tapan chowdhury @tapanchowdhury9

Indian Goaltore Joined September 2013

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4K
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150
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204
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1K

Alpana Sharma @alpanaS16

7 months ago

We @curesmaindia r requestin @MoHFW_INDIA @FinMinIndia @nsitharaman @PMOIndia 4 GSTexemption Thank @vinodkumarmenon @mid_day 4highlight d urgentneed #raredisease mid-day.com/mumbai/ mumbai-news/article/budget-2025-why-no-gst-relief-for-rare-disease-drugs-ask-parents-23477119

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tapan chowdhury @tapanchowdhury9

2 years ago

Thanks to all entire team. #savelife #treatmentforall

Archana Vashist Panda @PandaVashist

2 years ago

Thanks to all entire team. #savelife #treatmentforall

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Archana Vashist Panda @PandaVashist

2 years ago

Thx @KolanuSailesh @VenkyMama @vboyanapalli @Nawazuddin_S @arya_offl @ShraddhaSrinath 4 highlighting #SpinalMuscularAtrophy in yr movie #Saindhav. U fulfilled yr promise 2 #SMA community during #Run4SMA Marathon in Aug 23'. V hope it'll help spread #SMA Awareness 🤞.

Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

V’re extremely gr8ful 2 @KolanuSailesh, @vboyanapalli, @VenkyMama, @Nawazuddin_S, @arya_offl, @ShraddhaSrinath 4 highlighting d challenges of #SMA community in d movie #Saindhav 🙏. #SMA is a rare genetic disorder wid v.expensive drugs beyond d reach of any #SMA patient/parents.

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

@Live_Hindustan Pls verify facts b4 publishing serious matters about patients living with life threatening disease like #SpinalMuscularAtrophy We've so many other SMA patients in India as well as Delhi and not just "9". @ArvindKejriwal @MP_SanjeevArora livehindustan.com/ncr/new-delhi/…

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Alpana Sharma @alpanaS16

2 years ago

@Live_Hindustan kindly stop such sensationalism of news at the cost of our dying children. Very Unfortunate to see you doing such manipulation of truth to garner maximum viewer ship @ArvindKejriwal

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

#SMAawarenessMonth Day 29: #Zolgensma offers hope to those with #SMA, but it's crucial to remember: even if treated, individuals can still carry the SMA gene and pass it to their children. Genetic counseling to ensure screening is essential. Knowledge empowers! 💙 #SMA…

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

#SMAjourney : Witnessing the remarkable progress of 3-year-old Gouri Lakshmi from Kerala with SMA type 2 is truly inspiring! With the help of Zolgensma, her motor skills have improved, breathing and swallowing difficulties have decreased, she's able to sit unassisted for long…

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

#SMAjourney : Today, we feature the remarkable progress of Mitra, a brave 4-year-old girl from Tamil Nadu with #SMA Type 3. Mitra's journey includes #Zolgensma gene therapy and a commitment to regular physiotherapy and aquatic therapy. Her parents also share valuable home-care…

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

Sharing the poignant #SMAjourney of 8.5-year-old Omprakash ,a Type 2 warrior from Tamilnadu. His battle highlights the urgent need for life-saving medication. Let's hope Omprakash gains access to the medicine he requires soon. 🙏 #SMAAwareness #MedicalAccess #Risdiplam #Spinraza…

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

#SMAawarenessMonth Day 25: Continuing our journey through #SMA rehabilitation, today's fact sheet focuses on the crucial role of orthosis. These supportive devices play a vital role in enhancing mobility and improving the quality of life for individuals with SMA. Let's delve into…

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Tahir Ahmad Arif @tahirarif57

2 years ago

@curesmaindia @iprdkerala @CMOKerala @wcdkerala @KeralaHealth @VeenaGeorge03 @rbinducpm @Arogyakeralam @drrahulur @KSHEC @EduMinOfIndia Great going @liyana we are very proud of you. Despite many challenges and health barrios we applause you for your achievements. Good luck to you dear for your future plans and great success, Ameen.

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

#SMAjourney Meet today's inspiring #SMArtwarrior, Liyana, hailing from Kerala. At 22 years old, Liyana has never stood or walked due to severe scoliosis and recurring chest infections. Despite her challenges, she's unwavering in her pursuit of education. Let's proudly applaud…

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

#SMAawarenessMonth Day 23: Let's discuss the vital role of positioning and bracing in managing #SMA. Proper positioning and the use of braces can help enhance comfort, prevent joint contractures, and maintain muscle function. By providing support to weakened muscles, we strive…

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

Harshit's #SMAjourney: Born in Haryana, his first 6 months were joyful, but strength waned. Diagnosed at 8 months, he fought recurring infections. Prayers now echo daily for Harshit's selection in GMAP for #Zolgensma treatment🙏💪 #SMAawareness #HarshitsJourney @NovartisGene…

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

#SMAawarenessMonth Day 19: Understanding the connection between #SMA & Constipation. Have you ever wondered about the link between SMA and the common occurrence of constipation? 🤔 Delve into our post to uncover insights and discover effective strategies to alleviate this…

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

#SMAJourney: Meet Dilkhush & Raghav, #SMAwarrior brothers from Bihar. Their story is one of unyielding resilience. When scoliosis dimmed dreams, prenatal testing revealed SMA fate for Raghav. Amidst self-blame, the mother's strength shines. Raghav's #Spinraza access through…

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

#SMAjourney Meet Maheswar, a 3-year-old #SMA type 1 fighter from Kerala. Despite battling recurrent pneumonia post #Zolgensma treatment, his resilience shone through. Fundoplication and gastrotomy procedures brought relief, transforming his life. This underscores the importance…

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

#SMAawarenessMonth Day 18: Have you considered the factors behind the elevated prevalence of acid reflex in fellow #SMA warriors? Muscle weakness, compromised esophageal function, and related variables might contribute. Delve into our post for an analysis on GERD. Let's spread…

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Cure SMA Foundation of India 🇮🇳 @curesmaindia

2 years ago

#SMAJourney 🥗 Nurturing with Love: Meet the incredible parents who are going above and beyond to ensure their SMA child's health through a carefully crafted diet. Their dedication to providing the best nutrition is truly inspiring! 💙🍎 #SMAcare #ParentingHeroes…