Shelly Hoover @shellyhoover
Writer, Veteran, & ALS Warrior. Timeless Sisters available on Amazon now! #FunFact - I type with my eyes. #WritingCommunity #ReadingCommunity #Gratitude shellyhoover.com North Carolina, USA Joined June 2009-
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Today the R1 Crew remembers @becky_mourey Becky was an incredible advocate, loving wife and mother, and loyal friend to all. She was a valued member of our team and kept us moving forward. youtu.be/8po1sqItJ9s?si…
Juan is a Veteran, husband, and father, and he is living with ALS. The Elizabeth Dole Home Care Act will improve access to critical care for Veterans like Juan. Share Juan's story with your legislators and encourage them to support the Elizabeth Dole Act: iamals.org/action/juans-s…
Veterans are more than twice as likely to be diagnosed with ALS than civilians. This Veterans Day, let's make sure Veterans and their loved ones have the support they need by helping to pass the Justice for ALS Veterans Act. Contact your elected officials: iamals.org/action/justice…
Yes!
Great podcast by two amazing ALS caregivers. Check it out! rss.com/podcasts/als-c…
. @SenThomTillis, thank you for being a part of the 118th House, which included $75 million in funding for ACT for ALS expanded access programs (EAP). This will have a real impact on the ALS community and research. #ENDALS
. @SenTedBuddNC, thank you for being a part of the 118th House, which included $75 million in funding for ACT for ALS expanded access programs (EAP). This will have a real impact on the ALS community and research. #ENDALS
. @RepWileyNickel, thank you for being a part of the 118th House, which included $75 million in funding for ACT for ALS expanded access programs (EAP). This will have a real impact on the ALS community and research. #ENDALS
Truth👇
I'm dead. alsthewritestuff.com/post/dead-as-a…
This is how we change ALS Land👇
This.
We must.
Senate Bill #1590,Justice for ALS Veterans Act,is moving.Will @GrassleyPress & @ChuckGrassley be an ALS champion for his constituents and sign on to this piece of vital legislation?This needs to pass because the #ALSClock is relentless & time isn't on their side.
Check it out!
Day 29 of ALS Awareness month: Memorial day edition! Two days left- what haven’t I covered?? #als #alsawarenessmonth #lougehrigsdisease #veteran #memorialday #service #va #veteransaffairs #serviceconnecteddisability #alsveteran
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Mandi @RunningMama0522
2K Followers 1K Following
ALS TX DAD @AlsDads
2K Followers 893 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Shah Minokadeh, M.D. @MinoShah
4K Followers 734 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
I’m Dying To Tell Y.. @LorrisPodcast
1K Followers 870 Following Midwest Momma & Wife. ALS Warrior for 20 years. Host of I’m Dying To Tell You Podcast. Living Faith Over Fear. Instagram: imdyingtotellyoupodcast
Christine Gilmore RN @KickenALSAss
2K Followers 2K Following ALS Bad-Ass. Registered Nurse. MHA . Married. ♿️. DM Scammers will be reported.
Deb Paust @PaustDeb
1K Followers 724 Following Blessed mom, lover of snow, I AM ALS Organizing Associate, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
The Ethical Assassin,.. @WFerraiolo7367
1K Followers 5K Following Philosophy Professor, Author, Bullsh*t Detector, Anti-Woke, Pro-Life, Believer in the God of Abraham, Moral Realist, UFC Fan, Stoic, Husband, Grandfather, FJB
IveyDay @IveyDay63484555
17 Followers 233 Following
Julie Suarez @epjjule
7 Followers 189 Following Wife,corgi mom,stepmother,aunt,baby sister,cousin and friend determined to help beat #ALS.Army brat! Texan (kinda).#ALSWarrior #EPSTRONG #GEAUXTIGERS
alsHATER @HaterAlss
29 Followers 201 Following
Andy Greenspon @andyman344
328 Followers 2K Following Researcher in quantum physics. Interests in science, policy, philosophy, and anything that can amuse to no end.
DeepaK Kumar @Deepak13900
15 Followers 141 Following A Father & Husband..... symptoms onset since 2021 waiting for my Dx
volodymyrborysko @Abrams52884846
13 Followers 241 Following Я український воїн, ми захищаємо наших матерів, дружин, дітей і весь світ свободи💛💙🙏🇺🇦
David Agbonika @Agbonika999
83 Followers 568 Following "Experienced ebook cover designer with a passion for visual storytelling. Specializing in creating captivating covers that entice readers and reflect the essenc
zocejax85c7mn @jax85c71486ll1
5 Followers 351 Following Good news. Earn 500-5,000usdc by analyzing BTC contracts professionally Telegram https://t.co/ZgT9sKCMWx
B H Y @bndralshhry12
16 Followers 2K Following
martinez alberto @martine61286710
34 Followers 1K Following
Dan Tate @dantate2
624 Followers 869 Following FTP OG, I Am ALS Board, fighting ALS, “Democratic Party” not “Democrat Party”, words matter otherwise why use them.
Lynette Ferreira @LynetteFerreira
2K Followers 2K Following
Alberta_Gal_52 @Jackson90745838
48 Followers 45 Following This world is going to sh!t it seems. Trudeau must definitely go - the sooner the better!!
Liaelor @liaelor
20 Followers 206 Following
santosh waghmare @santoshw207
3 Followers 66 Following
Karon's Book Promotio.. @karonsbooks
8K Followers 10K Following Empowering #authors & #readers.📚💖 Love art, nature, coffee.🌊☕ Avid reader. Author.✍ #Writing #Amwriting #Reading #Book #WritingCommunity #WritersLift #Art
echo Huang @echoHuang992367
12 Followers 281 Following
Bran Di @BranDi81406611
3 Followers 33 Following
KJ Zagabria @kjzagabria
1K Followers 4K Following Author of children's books, teacher, wife, mother, animal parent, daughter, friend and lover of books, movies, tea, and chocolate. xo
Shoteau @Shoteau179732
16 Followers 893 Following
Sotasik @Sotasik284779
59 Followers 1K Following I live alone now and enjoy business, traveling, shopping, food and music. I have a calm personality and I hope we can be friends.
Written Well Self-Pub.. @writtenwellcom
31 Followers 283 Following Traditional publishing is like playing the lottery - it's a fun dream, but you aren't going to win. Learn to self-publish and win! https://t.co/NefZydZe5W
Matthew Thomson Autho.. @AuthorThomson
3K Followers 5K Following Award Winning Author of the Guardian Series books and the Robert Mason Murder Mystery books. All My Links: https://t.co/I2HgUO8k1A
israel schubert @Ilurs2021
1 Followers 185 Following
Holley Broughton @holleybb
536 Followers 3K Following “You play the game in front of you.”-Nick Saban.#livingwithALS
Pearly Goldermann @PearlGolderman
70 Followers 5K Following
Samdra nichole @NicholeSam64260
100 Followers 468 Following
Chris Scandaglia @ChrisScandaglia
943 Followers 5K Following https://t.co/VTII0I4qsa President, in memory my grandfather where I have worked w AROD&CANO other NYY raised $10310 ALS widow, $4612 ALS widower & $2505 for ALS widow.
Muhammad Umair @MuhammadUm77184
55 Followers 184 Following
Laboni Akter Neha @Laboniakterneha
41 Followers 206 Following 🎨 Professional Graphic Designer & T-Shirt Design Expert 🌟 Emai l: [email protected] WhatsApp : +8801750090740 #tshirt #tshirtdesign #tshirtdesigner
BookSwot @BubbleBook3
2K Followers 4K Following Online #Book #Promotion. We promote #books #ebooks #bestsellers & #authors. Book Marketing. Check link. #writers #indieauthors #amwriting
Roy Davis @roydavis630
16 Followers 241 Following
Rae Radford @RaeRadford__
34K Followers 19K Following Social Media Influencer @RaeRadford_ #bookreviewer Currently pulling my hair out trying to finish my first crime novel ⚰️🏡🏎️ 🕵🏼♀️ Send coffee ☕️ #NearMiss
Jordana Narin @JordanaSophie
1K Followers 4K Following I'm just a girl standing in front of a boy asking him to use the Oxford comma. (once: @columbia @princetoninasia @westwingwriters @girlswritenow @nygov et al)
Lori Heller @HellerLori2018
63 Followers 189 Following “The thing I hated the most has become my purpose.” ALS Widow and advocate. Fighting for a cure.
Nate Methot @a_life_derailed
2K Followers 777 Following Author of "A Life Derailed: My Journey with ALS", a memoir 39 y/o living with #ALS since 2011. #EndALS #empathy #awareness Memoir and blog at https://t.co/lSqWxLqUXm
Alon Ben-Noon @NoonAlon
1K Followers 3K Following Leading NeuroSense Therapeutics (Nasdaq: $NRSN), a Clinical stage Biotech company, accelerating therapies for ALS and Neurodegenerative diseases.
Lennie Zettler @ZettlLenn
67 Followers 5K Following
Francisco jose Ribago.. @RibagordaAvila
32 Followers 307 Following En proceso…. preparándome mentalmente!
Shelley Baumgartner @6baums
87 Followers 276 Following Army Veteran, Nurse Practitioner, Wife, Mother of 4, Patriot!
Shelly Onaindia @shelly_onaindia
5 Followers 58 Following
Fransisca Will @fransis_wi
63 Followers 5K Following
R. M. McDermott @RMMcDermott1
340 Followers 608 Following Fantasy Author. Multifaceted Writer. Blogger. Story Lover. Embracing the struggles of mental health, traumatic brain injury, and life with resilience.
Lyn Alden @LynAldanCantect
142 Followers 1K Following Founder of Lyn Alden Investment Strategy. Fundamental investing with a global macro overlay. Finance/Engineering blended background.
Lyla Baish @LBaish81196
97 Followers 5K Following
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Sarah Nauser @SarahNauser
12K Followers 517 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirl
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Mandi @RunningMama0522
2K Followers 1K Following
ALS TX DAD @AlsDads
2K Followers 893 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Shah Minokadeh, M.D. @MinoShah
4K Followers 734 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
I’m Dying To Tell Y.. @LorrisPodcast
1K Followers 870 Following Midwest Momma & Wife. ALS Warrior for 20 years. Host of I’m Dying To Tell You Podcast. Living Faith Over Fear. Instagram: imdyingtotellyoupodcast
Christine Gilmore RN @KickenALSAss
2K Followers 2K Following ALS Bad-Ass. Registered Nurse. MHA . Married. ♿️. DM Scammers will be reported.
Deb Paust @PaustDeb
1K Followers 724 Following Blessed mom, lover of snow, I AM ALS Organizing Associate, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
Troy Fields @Troy_W_Fields
674 Followers 238 Following Husband and father of 4 from PR #LIVINGwithALS in Tampa FL, Papi to 3 grandchildren and an ALS volunteer and advocate that bleeds USF green and gold.
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
Nate Methot @a_life_derailed
2K Followers 777 Following Author of "A Life Derailed: My Journey with ALS", a memoir 39 y/o living with #ALS since 2011. #EndALS #empathy #awareness Memoir and blog at https://t.co/lSqWxLqUXm
Merit cudkowicz @MeritCudkowicz
1K Followers 875 Following
Betty’s Brigade Fou.. @No_More_ALS
343 Followers 530 Following We Are… the Betty’s Brigade Foundation ________ We Are… Fighting ALS Together _________________ - to raise ALS awareness & funding
Matthew Bellina @BellinaMatthew
82 Followers 21 Following 39 year old husband and father of three. Former Naval Aviator living with ALS
Dr. Stacy Lewin @FarberStacy
473 Followers 438 Following Wife to a loving husband, Mom to 2 awesome young men, Mom to one adorable doodle fur baby, Anesthesiologist and a lucky daughter, sister, & friend #ALS Warrior
VA Research @VAResearch
6K Followers 697 Following For 99 years, #VAResearch has been improving the lives of Veterans and all Americans through health care discovery and innovation. Our X Policy: https://t.co/fIkAFLGdUp
VHA Under Secretary D.. @USHVHA
3K Followers 36 Following Physician, Health Care Leader, Proud Father. Tweets before 8/1/22 from previous VHA execs. If you're in crisis, dial 988 & press 1. https://t.co/SzMtiG1SvN
Deb Bellina @BellinaDeb
98 Followers 152 Following Lean Six Sigma Black Belt. Matt’s mom, advocating for people living with ALS today and people who will be diagnosed tomorrow, and the next day, and the next
Racing for ALS @racing_als
818 Followers 636 Following An amazing group racing to make a difference... Praying for a cure!! 501c3 - Over $1.5 Million raised!! Donations & Merch via our website.
Congresswoman Julia B.. @RepBrownley
22K Followers 1K Following Fighting #ForThePeople of California's 26th Congressional District
Sarah Parton (she/her.. @sarahkarpar
1K Followers 940 Following A very proud Mom and Gigi. Married to the love of my life. Living with #ALS C9orf72. GenX, liberal AF, rock and roll is boss. Football is my favorite season.
National Academies @theNASEM
94K Followers 2K Following Non-partisan. Non-profit. Evidence-based advice on pressing issues from the official account of the National Academies of Sciences, Engineering, and Medicine.
The Scott-Morgan Foun.. @DrScottMorgan
14K Followers 906 Following At our Core, The Scott-Morgan foundation has an infectious belief in technology. Not just that it can extend people’s lives, but that it can give people a life!
LaVonne Roberts @LaVonneRoberts
4K Followers 2K Following Health, Tech & Science Journalist. Forbes 30 Under 30 Tech Reporter. Trustee Scott-Morgan Foundation. ALS Advocate.
Andrew Morgan @AndrewJaffa834
18 Followers 46 Following
Phil Rosenthal @PhilRosenthal
105K Followers 424 Following ‘Somebody Feed Phil’ Season 6 Now Streaming.... Creator: Somebody Feed Phil-Netflix, Everybody Loves Raymond, I'll Have What Phil's Having, Naked Lunch Podcast
Amber Strong TV @AmberCStrong
2K Followers 2K Following National Correspondent @scrippsnews Faith. Family. Culture. Mental Wellness. Hoosier. Somewhere protecting my peace. Tips: [email protected]
Sometimes I Shake @shake_sometimes
245 Followers 466 Following feature-length documentary about life, death, love & jazz 🎥🎶 #endALS #parkinsons #sometimesishakemovie directed by @jared_cal, produced by People People Media
KateMPeters @KateMPeters
18 Followers 36 Following Mom to two sweet boys and wife to an amazing guy. Living with ALS.
Morris R1 Crew @R1_Crew
273 Followers 365 Following Faster & farther🌻 Share Your ALS Clinic Experience:https://t.co/C6jj5wYmQb
S Elling @ellsbelles3
98 Followers 1K Following Girl mama, McCainiac, Arizona is home but I live in DC 🌵 tweets are rare & all mine.
Mitze Klingenberg BSN.. @klink52
500 Followers 608 Following Advocate for people with ALS. BSN, RN. Spent career in psychiatric nursing.
Lyle Ostrow MD PhD @LyleOstrow
691 Followers 1K Following ALS clinician scientist @TempleNeurology @ALSHF. Director, TUHS NM Path Lab & ALS PM Core collab w CDC. Chair, DoD ALS Research Programmatic Panel. Views my own
Ashley Thill, MPH @AshleyRThill
308 Followers 1K Following BD Leader | Population Precision Health | Digital Health | ALS Advocate | Mental+Emotional Health | 👩🏼🌾 | Lifestyle Optimizer | Mind-body-spirit Well-being
Jean C9orf72 @Jeanc9orf72
1K Followers 860 Following C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy
layne oliff @layneo5
62 Followers 154 Following
ALS ONE @alsone_official
943 Followers 634 Following Our world leaders in ALS research & care have united 2 advance critical research towards a cure while improving the qual of life of individuals living w/ALS now
Irene C Aquino @IreneCAquino
70 Followers 141 Following Global Head, Patient & Professional Advocacy @AmylyxPharma.Joining the fight to one day end the suffering caused by neurodegenerative diseases.Views are my own
Rod Malloy @how916ofyou
1K Followers 3K Following Creating films to empower intergenerational healing using my natural strengths: Catalyst, Futurist, Belief, Empathy, Relator, Command and Woo.
Ileana Howard, MD @IleanaHowardMD
714 Followers 338 Following ALS physiatrist, neurorehabilitation @VAPugetSound; AssocProf @UWRehabMed. QI/PS Fellowship PD. Opinions/tweets= my own.
Gretchen Duffy @gretchmarliese
557 Followers 211 Following Musings on motherhood, medicine, missing my mother, and ending ALS ❤️🩹🌻
Ashley Lee @AshL1225
92 Followers 387 Following
Katrina Byrd @BFlounced
65 Followers 79 Following
Your ALS Guide @YourALSguide
385 Followers 64 Following A user-friendly website where people living with ALS, caregivers, and professionals can find educational guides, expert video clips, resources, and more...
Danielle Boyce @DataSciDanielle
584 Followers 1K Following Data scientist/Drug Repurposing, Neurodegen + Epilepsy + ID + Oncology//art lover//patient advocate//mom of 4 / Views strictly my own.
Rep. Wiley Nickel �.. @WileyNickel
50K Followers 725 Following Adeline and Prescott's Dad. Congressman for #NC13. @RollingStone called me anodyne (I had to look it up too). Official Account: @RepWileyNickel 🇺🇸
Shereef Elnahal, MD @ShereefElnahal
22K Followers 2K Following Working to deliver healthcare to Veterans as @USHVHA. Alum @UnivHospNewark CEO @NJDeptofHealth Commissioner @GovMurphy Cabinet, @VAInnovation. Personal account
Maceo Carter @MaceoCarter
931 Followers 553 Following Father, Husband, UNC Tarheels Fan, Sibling, Living with ALS. #MelanatedpALS&cALS
Kathleen Rooney @KathleenPRooney
32 Followers 4 Following
Jim Mourey @JimMourey
379 Followers 240 Following Husband of a strong amazing woman who fought ALS, father of 2 wonderful adult kids and advocate of ALS awareness
Michele Stellato @shellymckenna
1K Followers 540 Following Communicator. A fan of kindness and living in the moment. ALS advocate.
Elizabeth Dole Founda.. @DoleFoundation
33K Followers 24K Following Empowering, supporting, and honoring military and veteran caregivers, our nation’s #hiddenheroes.
Secretary Denis McDon.. @SecVetAffairs
19K Followers 82 Following Secretary of @DeptVetAffairs. Fighting like hell to deliver for Veterans, their families, caregivers, and survivors.People say to wear what makes you feel good...and today, I feel great 😍 Happy Monday, my friends! #alstdi #healinginprogress
Happy 2nd birthday to my favorite child 🥰
Happy Friday!!! Time to advocate for Veterans impacted by ALS with @MommaJillB and @shellyhoover, then settle in for a great conversation during ALS Office Hours. It’s going to be a great day 😍
Thank you for all the check-ins and love. I’m still pretty sore, but getting better each day! I can’t wait to get back to my normal routine of zooms and advocacy!
All checked in and ready for my third spinal fusion. Good thoughts and Netflix recommendations much appreciated 😍
Stella got some happy mail! Thank you to the sweet friend that sent her a Honeybadger of her very own! She loves it 🥰
Today, in a quiet moment, please take time to remember Corey Polen. He was a man who fought to his last breath for dignity and rights for #ALS patients. “Nobody worked harder for ALS patients than Corey.” @alsadvocacy Words so true. 👇 #EndALS fdareporter.com/stories/512449…
She was a force of nature. Her memory keeps us moving forward every day. Thank you, @becky_mourey ❤️
Today the R1 Crew remembers @becky_mourey Becky was an incredible advocate, loving wife and mother, and loyal friend to all. She was a valued member of our team and kept us moving forward. youtu.be/8po1sqItJ9s?si…
Today the R1 Crew remembers @becky_mourey Becky was an incredible advocate, loving wife and mother, and loyal friend to all. She was a valued member of our team and kept us moving forward. youtu.be/8po1sqItJ9s?si…
@Team_Thriving @KRob8753 @farmstronginfo @RunningMama0522 @boaflouncer @teamthriving For years there has been a fairness problem in ALS Land. People of various kinds of privilege seem to get the inside scoop on care, research options. A good clinic system should level-set the information to create a fairer & more effective clin rsch & care environment for all. 3/
So proud of my guy! He goes above and beyond to provide for our family and allow for me to stay home to be with our kids and chase my dreams. You don’t find people with his work ethic and determination often. Global is lucky to have him and so am I ❤️
For those that still believe that #ALS is a disease for “old men” please know that Sarah is bravely fighting her ALS like a badass girl! #EndALS #Mondayvibes 👇🌸
I never expected to be diagnosed with ALS at 29, but I was. After ALS, I never expected to see 35, but I have. Learn to embrace the unexpected even if it is challenging, I do. #ALS #FightLikeAGirl
So the "hot flash" game is real. Big hot flash this morning caused me to vomit for about 2 minutes. #ALS and menopause ! Seriously? I really would like to be regular whelmed for even a day.
I’m claiming it. 2024 is the year of the honeybadger. Happy New Year ❤️ #endALS
WE FINALLY DID IT! After 10 years, I finally made it to Sugarshack HQ and performed songs off my latest album TRENCHES. Thanks to everyone who made this possible, a dream come true! @SugarshackLive xo - love bear youtube.com/watch?v=LBlJq6…
@bsw5020 I refuse to accept the premise that personal attacks and cyberbullying are expected or acceptable in any situation. The "leadership" of some via cheap shots at others is not leadership that will result in faster treatments or cures. We must not allow the meanness and bullying.
Wishing this handsome man a happy 69th birthday today. He’s 13+ years living with ALS. Every day he lives his life with a joyful heart. We count ourselves lucky that we can celebrate him for another spin around the sun. #nottodayALS #endALS
So cool!
Congratulations to Hunter Green ❗ Green has been named to the FCS Freshman All-American Team 🏈 Read more ⤵️ 🔗 | loom.ly/WQzHRSg #GetUpGreeley
Debut novel. No agent. No publisher. No marketing budget. Did my own re-writes and edits, then hired an editor and cover designer to finish it all off. Just hit the 900 unit sold mark, and it is sitting at 4.8 stars with 167 reviews on Amazon. You do not need the…
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