Epilepsy Action Comms @epilepsycomms

Media team @epilepsyaction, the UK's leading epilepsy charity. Email us at [email protected] with any epilepsy-related media enquiries. Or call 0113 2108870 epilepsy.org.uk/press Leeds, UK. Joined April 2013

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Epilepsy Action @epilepsyaction

4 years ago

Very concerning to hear of the latest developments around Universal Credit. The DWP needs to build trust with people and this is not the way to do it. Asking people to prove their identity in this way is de-humanising and we would urge the DWP to find a better way to do this.

Big Issue @BigIssue

4 years ago

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Epilepsy Action @epilepsyaction

5 years ago

OUT NOW - This DBC report reveals 82% of people, the majority of whom are disabled, have had to make stark choices; heating their homes or putting food on the table. Read this crucial report that reveals why the Govt must urgently #IncreaseLegacyBenefits bit.ly/3j5j1PR

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Epilepsy Action @epilepsyaction

5 years ago

Everybody with epilepsy has their own unique story 📖 And we love reading them 💜 You can read lots of them and share your own on our website 👉 epilepsy.org.uk/my-story #NationalStorytellingWeek

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Epilepsy Action @epilepsyaction

5 years ago

You can read more about the review here: epilepsy.org.uk/AED-defects (9/9)

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Epilepsy Action @epilepsyaction

5 years ago

We want to ensure that necessary action is taken in light of this review by asking @MattHancock to ensure that no woman or girl takes an anti-epileptic medication without them, or their family, being aware of the risks. (8/9)

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Epilepsy Action @epilepsyaction

5 years ago

The @MHRAgovuk’s review of the use of epilepsy medication in pregnancy has highlighted the existing evidence of the risks of harm to unborn children posed by the use of some medications during pregnancy. (1/9)

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Sophie Pierce @sophiepierce

5 years ago

A memoir I am writing about the loss of my beautiful son Felix to #SUDEP is crowdfunding with @unbounders - it's not just about grief, but about love @SudepAction @epilepsyaction @youngepilepsy @BrainAblaze @GoodGriefProj @OxEpilepsy @m_newbury @TCFcharityUK @epilepsysociety

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Epilepsy Action @epilepsyaction

5 years ago

We support @End_Our_Pain's call for access to cannabis-based medicines for children with severe and treatment-resistant epilepsy. You can help by emailing your MP - it only takes a few clicks: endourpain.org/email-your-mp/ You'll be supporting children like Alfie 👇💜

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Epilepsy Action Comms @epilepsycomms

5 years ago

cambrian-news.co.uk/article.cfm?id… Lovely piece in @CambrianNews celebrating the Pili Pala team at Llwyn yr Eos School in Aberystwyth. They're our Helping Hands Heroes for all they have done to support Seren, 11. Fabulous work, ladies! 💜👏👇

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Epilepsy Action @epilepsyaction

5 years ago

"Rachael and Danielle have picked me up and patched me back together. They have shown me that life is worth living again. I cannot thank them enough.” 🎉 We're delighted to award Rachael and Danielle an Epilepsy Action Helping Hands Award 🎉 Read more 👉 epilepsy.org.uk/news/news/epil…

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Epilepsy Action @epilepsyaction

5 years ago

"Learning to understand epilepsy, or even attempting to, is the most important thing anyone can do for epilepsy sufferers, or for anyone with an invisible disability." Read Francesca's story 👉 epilepsy.org.uk/my-story/manch… #InvisibleDisabilitiesWeek #InvisibleDisabilities

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Epilepsy Action Comms @epilepsycomms

5 years ago

nursingtimes.net/news/workforce…

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Epilepsy Action @epilepsyaction

5 years ago

‘The true effect of the pandemic on people with epilepsy is starting to emerge’ Read more in the @NursingTimes 👇 nursingtimes.net/opinion/the-tr…

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Epilepsy Action @epilepsyaction

5 years ago

"Hopefully, I can show people that no matter what your medical condition or disability, you can still achieve your goals." Zeenat will be running the #GreatRunSolo this weekend. Read her story here👉 epilepsy.org.uk/my-story/runni… #GNRVirtual @Great_Run #GNRReimagined

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Epilepsy Action Comms @epilepsycomms

5 years ago

bbc.co.uk/news/uk-englan… Go Ellis and his friend Reggie, who has just won our Helping Hands Hero award!👇💜💪👏 Such a lovely story of friendship.

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Epilepsy Action @epilepsyaction

5 years ago

Last chance to have your say! Our patient experience survey for people in Northern Ireland closes tomorrow. Please take 10 minutes to let us know your thoughts about health services in your area, and help us shape our future work in Northern Ireland 👇💜 epilepsy.org.uk/involved/branc…

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Epilepsy Action @epilepsyaction

5 years ago

"I spent 4 hours in A&E, there wasn’t space for proper distancing. I thought ‘I’ve come to check my baby’s heartbeat, but we’re potentially both at risk with COVID now.’” ⠀ You can hear more of Ibby’s story in the latest episode of epilepsycast: epilepsy.org.uk/podcast 🎧💜

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Epilepsy Action @epilepsyaction

5 years ago

What was your reaction when you first got your epilepsy diagnosis? 🤔 Hear Patience talk about how she reacted to her first seizure, her struggles with work and her decision to move city on 'epilepsycast' episode 6 right now. Available on all major podcast platforms 🎧🎤

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Epilepsy Action @epilepsyaction

5 years ago

Always wanted to be a movie star? 📽️ On Sat 25 July, people across the world will be documenting their days for @YouTube's #LifeInADay film. How great would it be to see epilepsy represented in that film? 💜 lifeinaday.youtube

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Epilepsy Action Events @epilepsyevents

5 years ago

Thank you to everyone who has taken part in the @epilepsyaction #VirtualBradford10k so far! Enter now, to get involved and help us reach the next milestone of 5,000 kms 👉 epilepsy.org.uk/bradford