PTC Therapeutics @PTCBio
PTC is a patient-centered biopharmaceutical company focused on discovering, developing & commercializing medicine for patients with rare disease ptcbio.com United States Joined May 2009-
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Expanding insights and knowledge about #rarediseases is essential to improving patient outcomes. At the ISPOR 2024 Annual Meeting, we’ll share six poster presentations focused on the latest health economics research across four of our key therapeutic areas. #ISPORAnnual
We’re pleased to share that our 2023 annual report is now available. Read our full report for more on PTC's transformative year and how we're positioning the company for future success. bit.ly/3wmE1fY
PTC Therapeutics announced that we will present a company overview at two upcoming investor conferences. Read more: bit.ly/3y2BQP5
Today, our leaders provided a corporate update and reported our first quarter 2024 financial results. Read more: bit.ly/3xTt31Y
Are you a U.S. healthcare professional interested in learning more about our opt-in program for PKU? Visit ReimaginePKU.com to connect with our team.
Raising awareness for rare diseases empowers patients and drives progress. Learn how to advocate for yourself and others in this article! bit.ly/3RkvMcg #RareDisease #PatientAdvocacy
We applaud this important research to help advance the understanding of Friedreich ataxia and the progression of the condition in children.
We applaud this important research to help advance the understanding of Friedreich ataxia and the progression of the condition in children.
Join PTC tomorrow at 4 p.m. ET for a sponsored educational symposium for #healthcare professionals attending the #SIMD2024 Annual Meeting. This symposium will review results from the Phase 3 APHENITY trial in #PKU. Learn more and register: bit.ly/43VRMym
Join PTC on April 16 for a sponsored educational symposium for #HealthCareProfessionals attending the #SIMD2024 Annual Meeting. This symposium will discuss unmet needs in #PKU and review results from the Phase 3 APHENITY trial. Learn more and register: bit.ly/43VRMym
Don't miss our presentations at #AANAM2024 for updates on our innovative therapies for rare neurological disorders.
Today, PTC announced that it will host a conference call to discuss its first quarter 2024 financial results on Thursday, April 25 at 4:30 p.m. ET. Read more: bit.ly/3vNM9G1
Today, PTC announced the submission of a marketing authorization application to the EMA for our investigational therapy for the treatment of PKU. Read more: bit.ly/3IYas7i
Angela Minnella, Director of Neuroscience at PTC, is moderating a panel discussion and speaking on the role of ferroptosis in the development and progression of neurodegenerative disease at the 6th Annual Neuroimmunology Drug Development Summit. Hope to see you there!
We recently sat down with Jeff Trimmer @JKTrim, Senior VP, Research Site Head, to learn more about PTC’s ferroptosis and inflammation scientific platform and the team at PTC working on this program. Read more: bit.ly/3VpTYMD
Are you a U.S. healthcare professional interested in learning more about our opt-in program for PKU? Visit ReimaginePKU.com to connect with our team.
We’re onsite at the American College of Medical Genetics and Genomics (ACMG) Annual Meeting discussing phenylketonuria (PKU). Stop by booth 807 to meet our team and visit ReimaginePKU.com to learn more about our opt-in program for the PKU community. #ACMG #ACMGMtg24
Please join us at 4:05 p.m. EDT today for our company overview at the Barclays 26th Annual Healthcare Conference. Register for the webcast here: bit.ly/42vhqc9 #PTCT
Today, our leaders will present a company overview at 2:40 p.m. EDT at the Leerink Partners Global Biopharma Conference 2024. Register for the webcast here: bit.ly/42vhqc9 #PTCT
Join us at 1:30 p.m. EST today for our presentation at the @TDCowen 44th Annual Health Care Conference. Register for the webcast here: bit.ly/42vhqc9 #PTCT
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Logos LP @Logos_LP
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P-BIO - Associação .. @pbio_pt
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Anthony Fernández-Ca.. @ThisIsAnthonyFC
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CK @CKilleen4
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Parent Project Muscul.. @ParentProjectMD
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WMS @WorldMuscleSoc
2K Followers 663 Following We invite you to the 28th International Annual Congress of the World Muscle Society in 2023. This is the premier annual Congress on #neuromuscular disorders.
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Effie Parks @OnceUponAGene
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EURORDIS-Rare Disease.. @eurordis
32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
EveryLife Foundation @EveryLifeOrg
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Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Huntington's Disease .. @HDA_tweeting
5K Followers 2K Following Huntington's Disease Association is a registered charity that supports people affected by #HuntingtonsDisease (HD) in England and Wales. #MindfulOfHuntingtons
CureDuchenne @CureDuchenne
6K Followers 510 Following We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.
World Duchenne Organi.. @worldduchenne
3K Followers 1K Following Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement
Duchenne UK @DuchenneUK
5K Followers 951 Following Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease. We are the leading Duchenne muscular dystrophy charity in the UK.
HDSA @HDSA
6K Followers 1K Following The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.
HDBuzz @HDBuzzFeed
7K Followers 3K Following Huntington’s disease research news. In plain language. Written by scientists. Editors @profedwild @jcarroll42 @labscribbles @rungenado & @LeoraFoxTweets
Huntington's Disease .. @HDAI_ie
3K Followers 5K Following HDAI RCN 20025656. Sharing news on Huntingtons Disease /connecting to the international HD community. RTs not endorsements. https://t.co/pPoXkLELx2 / https://t.co/z0BAD0VUeS
@HDAwareness. @HDAwareness1
123 Followers 153 Following Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #huntingtonsdisease
Madrigal Pharmaceutic.. @MadrigalPharma
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DUCHENNE ECUADOR F-A-.. @FunArielChichoG
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10K Followers 6K Following The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS
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239 Followers 16 Following The 2023 FIPFA Powerchair Football World Cup will be held at Sydney Olympic Park's Quaycentre in October 2023.
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Genentech @genentech
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The Galien Foundation @GalienFdn
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World Orphan Drug Con.. @OrphanConf
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Rafael @_RafaelSierra
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Patrice Thornton @PThornton76
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Elijah Stacy @Elijahjstacy
383 Followers 250 Following Author, Public Speaker, and Founder of Destroy Duchenne. Media/bookings: [email protected]. Get my new book now 👇
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FIPFA @OfficialFIPFA
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Suzie Siegel @SuzieSiegel
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The WFA @The_WFA
3K Followers 663 Following The official Twitter account for The Wheelchair Football Association (WFA). You will get the latest news, updates & information about Powerchair Football.Following another fantastic weekend in the 2023/24 @PTCBio Premiership, it's time to vote for your: ⭐️ Standout Player of the Weekend ⭐️ Unsung Hero of the Weekend ⭐️ Team of the Weekend Visit the link below: ⬇️ thewfa.org.uk/premiership-to… #PowerchairFootball
Our first team was in Nottingham this weekend for gameweek 3 of the 2023/24 @PTCBio Premiership. The team played five games; suffered four defeats. But, gained their very first win of the season and two goals; Hayden & Kole. Well done to all the team.
We're delighted to announce that @ERElectricEels' Kole Simpson has been voted the Unsung Hero for Gameweek 3️⃣ of the 2023/24 @PTCBio Premiership! 👏🔷 📸: @ASJPhotography #PowerchairFootball
Next up, we're happy to announce that @Aspire_PFC's Brad Bates has been voted the Standout Player for Gameweek 3️⃣ of the 2023/24 @PTCBio Premiership! 👏 🔷 📸: @ASJPhotography #PowerchairFootball
Proudly introducing the Team of the Weekend for Gameweek 3️⃣ of the 2023/24 @PTCBio Premiership! 🤩🔷 𝐒𝐭𝐚𝐫𝐭𝐢𝐧𝐠 𝐥𝐢𝐧𝐞𝐮𝐩: Brad Bates Ethan Fisher Valentino Zegarelli Jon Bolding 𝐒𝐮𝐛𝐬: Dan Rigby Kole Simpson 𝐂𝐨𝐚𝐜𝐡: Jamie Harrison #PowerchairFootball
Who's ready for another thrilling day of action in the 2023/24 @PTCBio Premiership? 🤩🔷 All of today's fixtures have been pre-scheduled and can be found via the link below: ⬇️💥 youtube.com/@TheWFA/streams #PowerchairFootball
We're back at the Lee Westwood Sports Centre for Gameweek 3️⃣ of the 2023/24 @PTCBio Premiership 🤩🔷 All of this weekend's fixtures have been pre-scheduled and can be found via the link below: ⬇️💥 youtube.com/@TheWFA/streams #PowerchairFootball
#RareDiseaseDay is trending. Keep it going to raise awareness for our community. With over 7,000 known rare conditions, although they are individually rare, they are collectively common. #RareDiseaseDay2024
Today is #RareDiseaseDay. Share this post and raise #ALSAwareness today.
Our work wouldn't be possible without your support. This Rare Disease Day, we're asking for your ongoing support by setting up regular giving. Whether you can give a little each month, or give a lot, every donation helps: duchenneuk.org/donate
There are more than 2,500 people in the UK with DMD. It's a devastating disease that has no cure - a fact that we're trying to change. We've raised over £27million to fund groundbreaking research into new drugs, treatments and technology in our fight to #EndDuchenne.
Today is #RareDiseaseDay - a day to come together to raise awareness of rare diseases. Duchenne muscular dystrophy (DMD) is a rare genetic disease that causes muscle weakness and wasting. It's the most common and severe form of muscular dystrophy.
This week, we sent a letter to House and Senate members, expressing our unwavering support for the #ALS Better Care Act. Learn more about this crucial legislation and find out how you can help get it passed: bit.ly/better-care-ac…
🚨 IT’S RARE DISEASE DAY! 🚨 For #RareDiseaseDay 2024 we're highlighting key facts and figures to educate change makers on the shared challenges of our community. Alongside these we will share the #StoriesBehindTheStats. 👉 ow.ly/4j7E50QIXEY
The Premiership title race resumes this weekend! 💥 Who will lead the pack at the conclusion of Gameweek 3️⃣ of the 2023/24 @PTCBio Premiership? 🤩🔷 📸: @ASJPhotography #PowerchairFootball
HSG is proud to stand with the global community on #RareDiseaseDay, advocating for those impacted by #HuntingtonsDisease and other rare conditions. Join us in spreading awareness and hope! 💚🩷💙
🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours
Newly elected Board Chair - Dr. Ariana P. Mullin was formally elected as the Board Chair to support Kelly and the Executive Committee as leaders of our organization. ⬇️⬇️ @EHDN_GRANTM @PrileniaTx @PTCBio @SageBiotech @Roche @uniQure_NV @WaveLifeSci @spark_tx @neurocrine @TevaUSA
🌏 Rare Disease Day begins in Oceania! From Australia's deserts to Micronesia's islands, the continent unites to shed light on rare diseases! Join the global movement for awareness and support! 🌟 #RareDiseaseDay #LightUpForRare #ShareYourColours #Awareness
With 2 days to go until #RareDiseaseDay, it’s #TakeoverTuesday with @GeneticAll_UK
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