Autoimmune Chat @AutoimmuneChat
A patient led initiative bringing autoimmune patients together to share experiences, support and raise disease awareness. Join our #autoimmunechat community Joined February 2022-
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A cure for MS is synonymous with infinite possibility — whether it means increased mobility, an end to MS anxiety, or simply waking up in the morning pain-free. What does a cure mean to you?
Chronic Illness #TopicOfTheDay - OBESITY -
🌍 More than 200,000 people live with #lupus in Europe. 🚨 Some #SLE patients have physical disabilities due to the impact of symptoms like fatigue, joint pain, & organ involvement, that could make daily life and work challenging. #WorldDisabilityDay #IDPWD
Some critics have cartooned #MECFS as alternate science. Did you know that there have been more than 6,000 papers on ME/CFS published in peer reviewed journals and that one current and one previous member of the OMF Scientific Advisory Board are Nobel laureates? #MEAwarenessHour
A little Monday joy from @theAleppoCatmen
A little Monday joy from @theAleppoCatmen
*TRIGGER WARNING* Last night, Action for ME CEO Sonya spoke to BBC News Scotland’s The Nine programme about the impact of ME and the need to accelerate research. Sonya appears from 10 minutes in, watch here: bbc.co.uk/iplayer/episod…
So true.
El lupus es una enfermedad autoinmunitaria crónica y compleja. Los síntomas más comunes son cansancio extremo, erupción malar, inflamación de las articulaciones y fiebre sin causa aparente. Obtenga más información: bit.ly/lupusespanol #LupusEnEspañol
Chronic Illness #TermOfTheDay - COGNITIVE HEALTH - Source: nationalmssociety.org/managing-ms/li…
The relationship between autoimmune disorders and intracranial aneurysms in East Asian and European populations: a bidirectional and multivariable two-sample Mendelian randomization study buff.ly/3WmU9qN
Can you imagine having a disease where there is no treatment, no hope, little help and tons of misunderstanding? That's the reality of #ME #MECFS #autoimmunedisease
Can you imagine having a disease where there is no treatment, no hope, little help and tons of misunderstanding? That's the reality of #ME #MECFS #autoimmunedisease
Being diagnosed with #PsoriaticArthritis can be confusing and worrying. For someone who has just been diagnosed, it may raise a lot of questions about the condition. Do you have any advice you can share? Drop your tips below.
The injustice in terms of money spent on #pwME as well as autoimmune disease in general is appalling. We need change. We need people to care. #MECFS #DecodeME

theMSguide.com 🧠 @themsguide
6K Followers 5K Following I have had MS since ‘93. in May ‘25 I will ride 8000km across Canada to raise $1m for MS Brain Health. Follow it all on https://t.co/aHXj0R1KWe 🇬🇧+🇨🇦
MS Patient, Dana @Chalenging_MS
3K Followers 2K Following I was formally diagnosed with #MultipleSclerosis in April 2006. In hindsight I now realize I've been experiencing symptoms since 1988.
@msawarenessindy.bsky... @MSawarenessIndy
7K Followers 7K Following 71 year old male with advanced SPMS - *I’m not a doctor or expert on any health topic! *Please read pinned post* @msawarenessindy.bsky.social I rarely read DMs
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Eating Lemons @Eatinglemonsblg
1K Followers 608 Following Mom, lawyer, coffee lover, Seahawks fan, recently diagnosed with MS 🧡, vegan-ish, blogger. #ms #multiplesclerosis
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Neuro Sjogrens @NeuroSjogrens
3K Followers 950 Following 🔎 Search this profile for topic info. Neuro damage is prominent in Sjogrens. NeuroSjogrens/Sjogrens/chronic illness info posted. Advocacy, not med advice.
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Bev @TheMSKittylady
6K Followers 5K Following Ex Fitness instructor retired due to #MS but still exercising every day. Raised a fair few quid for research into neurological conditions. Love #Cats 😻😻
Jo @cfs_jo
4K Followers 2K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Proud “Anti-Recovery Activist” On justjo@bskysocial if X goes tu
Karen Clements @KagstheHedgehog
1K Followers 2K Following Wife, trained scientist, MS manager, optimistic exerciser, deluded wit and general enthusiast. I have a brain and I'll use it to the best of my ability!
Long Covid Advocacy �... @LongCovidAdvoc
14K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #pedanticzebra book club. 🛍️ https://t.co/8JlRWqxASF
Paula Knight @Paula_JKnight
6K Followers 4K Following Author Artist THE FACTS OF LIFE (Myriad) Kidlit books x3 author. Words and pictures. Disabled. Bedridden 7yr v severe M.E. IG: @paulajkstudio
Geoff Allix @GeoffAllix
2K Followers 2K Following Podcast host for @overcomingms. DX with MS 2015. Lemtrada since 2018. From Essex to Devon via London. #MS, #MultipleSclerosis @geoffallix on BlueSky He/him
Eileen Davidson - Rhe... @chroniceileen
4K Followers 2K Following Rants @CreakyJoints Blog https://t.co/ghdlGYZy4h Patient Advisory Board Member @Arthritis_ARC Staff @IfAiArthritis
Deborah @FakingWellness
1K Followers 611 Following Lover of Dogs, 40s/50s era, books, upcycler, football, snooker. Living with Coeliac. RRMS dx Nov ‘22
Alisontomyradioooo @arisonsned
3K Followers 5K Following @arisonsned.bsky.social Cat and Dog botherer. YP counsellor retired. Want my bike and my health back 🩵
Joel Nelson @joelvsarthritis
2K Followers 574 Following Award-Winning Advocate | Founder of Psoriatic Disease UK (@psororg) | Host of Chronic Pain Club Talk Show & The Joel Nelson Podcast
Kathy Chester- podcas... @kchester1991
1K Followers 2K Following I am The owner of MS disrupted a program to help all auto immune especially MS patients Who is their bodies with exercise in a safe way.
Pam Swint @PamelaSwint
597 Followers 395 Following Putting the trophy in atrophy. PPMS dx Feb 2020. Fentrepid clinical trial June 2022 Online moderator @mssociety District Area Leader @msactivist
Jason Shupe @JasonShupe619
39 Followers 31 Following
Wendy Trejo MD., MSc. @md_wentrejo
427 Followers 947 Following Mexican🇲🇽|Doctor 👩🏻⚕️@anahuac |World Thrombosis Day supporter ❤️💙#WTDay19 #DVT #SAFp #APS #Thrombophilia #G20210A |Opinions are my own💬✍🏼
Kaleidoscope Fighting... @Kaleidoscope_FL
4K Followers 3K Following We educate the public and the medical community about lupus, to push for earlier, life-saving diagnoses for those afflicted, and to spur funding for a cure.
Myasthenia Gravis New... @MyastheniaGNews
522 Followers 287 Following Your source for myasthenia gravis news, support, & real stories from the community. Let’s raise MG awareness together!🎗️ https://t.co/tHf7Km2IFh
Terrible Quality Meme... @BadQualityMemes
6K Followers 5K Following DW fan page. I make bad memes to make myself laugh and I cut out a lot of heads. Some I make, some I take. $TerribleMemes
Paula @paulateamenceph
945 Followers 7K Following I support @encephalitis International & @ocdaction @epilepsyaction volunteer & #OCDAdvocate, @cbituk, Global #EncephalitisAwareness #OCDAwareness.
Stydeson @stydeson25947
16 Followers 490 Following
Hank @Hank73383303
95 Followers 2K Following
Jo @jojoluna1972
2K Followers 3K Following Just an academic. I am interested in Teacher Education, Languages, Multilingualism, equitable outcomes and representation in education. All views are my own.
Kevin Lee @KevinLee23
17K Followers 865 Following Fox Sports & NBC Sports - INDYCAR/IMSA SportsCars/College basketball + “Trackside” on 107.5 The Fan Indy
Terri @stevens3terri
285 Followers 3K Following
Caroline Kahn @kahncaroline
29 Followers 466 Following
Shelliebelly @Shelliebelly5
273 Followers 470 Following Follower of Jesus, Wife, Mom, Dog Mom, Pr 12:10, Rev 7:10-11, Ps 46:10, #Adopt #Autism #Volunteer #2ndAmend #Rescue & Adopt Animals #Justice4J6 #freetinapeters
Jamie Nicole, Certifi... @HEALCoach
267 Followers 497 Following I help women identify their #autoimmune triggers, empower them to take control of their bodies, and gain freedom through Healthy Eating and Active Living.
More Than Lupus @LupusMore
2K Followers 827 Following More Than Lupus is a patient focused nonprofit run by Kelli Roseta aimed to amplify the patient voice through lupus advocacy, support, and patient education
Mari Mercado @Mercad28990Mari
3 Followers 133 Following
PearlyMay17 @PearlyMayJSqrl
335 Followers 1K Following MAGA patriot, dork, animal lover, Sjogren's\ Ehlers-Danlos\MCAS\ POTS warrior. NCSWIC!
Laura Athié @lauraathie
1K Followers 1K Following Madre de Abril, nieta de Menille, emigrante libanesa. Investigo desde las humanidades y trabajo en favor de los DH del LES. Fundé @CetluLupusMex y @Lem_Mexico
Mahmoud @BMAEMDPHD24
417 Followers 4K Following Young Internist - Main focus : Rheumatology, Cardiovascular diseases🇩🇿 🇧🇫 | #VEXAS #EGPA #Amyloidosis #Histiocytosis #HLH #IgG4RD #Sjögren #SLE #IgG4RD
Susan Jones @SusanJones1731
3 Followers 74 Following
Sjogren's Woman @SjogrenWoman
22 Followers 85 Following #chronicillness #chronicpain #autoimmune #sjogrens #diabetes #hypothyroidism #migraine
Laura Leifman @LauraLeifman
21 Followers 83 Following Communicates infectious disease, allergy & immunology research at #NIH @NIAIDnews. @theNAMedicine alum. Views = my own.
PickYourPoison @BirdieBeep
4 Followers 131 Following
Susannah’s Kitchen @susannahsaville
23 Followers 14 Following YouTube Cooking channel with 740+ videos & 22k+ subs. ORDER my NEW “4 SEASONS Ninja Foodi Recipes” cook book NOW ⬇️
Melissa Mazur @PhillyPhile215
2K Followers 4K Following Just a Philly girl, livin' in a lonely world…and a Luddite learning to Twitter. #LongCovid since March 2020 || Lawyer on Pause
Atlantis Gemstones @tiggyann
1K Followers 4K Following Gemstones, fossils, lapidary, jewelry, MONTHLY CONTESTS
PublishNation @PublishNation
589 Followers 2K Following We provide easy and affordable self publishing, marketing, and editorial services for writers.
Julie @juliechilders29
152 Followers 2K Following
Yuki&Bruno @AdvoCats4MEcfs
108 Followers 160 Following We’re 2 rescue cats on the prowl to bring recognition & research for our human friends who suffer the neglected illness #MEcfs #AdvoCats4MEcfs Dogs welcome.
A Chronic Voice @AChVoice
18K Followers 15K Following I share #ChronicIllness, #ChronicPain & #disability info fr VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #MentalHealth
Penny Layne @Penny_Layne28
288 Followers 616 Following Common sense seeker, southern girl, history junkie, standing up for women and freedom! 🚫MAGA CULT! #saveourdemocracy #felon47 #voteblue💙
Mimi Babz @Baezimimi
56 Followers 367 Following passionate about any topic related to nutrition, health, politics, history and many more. Joined X a bit late because I am a full busy moma! 🇨🇦
Jesus Guillen, Advoca... @LNGTERMSURVIVOR
1K Followers 1K Following #yoursingingadvocate #hivlongtermsurvivors International Network founder. T-shirts available. #HIV/AGING/ChronicPain independent consultant. #Singer/songwriter
The Invitation Docume... @invitationdoc
1 Followers 4 Following 'The Invitation' documentary is an offering to those who have auto-immune disease to take control of their lives and ultimately thrive.
Dr Nikki Tugnet - Rhe... @yogadoctornikki
112 Followers 339 Following Rheumatologist + Yoga Medicine® Therapeutic Specialist | Lupus researcher | I help you ⬇️ pain, stress & autoimmune inflammation | Views are my own
EDK @Mother_K14
112 Followers 930 Following She/her. Offspring of a plane spotter, mom, goth, still believe in humanity. I drink a lot of tea and love books. #fibrowarrior #spoonie. 🖤👽🐈🏳️🌈🏳️⚧️
Global ReumaPedia Uru... @GlobalReumaped
139 Followers 612 Following Que tu enfermedad, no te defina Info sobre #enfermedadesreumáticas en niños/as adolescentes. Reumatología Pediátrica Uruguay 🇺🇾 #AIJ#Lupus #DMJ #uveitis
Autoimmune Collaborat... @AutoimmuneColl1
32 Followers 110 Following waiting for medical community to unite against autoimmunity, #autoimmunologist? fascinated by research due to covid/#longcovid. long covid pt since Mar 20
Jules @julesjer213
12 Followers 655 Following
Lawrence Tee @LawrenceTee
1K Followers 4K Following To Care, To Share, To Be There: Your Health,Your Financial Security, Your Online Global Presence Let's Connect today!
Jane May @janemay2015
1 Followers 28 Following
ZoiAn @ZoiAn2
405 Followers 569 Following A curious person; a vasculitis expert patient; a vasculitis awareness voice. Love and respect is my religion. Expressing personal views. #vasculitis
Sarah Schafer MD MPH @SarahSchaferMD
4K Followers 2K Following See Sjogren's Advocate, @sarahschafermd.bsky.social. I combat Sjogren's myths to improve diagnosis and care for this serious, systemic disease.
Shift.ms @shiftms
18K Followers 3K Following Get support, find answers, make decisions 💚 Download our free app 👇
Rachel Horne @RachelHorne19
7K Followers 4K Following Journalist with MS, Honorary Research Fellow @QMUL, set up Rachel Horne Prize for Women's Research in MS, Co-chair @DeNPRU-QM’s patient/public engagement group
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Laurent ARNAUD @Lupusreference
19K Followers 652 Following MD, PhD | Professor of #Rheumatology | #Lupus #SLE | #Digitalhealth | @SLEuroSociety | @ERN_ReCONNET Disease Coordinator for Lupus & Polychondritis 🇪🇺
theMSguide.com 🧠 @themsguide
6K Followers 5K Following I have had MS since ‘93. in May ‘25 I will ride 8000km across Canada to raise $1m for MS Brain Health. Follow it all on https://t.co/aHXj0R1KWe 🇬🇧+🇨🇦
MS Patient, Dana @Chalenging_MS
3K Followers 2K Following I was formally diagnosed with #MultipleSclerosis in April 2006. In hindsight I now realize I've been experiencing symptoms since 1988.
S Blitshteyn MD, FAAN... @dysclinic
21K Followers 2K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
PwME 4 bioMEdical res... @ValeBodi
4K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
@msawarenessindy.bsky... @MSawarenessIndy
7K Followers 7K Following 71 year old male with advanced SPMS - *I’m not a doctor or expert on any health topic! *Please read pinned post* @msawarenessindy.bsky.social I rarely read DMs
Bea is Chronically Pe... @Be_Kinderr
10K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Eating Lemons @Eatinglemonsblg
1K Followers 608 Following Mom, lawyer, coffee lover, Seahawks fan, recently diagnosed with MS 🧡, vegan-ish, blogger. #ms #multiplesclerosis
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Christoph Ströck @cstroeckw
8K Followers 605 Following Soon, people will look back in disbelief at what has happened to patients with ME/CFS | Godspeed 🙇🏼
Neuro Sjogrens @NeuroSjogrens
3K Followers 950 Following 🔎 Search this profile for topic info. Neuro damage is prominent in Sjogrens. NeuroSjogrens/Sjogrens/chronic illness info posted. Advocacy, not med advice.
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
ME/CFS News @MECFSNews
14K Followers 687 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Bev @TheMSKittylady
6K Followers 5K Following Ex Fitness instructor retired due to #MS but still exercising every day. Raised a fair few quid for research into neurological conditions. Love #Cats 😻😻
Jamie Nicole, Certifi... @HEALCoach
267 Followers 497 Following I help women identify their #autoimmune triggers, empower them to take control of their bodies, and gain freedom through Healthy Eating and Active Living.
PearlyMay17 @PearlyMayJSqrl
335 Followers 1K Following MAGA patriot, dork, animal lover, Sjogren's\ Ehlers-Danlos\MCAS\ POTS warrior. NCSWIC!
Han 🖤 @spoonfulofhan
8K Followers 1K Following Hannah • LC • POTS • Hashis • Epilepsy • ME/CFS • Mental Health Awareness • 🇵🇸 🏳️🌈 My small business is below ⬇️
Cetlu México @CetluLupusMex
175 Followers 84 Following En Cetlu buscamos fortalecer la toma de agencia por parte de las personas con lupus; impulsar políticas públicas; sustentar la equidad discursiva.
Laura Athié @lauraathie
1K Followers 1K Following Madre de Abril, nieta de Menille, emigrante libanesa. Investigo desde las humanidades y trabajo en favor de los DH del LES. Fundé @CetluLupusMex y @Lem_Mexico
Mahmoud @BMAEMDPHD24
417 Followers 4K Following Young Internist - Main focus : Rheumatology, Cardiovascular diseases🇩🇿 🇧🇫 | #VEXAS #EGPA #Amyloidosis #Histiocytosis #HLH #IgG4RD #Sjögren #SLE #IgG4RD
Laura Leifman @LauraLeifman
21 Followers 83 Following Communicates infectious disease, allergy & immunology research at #NIH @NIAIDnews. @theNAMedicine alum. Views = my own.
Melissa Mazur @PhillyPhile215
2K Followers 4K Following Just a Philly girl, livin' in a lonely world…and a Luddite learning to Twitter. #LongCovid since March 2020 || Lawyer on Pause
Mitodicure @mitodicure
2K Followers 64 Following Start-up with the mission to cure ME/CFS and Fibromyalgia. Follow us on LinkedIn: https://t.co/KrQ7qyxX0f
EDK @Mother_K14
112 Followers 930 Following She/her. Offspring of a plane spotter, mom, goth, still believe in humanity. I drink a lot of tea and love books. #fibrowarrior #spoonie. 🖤👽🐈🏳️🌈🏳️⚧️
Autoimmune Collaborat... @AutoimmuneColl1
32 Followers 110 Following waiting for medical community to unite against autoimmunity, #autoimmunologist? fascinated by research due to covid/#longcovid. long covid pt since Mar 20
Emma Vardy @emmavardy2
6K Followers 1K Following Geriatrician #frailty #delirium @emmavardy2 on bluesky.
Larry Weis @LarryWeis7
767 Followers 2K Following #ME/CFS,#SFN,#Dysautonomia Owner-Commercial Insurance Agency
Lou Cromie @LouC_Inclusion
271 Followers 1K Following Sharing my personal journey as S&NI Region & SES Wing Inclusion Advisor in RAF Air Cadets, all views are my own (she/her)
Alanna | Where Are My... @wampillows
792 Followers 956 Following 🇨🇦🇺🇸 autoimmune encephalitis survivor 🧠 rare disease patient advocate
Mette Dyhrberg @metamette
2K Followers 708 Following Serial entrepreneur. Investor. Founder @mymeehealth Rethinking autoimmunity. Chairwoman @HealthtechhubC
Jacqueline Hall @jallisconfused
163 Followers 1K Following Living my life with 4 autoimmune diseases. Love watching and keeping up with true crime and #pyschology subjects and easily falls down the rabbit hole
Thrive Rare @BeckyTilley84
15 Followers 26 Following Author | Advocate for Embracing Uniqueness 💜 Let's journey together towards self-discovery and self-love! #embracinguniqueness #thriverare #selflove
HESA Online @hesaonlineinfo
2K Followers 3K Following 𝙋𝙧𝙤𝙫𝙞𝙙𝙞𝙣𝙜 𝙥𝙖𝙩𝙞𝙚𝙣𝙩 𝙨𝙪𝙥𝙥𝙤𝙧𝙩 𝙩𝙤, 𝙥𝙪𝙗𝙡𝙞𝙘 𝙖𝙬𝙖𝙧𝙚𝙣𝙚𝙨𝙨 𝙤𝙛, & 𝙢𝙚𝙙𝙞𝙘𝙖𝙡 𝙧𝙚𝙨𝙚𝙖𝙧𝙘𝙝 𝙛𝙤𝙧 𝙃𝙀/𝙎𝙍𝙀𝘼𝙏 & 𝙎𝘼𝙀
Gemma Chandratillake @GemmaChand
1K Followers 718 Following Genetics, genomics, genetic counsel(l)ing, generally waxing helical Work for @east_genomics and @Cambridge_Uni Vice-Chair @BritSocGenMed,Trustee @camraredisease
KT @sick_but_trying
38 Followers 90 Following Trying to spread awareness & be a resource for those with rare diseases & chronic illnesses.
Lupus Lone Star @LupusLoneStar
2K Followers 1K Following The Lupus Foundation of America, Lone Star Chapter services over 200 counties in Texas, aprox 80 percent of Texas, advocating for lupus patients!
Caring For Lupus @CaringForLupus
4K Followers 794 Following Passionate about improving Lupus Awareness; Co-host of #LupusChat (Sun. 3pm EST) - #Lupus #LupusWarrior #LupusAwareness #KearnyCares #BerkeleyAlumni #PinkSocks
Lupus Research @LupusResearch
48K Followers 951 Following The Lupus Research Alliance is the world’s largest private funder of lupus research. Together with your help, we will conquer lupus.
PTC Therapeutics @PTCBio
2K Followers 298 Following PTC is a patient-centered biopharmaceutical company focused on discovering, developing & commercializing medicine for patients with rare disease
MyPsoriasisTeam @MyPsoriasisTeam
3K Followers 734 Following The social network for those living with #Psoriasis and #PsoriaticArthritis. Find support from others like you. Join our 50,000 members! #arthritis
Amanda Kearns_PH rese... @AmandaKearns67
100 Followers 754 Following Nutritionist & PhD Researcher UU | Health Enterprise Co-Founder | Exploring tech & healthcare with a human touch | Entrepreneurial spirit in academia 🍀
Gill Keast @GillKeast
24 Followers 382 Following
Stumbling Duck @DuckStumbling
178 Followers 619 Following
Walter J. Koroshetz @NINDSdirector
7K Followers 302 Following Official Twitter account of NINDS Director Walter J. Koroshetz, M.D., part of @NIH. RTs are not endorsements. Privacy Policies: https://t.co/AlUPqyclot
Joan McParland MBE-Ne... @JoanMcparland
559 Followers 510 Following 1999 Sudden-onset-virally induced Myalgic Encephalomyelitis. IT instantly removed ability to care for my family, took career too. Life remains mostly horizontal
ChronicIllnessHumor @HumorChronic
5K Followers 2K Following https://t.co/b2LRFsTRox https://t.co/QSzrqdhVhT #chronicillness #autoimmune #funny
Alvaro Hermida @Info_Rares
2K Followers 1K Following Specialist on Metabolic Diseases and always looking on the bright side of life.
Lisa Segel @Lisasegel3
643 Followers 1K Following human rts advocate, animal rescue/rehabilitation, attorney - employment law, discrimination, healthcare law (ret.) 💙💙 🌊 #ME, #SFN
Sjögren's Ireland @SjogrensIrl
588 Followers 282 Following (SHOW-grins). Voluntary organisation advocating for those living with Sjogren's in Ireland. Advocacy, education, community. Contact: [email protected]
Lucia Martin-Gutierre... @luciamg21
573 Followers 971 Following Rheumatology Senior Research Technician/Research Coordinator at UCL/UCLH. Investigating Sjögren's syndrome, interested in PPIE and Science Communication.
Dr Anna Briochette @AZebress
1K Followers 1K Following Retired specialist physician. #MedEd. Too many illnesses incl #EDS #Sjögren #CVID #HKPP. Apparently I’m a "Walking medical textbook". Isn't that fun. #NEISVoid
Lindsey 🇨🇦🩵 @linds_longcovid
3K Followers 2K Following #LongCovid #MECFS #pwME #POTS #chronicillness since 01/22 💔 36 • Cat mom • Dancer • Empath • Music • Former MUA💄 Web/UX Designer 💻
Patty Long @MSenIt4life
2K Followers 967 Following Diagnosed w/ #MS. Lost my legs, arms, core, ability to think & more. Now, I'm building a new life. I'm Retraining Connections...Successfully! I am a MS Warrior!
Autoimmune CAR-T @Car_T_cells
561 Followers 1K Following CAR-T , CAR-NK cell therapy, BiTe #TCEs for autoimmune illness. #HealthSpan #Longevity Neuro #Sjogrens #dysautonomia #POTS awareness
Dr. Bexi @bexiphd
260 Followers 144 Following Sjogren's (SHOW-grins) skin care & more. Revitalise your skin from the outside in and within w/Bexi's, everything your skin needs, and nothing else.
Dr. Robert M. Califf @DrCaliff_FDA
11K Followers 42 Following Husband, father, grandfather. Doctor with heart(s). Commissioner of Food and Drugs - @US_FDA This account has been archived.
ForkYouMS @ForkYouMS
692 Followers 539 Following Taking the fight to MS, living your best life through DMT, Diet, Exercise, & Mindset. I hope to help and inspire others on their MS journey.
SEDSConnective @SEDSConnective
6K Followers 3K Following Charity for Hypermobility EDS / HSD NEURODIVERGENCE ADHD Autism Dyspraxia TS Dyslexia Chair/Founder Jane Green MBE @JGJanegreenMBE Patron Dr Eccles @Bendybrain
Faithless @FaithOxenbridge
3K Followers 3K Following Tired of defending my reality. Vax induced ME (still pro Vax) Bedbound. Not tired; sick. Used to write & teach. Here for the research and outrage.
DecodeME the ME/CFS S... @DecodeMEstudy
8K Followers 674 Following The world's largest study ever into #MEcfs. #pwME #DecodeMEStudy #pwME #MillionsMissing