sue robins (she/her) @suerobinsyvr
Senior Partner @birdcomm | Mama Bear | Former Cancer-Haver | Patient Engagement Consultant | suerobins.com Unceded Coast Salish territory Joined September 2010-
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“Psychological support should be offered to parents carers, not just at point of diagnosis, but at any point when a parent carer might be struggling.” This has NEVER been offered to me. Dealing with the system causes us trauma over + over again. There is no “post”-trauma.
“Psychological support should be offered to parents carers, not just at point of diagnosis, but at any point when a parent carer might be struggling.” This has NEVER been offered to me. Dealing with the system causes us trauma over + over again. There is no “post”-trauma.
“Patients and their families are the only ones that really know where the cracks are in our system as they are the ones that deal with the consequences of falling through them.” A strong piece about health care reform. Also co-authoring by @Fobete + @doreen_rabi for the win!
“Patients and their families are the only ones that really know where the cracks are in our system as they are the ones that deal with the consequences of falling through them.” A strong piece about health care reform. Also co-authoring by @Fobete + @doreen_rabi for the win!
An eloquent + powerful thread. A call for compassion + allyship. Please pause in your scrolling to read + reflect on this thread. 💜
An eloquent + powerful thread. A call for compassion + allyship. Please pause in your scrolling to read + reflect on this thread. 💜
If the wealthy were taxed properly. And that money went into affordable housing + UBI instead of pipelines. Then there would be less people living in poverty. This would lessen the pressure on health care. And lifting people out of poverty is the RIGHT THING TO DO.
Great storytelling “…something that AI will never, never, never be able to do.” Angus Fletcher, Opening Plenary. He knows stuff. Didn’t take long for what might be the most controversial statement of the mtg. Told you @ISMPP is exciting! #ISMPPAnnual2024
Brava to @JBBC for her relentless work to platform patient voices on her website. 💐 My commentary about The Wisdom of Nurses is included. Reading this book will help patients understand nurses. With understanding can come compassion for each other. @AmieVarley @saramfung
Brava to @JBBC for her relentless work to platform patient voices on her website. 💐 My commentary about The Wisdom of Nurses is included. Reading this book will help patients understand nurses. With understanding can come compassion for each other. @AmieVarley @saramfung
There’s no trickle-down effect for funding for families of kids with disabilities. New clip from @KidsBrainHealth - me talking about the lack of funding for families + being a reluctant advocate. And the importance of ACTION. youtu.be/Bk7y3FeR5Cs?si…
This diagram can be applied to patient engagement activities. Patient engagement is about belonging. If you truly want ideas + feedback from patients + caregivers, you must create safe spaces for them to share.
Dr. Katharine Smart @KatharineSmart
24K Followers 1K Following Former President @CMA_Docs, Pediatrician, Mom of 2, dx: Excessive Passion Syndrome #EPS, Lover of Change, Seeker, views are my own, she/heralan drummond @alandrummond2
21K Followers 5K Following M.D.,C.M (McGill '78), Rural Physician, Coroner, Emergency Medicine Advocate, Underemployed Sommelier (DipWSET) and Father of Triplets.Dr. Alika Lafontaine .. @AlikaMD
16K Followers 2K Following Immediate past-President @cma_docs. Podcast host, The Healthcare Divide. 🐥s re: tech, equity, culture. Folks who fix things are the future.Rachel Martens ♿️.. @RaeofSunshine79
5K Followers 5K Following Research Knowledge Broker, speaker, knowledge mobilization, cancer, childhood disability, rare disease, spoonie, coffee drinker. Opinions are my own.Penny Daflos @PennyDaflos
23K Followers 2K Following @CTVVancouver journalist & coffee enthusiast. Reporting style: confrontation with a smile. On Mast, Post, etc as @pennydaflos.Mary Fernando MD @MaryFernando_
18K Followers 4K Following Mom, wife,writer and doctor - cares deeply about patient access to care. We are all patients. Born feisty. Writes for @MedicalPost + SleuthSayers.Deb Lefebvre @DebraLefebvre
9K Followers 3K Following Trauma-Informed Award Winning Nurse| Mental Health | Consultant | Speaker | Author https://t.co/f8VAKSj5vy https://t.co/EE8CtLWSiOMaggie Keresteci 🇨.. @MaggieKeresteci
12K Followers 9K Following I care about improving lives of patients & caregivers | Author | Speaker | Advocate | Caregiver | Healthcare Policy | Views are my own, influenced by manyJennifer Heighton @jheighton3
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4K Followers 5K Following (she/her/they) evidence-based policy • social justice • communication • connection • community #vaccinesPLUS #COVIDisAirborne #CleanAir #longCOVIDProtect Our Province .. @Protect_BC
8K Followers 566 Following Healthcare workers, researchers & advocates providing accurate COVID information & supporting evidence-based policies #POPBCJuanita Jackson 🌻#.. @WestcoastBCLife
5K Followers 4K Following Consultant; Former District Principal; Educator; https://t.co/FqZ4pl6HSKDoreen Rabi, M.D. @doreen_rabi
6K Followers 2K Following Diabetes physician/researcher & Mum. Values lived experience & diverse perspectives. Believes in compassion, inclusion & that language matters. She/her/hers.Debra @DebraJ43
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249 Followers 1K Following Manager @cancersociety. Mom to funny Kiki. Wife to superstar teacher @MrBazinet. Lover of ice cream! she/her RTs do not imply endorsement.Dr. René Sotélo🇻.. @Doctorasotelo
323 Followers 1K Following Professor of Urology, @KeckMedUSC | Urological Oncology and Robotics | Love teaching how to prevent and resolve surgical complications| Views my own1776 Nation @Nation1733y6
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42 Followers 519 Following is an organization of local refugee aid workers for inclusives #GBV #disability #WASH #peacebuilding #changemakers #refugee #withrefugee #savelifeMay @CheersTo____
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2 Followers 29 FollowingStefan Wheat, MD @StefanKaleWheat
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164 Followers 2K Following Graduated from Allameh Tabatabai University in Cognitive Psychology Cognitive behavioral therapist روانشناس و درمانگر شناختی رفتاری🌿Kashyyk ❤️ Allies.. @Kashyyk
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2K Followers 5K Following 🇨🇦 Dislike propaganda/disinfo/misinfo. Block antivax, anti-mask, fringe/unacceptable/deplorable/Crypto trolls. I block back. Can be uncivil.Perry Wade @perrywade47
164 Followers 2K Following i am caring,kind,friendly very easy,social,romantic,passionate,smart,intelligent,cool headed,adaptive,have a big heart and i do believe in love,Loyal, TruthfulBCCHR ResDev @grantsfacilitat
2K Followers 1K Following Research & Technology Development (est 2003), BCCH Research Institute | UBC | PHSA. We focus on science. tweeter DM | she/her/dr.JonMcGavock @JonMcGavock
2K Followers 2K Following Proud member of DREAM Theme. Children's Hospital Research Institute of Manitoba. Runner and cyclist.Byron Hansen @MatteusHen75480
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1K Followers 669 Following Inclusive (powered by Research Grid) is a complete solution for community engagement.Jynxx @JynxxDesigns
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183 Followers 569 Following “The true measure of any society can be found in how it treats its most vulnerable members” Properly fund #CDB for #PWDDJ🇨🇦🇮🇹 @domj2924
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247 Followers 5K FollowingDr. Jackie Whittaker @jwhittak_physio
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715 Followers 5K Following Ingeniero de materiales industriales. Trabaja duro por Venezuelamarcher jeff @Marchjeff75476
116 Followers 2K Following Official Account for the Office of Ventura County Supervisor Jeff Gorell. Proudly serving the residents of District 2.Dr. Katharine Smart @KatharineSmart
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21K Followers 5K Following M.D.,C.M (McGill '78), Rural Physician, Coroner, Emergency Medicine Advocate, Underemployed Sommelier (DipWSET) and Father of Triplets.Dr. Alika Lafontaine .. @AlikaMD
16K Followers 2K Following Immediate past-President @cma_docs. Podcast host, The Healthcare Divide. 🐥s re: tech, equity, culture. Folks who fix things are the future.Rachel Martens ♿️.. @RaeofSunshine79
5K Followers 5K Following Research Knowledge Broker, speaker, knowledge mobilization, cancer, childhood disability, rare disease, spoonie, coffee drinker. Opinions are my own.Penny Daflos @PennyDaflos
23K Followers 2K Following @CTVVancouver journalist & coffee enthusiast. Reporting style: confrontation with a smile. On Mast, Post, etc as @pennydaflos.Mary Fernando MD @MaryFernando_
18K Followers 4K Following Mom, wife,writer and doctor - cares deeply about patient access to care. We are all patients. Born feisty. Writes for @MedicalPost + SleuthSayers.Deb Lefebvre @DebraLefebvre
9K Followers 3K Following Trauma-Informed Award Winning Nurse| Mental Health | Consultant | Speaker | Author https://t.co/f8VAKSj5vy https://t.co/EE8CtLWSiOMaggie Keresteci 🇨.. @MaggieKeresteci
12K Followers 9K Following I care about improving lives of patients & caregivers | Author | Speaker | Advocate | Caregiver | Healthcare Policy | Views are my own, influenced by manyJennifer Heighton @jheighton3
7K Followers 6K Following Passionate BC teacher, activist. #COVIDisAirborne so ventilate, filtrate, mask up! Physics major. Co-Founder @Protect_BC @SafeSchoolsBC M: @[email protected]Sonia Furstenau @SoniaFurstenau
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13K Followers 867 Following Doctor. Thinker. Dreamer. Writer @HarperCollinsCa: WE ARE ALL PERFECTLY FINE. Contributor @latimes @globeandmail @cbcideas @torontostar etc. Opinions all mine.Tamara Taggart @tamarataggart
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7K Followers 2K Following Dad, ally, and keeper of receipts. Former archivist. #pwME since 2004. #LongCovid since 2020. ❤️≠endorsement. If I disappear, find me at https://t.co/MJ5arPkGLB. 🇨🇦Victoria @vera_tenacious
4K Followers 5K Following (she/her/they) evidence-based policy • social justice • communication • connection • community #vaccinesPLUS #COVIDisAirborne #CleanAir #longCOVIDProtect Our Province .. @Protect_BC
8K Followers 566 Following Healthcare workers, researchers & advocates providing accurate COVID information & supporting evidence-based policies #POPBCJuanita Jackson 🌻#.. @WestcoastBCLife
5K Followers 4K Following Consultant; Former District Principal; Educator; https://t.co/FqZ4pl6HSKLisa Richardson MD @RicharLisa
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6K Followers 2K Following Diabetes physician/researcher & Mum. Values lived experience & diverse perspectives. Believes in compassion, inclusion & that language matters. She/her/hers.Debra @DebraJ43
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774 Followers 563 Following Writer-director of upcoming autobiographical film The Puppet Asylum and subject of the documentary ’Otto Baxter: Not a F***ing Horror Story’.ISMPP @ISMPP
3K Followers 678 Following ISMPP is a not-for-profit society for medical publication and communication professionals, with over 2,500 members worldwide.Andrea D. Furlan MD P.. @adfurlan
6K Followers 2K Following I'm a physician, scientist, teacher, YouTuber and author. I try to help the person that has chronic pain, not just the pain they have (opinions my own)🇨🇦🇧🇷PJ Milani | Visual Te.. @milanicreative
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55K Followers 472 Following An affectionate look at the emotions of work. Art Liz @fosslien, book No Hard Feelings by @fosslien and @molliewest.Lara Pingue @Lara_Pingue
1K Followers 1K Following Programming editor @Globeandmail. I change my profile pic once a decade.Chris Houston @chris_m_h
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2K Followers 4K Following 🎸🪕🎻🎼🎚🎛🎞🎨🥌 Daylight is good at arriving at the right time It's not always gonna be this grey #BringBackMasks #CovidIsAirborneShirley Turnbull @TurnbullShirley
2K Followers 5K Following Voracious appetite for local shopping, books, niagara wines, knitting, drawing, growing orchids, cats, & Tai Chi! #HamOnt, #LockeStreetShelley Shenton @shelleyshenton
2K Followers 5K Following Diversity, politics, planet, I'm everywhere. Founding pres of AV Pride, former free store owner/op.Cheryl Croucher @CherylCroucher
831 Followers 1K Following Cheryl Croucher is an independent broadcast journalist working in various media. Producer of The Human Factor, Innovation Anthology & CKUA's IndigenousPathwaysDeb Hazeldine MBE �.. @DebHazeldine
6K Followers 6K Following Former member Stafford Cure The NHS. Giving Mum a voice. Passionate about #PatientSafety after losing my Mum in the #MidStaffs Disaster. My viewsDestination Vancouver @MyVancouver
137K Followers 807 Following We're the official account for Destination VancouverAbisaac Saraga @SafeCareSM
226 Followers 134 Following Web & Social Media Manager at @patient_safety. My tweets are my own.Dr. Jackie Whittaker @jwhittak_physio
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62K Followers 3K Following Prof @ Harvard Biz. Author #RightKindOfWrong. Per @Thinkers50, I'm the #1 management thinker in the 🌎 (I know, I don't quite believe it myself)North Island Communit.. @NorthIslandCHC
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2K Followers 2K Following Assistant Professor @UTM @UofT. Anthro of Health, Bioarch, MedHist. Life is a musical. She/her. Insta: @plaguedoctortimeSarah Schafer MD MPH @SarahSchaferMD
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5K Followers 234 Following Past Dean, Cumming School of Medicine; Gastroenterologist, Avid photographer in no particular order. Opinions are mine.Belle @theworkofbees
910 Followers 592 Following Catholic Mama. Graphic designer, illustrator and maker of art. Deeply devoted to our Blessed MotherKelly @broadwaybabyto
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4K Followers 5K Following @UNAOC Fellow | EU @CultExtRel Fellow | https://t.co/uK3V8WqcnXCanadian Paintings @CanadaPaintings
165K Followers 135 Following Above all, we loved this country and loved exploring and painting it. ~Lawren HarrisReena Pabari @reena_pabari
291 Followers 579 Following Pediatric Hematologist/Oncologist | @SickKidsCancer #AML #myeloidleukemia research | @HarvardMed #GCSRT | #theluckyfew advocate + cat mom. Views my own.Carly-Jay Metcalfe @carlyjaywriter
585 Followers 649 Following ‘Breath’ (February 2024, UQP) • M.Phil. Candidate in Creative Writing at UQ • 🫁 TX 1998 • Rep’d by Key People Literary Management • Pre-order ‘Breath’ ⬇️eHealthCE @eHealthCE
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244 Followers 536 Following Hero AI is one of the world's most agile clinical automation platforms ever created for healthcare. Co-founded by @drdevsk SickKids Doc & AI Computer Scientist.Devin Singh @DrDevSK
995 Followers 896 Following Paediatric Emergency Medicine SickKids, Lead Clinical AI & Machine Learning, UofT Master of CS, Co-Founder & CEO Hero AI @HeroAI_Health, BoD Special Olympics ONKim McGrail @kimchspr
938 Followers 277 Following Professor. Researcher. Scientific Director. Views are my own.Privacy Analytics @privacyanalytic
1K Followers 1K Following The only proven, responsible, HIPAA-compliant way to de-identify data for greater use. #deidentification #privacy #analytics #HIPAASharlene Gill, MD, MP.. @GillSharlene
3K Followers 374 Following Cancer Doctor, Professor, Lifelong Learner #GI #Cancer 🇨🇦 @UBC @BCCancer @CCTG #Prez @CAMO #TEDxSpeaker #MedTwitter @OncoAlert Tweets are my ownHeathen Moira Rosay �.. @moira_here
3K Followers 3K Following Villanova College of Engineering Alum. I’m a peeping Tom Techie with x-ray eyes. #MpBC #Cancer survivor! Let Drs make medical decisions! Opinions are my OWNKristin Liabo @KLiabo
355 Followers 216 Following Social science to the masses, the masses to social science! Engagement in research, systematic reviews, childhood studies. Literary nerd @home. Feminist.Jack Thorne @jackthorne
39K Followers 922 Following Masochistic Typist. Please watch Best Interests - from 12th June, 9pm, on BBC One.Jamie Hale @JamieRHale
3K Followers 1K Following 👨🦼🦻 Creator, Founder & Artistic Director @CRIPticArts, CEO @PathfindersNMA, 🖊️📖Shield @VervePoetryPres, 🎭@tgacomedy Personal accountOttoBaxterMovie @OttoBaxterMovie
138 Followers 185 Following Feature doc ‘Otto Baxter- Not A F***ing Horror Story’ & Otto Baxter’s horror comedy musical biopic -short ‘The Puppet Asylum’ - In Cinemas NowDaisy Allsop @seizethedaisy
1K Followers 851 Following Writer. Producer. HeadofAcquistions WestEndFilms. Walthamstowian. Mother of 2 wife of 1. I enjoy both being asleep and being awake. I once touched a dead mouse.Poppy Dixon @dixipoppins
3K Followers 1K Following Director, Documentaries & Factual, Sky. Also producer of docs, lover of art deco, maker & consumer of ice cream. All views my own.Carousel @carouselartuk
3K Followers 2K Following Award-winning learning disability led arts org. @oskabright, @cmdiscussion, #CarouselRadio, #BlueCamelClub #CarouselTV. Charity No. 297201DAiSY: Disability Art.. @daisyfest
712 Followers 717 Following Celebrating the creativity and talent of disabled artists in Surrey & beyond.Go to the link below to read an excellent paper about trauma in parents of kids with #disabilities. ❤️👇
Parents of disabled children and trauma - discussion document now available 👇 We suspected that trauma was more prevalent than often recognised by professionals, and often parents themselves. #trauma #parentcarers rb.gy/nf5tsn Pls R/T @BACD_tweets
@TaniaJSpencer @NightShiftMD @suerobinsyvr @DrVivianS @MaggieKeresteci @DocMCohen @ccleighton @GailYentaBeck @DebraLefebvre @kimaenglish @sarah12192017 @flindall_steve @jvipondmd @placentadoc I am humbled to be part of this group too. :)
4/ Honoured to be included with these inspiring contributing writers: @NightShiftMD @suerobinsyvr @DrVivianS @MaggieKeresteci @DocMCohen @ccleighton @GailYentaBeck @DebraLefebvre @kimaenglish @sarah12192017 @drDavidKeegan @flindall_steve @jvipondmd @placentadoc
@suerobinsyvr @birdcomm @MikeWaddingham Thanks. Will follow @birdcomm
@suerobinsyvr @Fobete @doreen_rabi Yes, Sue. 🙏Thank you for pointing this out. I felt too this quote represents the reality of patients/their families. The cracks in the system are breaking their (patients/families) hearts and sometimes lives.
@suerobinsyvr @Fobete Thanks so much, Sue, your wisdom & support is always so appreciated. 🩷🙏
My dear colleague, @Fobete & I co-wrote this piece on the perils of top-down approaches & increasing fragmentation in #Alberta #Healthcare. We desperately need more attn to #patientvoices & #postionality. @c4collaboration @suerobinsyvr @MariaJ_Santana c4collaboration.ca/posts/healthca…
@suerobinsyvr Thank you for caring & signing 💕🙏 so important we speak the truth
@suerobinsyvr @PamelaWibleMD Great to see you two connect 😍
@suerobinsyvr @arianek Seconded. I would walk a picket line with healthcare workers. Feet in the street. Front lawn of the Legislature.
@GeraldRHarris @WikiDocJames @markroseman @SoniaFurstenau @BCampbellDuke @suerobinsyvr @SKGandhiMD @CCurrieadvocate Yes I know it’s a nation wide problem, I was just saying province wide because I was talking to a fellow British Columbian who lives in a different region than me. No need to be nasty.
@CCurrieadvocate @WikiDocJames @markroseman @SoniaFurstenau @BCampbellDuke @suerobinsyvr @SKGandhiMD I wish this surprised me even 1%. That has been his MO for ages now. I don't think the NDP understands how dissatisfied everyone is - not just with what's going on, but their lack of transparency and focus on optics. Citizens want them to listen and take real action.
@suerobinsyvr Please help us by protecting docs who speak up for patient safety thepetitionsite.com/takeaction/520…
@suerobinsyvr Govt acts like it’s fine and somehow people don’t seem to want to know, or maybe don’t really believe or get it even when I tell what happened to me, what I’ve seen, etc. Only other patients/HCWs deep inside the system get it. And the HCWs are so shorted they can’t strike either.
@brookmanknight @suerobinsyvr Nailed it — human services cannot be delivered on a production line —- please support our whistleblowers who are risking their lives standing up to this corruption thepetitionsite.com/takeaction/520…
I am sad to report that my cancer doctors today told me I have no further treatment options. #TheCancerOlympics blog describes, with an accompanying song, how I feel hearing this. bit.ly/3QrwEdQ
Non-profits are not a movement. They are a buffer between movements and capital, that aim to stabilize the capitalist system, and provide people the comfort that progress is being made. Progress like a hamster wheel.
HCWs: Pls find a way besides saying/snapping "I'm/we're (very) busy" to let pts know you'll be with them ASAP. Everyone knows we're swamped and this phrase denotes, to someone already vulnerable, that their need is somehow not important. Their anger is usually about fear...
Peter Beard, Bruce Fletcher and Otto Baxter take to the stage to pick up the Director: Factual BAFTA! #BAFTACraftAwards
Peter Beard and Bruce Fletcher are awarded the Director: Factual BAFTA for their work on Otto Baxter: Not a F***ing Horror Story 👏#BAFTACraftAwards