Brooke @pandas_warrior

#PansPandashour #PPUK

6Hrs a day spent Catatonic, 2.5hr Seizures, Excruciating 2.5hr Tic Attacks, OCD occupying every hour the other symptoms didn’t - Steroids & Antibiotics have given me my daughter back! #PansPandasHour ⁦@PandasPans⁩ ⁦@timubhi⁩ 🙏💕 vm.tiktok.com/ZGJoKR6rK/

She’s my reason 💕 What’s Yours?…💕 ⁦#ChooseYourChallenge #PansPandasHour ⁦@PandasPans⁩ @dollyjoyner⁩ ⁦@24HourSwim⁩ ⁦@Hopesaxons⁩

@LindaLaHughes9 @PandasPans @dollyjoyner @24HourSwim @Hopesaxons Absolutely heartbreaking and sadly a story shared by so many others 😢

@HelenPe28465597 @PandasPans @dollyjoyner @24HourSwim @Hopesaxons Heartbreaking Helen. Pictures can't put into words the heartbreak this illness brings 💔

#PANS #PANDAS

Watch the Agalliu webinar referenced by Dr. Susan Swedo in the 25th anniversary interview at pandasppn.org/agalliu. Looking at the Brains of PANDAS/PANS Children: How Peripheral Infection Triggers Brain Inflammation, presented by Dritan Agalliu, PhD

No child should have to lose childhood to #Pans #Pandas No teen should have to lose important teenage years. Without correct diagnosis/treatment horrific conditions are carried to adulthood. Young adults then become lost in an adult MH system #PansPandasHour

Please watch & RP 2 raise awareness of #Pans #Pandas 2 bring much needed change in diagnosis & treatment of these horrific conditions causing untold suffering to children/teens. Left to fester can cause irreparable damage and symptoms can be carried to adulthood #PansPandasHour

Channel 5 News @5_News

4 years ago

Please watch & RP 2 raise awareness of #Pans #Pandas 2 bring much needed change in diagnosis & treatment of these horrific conditions causing untold suffering to children/teens. Left to fester can cause irreparable damage and symptoms can be carried to adulthood #PansPandasHour

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"I thought he was having some sort of breakdown. I felt like we were losing him." Kyleigh Callow is the mother of 8-year-old Phoenix who suffers from PANDAS, a medical condition that can affect children's brain. For more support and advice, visit: @Pandaspans @MindCharity

#Pans #Pandas are horrific conditions that cause immense suffering that only those affected directly can ever truly understand. They are conditions that steal everything causing untold misery & isolation. Not rare just rarely diagnosed #PansPandasHour panspandasuk.org

Adults can have it to. They really can. #PANS #PANDAS 🟤🟤🟤#PANSPandasHour #BGE Basal ganglia encephalitis

#PansPandasHour

“What looks like a behavioral issue or permissive parenting is actually a very serious medical condition.” #PansPandasHour

Such unnecessary prolonged suffering, loss & sadness due 2 lack of appropriate treatment pathways. Prompt diagnosis & treatment is essential 2 prevent exacerbation of symptoms & gives best chance of recovery. Prompt treatment of subsequent flares also imperative!#PansPandasHour

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‘successfully researching and treating children with PANS for years’👇🏻#PansPandasHour

She was spending 6hrs a day in gruelling Catatonic/Dystonic/Seizure Episodes, OCD debilitating, Powerful tic attacks, Restricting food and water… Antibiotics are finally kicking in… Help is available.. Let’s make it available on the NHS 🙏 @PandasPans #panspandashour

Helen Pearce @HelenPe28465597

2 years ago

She was spending 6hrs a day in gruelling Catatonic/Dystonic/Seizure Episodes, OCD debilitating, Powerful tic attacks, Restricting food and water… Antibiotics are finally kicking in… Help is available.. Let’s make it available on the NHS 🙏 @PandasPans #panspandashour

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Thanks to @natashaloder for her fantastic piece in the economist this week highlighting #panspandas how strep infections are causing psychiatric symptoms in children and being wrongly treated - or not at all- as the strength of strep grows so does our concern…

Over 50 charities have joined together to write to the Secretary of State for the Department of Health and Social Care about how people affected by a neurological condition struggle to access mental health services.

Talk to you child's doctor about PANS/PANDAS if symptoms of OCD, eating restrictions or tics start suddenly, and are accompanied by other emotional and behavioral changes, frequent urination, motor abnormalities and/or handwriting changes. pandasppn.org