Search results for #neisvoid
DAY 1 - ALL GONE This is the harsh reality when you become ill with a chronic illness like M.E. It feels like everything in your life has gone. #MyalgicEncephalomyelitis #MEawarenessmonth #MECFS #MillionsMissing #MEwarrior #SevereME #VerySevereME #NEISvoid #LongCovid #pwME
I'm dedicated to helping people cultivate resilience, reclaim control, and live fulfilling lives. You can check out my products and services here linktr.ee/cassandra_a_ca… #chronicillnesswarrior #spoonies #chronicpain #EDS #Fibromyalgia #hsd #hypermobility #cfs #mecfs #NEISvoid
Imagine telling someone with terminal cancer “it’s not a poor prognosis bc research is being done!!” Like no. ME/CFS has one of the lowest QoL, acting like it’s not is harmful to the community #MECFS #NEISvoid
Had a meaningful appointment with a medical psychologist in my hospital. No CBT, ACT crap. True, honest discussion with realistic support options. #NEISVoid
Plz donate and share! A fellow #csfleaker on the other side of the world needs our help! CC #neisvoid (is this thing still on?)
Plz donate and share! A fellow #csfleaker on the other side of the world needs our help! CC #neisvoid (is this thing still on?)
The Rise of Clinician-Associated Trauma in the Doctor-Patient Relationship - the fourth part of our medical trauma series buff.ly/44DW8ed #EDS #hEDS #Hypermobility #HSD #CPP #Pain #MedEd #Doctors #Nurses #NEISvoid #Spoonies #Zebras #patients #EhlersDanlosSyndrome
Folks who have POTS... I suspect I have it. I have an appointment coming up at the EDS clinic in Toronto. I'm wondering how you're monitoring your heart rates especially those on ODSP. #neisVoid #POTS #EDS #Disability
#Supernatural got me all up in my feelings tonight. 😭 Low pain night allows for high emotions. #spoonie #neisvoid
Toast the bread put on the topping and eat that all that I have to do. Can I do it? #neisvoid
Anyone got a place to stay? Anyone in #Melbourne, #Australia. Please. Can pay #rent & additional expenses in exchange for help. Will negotiate. Please get in contact. Happy to answer questions. #ChronicIllness #Housing #HousingCrisis #pwME #DisabilityTwitter #NEISVoid #LongCovid
#pwLC #pwME #NEISVoid Is there an article that outlines the progression of #PodSaveJon advocacy to spur #HELPLongCovid then leading to Bernie’s Moonshot draft proposal? My understanding is that one led to another, led to another, but I’m not finding a piece making this connection