Associazione Genitori Pans Pandas Bge @pans_pandas
L'acronimo PANDAS (in inglese Pediatric Autoimmune Neuropsychiatric Disorders Associated with a group A beta-hemolytic streptococcal infection) Joined October 2020-
Tweets55
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Followers64
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Following209
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“Le parole sono fatte di sabbia, ma alcune storie devono restare. Nicole, 14 anni, lotta contro la sindrome PANDAS e scrive a @elonmusk per far conoscere questa malattia spesso negata. #PANDAS #PANS #RareDiseaseDay” tg24.sky.it/salute-e-benes…
Questo reel creato da due studenti della 3ª B dell'Istituto Comprensivo “Don Diana” di Casal di Principe, racconta la storia di un ragazzo, affetto da PANDAS. Il reel partecipa al concorso “Il volo di Pegaso GOES DIGITAL 2025”.
dona.1caffe.org dona un caffé all’associazione genitori pans pandas bge ☕️
30 Novembre 2024 presso Palazzo Kursaal di Giulianova (Abruzzo) convegno sulla sindrome Pans-Pandas “Se la Ri-Conosci la Curi” pandasbge.it
Come seguire i lavori del convegno? ✅ saranno trasmessi in diretta streaming al link webtv.senato.it e sul canale YouTube del Senato Italiano youtube.com/user/Senatolta…
I lavori del convegno saranno trasmessi in diretta streaming al link webtv.senato.it e sul canale YouTube del Senato Italiano youtube.com/user/Senatolta…
Contribuisci a sensibilizzare le persone sulle sindromi pandas pans!! Partecipa alla campagna globale #LightUp4PANS in onore del 9 ottobre, “Giornata mondiale della consapevolezza di PANS PANDAS” aggiungendo questa foto come tua immagine del profilo Facebook! 💚
il 19 Maggio si terrà il convegno organizzato per l'Associazione Genitori Pans Pandas Bge in cui, un pool di esperti, porterà la propria esperienza sulle neuroinfiammazioni di origine autoimmune definite PANS PANDAS - teoria, diagnostica e casi clinici sul microbiota intestinale
Auguri a tutte le famiglie... Che sia per tutti una vera festa di rinascita!!
Rebecca W1986 @W1986Rebecca
512 Followers 2K Following Mum. English Teacher. Lang and Lit Content Creator. MA in Education. Teach First Ambassador. PansPandas advocate.
Susannah H @firebug70
2K Followers 5K Following Mum. Carer for my son. Former English teacher. Researching bacterial &viral infection &symptoms #Lyme #ME #LongCovid #Pandas #Pans #Bartonella
PANDA Mama @PandaMama2024
516 Followers 7K Following Parent raising awareness of #PANDAS #PANS ~ #BrainInflammation in children triggered by #infection / #virus. #NoMoreLostChildren. #ChangeIsComing
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Cheri @mamahaugen
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Obsessively OCD @obsessivelyocd
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Long Covid Advocacy I... @LCAIreland
3K Followers 4K Following The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patients
𝐏𝐚𝐮𝐥𝐚�... @flower_of_June
663 Followers 4K Following “𝐒𝐨𝐦𝐞𝐝𝐚𝐲 𝐈 𝐰𝐢𝐥𝐥 𝐰𝐫𝐢𝐭𝐞 𝐩𝐨𝐞𝐦𝐬 𝐚𝐛𝐨𝐮𝐭 𝐭𝐡𝐢𝐬. 𝐁𝐮𝐭 𝐟𝐢𝐫𝐬𝐭 𝐈 𝐦𝐮𝐬𝐭 𝐬𝐮𝐫𝐯𝐢𝐯𝐞 𝐢𝐭.”🪽 ☾ ✧ ❀ ✧ ☽
Manuela @manuela_fa82771
0 Followers 127 Following
Sarah O'Connell @SarahOC_MECFS
4K Followers 5K Following #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
Alejandra Cooling @CoolingCooli2
13 Followers 67 Following
Emily Jackson @PinotYouWantTo
534 Followers 513 Following PANS PANDAS awareness advocate after my daughter has suffered horrifically for over a decade. Catch up NHS it’s not rare, just rarely diagnosed 💔
Francesco @Frances05521165
13 Followers 310 Following
Francesco Fuggetta @FuggettaF
1K Followers 3K Following Giornalista Professionista e Addetto Stampa. “So di non sapere, ma un vero giornalista spiega benissimo ciò che non sa” (Socrate & Leo Longanesi)
Mrs M @ShonaMorrison17
313 Followers 821 Following
#bemyvoice @mummytoboyz
3K Followers 2K Following Working P/T, sleep deprived mum to two lively PANS boys. Lover of outdoor play, the beach and a good pear cider. Life is crazy but never dull!
Jane Bird @LindaLaHughes9
1K Followers 1K Following Raising awareness of the paediatric conditions PANS and PANDAS
Amanda Connon @connon_amanda
260 Followers 357 Following Mother of a child with PANDAS, trying to spread the word of this awful illness 💔
angmort @dmddeb1
59 Followers 653 Following
battalionsurgeon @battalionsurge1
172 Followers 425 Following Former Battalion Surgeon, family medicine doctor, vaccine injured daughter, husband, dad, “old” time doc, big Miami Dolphin fan! posts are not medical advice
Hope @hopestardust20
2K Followers 3K Following Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection. B12 deficiency
Nesrin Shaheen @nesrinshaheen
868 Followers 1K Following Founding President/Presidente fondatrice Anti-NMDA Receptor Encephalitis Foundation,Inc. Reader, Writer, traveller and lover of Elly and Lulu(my cats)
faye garwood @FayeGarwood
8 Followers 17 Following
Sarah Hughes @SHughesDr
810 Followers 903 Following
NB @np9000
863 Followers 1K Following Tick-Borne Infections & Pans/Pandas in the UK #Pans #Pandas #Lyme #Bartonella #Babesia #TickBorneInfections #MCAS #POTS #ME . Views my own. https://t.co/hk1rb80CzQ
A. Müller @A_Mueller_12
305 Followers 690 Following Background in Business, Psychology & Consulting. Special interests in #Neuroimmunology #Neuropsychology #Neuroinflammation and Pans/Pandas. Views my own.
SANE Sweden @SaneSweden
119 Followers 646 Following A non-profit organization working with information and support in PANS / PANDAS and autoimmune encephalitis.
laura aylott @aylott_laura
535 Followers 1K Following Just a mum of 3 boys ! volunteer supporter of families & parents, interest in child development & trying to raise awareness of PANS PANDAS
Luca Rallo @lucarallo
41K Followers 41K Following 💡 Giornalista & Blogger 📲 https://t.co/sFs6kexV4V ❤️ Papà Antinea & Iside 💣 CEO @Brandtopia_it 🚀 Digital PR Strategist 📚 @Brandtopia_Ed 📧 [email protected]
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kelly bell @Kellybell2015
25 Followers 203 Following
Agalliu Lab @AgalliuLab
741 Followers 437 Following Laboratory of Dritan Agalliu, Ph.D. neuroimmunology / vascular biology / blood-brain barrier biology / neuroscience - account run by lab members
Katherine Waldock �... @stay_katherine
158 Followers 431 Following Proud ADHD and Autism mum to 3 small ones! aspiring writer, children’s nurse! and advocate for improved mental health services for all. (all views are my own)
Jane Johnston @Johnston100Jane
40 Followers 244 Following PANS PANDAS Awareness #Pans #Pandas #Panspandashour
PANS PANDAS UK @PANSPANDASUK
4K Followers 844 Following UK charity raising awareness and understanding of post-infectious neuropsychiatric disorders. We support families and campaign for better care.
Seedhouse @ISeedhouse
445 Followers 1K Following Spreading awareness of PANDAS Paediatric Autoimmune Neuropsychiatric Disorders Associated with Strep infections, especially in children with Autism.
ManfullPhD @ManfullPhD
211 Followers 301 Following Happy psychologist writing about wine & stories of people who make it...until I was thrust into writing about an autoimmune encephalitis disorder called PANDAS.
Sharon @Sharon45983259
506 Followers 1K Following
Ashley Roberts @AshleyR89677089
240 Followers 229 Following Consultant, Mother, friend, activist DEVOTED to bringing awareness to Pans/Pandas and the urgent care children and families need. Thankfully my daughter LIVED!!
Notes to my boy ✉�... @notestomyboy
6K Followers 4K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
Diane P @NurseDiane2020
2K Followers 2K Following Multi National Award winning Nurse, social worker & Therapist. Experienced Director. V/ Chair MOD VAPC-E, founder of NHS veterans MH services & HSJ Awards Judge
TinaC @TinaCoope
1K Followers 2K Following Education Lead for PANS PANDAS UK, former SEND teacher, Nurture, trauma informed, compassionate, adaptive approaches. All tweets are my own views.
PANDA Mama @PandaMama2024
516 Followers 7K Following Parent raising awareness of #PANDAS #PANS ~ #BrainInflammation in children triggered by #infection / #virus. #NoMoreLostChildren. #ChangeIsComing
Volodymyr Zelenskyy /... @ZelenskyyUa
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Francesco Guarnera @fguarnera
144 Followers 591 Following
Alestear Cromwell -an... @AlestearAshe
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Marianna Bonavolontà @marianna_bonav
40 Followers 68 Following Giornalista, autrice, Chic Advisor owner, PR #mariannabonavolonta #chicadvisor
Valerio Novelli @novelli5stelle
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Luca Rallo @lucarallo
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Autism care and share @autcareandshare
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