Southeastern PANS/PANDAS Association @pandas_pans
Working to provide access to healthcare for all PANS/PANDAS children and to educate providers about this condition. sepans.org Atlanta, GA Joined May 2018-
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Followers345
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Alert! National budget cuts hit Columbia University, threatening the work of PANS/PANDAS researcher Dr. Ugur Akcan! Keep his work alive by donating: bit.ly/3SKy6J0 #PANS #PANDAS #PANSPANDAS
This 10-year study from M. Thienemann, K. Chang, J. Frankovich, et. al. defines "patient status, flares, and clinical course," says clinicians should be "vigilant" for new neuropsychiatric symptoms. bit.ly/4jAXMn7 #PANS #PANDAS #PANSPANDAS
GA SB5 with mandated PANS/PANDAS insurance coverage passes! 🙌🎉🎊Now, the bill is officially on its way to the Governor's desk for his signature. See the new bill here -- PART II, Section 2-1: bit.ly/4cDcyaJ #PANS #PANDAS #PANSPANDAS #SB5
PANDAS Physicians Network (PPN) publishes a letter of appeal to the AAP, urging them to revise its report: include strep test, full lit review, guidance on evidence-based care. Full letter here: bit.ly/3FM9s7S #PANS #PANDAS #PANSPANDAS @PANDASPPN @AmerAcadPeds
Our Kids Can't Wait! 💙 GA families, HB124 for PANS/PANDAS insurance coverage heads to the Senate Insurance Committee THIS THURSDAY, March 20 -- soon to the Senate floor for a vote. Pls call/email NOW! Senate list: bit.ly/435xu79 #HB124 #PANSPANDAS #PANS #PANDAS
We Need YOU to Fight for SB205! Georgia families are battling #PANS/#PANDAS without insurance coverage. Email the Senate Insurance and Labor Committee or make a call to tell them why this bill is crucial. Contact link: bit.ly/4hZVIo8 💙 #SB205 #PANSPANDAS #GAFamilies
Georgia has a Senate bill! #SB205 has arrived on #PANS/#PANDAS mandated insurance coverage, and we need your voices! Continue to contact the House, but please add the Senate. Your calls and emails are making a difference like never before! Senate list: bit.ly/435xu79
Stand up for #HB124 on #PANS/#PANDAS mandated insurance coverage! Current status: Waiting to go to the Rules Committee; when we pass there, we will go to the floor. Please call or email the members on this list, including your own: bit.ly/3CFvQ1u
We need your voice! Please complete this survey for each affected child in your family to quantify the financial impact of #PANS/#PANDAS for GA legislators who may not have experience with PANS/PANDAS. bit.ly/4gzfQMt
To support Georgia #HB124 on #PANS/#PANDAS mandated insurance coverage by emailing GA House Representatives, please email the names on this list who are NOT highlighted, as well as your own Representative. Highlighted are bill supporters. Full list: bit.ly/3CFvQ1u
Georgia #HB124 on #PANS/#PANDAS insurance coverage passed unanimously in the House Insurance Committee today and will move to the House Rules Committee. Please email the House Rules Committee and the Senate Insurance Committee ASAP. Addresses on FB: bit.ly/4hF830m
Thanks to those who contacted the Georgia House Insurance Committee about #HB124 for #PANS/#PANDAS treatment coverage! For those who haven't, here's the House Insurance Committee member list: bit.ly/3Cy2wd6. Sample letter on FB page: bit.ly/4hF830m.
Support #HB124 to pass mandatory #PANS/#PANDAS insurance coverage by calling members of the INSURANCE COMMITTEE this weekend as they meet Monday! Link to committee list: bit.ly/3Cy2wd6 #HB124
Georgia families! Please complete this 10-minute survey today to quantify the financial impact of #PANS and #PANDAS for GA legislators. bit.ly/4giJoxF
Get your SEPPA #PANSPANDAS Awareness Day t-shirt now and support Southeastern PANS/PANDAS Association (SEPPA), a regional nonprofit helping PANS/PANDAS families and raising awareness for the past 7 years! bit.ly/3zOXPuc #PANS #PANDAS #BGE
Get your SEPPA #PANSPANDAS Awareness Day t-shirt now and support Southeastern PANS/PANDAS Association (SEPPA), a regional nonprofit helping PANS/PANDAS families and raising awareness for the past 7 years! bit.ly/3zOXPuc #PANS #PANDAS #BGE
Predators might see your #PANSPANDAS child as a target because of their emotional lability and regression. Here are some tips to protect your child from predators: bit.ly/40tgOVR #PANS #PANDAS #BGE

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