Zim Kraja @zimkraja
Joined April 2009-
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$DEV.AX I thought yday (Feb 7,2024) Ann looks v good, many other irons also in the fire, A-Class Mgmt. Lets see how this goes as a LT Hold 😎👍
$DEV.AX I thought yday (Feb 7,2024) Ann looks v good, many other irons also in the fire, A-Class Mgmt. Lets see how this goes as a LT Hold 😎👍
My interview with fallen #ALS advocate @JamieRoseBerryy's sister Lesha Marie premieres Sunday at noon CST. Jamie was so instrumental in passing #AACT, and what she wanted next was #NurOwn- and a shot to enjoy her family longer! @RepAnnaEshoo @RepMullin youtu.be/RGoo-yx7rW0
So many pals popped into my head when I wrote this…1 who just had a birthday & I never said HBD! Several versus were inspired by ALS niece @SarahNauser 🎈🎈💪🏼💪🏼#ThroatPunchALS … with a smile😊
So many pals popped into my head when I wrote this…1 who just had a birthday & I never said HBD! Several versus were inspired by ALS niece @SarahNauser 🎈🎈💪🏼💪🏼#ThroatPunchALS … with a smile😊
I had faith #NurOwn would help us, so I FOUGHT 11/2020 My1st Fight-for-NurOwn News piece 5/2022 My 6th "" Even as ALS paralyzed me,@BrainstormCell @Cylebo –I never gave up on you. Please reciprocate & file The BLA #DyingWaiting #EveryPointMatters #WhateverItTakes #ALS
I can't believe it's been 1 year since Chloee's Lemonade Taking a Stand Against ALS 1 Cup at a Time Outstanding Lemonade Stand!🍋 Not only did she raise $ for my medical expenses… but she also raised $1008.00 for @iamalsorg When life gives you lemons… #ALSadvocacy #endALS
If a drug/biologic is proven to be safe, &had a clinically meaningful response in even a small group of pALS –there should be no delay, no reviews & no question on making it accessible to people w/ #ALS ASAP #ALSHumanity #AccessforALS #NurOwn @DrCaliff_FDA @POTUS @BrainstormCell
Thank you @irene_shapiro1 @statnews & @sandymorris333 for your advocacy and support of the #ALS Community. "If it's for us and about us… it should never be without us"💪
Thank you @irene_shapiro1 @statnews & @sandymorris333 for your advocacy and support of the #ALS Community. "If it's for us and about us… it should never be without us"💪
With #ALS every point matters. If a drug improves quality of life, slows progression or extends life –it is a CLEAR benefit to us. If a drug passed all safety measures –why not give us access? We deserve better. We are suffering. Help us. @FDACBER @DrCaliff_FDA @RepAnnaEshoo
With #ALS every point matters. If a drug improves quality of life, slows progression or extends life –it is a CLEAR benefit to us. If a drug passed all safety measures –why not give us access? We deserve better. We are suffering. Help us. @FDACBER @DrCaliff_FDA @RepAnnaEshoo
1 point means I can write💖 notes on my daughters lunch napkin. 1 point means I can enjoy taco night w my family (sit on your hands & ask to be fed a taco) 1 point is the difference between having a hard time breathing & not being able to breathe, AT ALL. #everypointmatters
My friend's 8yo son has met me a few times now. He always brings a hand written card with a flower. A few days ago, he declared to his mom that he wants to grow up and become a scientist so he can find a cure for #ALS. I swear, kids are angels in disguise.
I am so moved by @iamalsorg - a handwritten thank you note that acknowledges my grandmother who had #ALS. And thank you to @bsw5020 and @sabrevaya for the amazing work you do.
Explaining why #everypointmatters is difficult for me to do. I can't grasp having to justify the value of 1pt. Our lives are greater than 48pts We’re real people & we’re suffering. The value of 1pt is immeasurable w/ a disease of this caliber. Please hear us & help us. Video💙
Explaining why #everypointmatters is difficult for me to do. I can't grasp having to justify the value of 1pt. Our lives are greater than 48pts We’re real people & we’re suffering. The value of 1pt is immeasurable w/ a disease of this caliber. Please hear us & help us. Video💙 https://t.co/GKFyRPhkgr
At 5:30 PM today! PST CBS KPIX Channel 5 Bay Area News Will be airing a story on the awesome 2.5 Acre ALS Awareness message that Jason mowed into the field. It will also be posted on CBS National online news. #LouGehrig #EndALS ALS will not silence us.
This is NOT OK.
Real life human results should matter as much as the science. Matt is just one of many who had a clear improvement in quality of life due to #NurOwn. #ALS might take my life, but @FDACBER & @DrWoodcockFDA served it up on a silver platter. We deserve better. #DyingWaiting
Have you ever seen a life being destroyed by ALS? Their joy, strength & dignity stripped away, piece by piece…&there was nothing you could do to help. Watch this video, remember their pain & seize the chance to make a change. Sign & retweet: iamals.org/action/brainst… @RedHourBen
Have you ever seen a life being destroyed by ALS? Their joy, strength & dignity stripped away, piece by piece…&there was nothing you could do to help. Watch this video, remember their pain & seize the chance to make a change. Sign & retweet: iamals.org/action/brainst… @RedHourBen
.@strombone1 Many pro’s w/ ALS are @NHL #ALS is 100% fatal & 100% evil. We need access to life-extending medicine NOW. We are close to our GOAL but need an assist w/ a Retweet. TY! Jamie, longtime friend of DB22 Yes, I name dropped..I want to live! iamals.org/action/brainst…
. @Logancouture Many pro’s w/ ALS are @NHL ALS is 100% fatal & 100% evil. We need access to life-extending medicine NOW. We are close to our GOAL but need an assist w/ a Retweet. TY! Jamie, longtime friend of DB22 Yes, I name dropped..I want to live! iamals.org/action/brainst…
Please sign this petition. Please retweet this Tweet. Then share it on your FB and IG. Thank you!!
Please sign this petition. Please retweet this Tweet. Then share it on your FB and IG. Thank you!!
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