TRiNDS @trinds_nmd
Therapeutic Research in Neuromuscular Disorders Solutions: a specialized neuromuscular CRO trinds.com Joined April 2016-
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TRiNDS is thrilled to celebrate the achievements of eight incredible team members who have recently been promoted, reflecting the impact they’ve made in advancing our mission. Please join us in congratulating our colleagues on their new roles!
#NewHorizons2025 is a valuable opportunity to stay up-to-date on the latest developments in Duchenne Muscular Dystrophy (DMD). If you’re interested in connecting with TRiNDS, email us at [email protected]. Lauren looks forward to seeing you in London!
Please join us in welcoming Jasmine to TRiNDS. Jasmine lives in Lancaster, Pennsylvania, and brings with her 12+ years of clinical trial experience. In her time away from work Jasmine is passionate about writing and travel. We’re thrilled to have her on our team!
TRiNDS CEO, Lauren Morgenroth, and Lead Data Manager, Abby Loden, are excited to connect with the incredible community of patients, physicians, researchers, and industry leaders who are coming together to attend #MDA2025
Today, on #RareDiseaseDay2025, we honor the resilience of patients & families while advancing research in rare neuromuscular diseases. Rare is not invisible. Rare is not impossible. Together, we can create life-changing solutions.
In #RareDiseaseResearch, every detail matters. By combining tailored solutions with our deep expertise, we help our sponsors move closer to new treatments and brighter futures for patients. Learn more by visiting our website at trinds.com
Since our founding in 2016 TRiNDS has been driven by a singular mission: advancing research for rare neuromuscular diseases. This journey has been one of growth, collaboration, and unwavering commitment to improving patient outcomes. Learn more at trinds.com
This week TRiNDS Director of Clinical Operations & Quality Management Andrea D’Alessandro is attending #SCOPESummit2025 taking place in Orlando, Florida. SCOPE is a hub of innovation and TRiNDS is grateful to be a part of the conversations shaping the future of the industry.
❄️ Winter can be tough for those with neuromuscular diseases. Stay safe with these tips. #WinterWellness #ClinicalResearchOrganization #ClinicalTrials #DuchenneAwareness #MuscularDystrophy #MuscularDystrophyResearch #RareDiseaseResearch #ResearchForACure #PatientDrivenResearch
#DidYouKnow Neuromuscular diseases include 150+ disorders affecting nerves & muscles, each with unique challenges. Even within the same diagnosis, like Duchenne muscular dystrophy, progression varies. Specialized research & trials are key to advancing treatments. 🧬
Dr. King’s vision, where dignity & opportunity are extended to everyone, resonates deeply in our work at TRiNDS. Today on #MartinLutherKingJrDay, we reaffirm our commitment to building a more inclusive and equitable future—both in healthcare and beyond.
Today, we celebrate the dedication & expertise of pharmacists worldwide on #NationalPharmacistDay. In the rare neuromuscular disease space, pharmacists play a pivotal role in management of investigational products and medicines. We extend our gratitude to pharmacists everywhere.
As we step into the #NewYear, we're taking a moment to reflect on the milestones, challenges, and progress we have experienced in 2024. Thank you for being part of this journey. TRiNDS wishes you a year filled with shared success, progress, and hope.
#HappyHolidays from TRiNDS. As we wrap up this year, we wish you and your loved ones a holiday season filled with joy, warmth, and togetherness. Thank you for being part of this journey with us.
On this day, in 2001, the #MDCareAct was signed into law. At TRiNDS, we are deeply committed to advancing the work initiated by the MD-Care Act. Find out more about the work done at TRiNDS by visiting our website at trinds.com
This week we recognize #InternationalDayofPersonswithDisabilities. This year's theme strongly resonates with our commitment at TRiNDS - "Amplifying the leadership of persons with disabilities for an inclusive and sustainable future."
This week we express our deepest appreciation and #gratitude towards our patients and partners in the neuromuscular disease community. From all of us at TRiNDS, we hope your holiday season is filled with gratitude, peace, and hope. #RareDiseaseResearch #ResearchForACure
TRiNDS was established in 2016 with those at the heart dedicating themselves to transforming the landscape of #RareNeuromuscularDiseaseResearch for over two decades and we're just getting started…
Today is #GeneticCounselorAwarenessDay. Genetic counselors play an important role in healthcare. TRiNDS is proud to have our own team of genetic counselors making a difference in research outcomes and patient lives - thank you for all you do!
Whether you chose to vote early, by mail, or plan to do so in person on #ElectionDay, #YourVoteMatters. Take a moment to research the candidates and policies that align with your values—and make sure your voice counts.

AnnemiekeAartsma-Rus @oligogirl
3K Followers 456 Following Translating science from bench to bedside and from jargon to lay language
World Muscle Society @WorldMuscleSoc
2K Followers 627 Following The WMS is a global, multidisciplinary community committed to advancing the science of neuromuscular disorders. Join us in Vienna for #WMS2025.
JWMDRC @jwmdrc
1K Followers 477 Following John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University #dmd #sma #lgmd #fshd #dm1 #gne #col6 #cnm
Matthew S. Alexander @Matt_Muscle_Guy
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TREAT-NMD® @TREAT_NMD
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Defeat Duchenne Canad... @defeatduchenne
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ern euro_nmd @euro_nmd
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Alyson Fiorillo, PhD @AlysonAFiorillo
552 Followers 666 Following Assistant Professor working towards therapeutics for Duchenne Muscular Dystrophy. Tweets are my own.
Duchenne Data Foundat... @DuchenneDF
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Terri Ellsworth @TerriEllsworth
2K Followers 2K Following Duchenne Advocate/Rare Disease Activist Mom, Designing Mom-Creating awareness & advocating for approval of safe & effective drugs. Words are always my own.
Virginia Arechavala @VArechavala
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Duchenne Centre NL @duchennecentrum
279 Followers 156 Following Centre of expertise considering care, treatment and research for #Duchenne and #Becker muscular dystrophy.
CureDuchenne @CureDuchenne
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Neuromuscular Disease... @NMD4Canada
1K Followers 482 Following Canadian network connecting clinicians, scientists, patients, and industry to improve neuromuscular disease outcomes.
Centre for Muscle Res... @UniMelbCMR
3K Followers 1K Following Advancing muscle biology and its importance in health and disease. #myotwitter #sarcopenia #myology #skeletalmuscle #musculoskeletal #neuromuscular #cachexia
Suzie-Ann Bakker @suzieannbakker
243 Followers 230 Following Comms & Events @worldduchenne, @DuchenneDF, soup aficionado, runner 🌱
Perry Esler @4kidsforever
529 Followers 1K Following Husband, proud father of 4 (one heavenly), die hard Leaf's fan, love travel and craft beer.
Sheonad Laidlaw @h0pefulmummy
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Robert Muní Lofra @r... @rmunil
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angiraap @46c49c1eea5b414
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Charles Marques Loure... @CharlesLourenco
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609 Followers 2K Following I help Biotechs, Pharma’s, & related nonprofits build successful organizations. Executive Search 🔁 Management Consulting. Former Korn Ferry & LEK.
Caroline Smith @caro_smith1
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CheckRare @CheckRare
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Western Canadian Neur... @WCNMConference
14 Followers 65 Following 5th WCNMC and is being held in Calgary on September 27 - 29, 2024 at Hotel Arts.
محمد الزهرا... @mmdlzhrnya60029
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Institute for Gene Th... @gene_therapies
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Emy Hashem @eman_elrefaie
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Seha Connect @SehaConnect
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Adriel Hernando @adriel_hah
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Lissa @ohlooklissa
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PerrinPower @EndDMD
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Signadindia @AdIndiaAds16386
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ILaura H Parhusip @ILauraHannaP
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Karina H Iamasaqui @advkarina
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Vito Minervini @VitoMinervini
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Sarah Sandkuhler @Sarahelegans
33 Followers 78 Following G3 in the University of Rochester MD/PhD program. Grad student extraordinaire in the Sam Mackenzie lab interested in rare disease, C. elegans, and child neuro.
Canadian Rare Disease... @CanadianRDN
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Ataxia and Me CIO 118... @Ataxia_and_Me
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Jarosław Meyer-Szary @jmeyerszary
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Virginia Hove @hove_virginia
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Ed @KX112319
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Melanie rooney @Melanieroo12
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Lizzienencinitas @Lizzienencinit1
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Muthu @Muthukumar72863
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الإمبراطور ... @Alamibratur1
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Michelle Liddicut @liddim
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AnnemiekeAartsma-Rus @oligogirl
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World Muscle Society @WorldMuscleSoc
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JWMDRC @jwmdrc
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TREAT-NMD® @TREAT_NMD
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Defeat Duchenne Canad... @defeatduchenne
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Muscular Dystrophy UK @MDUK_News
17K Followers 3K Following We connect a community of over 110,000 people living with muscle wasting and weakening conditions. Together we are stronger. Join us. Our #MusclesMatter.
EURORDIS-Rare Disease... @eurordis
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Joining Jack @alljoinjack
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ern euro_nmd @euro_nmd
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Alyson Fiorillo, PhD @AlysonAFiorillo
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Rare Disease Day @rarediseaseday
42K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Virginia Arechavala @VArechavala
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Muscular Dystrophy As... @MDAorg
21K Followers 2K Following MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
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Parent Project Muscul... @ParentProjectMD
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UPMC Children's Hospi... @ChildrensPgh
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The Duchenne Registry... @duchenneregaus
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Jeff Marrazzo @jeffmarrazzo
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Patrick May @PatrickSMay
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Duchenne Now @DuchenneNow
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UPPMD @UPPMD2016
12 Followers 0 Following![Official Twitter account of the NIH/NINDS [Privacy Policy: https://t.co/uXZ2BEHgFz]](https://pbs.twimg.com/profile_images/880747540672589825/CqraUhnN.jpg)
NINDStrials @NINDStrials
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ACRP - Assoc. of Clin... @ACRPDC
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Jain Foundation @JainFoundation
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113 Followers 122 Following Dining Away Duchenne, a premiere charity event with DC chefs is on September 25, 2018. #DiningAway18
Bio-Optronics @BioOptronics
421 Followers 194 Following Unparalleled clinical trial management systems (CTMS), unmatched physician scheduling, unsurpassed patient ID systems, and unbeatable customer care.
CDISC @CDISC
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SOCRA @SOCRAnow
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SCDM @SCDM_DataDriven
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OpenClinica @OpenClinica
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Smile with Shiv @svt_mands
1K Followers 2K Following Our mission, to raise awareness & funds to find a treatment/cure for Duchenne Muscular Dystrophy (DMD). Sadly, we lost our Shiv on 20 Mar 23. Go fly our angel!
Steve Grossman @stevenjgrossman
2K Followers 3K Following Also find me (@)https://t.co/8TVq95hzv5 - Interested in #RareDisease, #ADCY5, #outdoors, #soccer
myo-mri @myo_mri
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Little O against DMD @littleo_dmd
308 Followers 282 Following Fighting Duchenne Muscular Dystrophy (with Duchenne Parent Project Belgium)
Iain Clarke @IainClarkeAD
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Francesca Ceradini @franceradini
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Klair Bayley @klair_bayley
119 Followers 316 Following Founder Duchenne Australia, Board Member Duchenne Data Foundation, Nurse, Midwife, Senior Program Officer WA Dept of Health Office of Popultion Health Genomics
Zoe Davidson (she/her... @davidson_zoe
849 Followers 712 Following Dietitian-researcher providing updates on the latest nutrition (and related) research in neuromuscular disorders. @MonashNutrition @MCRI_for_kids
Duchenne Foundation @DMDfoundation
2K Followers 745 Following Focusing on Improving the quality and length of life for those living with Duchenne across Australia, through, research, education, support, care and advocacy.
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PTC Therapeutics @PTCBio
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RareConnect @RareConnect
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Rare Diseases @CheckOrphan
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U.S. FDA @US_FDA
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Cure SMA Canada @CureSMACanada
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7K Followers 1K Following 2/28/19. #ShowYourStripes & join the movement in the US & around the world for #RareDiseaseDay. (Hosted in the US by @RareDiseases.)
One Gene Away @OneGeneAway
26 Followers 29 Following In partnership with Cure SMA, we're raising awareness about spinal muscular atrophy. We're just 1 gene away from a cure–and getting closer every day.