Susannah H @firebug70
Mum. Carer for my son. Former English teacher. Researching bacterial &viral infection &symptoms #Lyme #ME #LongCovid #Pandas #Pans #Bartonella Gloucestershire Joined December 2013-
Tweets41K
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#PansPandasHour #NeuroImmune #BrainOnFire #BrainHealth #Psychology As medicine & research evolves and parents are finally believed, children will finally receive the medical help they need as I refer to the #UN rights of the child. @OCO_ireland @nichildcom
#PansPandasHour #NeuroImmune #BrainOnFire #BrainHealth #Psychology As medicine & research evolves and parents are finally believed, children will finally receive the medical help they need as I refer to the #UN rights of the child. @OCO_ireland @nichildcom
#PansPandasHour As our child returned to school last week, I wonder how many of those involved in @lustforlife program are aware of #Pans #Pandas and that an infection can trigger devastating symptoms in a child that can mimic mental health, ADHD, anxiety etc.
The highs and lows of PANDAS in the first two days back at school. Yesterday was a huge success and it took us all by surprise. Today her internal struggles surfaced and it was too much. Trying to focus on the progress and not the set backs though #panspandashour
🔬Viruses don’t just cause short-term illness. Many stay in your body for life. They speed up the aging process - in your immune system, organs, and even your DNA. Here’s some examples, and why stopping them could help extend lifespan🧵
7 years of blood tests reveal shocking nutrient gaps in kids with ADHD UK kids, ages 4–18 47 children, 10 adults Blood tests run over 7 years Findings: 95% had low omega-3 88% had low B2 71% had low zinc 65% had low vitamin D Over 80% reacted to dairy and gluten The lower the…
Mast cells are immune cells that respond to various stimuli. When activated, mast cells release mediators that can cause generalized symptoms. It is not uncommon for #MCAS to be associated with neuropsychiatric symptoms, including anxiety, depression, brain fog, and ADHD. A…
#PansPandasHour Let's make sure we are l👀king in the right places when it comes to our #children. An infectious trigger could be the root cause of what may look like #psychiatric, #mentalhealth or #anorexia in a child.
#PansPandasHour Let's make sure we are l👀king in the right places when it comes to our #children. An infectious trigger could be the root cause of what may look like #psychiatric, #mentalhealth or #anorexia in a child. https://t.co/vkGFWQwG8a
'Unbelievable pain and suffering': How a common throat infection can rewire children's brains bbc.com/future/article… via @BBC_Future #PANDAS #Strep #infection
A pioneering study has demonstrated for the first time that myocardial infarction may be an infectious disease. This discovery challenges the conventional understanding of the pathogenesis of myocardial infarction and opens new avenues for treatment, diagnostics, and even vaccine…
Excellent article from @cyprusmail "Lyme disease isn’t simply a quirky celebrity ailment. It’s a global epidemic that’s been ignored, misdiagnosed, and misunderstood for far too long." cyprus-mail.com/2025/08/27/why…
“Furthermore, it emphasises the importance of a thorough clinical history to prevent diagnostic delays and suboptimal outcomes’ echolive.ie/nationalnews/a…
Neurodivergent children are more at risk of being labelled with Emotional School Based Avoidance/non attendance, EBSA/EBSNA We need change but sadly most are still not aware, or accept, the body connects to the brain. Physical health matters and for too long the same the…
Another bank holiday weekend in the UK. I have lots to do and look forward to but one thing I won’t be doing is seeing my boy. This is approx the 286th weekend I haven’t seen him. Every one of them has been hard. It’s been so long that I no longer know what he looks like or…

Hope @hopestardust20
2K Followers 3K Following Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection. B12 deficiency
Jane Bird @LindaLaHughes9
1K Followers 1K Following Raising awareness of the paediatric conditions PANS and PANDAS
PANS PANDAS UK @PANSPANDASUK
4K Followers 846 Following UK charity raising awareness and understanding of post-infectious neuropsychiatric disorders. We support families and campaign for better care.
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Notes to my boy ✉�... @notestomyboy
6K Followers 4K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
Sarah O'Connell @SarahOC_MECFS
4K Followers 5K Following #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Joanne Holloway @CharmingAngelCo
906 Followers 1K Following Mom 2 girl with #Pans.Took 2.5 years & huge battle 2 get 2 diagnosis!Delays are damaging. Goal 2 raise awareness 2 end present suffering & stop future suffering
NB @np9000
861 Followers 1K Following Tick-Borne Infections & Pans/Pandas in the UK #Pans #Pandas #Lyme #Bartonella #Babesia #TickBorneInfections #MCAS #POTS #ME . Views my own. https://t.co/hk1rb80CzQ
Paula Scott @PaulaScottUK
1K Followers 2K Following As an experienced Virtual Assistant with over 30 years of expertise, I specialise in providing efficient, reliable and confidential administrative support.
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Sarah Hughes @SHughesDr
809 Followers 909 Following
John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Long Covid Advocacy �... @LongCovidAdvoc
14K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #pedanticzebra book club. 🛍️ https://t.co/8JlRWqxASF
laura aylott @aylott_laura
535 Followers 1K Following Just a mum of 3 boys ! volunteer supporter of families & parents, interest in child development & trying to raise awareness of PANS PANDAS
Lizzy H @hopefullizzy
7K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Kathryn Gillett @kathryn_gillett
883 Followers 667 Following Raising awareness for PANS Paediatric Acute Onset Neuropsychiatric Syndrome. Mum, theatre lover, events.
Sauauge @Sauauge6141
38 Followers 717 Following have long been accustomed to what happened to their own one person to carry.
Kendall @Wirkalh9826
48 Followers 1K Following
Leaunder @Leaunder0312
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LilithDonne @5GIny831cnbOO
1 Followers 85 Following
Unfelt Sorrow 🕊�... @unfeltsorrow
2K Followers 6K Following 🇬🇧 living in 🇭🇰 #nocoldwar #wearamaskwearamaskwearamask https://t.co/uLi3JUsNAQ
QuizTime @QuizTimeUK
51K Followers 9K Following QuizTimeUK! Here you’ll find all my latest quizzes and a link to my Etsy shop, where you can buy them. Perfect for pub quizzes! Christmas quizzes also available
Dr Sally Witcher @SalWitcher
5K Followers 2K Following Former Chair @TheSCoSS, Chair of UK Govt's Disability Employment Advisory Committee, DWP senior official. Founder @InclusiveNew. Disabled, #Masketeer
Dr. Roger Hugh @DrRogerHugh
275 Followers 85 Following Bartonella from ticks, cats, and fleas, is a leading cause of disease but goes misdiagnosed and treated as the symptoms they cause instead of the infection.
Sourabh Senthiya @SenthiyaSourabh
271 Followers 3K Following Global perspective: democracy advocate, freedom to pursue love, happiness; animal lover; Sports enthusiast.
sensoryoverload.info @s3ns0ry0verl0ad
6K Followers 7K Following practical support for sensitive minds #adhd #autism #audhd #neurodiversity #anxiety #depression #selfcare #psychology #education #fidgets #memetherapy
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GDTRFB @Downwthesicness
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sensoryoverload.info @sens0ryoverl0ad
23K Followers 23K Following practical support for sensitive minds #psychology #anxiety #adhd #autism #asd #audhd #depression #fidgets #mentalhealth #neurodiversity #education #memetherapy
Emma GL 🐙🦋 @GoreLloyd
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Yswarcul @Yswarcul734
39 Followers 1K Following
parent of pugs @senmum05
875 Followers 2K Following ADHDer EDSer DV survivor living my best life mummy to children all ASD ADHD
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Frecauj @Frecauj759
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Jannicke Mikkelsen @astro_jannnicke
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meryl griffith @meryl_mg
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Barbara Davis @OhKaylee
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John caudwell @JohnDcaudwell2
31 Followers 329 Following Entrepreneur. Philanthropist.📞 Founder of Phones4U.📖 Pain & Money.💜 #GivingPledge: @CaudwellKids @CaudwellYouth.👷♂️ Property developer: @1Mayfair.
Ireland's Trees & Myt... @Tree_Folklore
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Rashad Gutmann @RashadG91887
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Melissa Bell @FLLymeDisease
2K Followers 1K Following FL attorney, mom of 3, turned medical freedom advocate President FL Lyme Disease Assoc Exec Bd @ProjectLyme Founder @lymechallenge Opinions my own 🧡💙🐊
God first 🙏 🙌 �... @sowe_isato89685
141 Followers 5K Following Don't judge according to appearances.
Rocket Man @Rocket_3muski
645 Followers 6K Following
Timothy Dinan @TedDinan
5K Followers 400 Following Emeritus Professor of Psychiatry, University College P.I. Microbiome Ireland: Ranked as world no. 1 researcher on microbiota by Expertscape 2019
carol Shaykin Jeffrie... @Carolshaygru
614 Followers 7K Following single mom 👩/ animal lover 🐶/ coffee fanatic ☕️/christain ✝️/ patriot 🇺🇸/Lottery winner 🏆
Gadget @Gadget440
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Lil Mamoos @lilmamoos
370 Followers 2K Following Working mum, loves science, anti-Covid, anti-idiot.
Oqooiepau @Oqooiepau3424
35 Followers 690 Following
Dr Zoe Picton-Howell,... @PictonZoe
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Hope @hopestardust20
2K Followers 3K Following Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection. B12 deficiency
Jane Bird @LindaLaHughes9
1K Followers 1K Following Raising awareness of the paediatric conditions PANS and PANDAS
Dr Claire Taylor @drclairetaylor
65K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|long Covid clinic🏴Views my own
PANS PANDAS UK @PANSPANDASUK
4K Followers 846 Following UK charity raising awareness and understanding of post-infectious neuropsychiatric disorders. We support families and campaign for better care.
Binita Kane @BinitaKane
30K Followers 4K Following #LongCovid interested Lung Doctor |[email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Notes to my boy ✉�... @notestomyboy
6K Followers 4K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
Sarah O'Connell @SarahOC_MECFS
4K Followers 5K Following #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Joanne Holloway @CharmingAngelCo
906 Followers 1K Following Mom 2 girl with #Pans.Took 2.5 years & huge battle 2 get 2 diagnosis!Delays are damaging. Goal 2 raise awareness 2 end present suffering & stop future suffering
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
NB @np9000
861 Followers 1K Following Tick-Borne Infections & Pans/Pandas in the UK #Pans #Pandas #Lyme #Bartonella #Babesia #TickBorneInfections #MCAS #POTS #ME . Views my own. https://t.co/hk1rb80CzQ
Dr Elisa Perego @elisaperego78
35K Followers 1K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
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15K Followers 66 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Paula Scott @PaulaScottUK
1K Followers 2K Following As an experienced Virtual Assistant with over 30 years of expertise, I specialise in providing efficient, reliable and confidential administrative support.
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
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809 Followers 909 Following
Alisontomyradioooo @arisonsned
3K Followers 5K Following @arisonsned.bsky.social Cat and Dog botherer. YP counsellor retired. Want my bike and my health back 🩵
John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
ADHD Survival Guide @DopaminePlsMe
6K Followers 2K Following ADHD self-care, mindfulness & productivity—with extra humor & zero judgment (because we forgot how to judge anyway). 🧠🚀 #ADHD
Unfelt Sorrow 🕊�... @unfeltsorrow
2K Followers 6K Following 🇬🇧 living in 🇭🇰 #nocoldwar #wearamaskwearamaskwearamask https://t.co/uLi3JUsNAQ
cosmos canary @cosmoscanary
212 Followers 309 Following Strange bird drawn to shiny things. Therapist. Fandom-dweller. Following the science. Trying to find my own meaning in the inherent meaninglessness.
Dr Zoe Harcombe, PhD @zoeharcombe
220K Followers 755 Following I was interested in diet & health, and sometimes Wales & rugby. I still am, but I’m more interested in WTF is happening to the world!
Grizzlegutweed the Be... @Grizzlegutweed1
5K Followers 298 Following 700 year old ursine. The last English bear and last living member of the Royal menagerie. Resides as a crown pensioner in the Tower London.
RonaldwDavis @Ronaldw_Davis
662 Followers 22 Following
sensoryoverload.info @s3ns0ry0verl0ad
6K Followers 7K Following practical support for sensitive minds #adhd #autism #audhd #neurodiversity #anxiety #depression #selfcare #psychology #education #fidgets #memetherapy
Daniel Missailidis, P... @DanMissailidis
4K Followers 625 Following Researching the cell biology of PD, ME/CFS & Long COVID at La Trobe Uni in Melbourne, Aus. Papers: https://t.co/JMi5U6cBLI
Svilena @NeoDoc11
1K Followers 373 Following Consultant Neonatologist with a law degree. Interest in patient safety. CQC specialist adviser. Ex member of the Ockenden team. Bookworm. Opinions my own.
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1K Followers 2K Following CEO @CODA_Research. Working to accelerate progress for patients living w/ complex multisystem disorders. Opinions are my own.
Rachel_LC @LongCovidRehab
139 Followers 97 Following long covid and ME/CFS June 22. Previous rehabilitation consultant. funcap27 2.2
xxx ROSE xxx @TanteRos
2K Followers 2K Following Not much energy/too many migraines. Nature keeps me going #Photography on https://t.co/cLDGdsrXY1… #MillionsMissing
Carrie Kellenberger -... @globetrotteri
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New Scientist @newscientist
4.4M Followers 280 Following The best place to find out what’s new in science – and why it matters.
Jay McHale @mchale_in_flow
14K Followers 14 Following Former investment banker turned mindset architect. Combining ancient wisdom + modern science into actionable frameworks anyone can use. Founder @FlowVeda
J. Evelyn @EvitorialPage
1K Followers 5K Following I live in a house • #TBI #MECFS #hEDS • former social impact/comms/tech/global health • she/hers
Institute of Genetics... @EdinUni_IGC
4K Followers 1K Following At the Institute of Genetics and Cancer our mission is to improve the lives of people living with genetic disease and cancer through research.
KCIMESG @KCIMESG
258 Followers 184 Following Kirklees and Calderdale Independent ME Support Group. We are a local ME/CFS Support group covering Kirklees and Calderdale as well as surrounding areas.
@TheRealMcCoy aka Meg... @RipperMD41
2K Followers 2K Following Chronically ill. Until we land on one, Instagram: @/RipperMD41, Mastodon: @[email protected] T2: same as here @rippermd41.bsky.social
Aravind Palraj @Rheumat_Aravind
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sensoryoverload.info @sens0ryoverl0ad
23K Followers 23K Following practical support for sensitive minds #psychology #anxiety #adhd #autism #asd #audhd #depression #fidgets #mentalhealth #neurodiversity #education #memetherapy
Craig Brockie @craigbrockie
231K Followers 171 Following I spent 3 decades and 7 figures researching health so you don't have to | Best-selling author & ULTIMATE brand founder | Follow to look & feel 10 years younger
How To Academy @howtoacademy
19K Followers 9K Following Live and online events with the world's most accomplished thinkers. Subscribe to How To+ for all-inclusive access to our talks. 🎧Podcast available on Spotify.
Finn, PhD @Finn000000000
1K Followers 660 Following 👨🏻🔬 Ex 🚴♂️ 🧗🏻♂️ 🏃🏻♂️ Vax-injured/ME 🧪 🧫 🧬 No help from dishonest and incompetent NHS Drs.
The Jackson Laborator... @jacksonlab
21K Followers 7K Following Est. 1929, JAX is a non-profit scientific research institute specializing in 🧬 genetics, 🧮 genomics & 🐁 mouse models of disease. https://t.co/SrWBTGUJ00
Gary Fuller @DrGaryFuller
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Clean Air for Kids @CleanAir4KidsUK
740 Followers 740 Following Campaign to bring better air quality to the children of Bristol and beyond! Run by @erbrooker and others.
parent of pugs @senmum05
875 Followers 2K Following ADHDer EDSer DV survivor living my best life mummy to children all ASD ADHD
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Tessa Munt MP 🔸 @tessamunt
7K Followers 1K Following @LibDems MP for Wells & Mendip Hills, passionate to serve my home area with energy, experience and deep care for people. [email protected]
Elly Chapple Founder ... @elly_chapple
11K Followers 6K Following We will #FlipTheNarrative© 💜 Everyone needs a #seatatthetable #human - a label we all share | TEDx speaker #deaf https://t.co/9hNKpphnYE
Brian Grimm, M.D. @DrGrimmMD
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950 Followers 1K Following A physician for the end of the world as we know it.
Fox Under The Moon �... @Fox_Under_The
437 Followers 673 Following Hello! I'm Stacey, UK author and illustrator of 'Fox Under The Moon', a collection of words and illustrations, designed to encourage positivity and self-love.
chantzy @chantz_y
16K Followers 1K Following Science communicator & writer 🧬✍🏼 epidemiology grad student & activist. croissant maker (views mine)
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417K Followers 955 Following Re-elected as Labour MP for Hackney North & Stoke Newington. https://t.co/B33IyD9QZA
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Prof. Carl Sagan @ProfCarlSagan
40K Followers 0 Following Science is more than a body of knowledge. It is a way of thinking. Tweet About Science...
Andrea B @bad_berrie
756 Followers 995 Following Curiosity Finds the Cure | Patient Empowerment | Without Courage - Talent Is Waste | V - Injured 08
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4K Followers 950 Following Dual PhD: Complex Systems & Neuroscience. Postdoc @ the University of Vermont. Writes at: https://t.co/AIpNhy7Jef. Connoisseur of collapse phenomena.
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neil orpen @neilorpen
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1K Followers 5K Following Biomedical Scientist... Transfusion Science, Haematology, Biochemistry, Microbiology. CFS patient. RRV 🦟 all things ME/CFS & Whole Genome Sequencing
Jonathan Haidt @JonHaidt
446K Followers 2K Following Social psychologist at NYU-Stern, working to roll back the phone-based childhood. Please visit https://t.co/ZjBuXdDr8I & https://t.co/7aVAmOTlnl
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6K Followers 4 Following Online Functional Medicine Practitioner and Podcast Host
liminal @Liminal1988
237K Followers 8K Following Here we grow our minds to create great results, we just need the motivation to keep going. come with me. Telegram channel: https://t.co/TDsvg4JBIy