Autoimmune/neuro-endocrine disease commonly known as M.E/cfs 10yrs+ @kateboyceart
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Elisabeth Klaar | Oak... @lammas_leaves
2K Followers 5K Following Marketing for SMEs and NGOs. Mentoring & Tuition: WordPress, Marketing. Also @chronicliving1 - project built with WordPress
James Clammer @JamesClammer
1K Followers 1K Following A punter sleeps during Shock Around The Clock New novel, Insignificance, with @GalleyBeggars (UK), @coachhousebooks (North America) & Querido (Netherlands)
Phoenix Rising @aboutmecfs
6K Followers 4K Following A community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!
Tilman Andris @TilmanAndris
3K Followers 5K Following Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
Louise Kenward - Psyc... @ZebraPsych
725 Followers 790 Following Psychologist | Writer | Practitioner/Supervisor Cognitive Analytic Therapy | previously NHS | Energy Limiting Chronic Illness #ZebraBookClub 🦓 #DP100 2023
Dan Holloway @agnieszkasshoes
11K Followers 11K Following Activist: mental illness, basic income, radical open access. seagrass; 3x creative thinking world champion; founder @RogueInterro; ultra runner; lifter; writer.
Fragmentary Blue @FragmentaryBlu
184 Followers 756 Following Academic. Bereaved mum, learning to live without my young daughter. Navigating Long Covid and thinking a lot about chronic illness.
lulah ellender @LulahEllender
5K Followers 3K Following Writer | GROUNDING: Finding home in a garden, @GrantaBooks 2022 | ELISABETH'S LISTS, Granta 2018 & Les Escales | Agent: @natgalustian
Simon J Duffy @simonjduffy
12K Followers 9K Following I’ve moved to Blue Sky @simonduffy.bsky.social #EverydayCitizenship Out Now. https://t.co/gU8LmR6nHJ
William Blake @williamblakebot
15K Followers 5K Following Tweets quotes from William Blake's poetry every hour.
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
John Peters @johnthejack
5K Followers 5K Following Unbeliever (political & relig), Wales rugby, #c4news, porridge, #MEcfs johnthejack.peters https://t.co/DO2RA0zRnE
Maija Haavisto @DiamonDie
8K Followers 4K Following ~20 books, free trauma/dissociation book is out! Work: IFS/SE, hypnosis, metta, jhana, trauma. Poet, artist. Balkan chakras, plants, food, medicine, CFS/ME, HF.
Genese Grill @genese_grill
8K Followers 7K Following Essayist, Translator, Writing first English-language Biography of Robert Musil for Yale UP. Portals: https://t.co/nDxvVUxN8C
Dr David Vernon @DrDavidVernon
23K Followers 374 Following writer | books on: nabokov • wagner • mahler • beethoven • sibelius • mishima • lispector (2026)
Tina Katsaros @tinakatsaros
1K Followers 249 Following PhD candidate researching ME/CFS at La Trobe University
Sarah @SarahLizzyLou
3K Followers 2K Following She/her. Physio student with #longcovid #MEcfs since Oct 2021. #CognitiveDysfunction 🧠♿️ #FBLC
Jeremy Jeffs @magnetoJJ
2K Followers 2K Following Director at Magneto FIlms, making films for not for profits. Currently shooting photos of #PwME. Living with #ME since 1987
WACM @_VFK_DAA
484 Followers 1K Following LC is unique due to its chronic inflammation of the vessels (vasculitis). Just because some symptoms are shared, it doesn't mean the conditions are the same.
Thomas Henry Anderson @macanders
2K Followers 2K Following Mild-mannered author of several novels. Chronically hopeful. #pwme
Michael R Scoma MD @DrMichaelScoma
8K Followers 98 Following Infectious Disease Immunology physician specializing in complex chronic diseases. Views are my own; no medical advice given.
Channel 4 News @Channel4News
2.4M Followers 4K Following Stories that reveal and inspire, challenging expectations. Weekdays 7-8pm on Channel 4. Got a story? [email protected]
BBC News (World) @BBCWorld
42.0M Followers 17 Following News, features and analysis from the World's newsroom. Breaking news, follow @BBCBreaking. UK news, @BBCNews. Latest sports news @BBCSport
Nele @NeleHelena
5K Followers 1K Following I tweet about the things I don't like: severe chronic illness / ableism / toxic positivity / medical gaslighting / dysautonomia / MEcfs / autoimmunity
Zack Polanski @ZackPolanski
64K Followers 11K Following Green Party Leader. London Assembly Member. 🏳️🌈
ChronicLivingTherapy @ChronicLiving1
165 Followers 420 Following Directory of counsellors and therapists who understand the biomedical nature of ME/CFS, Long Covid, Fibromyalgia and other similar chronic illnesses.
Katherine Everitt �... @katherineveritt
12K Followers 1K Following Philosopher, writer, poet, artist. 🗯 Hegel. 🗯 Brooklyn.
Cadell Last @cadellnlast
2K Followers 524 Following Author: Global Brain Singularity / Systems & Subjects; Teach @ Philosophy Portal; YT philosophy-psychoanalysis; join a living thinking community @ The Portal
Darren Randon @DarrenRandon
422 Followers 588 Following Community Builder - Creative Facilitator He/Him/His All views here are my own #pwME
Democracy At Work @democracyatwrk
51K Followers 3K Following d@w produces media & live events to expose capitalism’s systemic problems & to show how democratizing our workplaces solves them. Co-founded by @Profwolff
Jacobin @jacobin
376K Followers 7 Following Jacobin offers socialist perspectives on politics, economics, and culture. Support our work and subscribe to our print magazine!
Richard D. Wolff @profwolff
249K Followers 2K Following Host of #EconomicUpdate, Prof. of Economics Emeritus @UMassAmherst, visiting Prof. @TheNewSchool, founder @democracyatwrk. #WeCanDoBetterThanCapitalism
Karen Hargrave @karen... @KarenLHargrave
2K Followers 2K Following Independent researcher & policy analyst | @karenlhargrave.bsky.social | Research Associate @ODI_Global | Co-founder #ThereForME https://t.co/qzdifn9AUg
Amy @alexandrite113
8K Followers 881 Following Tweeting into the void. ME is the "living death disease"
👻ghost of submersi... @MECFScomrade
2K Followers 1K Following she/her | life on pause due to severe ME & co (since 2019)♿️ land back! 🇵🇸🇨🇩🇸🇩🏳️⚧️
Royal Hansen @royalhansen
8K Followers 1K Following Vice President, Engineering, Google - Privacy, Safety, Security: Posts on InfoSec, Privacy, Data, AI, Counter Abuse and random stuff from life in CA; Tweets=own
Jason S @JasonS1269
2K Followers 881 Following Fitness Junkie & PT until #ME Jan 2012 #LongCovid Dec 2021. Blood tests normal until SARS-CoV-2 infection. Unvaxxed. Bedbound. Organ Damaged. Abandoned.
Szn @LightsOn10090
284 Followers 352 Following Finance and medical innovation | Options trader | student of Bitcoin and crypto | Fighter for Long Haul Covid and 💉 injured
David J Black @Black_Scape
35 Followers 152 Following The only author of a banned book banned from an exhibition of banned books.
Bart-Jan den Boer @BartJandenBoer1
448 Followers 151 Following
Oonagh Cousins @oonagh_cousins
3K Followers 954 Following Communications and Policy @visible_health | @long_covid | @ThereForME_UK Anti-Recovery Activist 👀
sam wollaston @samwollaston
6K Followers 1K Following Feature writer at the Guardian https://t.co/lKDtX8ZTIS I've gone to the other place if you'd care to join? https://t.co/as1Wnqht1w
Prof Gemma Carey, PhD... @gemcarey
24K Followers 2K Following This account is no longer active Views are my own
Becky A Robertson @AnciraBecky
6K Followers 8K Following 𝖲𝗎𝗋𝗏𝗂𝗏𝗈𝗋🛟𝖬𝗈𝗆∙𝖳𝖾𝖺𝖼𝗁𝖾𝗋∙𝖠𝖼𝗍𝗂𝗏𝗂𝗌𝗍∙𝖠𝖽𝗏𝗈𝖼𝖺𝗍𝖾 #𝖫𝖢𝖣𝖢 #𝖬𝖺𝗋𝖼𝗁𝟣𝟧 #𝖫𝗈𝗇𝗀𝖢𝗈𝗏𝗂𝖽𝖠𝗐𝖺𝗋𝖾𝗇𝖾𝗌𝗌 ♡ 𝓑𝓮 𝓚𝓲𝓷𝓭 🫶
Ellie Fry @iEllieFry
2K Followers 1K Following Features Editor @DailyMirror | Previously @Independent | Contact: [email protected]
Olenka Sayko @coco_chatel
3K Followers 1K Following Ukrainian-American. Theater/film/music/book lover. Former arts finance girlie. Left-ish Libertarian-ish. Life on pause due to disabling #LongCOVID.
MEinSeattle @emmydugas
1K Followers 4K Following 🧑💻 #Healthcare 👩⚕️ #HousingCrisis 🏠 #JusticeReform🧑⚖️ #LeftandRightUnite 🤝#UnitetoFight 🥊#MECFS 🩺 #Covid 🦠#LongCovid 🐦#BirdFlu
zoe kazan @zoeinthecities
85K Followers 1K Following SHE SAID, THE PLOT AGAINST AMERICA, RUBY SPARKS, OLIVE KITTERIDGE, THE BIG SICK, THE BALLAD OF BUSTER SCRUGGS, WILDLIFE, etc. EAST OF EDEN coming down the line.
Jeffrey Lubell (EDS, ... @JeffLubell_C19
3K Followers 542 Following I am exploring treatments for my daughter's EDS & ME/CFS & implications for people with #EDS, #MECFS, and #LongCOVID. Not an MD or professional scientist.
And Other Stories @andothertweets
22K Followers 10K Following Not-for-profit press led by readers, writers & translators. Consider subscribing to help us take publishing risks. https://t.co/2NjyBeCxHm
octavia bright @octaviabright_
7K Followers 3K Following Writer/Talker. THIS RAGGED GRACE (June 2023, Canongate). Co-host of @LitFriction. Occasional host of Open Book. She/her. Agent: @thestormboy
Jessica Andrews @jessicacandrews
3K Followers 1K Following Author of Milk Teeth 🦷 (2022) Saltwater 💦 (2019) Contributing Editor @elleuk⚡@thgrapevinezine 🍇 @buttons_tender 🍑 Rep @ChrisWellbeloveCornel West @CornelWest
1.0M Followers 193 Following One of America's most provocative public intellectuals; a champion for Truth, Justice & Love. Running as an Independent candidate for President
Naomi Klein @NaomiAKlein
650K Followers 4K Following Doppelganger. This Changes Everything. The Shock Doctrine. No Logo. On Fire. @UBC Professor of Climate Justice, co-director @CCJ_UBC
Dan Sinykin @dan_sinykin
12K Followers 5K Following Author of A Day in the Life of My Mother's Pickle (self-published 1991), Catnip Catnip (self-published 2002), & My Life in Scott Stapp's Gazebo (Atria 2026)